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Good news for a Stage 2 and a Stage 4
After a routine mammogram in late Dec, I was diagnosed with Stage 2 T2 N0 M0 highly aggressive Triple Negative BC. From Jan til June 5 I was on chemo. On Thurs.June 28 I had a lumpectomy and the initial path report looked good. Last Sunday (!!!) my surgeon called to tell me he had checked the computer for my final path…
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Let's lighten things up a bit for a moment, shall we?
EC is truly a beast, as many of you are wont to say on this forum. I am so grateful for all that I have learned from you all in just the short time that I have had the privilege to be here. My guy, Dave, who starts treatment next week, is an excellent lead guitarist in a band. He just plays for fun, has a real "day job",…
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FOR EC CAREGIVER
Hi I read your post and just wanted you to know how happy I am that your husband is still cancer free. That is wonderful. I am sorry to report that the VA has done NOTHING to help any of us with regards to EC. I have other friends on this site and other sites trying to get EC listed as a presumptive cancer for agent orange…
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DX 4-12 going to Mayo on 7-23 for surgery.
I'm 55 Stage II no lymph involvement per pet scan. Going to Mayo in Rochester MN. for surgery. Chemo and rad were pretty tough on me, but I'm hopeful. I don't have any support here in NW Ia, as I moved here from Ann Arbor a few years back. Is it possible to be on my own after surgery? My insurance company is trying to deny…
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To all of you touched by the Ec Beast
Hi My name is Barbara and I have been on this site approx 2 years. Many of you know me especially Sherri, William and Loretta , Paul61 , Sandy 1943, Tina B, Cindy Collins and a few others. I lost my husband Vince on Feb 23, 2011. He had the MIE on Feb 25th of 2009 and lost his battle 2 days short of 2 years. Vince was…
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Question about Scans
Hello All I am scheduled to see my Thorasic Surgeon this week and the only scan he has scheduled is a chest scan. What type of scans are typical to check for reoccurance, or hopefully NED? A chest scan doesn't really seem very thorough to me. I appreciate all and any input. It has been almost one year since my surgery.
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Question about chemotherapy
Hello everyone, Well we are getting closer to getting started on treatment. Dave was at Hopkins on Friday and had his radiation simulation done. We are still waiting on the tumor identification to see if he'll be in a clinical trial and what meds he'll get. As of now, radiation starts Tuesday July 17th, and I assume chemo…
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Sneak peek at Don's CT results
Hey Everyone!!! This morning we got a 'sneak peek' at Don's CT results and the report sounds VERY good - as in NED good!!! Don has been having pains in his abdominal area for the past couple of weeks and finally yesterday it got so bad that he asked for pain pills left over from chemo and rads. He only took one pain pill…
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home from hospital
Got home 6/30, in my lazyboy liofe is good. The path report shows NED THANK THE LORD!!!I want to thank everyone for all the positive prayers and thoughts. I feel good and want to sing praises to the dr orringer for the blessed resulta. The best three letters in the n english language NED1111 pHIL DIANNE
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It is not Don's gallbladder
Well Shoot Turns out that it is not Don's gallbladder and they have ordered another CT scan for tomorrow morning. Today he has to drink some nasty stuff for bowels which haven't moved in 5 days. He had the pain in his abdomen prior to the bowel issue so though that sure isn't helping the situation any, it is not the cause…
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Maybe an ulcer?
I will just copy what I wrote to Loretta (I am tired an too lazy to start all over again) Here is what we found out today about Don's pain: Hi Loretta: I am going to write this reply in word because it might be lengthy and lately I’ve had issues with writing something then having it go into the big black hole never to be…
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Had MIE and spent 35 days in hospital. Finally home and on liquids.
I went in for surgery on May 15, 2012 and had a few snags and spent 35 days in the hospital. The Dr.s said that my stomach was not responding. It collected over a liter of fluid in my chest and almost tore loose. I am finally home and am eating full liquids. The surgeon did say that there were some live cells still found…
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gene research article
I hope you can click on this if not, copy past into the URL http://www.newswise.com/articles/following-the-genomic-pathways-to-stop-the-spread-of-cancer Cora
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Stent Done-Blood Vomits-What is next step?-Safe Surgery?-
My father's esophageal stent has been placed yesterday. He had blood vomits this morning. Is it normal after stent placement? After receiving your responses that he may be a candidate for surgery, I asked many doctors but most of them are not willing. for a quick reference of my daddy's history I am writing here again:…
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A word of encouragement
It has been a while since I have been on the boards here but I wanted to update folks to give a little encouragement. I was initially diagnosed with EC in September 2009. I had chemo/radiation and everything looked good. In May 2010 EC popped back up and I had an Ivor Lewis in June 2010. The result of the surgery was that…
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Blood Plateletes
So... my dad's blood platelets are SUPER low according to his oncologist. Low as in the low 40's. What can we do about this? Is there anything any of you would recommend? Also, has anyone had any issues with blood clots? The doc recently did an ultrasound of Pop's leg and low and behold... ANOTHER clot. Not severe enough…
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new here trying to get ready for the ride of a life time.
