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Tamoxifen
Hello, I wanted to ask for your help. My 87 year old mother has had esophageal cancer for almost 2 years. When she was diagnosed she was told that the cancer had spread outside of the esophagus to multiple lymph nodes. So she has been receiving palliative care. She had radiation once (for only 3 weeks) and received chemo…
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Pressure following surgery?
My dad had a total gastrectomy and partial esophagectomy at the beginning of August. He was in the hospital for ten days and then came home for a few days before he came down with pneumonia and they found a leak between his esophagus and small intestine. He was in the hospital for another 3 weeks and finally came home…
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Metabolomics
metabolomics is the "systematic study of the unique chemical fingerprints that specific cellular processes leave behind" Urinary metabolomics identified discrete metabolic signatures that clearly distinguished both Barrett's esophagus and esophageal cancer from controls. The metabolite expression profile of esophageal…
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So many new people; so many unusual circumstances
I read the posts with the idea of offering some personal experience information as a caregiver, but I am overwhelmed. There are so many new Stage IVs or Stage IIIs with complications. Some are not getting the protocol I understand to be the latest approach, and I don't understand why. Sometimes I think I read that the…
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Alternative Esophageal Cancer Sites
Hi, friends. I guess posting about alternative sites for information is not within the purview of acceptable postings. It is even possible that those who advocate such postings are no longer permitted to post. As we are all family here, there is nothing worse than a family disagreement. This site is invaluable. The other…
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Please Help
Esophageal Cancer HELP My Husband was diagnosed at (T3 N1 Mo) in August tumor at GE junction 2.8cm inoperable he finished chemo Oct-22 and 28 rounds radiation ending November 2 on one medical document he wrote T3NoMX and another he wrote T3N1MO when ask he said there is no way of knowing for sure if its X or O ??? Why put…
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Scan today
Paul had his first post surgery scan this morning. We get the results on Friday. Confident it will be fine but starting to understand the scan anxiety that I’ve been hearing about.
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Caregivers are special
I would like to say some things about caregivers, especially mine. Being a caregiver to someone who has cancer has to be one of the toughest things in the world. My caregiver, my husband, was absolutely the best caregiver in the world. It was truly a fact that I didn’t have cancer, WE had cancer. He was there beside me…
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Helena50 - We are moving you to the top so you don't get lost at the end of a string of posts
Helena50 Welcome to our little EC family. I am moving your post to the top under a new topic so it will not be missed at the end of a string of posts. You posted on Sun, 09/23/2012 - 5:35pm Need Answers My husband had stage one cancer three years ago. He had surgery to remove the esophogus and had his stomach streched to…
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Food Impaction
My husband had his esophagectomy at the end of May of this year. He had 3 scopes with dilation. The time before this scope he was having issues with swallowing food and liquids. After the last 2 scopes the Dr. seemed puzzled over the symptoms and how little he needed to dilate him. This past time he was experiencing food…
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Finally I get to share some GOOD news
PET/CT show no indication of recurrent cancer. It has been a lonnnng 6 weeks thank you to everyone. I will continue to follow the board and pray for everyone.
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mets
Is it possible to get mets in the fingers? Maybe Im just paranoid, I just noticed a lot of pain in middle fingers of left hand. I know there was no injury. I see med oncolsist Mon.. I just had pet because of enlarged nod by gastric pylorus. Thanks for all you do
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esphageal cancer recurrence in lung
Dx 7/2010 chemo/radiation THE 12/2010 NED till March2012 showed 5 nodes 2 in one lung 3 in other. Coughing bad they gave infection antibiotic med. July scan showed 1 node increase but all nodes less then 2cm they say to small to treat at this time. Do scan in Oct. Planned needle biopsy the doctors said to risky. Did lung…
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My mom died from EC 11/25/12
My mama died of EC last Sunday I spent her last week with her in a Hospice day and night until this disease took her. I watched her struggle like a fish out of water taking her last breaths. She died at 3:38 am I have woke up at 3:25 to 3:37 every morning since. I am severely depressed. I have no will to live. I just do…
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YOU MUST READ THIS....
