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Sad news
Tom has been in the hospital since Sat. after he fell. This is one of the many times since October he has been hospitalized. He lost a huge amount of weight and finally agreed to a feeding tube. He was fine this morning when I was there. I've been sick so talking on the phone has been the what we've been doing. I don't…
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Stomach slow to empty and procedure tomorrow to correct
I had my Esophogectomy Nov 14th 2012. When I had my leak test it indicated that my stomach was slow to empty and they would just follow it and see how I did. I continued to wean myself off of J Tube feedings and tried really hard to make up the calories with food I started with 7 cans of formula a night. As I was able to…
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Advice for a T3N2 patient
Hello Survivors: My fiance was just diagnosed with a T3N2 tumor in his larynx. We meet with the oncologist on Wednesday. The recommendation is to try chemotheapy to see if the tumor responds. If it does they will continue with chemotherapy and radiation. If the tumor does not respond he will have surgery to remove his the…
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Hi
Thank you for your answers. I wish you also all the best for your future and many, many healthy and lucky years (at least 80 years).
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1st Time Poster
I’m a long time lurker and first time poster. When I was first diagnosed with EC in November of 2011, my daughter introduced me to this site and I have found it to be very helpful and informative. The reason I’m coming out of the shadows now is I’ve noticed a lot of newbies to the site lately and I thought I’d make myself…
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New guy in town with chemo\radiology questions for my grandfather
Hello everyone. My grandfather was Diagnosed with stage II EC with a T3 tumor. I don't know much detail of anything else. He has finished chemo and finishes radiation this Wendsday. For the last 2 1/2, 3 weeks. He has been in absolute horrible stomach pain and has been going to the bathroom frequently. the first few weeks…
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gain weight
Hi, New member on board from Toronto Canada.T3N3 Diagnosed August 2012; after 9 weeks of Chemo; esophagectomy November 21st (75% removed); waiting for the second Chemo. I lost a lot of weight (orig. 200; now 123) and I have problem to start getting it back. I ha J-tube but had problem to use the formula (crumbs and pain);…
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Life Turns on a Dime
A Dear Coworker and friend of mine that was diagnosed with Stage IV Cancer in 2007 created a Blog about his journey through Esophogeal Cancer and although his battle was short (about 7 months), his recording of this journey was very uplifting and enlightening for me. I've attached the link to his Blog in case some others…
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what to do now?
my husband diagnosed in Aug 2012 with Stage IV EC with several mets to the liver has had 3 lots of Cisplatin/5FU chemo but rescan showed liver tumours have grown in size so we swapped to Taxotere chemo, recent rescan again showed liver tumours still growing and liver function tests not too good. Tumour markers are…
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Stage III and my update after surgery
Diagnosed in May 2012, T3N1MO, Was treated at MD Anderson in Houston. I did 5 1/2 weeks of combined Chemo and Proton Radiation (5 days a week) and completed that Sept 13th, 2012. Chemo was Xeloda (5FU in Pill Form) twice daily and Docitaxol once a week on Mondays. I waited until Nov 14th before I went through a modified…
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Newly diagnosed stage 4 Adenoesphogeal cancer; meta to lungs
Just found this site. Need support and info. Newly diagnosed. My first Oncologist was Dr. Doom and Gloom.My second Oncologist is Dr. Sunshine. I am so confused and scared. I live alone. (I have a cat I adore). The first oncologist was in a small town and had a non-USA medical degree. He told me one week that I had 6 months…
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Mayo clinic Rochester
I am curious if any longer term survivors have experience with mayo Rochester? I live in Iowa and was initially stage 3 with 7 lymph nodes involved. I had a second opinion at Iowa City. My initial chemo and radiation was done locally and successful THE surgery at Iowa City, but now I have 7 more lymph nodes involved which…
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Stage 4 Doctors say 10-14 months
My husband was cancer free as of 4/19/2010, October 2012 found spots, waited and then found more spots 11/26/2012. Did invasive surgery for a biopsy on 12/11/2012. On 12/18/2012 told it was EC and is in both lungs, and that there is no cure and inoperable, they have given him 10-14 months. He is doing chemo + chemo pills,…
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New to EC board but not to cancer.
