-
mets in the bones
hello to all does any body here know if cold weather can make bone mets start to hurt? i have been doing ok until the last week or so. i am stage 4 now with mets to my bones. they were going to do surgery until the last min. scan and found the mets. chemo has for the last 6 months kept the cancer in check. last pet scan 3…
-
Bill's 2nd 3 month check p is good
Hi all. Haven't been here in a while, but just wanted to share a little good news as I know I always needed to hear some hopeful stories. Bill's 2nd 3 month check up came out good with no evidence of disease or metastasis. The CT scan shows "residual thickening" in the esophagus and damage to the lungs from radiation, but…
-
Dad passed away October 21st
Hi everybody. I've only posted on this forum a couple times but I just want to thank everybody for their support. My father passed away from EC on October 21st and he will be missed. I plan on starting a foundation under his name to support families and patients who are experiencing this horrible beast of a disease. I'm…
-
Update on my Dad, Roy
My dad was diagnosed with Esophageal Cancer in 2011, stage III. He had the Ivor Lewis surgery a year ago October. Up until a few months ago, he was doing well. My mom was able to retire, they sold the house and have been traveling the country (after spending the summer with us kids in NH). Dad was in Maine and started…
-
Chat
I noticed there is a chat room available. Is there a weekly scheduled chat? If yes, when and what time? JoAnn
-
ER trip with blood transfusion.
Well, it's 5:am and the transfusion my dad just had in the ER at MD Anderson is over but the CAT scan showed thickening of the esophagus, a stricture, hardening of the gallbladder and fluid in the pelvis leaking from his blood. WHAT IS THIS?
-
Fever spiked to 102.5
Just spoke to my mother and dad feels horrid, no sleep, coughing fits to bleeding, vomiting, pain in side and shoulders, but dr says it isn't gallstones. He spiked 102.5 and they're on the way to ER at MD Anderson. Please pray they find gallstones and not cancer that has progressed through two types of chemo and herceptin.…
-
Dad has gall stones during chemo...Dr's won't entertain it at all
My dad was diagnosed with stage 2 EC at 54 yrs. old in April of 2011. We went through chemo and radiation for 28 weeks and it was gone; not a trace. Then we opted for an esophendectomy(I don't know if I spelled that correctly)in October of 2011. They found nothing when they went in and although it was a lifestyle change,…
-
Question for my dad
Hello everyone. My dad had Esophageal Cancer Surgery end of July 2012. He had his surgery at Shands in Gainesville by a great doctor. He was in great hands and I thank god that we caught it and he was able to have the surgery! Since his surgery he has lost (to date) 65 pounds. This is within 3 months. He is not eating at…
-
Hope for Recurrent Cancer
If my dad is only stage 2, and after the major surgery to remove the esophagus and use the stomach to make a new esophagus and then they found a recurrent tumor where the two organs tied together. He had trouble swallowing, but after the first chemo round, the tumor apparently shrunk down because he could swallow. Is he…
-
Another newbie
Have decided to post after lurking for a couple of weeks on a site which I never expected to have to use, so here goes! My husband was diagnosed with esophageal cancer a number of weeks ago. We are still in the staging process, but we know it is located in the lower part of the esophageous with some extension into the…
-
Stage IV....
Been staking you all for over a year and a half just filled out my about me page, and decided to join I'n discussions due to the wonderful support you all give looking forward to discussions, will tell you more about myself tomorrow way to late now..lol
-
Lost husband June 28
20 months after being diagnosed with EC, my husband, Bernardo Hutton, Sr. lost the war. He had surgery on 11/15/10 to remove the tumor at the GE Junction. The doctors also removed 5 inches of his esophagus and 30% of his stomach. He had chemo and radiation following the McDonald Regimen beginning in January of 2011 and…
-
Paralyzed vocal cord
Wonder if anyone else had this problem. I had transhiatai esophgectomy on July 20. Upon waking up I couldn't talk. Tests and evaluations found that my left vocal cord had zero functio. They say the nerve controlling was cut or bruised. Surgeon claims all work was done on other side of throat and if any problems he would…
-
Cat Scan Results Back
I have been member for a few months just reading and getting advice. My husband was diagnosed in March with stage 4b adenocarcinoma. He was given 3-5 months without treatment. He had 10 sessions of radiation and 3 rounds of chemo (ECX) then another scan, his oncologist was amazed how well he responded. We went on a road…
-
Esophagectomy
Glad I found this site and hope someone has experienced some of the same problems I had and can help me with advice or a pep talk at least. :) I was diagnosed with esophageal cancer in December of 2011. Had chemo / radiation and then a esophagectomy on May 1st of 2012. I had a very rough recovery, pneumonia twice and spent…
-
Regland
Because of the dehydration and vomiting that put me in hospital for six days, my oncologist added regland into my nausea pill mix. I don't think it's a long term addition but if I remember, others have had problems with this drug. Should I be concerned or what should I be looking for?