Everyone should read this http://www.cancerisdead.com/ I am furious that this information is not given out the first time someone finds out they have cancer. It is absolutely IMMORAL for any oncologist to say , "Eat whatever you want" My husband has his second cat scan this Friday and right now he is looking very good..he…
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change of chemo
my husband diagnosed August 2012 with EC Stage IV with liver mets. had radiotherapy for tumour at base of esophagus which seems to be controlled and has had 3 lots of chemo for liver mets - cisplatin & fluorouracil (5FU). had a rescan on tuesday but appears tumours on both lobes have got bigger we could not believe it, my…
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Small Update JS50
Thanks, Thanks and Thanks! Lots of great people here!! Thanks to all!! Update: Today 9-25-12 EUS completed by Dr Dan Chiaccia Community north Indy. He mentioned stage 3 or T3 but did not have a N# or a M#. He did say it did not look like it had spread to any of the lymph nodes from his view on ultra sound. He did say the…
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struggling to stay positive
I have been watching this site and reading all the posts for about 2 1/2 years now. I have only posted a few times, but feel I need to start doing it more, due to needing support from others that are going through the same thing,. My husband was diagnosed 01/2010 with Stage III EC, we went through chemo, radiation,…
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TheraSphere treatment????
My husband, was searching the internet for 'the cure' and came upon TheraSphere therapy. I searched this site for any additional information, and found several mentions of it. Since the web site is not really set up for this kind of research, I was wondering if any of you have had any experience in this type of treatment?…
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surgery 4/2/2012, then chemo, then rad, pet shows 8mm growth
Went thruogh the hell of surgery then 6 weeks chemo, then 25 radiations given a month to heal from rad but got more sore as time went on.Dr did pet scan before we start my second round of chemo. Told me he was puzzled pet showed an 8 mm growth that was not on the scan in april but on my back rib. So wed we did a biopsy…
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Not again I hope!
I was diagnosed Sept 2010, went thru chemo and 35 hits of radiation with esophogetomy on Dec 21, 2010. Recovery was pretty uneventful and all my checkups have been good until three weeks ago when my gastro doc/EGD saw something and the biopsy results came back abnormal. Now I'm facing an endoscopic ultrasound and all the…
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What meds?
I take Protonix twice a day for reflux. I can't tell if it helps or not as I still may have an occasional problem if I sleep on my left side. No I do not have my bed elevated.
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Another Stage IV doing well
Hello Everyone, My name is Barrie and I am caregiver for my husband who was DX in Feb of 2011 as Stage 3b. We are at M D Anderson in Houston. He had chemo/proton radiation, then the big Ivor Lewis surgery in Sept of 2011. He is 74 and was released from the hospital on the 4th day. Learning to eat again was perhaps his…
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Suggestions for weight gain
My mom has recently went through treatment and continues to lose more weight. Besides ensure etc. any other suggestions for a high calorie liquid for her. the shakes are very boring.
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Remembering
At this time of year as we give thanks for our blessings, I want to remember the brave patients and family members dealing with EC. there are so many we have lost this year. I also want to remember our survivors who still fight on everyday. I miss the contributors who have been removed from this group. Such a loss to…
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Saying goodbye
I am saying goodbye to esophageal cancer sites...I hope I will never have a need to use one of these sites again. Thank you to all of you for following the story of my brother,and for your prayers and thoughts and support. My prayers will continue to be with you as you fight this ugly disease. rose
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Greeeaaat News! Renewed Hope for Stage IV
After my skull met this spring and the tumor recurring in my remnant esoph and in lymph nodes in my neck Fox Chase has given me the impression that they feel nothing more can be done for me. They said "The Cat's Out of the Bag" and let's just see how you do on the chemo. So I have been feeling that my luck had run out and…
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Colonoscopy after Esophagectomy
Has anyone had to have a colonoscopy after having an esophagectomy? Any suggestions on how to get through the gallon of liquid prep would be greatly appreciated. JoAnn
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Good scan results
Hi folks, I don't post on here very often anymore, but I wanted to share good news. My husband Jeff was diagnosed with T2N1M0 in May of 2011, he had chemo concurrent radiation thru July of 2011 and an esophagectomy on September 6 2011. He just had his 14 month scan and all is clear. We hope and pray for many more clean…
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Anniversary
Five years ago today I was told I had Ec. That day I thought I had been given a death sentence. I was beyond shocked.I thought it was a routine Endiscopy because my food had stuck twice. The waiting for all the test and staging was awful. It was stage three with three lymph nodes in the stomach. I didn't know how fortunate…