Caregivers are special

bingbing2009
bingbing2009 Member Posts: 177
in Esophageal Cancer #1
I would like to say some things about caregivers, especially mine. Being a caregiver to someone who has cancer has to be one of the toughest things in the world. My caregiver, my husband, was absolutely the best caregiver in the world. It was truly a fact that I didn’t have cancer, WE had cancer. He was there beside me every step of the way, never missing a single doctor’s appointment or chemo treatment. He would have gone to the radiation room with me if they would have allowed him. He never left my side when I had my surgery except when I was in ICU and they would only let him see me at visiting hours. He had a cot in my step-down room and stayed every night.

How he tolerated me at times, I honestly don’t know. I was not always the most pleasant of people. I felt sick from the treatment before surgery—couldn’t even stand the smell of a baking potato. I felt scared out of my mind right before surgery. I felt depressed post-op, when I began to wonder if I would ever come back from the Ivor-Lewis surgery. No matter what my attitude, he was always there, encouraging me, pushing me, making me get up and walk no matter how much I grumbled at him about it, getting me out of the house to just ride around. When I couldn’t sleep, he sat up with me. When I cried, he held me. And, yes, when I was acting like a total witch (feel free to start that word with a b), he just kept on hugging and loving me. When I finally managed to eat my first real meal and keep it down, he was my biggest cheerleader.

He screened my calls, dealing with everything from insurance to work issues. He kept up with my meds, of which there were tons. He kept up with my massive numbers of appointments. In short, he took the total load off my shoulders so that I could focus all of my energy on fighting cancer. To put it simply, he was my rock.
Sometimes now when I come home grumpy from a bad day at work or I just don’t feel my best, I take things out on him because he’s the only game in town, so to speak, but he never complains or tells me to shut up. No matter what happens in the future, I’ll never forget everything he has done for me. He is my life and my love and always will be.

As I said, caregivers are very special. I hope each and every caregiver is appreciated for all they do. I honestly can’t think of a tougher role.

Melinda

DX October 2009: T3N1M0
November and December 2009: chemo (Cisplatin and 5 FU) and radiation
February 2010: Ivor Lewis surgery

Comments

  • sandy1943
    sandy1943 Member Posts: 824
    #2
    My husband has always been a
    My husband has always been a jewel. Like you, I wasn't always the easiest person to live with when I was going through the treatment of Ec, but he kept right on taking care of me in spite of my actions..
    Even now after five years, he is still so protective of me (sometimes I think too much)We have been through a lot and I am so thankful I am married to such a loving, unselfish man. He made the journey so much easier because he walked every step with me.
    Sandra
  • GerryS
    GerryS Member Posts: 227 Member
    #3
    caregivers..............
    Let me speak on behalf of the caregiver wives. My wife is a very positive person. She managed to stay positive about my recovery even when it wasn't going well. She did have her times, but not in front of me. There was one time when I fainted and fell to our kitchen floor, (due to dehydration from chemo) that she was very worried about my recovery. I did recover. Things have continued to improve. I am nearing three year since diagnosis in Feb 2013. My caregiver provided the positive attitude, I continued to improve, the medical staff at Mayo did their job and the prayers and community support were invaluable. God Bless............

    Gerry

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