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Daughter seeking answers/advice - Mom diagnosed with stage III in October
Kind of a long post, so to summarize, my questions are: * What makes someone a candidate for surgery? My Mom is still very underweight (under 100 lbs at 5’6), has little to no energy, and when was diagnosed had an ~3 in long tumor almost completely occluding her esophagus (which we’re obviously hoping has shrunk now). Her…
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My mom has a new question???
What do you put in a J tube for feedings?
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My mother is newly diagnosed! Looking for best ENT/thoracic surgeon at MD Anderson Houston tx
Hello, my mother has been a survivor for 9 years of Squamous cell carcinoma in epiglottis! she began rapid weight loss that lead to biopsy and now it is back on the back wall of her larynx! We went to doctor yesterday and now he is saying high chance it's in esophagus. I would like to know what surgeons people would…
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3rd "Birthday"
It was 3 years ago today that I had my Ivor Lewis surgery. It has been a long, difficult journey—definitely a roller coaster ride. My life has been forever changed due to my esophagectomy in ways that only another person who has experienced EC surgery can understand. Having to sleep elevated, watching what I eat and how I…
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Newly diagnosed - looking for treatment center in Phoenix - any suggestions?
Newly diagnosed - looking for treatment center in Phoenix - any suggestions?
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Fighting for Dad
My name is Justina and I'm new to this site. My 55yo father was dx with Stage 3 EC 9/2012. We were told the tumor was 7.7cm and extended into the stomach. He has 2 enlarged lymphnodes and several small ones that have been affected but they say they consider all that localized. I had taken my father to the hospital in…
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In limbo, surgeon visit
Appointment today with Dr Mark Orringer. He is not convinced that all of the lymph nodes that lit up are cancer.He saidhe has never seen anything like this. The good news is they didnt wipe the surgery date off the calendar. Larry will have to have biopsy of trachea. If it is cancer no surgery, the nodes in the lungs are…
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RFA - Radiofrequency Ablation - Anyone have any information?
I do not post here much but come here often to read your posts and learn more about EC. I can't seem to bring myslef to actually write, not sure why? A little background - My sweet husband Rocky was DX October, 2011 with EC Stage IVB (mets to the liver and lymph nodes). Not ONE symptom other than fatigue, we would later…
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Yesterday is over dilation is OK
Hi, OMG what a day yesterday. We did just what you had suggested went to the surgeon. He checked everything out and all looks good. Now Jon is a big guy we do have one of those beds you know sleep nuber (very expensive). Anyway we have had it for a while. Jon was in a building colaps a few years ago so it helps his back.…
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Valentines - list of EC links and organizations
For Valentine's day, just a chip in the iceberg, but some information hoping to bring you some warmth, that you are not alone, and possible save you clicking all over the web. * There are organizations out there trying to help EC. * There are places were people impacted by EC get together. Including this discussion board.…
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Cremation
I'm donating my body to the University of Washington for medical students, or whatever. When they are done, they will cremate the remains, and then we have a choice of either having the "cremains" sent to the family, or they will be buried at a cemetery maintained by the UoW. So, that takes the cost down to practically…
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dialtion now asperating
Hi, Firefighter Jon had dialtion Friday (the day of the big storm). He did well and when he ate noticed a big difference YA! It took forever to get home snow,traffic and all. Jon ate good Saturday little but no trouble. Sunday OK. Then Monday night he asperated a little but brought it under control. Last night it was…
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Post Surgery Chemo and Herceptin
I have been a vistor to this site for a few months now but just today became a member. My husband was diagnosed 9/28/12 T2N0M0. He went through 5 weeks of radiation and chemo therapy with Carboplatin and Paclitaxel. He waited 6 weeks and then had surgery 1/8/13 for complete esophaectomy minimally invasive. He has exceeded…
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THE and pretracheal node question
Ok, I'm being a little impatient waiting for Thursday appt with surgeon. My question is does anyone know if the surgeon is able to remove a pretracheal node during a THE surgery? I have researched endlessly, and I know that he can remove other nodes during surgery, however dont know if this particular one that is 4cm can…
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Post EC surgery diagnosis of cancer in abdominal fluid
My father was diagnosed this summer (July 2012) with stage III esophogeal cancer. After three months of chemo & radiation, he underwent surgery this past fall (late-Oct) during which they removed 2/3rds of his espoh and 90% of his stomach. Margins were clear as were his lymph nodes so we were feeling very positive. It…
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Where is he?