-
EFR444 - We wanted to welcome you to our EC family
EFR444, Welcome to our EC support family. We are sorry you find us under these difficult circumstances for your Dad and your family. We wanted to move you to a new posting topic so you would not get lost in another thread. On Sun, 10/21/2012 - 2:10am you posted: My father was just diagnosed with T3N3 EC My father was just…
-
Dave update
Hi everyone, I am so sorry that I have not posted here in awhile. I’ve only had the energy to post on the FB EC page lately. Dave continues to have post-op complications. Everything that could go wrong, has gone wrong. I think I told everyone about the code 2 weeks ago, and the fact that the colon they fashioned into a new…
-
Another newly diagnosed
Hello, my husband has been diagnosed with T3 N2 MO EC. We have just started treatment with the university of Penn with daily Proton Therapy and 5FUin a 24/7 pump with oxaliplatin in an IV every two week for 2 hours. Surgery in Jan if all goes well.
-
Portacath problems
Hi pat here again. We just ended week one with my husband's chemo. Problems all week . Although the portacath was put in a few weeks ago the first treatment was Monday with a 2 hour drip of oxaliplatin Immediately after the 24/7 pump with 5fu was started and 22 hours later it was leaking badly. The pump was stopped and…
-
cancer has spread
CT scan results....cancer has spread throughout the whole body, the liver lymph nodes stomach everywhere
-
Has anyone had reactions so fast to treatment?
Larry started treatment at Karmanos. 8 Hour infusion Cistplatin and 96 hour 5FU. He started last Tuesday along with radiation. He will do 3 weeks off, 4 cycles. Then after recovery he will go to U of M, Dr Orringer for surgery. He is already having so many side effects. Nausea, exhausted, mouth sores, and voice is fading.…
-
For Jerry
You might be interested in listening to these doctors. These lectures have been super helpful in our fight. Some of these doctors are responsible for the health of my Dad. They are all about alternative, complimentary treatment. http://www.CancerWorldSummit.com/ I believe the lectures begin on Halloween. I'll definitely be…
-
Hiccups???
Anyone out there have experience with getting rid of the hiccups. Larry has had them for nearly 20 hours now. They gave him prescription for Baclofen. He has taken only 2 doses so far so maybe it will take time to kick in. Just wondering if anyone else has experienced this and if you found anything helpful. Thanks
-
Whey protein
Even though they say Dale is in remission, he still has a very hard time eating enough to get his daily protein requirement. We found a way to make the whey protein a little more appetizing. 1.5 scoops of whey protein, 1/3 pkg of dark chocolate instant pudding mix, 1/2 cup milk. Blended together ( I use the magic bullet).…
-
Stage IV, with new found tumor in brain (HER2 as well)
Posting for another. If anyone has had similar can they respond, thx. My husband was diagnosised with EC stage IV in Feb. 2012. He has gone through 6weeks of radiation and 26weeks of chemo. He tested positive for HER2 protein and has been on Herceptin also. First Pet scan three months ago came back clean no cancer. We were…
-
CT scan
Tomorrow JR will have another CT scan. He has been having more swelling than usual in his legs and abdomen. He has been on Lasix but it doesn't seem to be working like it was. He has had blood transfusions but not working so he has had two treatments of iron infusions. His blood will be checked tomorrow as well to see how…
-
newly diagnosed
my 62y.o husband diagnosed 7 weeks ago with inoperable EC with several metases in liver. have been told not curable but controllable. has had two lots of 5 day chemo as an in-patient and 10 days of radiotherapy both as an in and out patient. We are still dealing with the shock diagnosis as hw was a very healthy retired…
-
What next? Insurance Co. dropped me.
Besides having EC, dealing with an insurance co. is bull crap!! I was on a short term medical insurance policy until I found work. Five days after effective date, I started having swallowing issues...went to Dr. put on meds then went for scope 20 days later. Then DX 4-26. Insurance Co. denied claims initially stating I was…