Hello everyone just found out that I have Esophageal Cancer, Will see my cancer Dr. this coming Friday. The Dr. that found it. Did say it is not good, will be a long road ahead of me. Now I will be laid off at the end of July, no job will have insurance Until next April. I am a former USMC going to try and get on VA going…
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diareha associated with feeding tube,
What can I do to control diareha when using a feeding tube? Medicine does not seem to work. He is on 2cal with pump. 45 an hour. What can I do? Please help my dad.
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Don had first post op CT scan last Friday
Hi All- Don had his first post op CT scan last Friday (6/22). We are scheduled to meet the Med Onc on July 6th. We have also chose not to call early for the results. The last time we called early for the results which was right after surgery - the news wasn't very good if you remember. I am hoping that no news will be good…
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I'm almost afraid to ask, but...
Hey folks.... Some of you know me and my story. Others not, but I've been here for a while and am planning on being here for a loooong time. If all goes well. Tomorrow I get the results of my latest PET/CT scan. At this point an all clear would put me at 3 years survival, a goal that I will officially mark on July 7th (my…
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New Research on Barrett's
http://www.newswise.com/articles/study-reveals-origins-of-esophageal-cancer-new-understanding-of-fastest-rising-solid-tumor-in-u-s
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A scary question but need to know..
This is the latest from Kathy: Pray for ray, he has not been feeling as good as he wants..his liquid diet is not satisfying to him..we have everything on that diet but he says it's not filling...keep praying The doctor said that the opening for Jr to get anything down is so very narrow, that only clear liquids can get…
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I am a new Member 47 Yr Old Woman-6 Mos Post MIE
Hello All. I joined earlier this month and have been following many of your journeys and I can't even begin to express how grateful I am to have all of you "out there" so very willing to share both your own personal stories as well as your knowledge. I am a 47 year old woman (I was diagnosed at 46) who has never smoked and…
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Surgery
Hello everyone, I am new to all of you, but you are not new to me. I have been reading posts here for the last several months. Some of you may remember my daughter ALex who posted a bit back in the fall of 2011. I think what raised the ire of many on this site PTom is that you mentioned that the doctors told you , you…
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Doesn't look good for my brother
This is from Kathy: Pray for ray, this has been I think the hardest time for my husband..we are home finally but he has a long road to get back in shape..the food he has consumed has remained lodged in his esophagus with his tumor..he has lost a tremendous amount of weight which he cannot afford....he is so very weak..this…
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And off we go...
Hello everyone, I just wanted to update you on how Dave and I fared at Hopkins yesterday, and what we have decided. First, we were blown away by the compassion, knowledge and expertise of the doctors and clinicians on this team. They truly are some of the countries' brightest and best, and we feel blessed to literally have…
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bone mets
i was wandering if anyboby had talked about esophageal cancer bone mets growth rate. do they grow fast? what are signs they are getting worse? i no the doc must have told us these things, but i was so numb and in disbeleive of what he was telling me i just did not get it. i am starting to have pain in my shoulder blade…
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Please take heart and listen to those who know
There are some wonderful people on this site who know what they are talking about regarding EC and its treatment. I am so fearful that some newbies may listen to the advise of unqualified people who are telling them what to do and what not to do. EC is a vicious monster that shows no mercy. I can attest to that with all…
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bone mets
i was wandering if anyboby had talked about esophageal cancer bone mets growth rate. do they grow fast? what are signs they are getting worse? i no the doc must have told us these things, but i was so numb and in disbeleive of what he was telling me i just did not get it. i am starting to have pain in my shoulder blade…
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Chat
Does anyone here frequent the Chat Rooms? I've been in there twice now and it's really convenient to have my questions answered immediately. Just curious if anyone has used them from the EC Forum. I would like to chat more often and even get my dad to chat with other survivors about any questions or concerns he may have. I…