Hi all. I usually post on the lung cancer board but a recent Barrett's Esophagus has me checking in here. For the last 26 months I have been dealing with lung cancer and the after effects of treatment. The last couple of days I lurked about here but tonight (this am?) I see the three top posts mentioned Barrett's so I dove…
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Dad newly diagnosed in Boston
Hi friends, My 63 year old dad was diagnosed with stage IV esophageal cancer this week. It's been a roller coaster with Christmas and having to wait the extra days for results. He is in Boston and is being treated at the Dana Farber Center at Brigham and Women's hospital. Anyone have info on this facility? He is being…
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Chemo & Heart Problems
Hello, My mother who is 87 years old has been getting chemo for almost 2 years. Now the chemo has caused a new problem, namely, heart problems. The session before last she was given chemo (5 FU) in the morning. In the evening she had a fast heart rate (over 100 beats per minute). She slept without telling me of the…
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esophegus cancer survivors
Hello, my name is Julia. I am writing this to find out if we are alone in this journey. My husband was diagnosed in Aug. 2010 with stage 4 esophegus cancer that had already spred to his lymphnodes and liver. He is doing great and we don't know why. He had radiation in the begining and has chemo every week. Please let me…
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Melinda's Port Removed
Melinda's port was removed this morning. We arrived at the hospital at 6:oo am. Her surgery was at 8:25 am. She was discharged at 9:45 am. She didn't have any problems, although she has a nice 2-inch incision on her left shoulder. She rested/slept most of the afternoon, before having turkey, dressing and pumpkin pie.…
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Bailey1459's daughter
My mom used to post here for three years. Just wanted to let everyone know that someone who also used to post here, William Marshall, his wife Loretta who was a great contributor to this site was stricken with peritoneal carcinomatosis during the Thanksgiving Holiday. Her husband Bill is a 10 year survivor of EC dating…
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Newly diagnosed... best treatment centers?
Hello all. I am so blessed to have found this encouraging discussion site. My dad underwent an endoscopy yesterday after having trouble swallowing and weight loss for the last month or so. The specialist said he is pretty sure it is cancer and we will know the results by next week. Of course I have looked online about…
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SaraRoss we are moving you to the top so you don't get lost in the middle of a long post
SaraRoss posted on Thu, 12/20/2012 - 5:00pm Please share your journey My cousin was just recently dianosed with ec that met with the liver. I am looking for survival stories that can help give us some hope.
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Best Friend Fighting Stage 3 Throat Cancer
So my best friend was diagnosed with stage 3 throat cancer in the middle of my semester in school this fall. I live 3 hours south of her. It's really been rough. I have felt horrible about not being able to be there for her during this time so I've tried to be there in other ways. Sending her cards and trinkets in the mail…
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Planned CSN Outage
CSN will be down from 9 pm Eastern Time Thursday (tomorrow) until 9 am Eastern Time Friday getting a badly needed software upgrade. You will notice a few formatting changes and enhancements. Most importantly, site functionality should improve significantly. Regards, Greta aka Your CSN staff
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Follow up scans
So, we (my husband) had a stage 3 diagnosis in May, chemo and radiation May and June, a minimally invasive esophagectomy in August. The scan before surgery showed no active cancer, the pathology report after surgery showed no active cancer. They said come back in three months for another scan. That was last week, the scan…
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Taxol (Not Tamoxifen)
Sorry I posted the message below saying that my mother was going to receive Tamoxifen. But in fact she will be receiving Taxol. Does anyone have any info regarding Taxol. Hello, I wanted to ask for your help. My 87 year old mother has had esophageal cancer for almost 2 years. When she was diagnosed she was told that the…
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Thinking of all of you at this time
I am thinking about all of you, especially at this time of the year, some of you will remember me and the new ones will not. I lost my husband, age 56, to this cancer on September 15,2009, then my dear mother a week later on September 24, 2009. Although I do not post much on here anymore, I do occasionally get on and read…
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Where is William W. Marshall
I have not been on this board for 2 months. I noticed that William is not present here, something happened to him? My husband, diagnosed in December 2011 with adenocarcinoma of the esophagus, has just done tests, and we are a little disappointed. Tumor markers came out slightly higher. We have an appointment with CT in…
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My Idol/Best friend/Dad has passed
Just letting those of you that were kind to answer my questions throughout dad's struggle with Esophageal cancer that he has passed. After a cruel 12 months battle with this terrible disease he left us on the 12th August, 2012. We did remain positive all through his battle and never once thought that he wouldn't beat it, I…
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A long overdue Update on Dave
I wish I could write more positive news, but we are 10 weeks post-op surgery on Monday and STILL not home. Actually I can say that he is now out of Hopkins and in rehab, but I doubt he'll be home for Christmas. Dave has beat incredible odds and weathered post op complications that we never dreamed of, but he still has a…
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From Candace, Jimbo's daughter
Dad passed away last night. We are very sad, but at peace because he no longer has to suffer. He passed away peacefully at the hospice center with his family surrounding him. Thank you and everyone on the board for being so helpful and such an inspiration to him.