I browsed this forum back last year when I was having some issues and everyone was so kind. I appreciate all the time and concern y'all gave me. I come back periodically to check on everyone and I've noticed that William hasn't posted in a long time. Is he ok? Thanks again.
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Update on Pet/Ct
Well this stinks...Larry's pet scan came back and we don't know what is going to happen next. We dont see the surgeon until next Friday. This may be the longest week ever.The pet scan showed that the main tumor has shrunk significantly. However he now has a 3cm lymph node in the trachea. Also lymph node activity in the…
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Haven't checked this board in ages
It's been a couple of years since I finished my treatment,radiation and chemo,Cisplatin and F5U...Just got another clean Pet/Ct scan,NED since treatment ended..I was staged 2-b and turned down the surgery,didn't want a big life style change...So far so good,my Dr. thinks I may be one of the few who beat it but I think it's…
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Another scan over with!!
Hi All, Charlie had scan done yesterday and all clear!! So we keep going another 3 months until May 2013 when he will be 2 years Post-op!! He also needs a dilation and has been feeling this way for 2 months but put it off but he goes in on Thursday for dilation and extra exploratory scope by surgeon. Charlie has 5 men in…
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complete esophageal blockage
Hi, we are looking for anyone with experience of blockage due to radiation. My husband finshed radiation & chemo for throat cancer the beginning of Sept. & is still unable to eat. He finally went in to have esophagus dilated yesterday only to be told that they were unable to do it because he has complete blockage because…
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Reduced dosage
I'm curious, I'm approaching the next round of chemo. I've had some neuropathy issues. The drugs are Epirubican, oxaliplatin, and 5fu. The last round almost immediately I had problem with my leg muscles and my hands not responding. Kind of like a Charlie horse where the muscles locked up making it hard to walk. The…
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J Tube Removed and I'm now Tube Free
I've been able to maintain my weight without using the J TUbe so I went in yesterday and had it removed. Very quick and simple and it was longer than I expected it to be when it came out. There was like 6 inches of it that was actually in my intestine. There was no pain with it coming out whatsoever and I just have to keep…
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esopfageal cancer stade III-IV
My brother(32years) was diagnosted with esofhageal cancer 3 weeks before. He was operated and sufered a full reconstruction of the esophag and the superior part of the stomac was also cut. We are from Romania and the chances for life they give are unknowned they recomended the chemio-radio post-operative but without the…
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6 year survivor
Hello, I haven't been here is awhile, but thought I would visit. I am a 6 year survivor and have been through it all. If you want to talk, send me a message. Thanks, David White Hillsboro, OH
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6 year survivor
Hello, I haven't been here is awhile, but thought I would visit. I am a 6 year survivor and have been through it all. If you want to talk, send me a message. Thanks, David White Hillsboro, OH
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Surgery done 2/14/13 esophagus closed at connectin need to have dilation
Hi Everyone, Jon had surgery 2/14/13 Transhiata Esophagectomy in ICU 2 days,several drains,j-tube,NG through nose. Started tube feeding second day in ICU severe diarrrhea changed formula 4 times finally under control. At the J-tube site there was a infection the antibiotic they gave did not work. On discharge day they…
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It's been a while
What a journey.I haven't posted in awhile. I peek in every few days, to catch up. Larry, my husband is recovering from chemoradiation! preparing for surgery. Pet scan is Monday to evaluate again. i have so much respect for all of you here. It saddens me to see the many battles lost, but what brave soldiers! Chemo was very…
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Propping up bed versus wedge
I am having a hard time with my wedge and have seen some folks talk about propping the head of their bed up. What did you do? Use wooden boards? How many inches did you raise it up? Any help would be greatly appreciated. JoAnn
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Chemo after Esophogectomy
Hello, this is my first post, but I have followed all of you for sometime. My husband (46 yrs) was dx last May with aden 2b. Esophogectomy went great, path showed that RT & Chemo pushed tumor back to a T2, but 1/37 nodes came back positive. We opted to do do 6 months post chemo to give us the best shot at a cure, or at…
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esophagus cancer and trouble with it closing up after surgery
Hello, My sister had esophagus cancer. She had surgery about a year ago. They took out part of the esophagus and took half of her stomach and pulled it up the remaining esophagus. Long story short. She has been having problems with the esophagus closing up on her. She has alot of scar tissue which was cause after her…