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Newly diagnosed, looking for advice & inspiration
My sister was just diagnosed, and we were all shocked - she had no symptoms with the exception of a swollen lymph node. my sister is only 43, and has a young family, she has an extremly active lifestyle. They have currently staged her a IV, is it possible for this to change once we get the finalized pathology report? What…
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MDA and Dr. Hofstetter NEED OPINION PLEASE
Good afternoon! Hope everyone is doing well. My mom just got dx with EC SCC Upper esophagus (20 cm from incisors) and we have an appt. Thursday at MD Anderson with dr Hofstetter. Has someone used him before? I would appreciate any opinions you are able to give me!!! she is probablys tage 2, but dont know for sure. we are…
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Regimen
So it's been 6 months since my husband's diagnosis and he is getting ready to go back for another scan. Time with the doctor always seems somewhat limited so I want to get as much information as I can. It seems as though we come away from appointments never fully understanding just accepting the PLAN. This is his second…
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Restrictive Pulmonary Disease
First of all thank you to everyone who has follwed my stories about my husband Mike and his fight with re-occuring Stage 4 esophageal cancer. I can not thank you all enough for the support and prayers which has helped me in more ways than I will ever find the words for but thank you!! Today was suppose to be our 2nd round…
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Things could be worse I guess
For recurrence originally treated surgically, surgeon does not recommend at my age of 56, additional surgery due to complications, dangerous possibilities and even the D word. So it's back to radiologist to determine if I can have a second rad session. Depends on how much, where and type of previous rad treatment. Chemo…
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Sleeping and Acid Reflux
I used to see a lot of post about suggestions of sleeping. My husband is almost 6 months out from his surgery and finally seems to be doing better. He just started back to work today! The biggest issue he is having is with acid reflux at night. He seems to slope down from the wedge pillow and other mound of pillows on the…
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False Positive PET scan
I have posted about my husband who was diagnosed with Stage 4 EC that tested positive for HER2 (the most aggressive breast cancer gene)back in April 2012, went through chemo and radiation from the end of April to June then had surgery in August to completely remove his esophagus and pull his stomach up to make the new…
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ER visit again
So Larry told me late last night that he has been having blood in urine and clots. When I asked him when it started, he said yesterday morning! He showed me (sorry graphic), it was pure red with many clots. Called the .dr and he sent us right to ER. Urine showed no infection, INR for coumadin was way too high again. Blood…
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Vocal Chord Paralysis
Larry really has done pretty well this week as far as moving forward with strength and endurance. His mood is beginning to change for the better...a wee bit. He went for another dilation on Monday and the surgeon tried but there was no resistance and no strictures. He still loses his voice and ability to swallow even his…
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What a crumy roller coaster that I'm waiting in line to ride.
ct/pet Today indicated one small recurrence at anastamosis, a hot spot in the lower spine and also in right hip. Doctors do not believe it to be cancer related but are consulting bone specialist. We caught it early enough to classify as stage 1...with a stretch to stage 2 but no distant events and no lymp node involvement.…
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Question
How much weight do you have to lose before you are in the danger zone? Larry continues to lose weight. He refuses to make an appointment and he eats very little due to his throat issues. When he does eat he usually eats too much because he is so hungry. Always dealing with either dumping from overeating, or he is in…
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Life 10 months down the lane
hi guys, i was a regular here about a year back.....my dad passed away on august 5th 2012 ....i still see him when i close my eyes.....n when i am drunk.......a lot has happened since my dad has passed away ...my son was born in novemeber .....so all i can say is life goes on ....n as i was a son i lost my dad ....but than…
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Anyone have a Stent
My husband is 6 weeks Ivor Lewis post op. EC sucks, I really have no other words for it. Anyway, we have had several dilations that only last a few days. Now the Doctors want to put a stent in. I would appreciate any information pro or con. Hubby is stage 1, other than 50 pound weight loss, and the host of normal post op…
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Father recently diagnosed
I never thought I find myself on one these boards, but it is great to see there is such a willing support group. My father visited the gastroenterologist in metro Detroit where he lives to investigate some severe reflux, and after an initial endoscope/biopsy detected cancerous cells they ordered a endoscopic ultrasound and…
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pet scan report 6/3/13
OK here goes I had my pet scan on Monday 6-3-13 and when I seen my results I went off the wall and stared to call all my doctors about it ask what does this all mean. So when I seen my Rad doc not because of the pet scan and results it was a follow up that was made a long time ago. Any how she reassured that the doc that…
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Please Help!!!
Hi everyone, it's been awhile since I've been on here. My father who was diagnosed with T3N1M0 last November underwent an Ivor-Lewis mid-March. The surgery went great and he recovered fantastically. He was almost able to eat steak after a month. Well, post-surgery, his oncologist recommended that he continue chemo even…
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Hoping for some perspective...
Hi All, I'm new here. My dear sis was diagnosed about a month ago. Stage IIb adenocarcinoma. Very aggressive plan being put in place... 28 radiation treatments in conjunction with chemo (not sure of drug choices) which will be 6 weeks in duration followed by the esophagectomy. My sis is only 55 and healthy. From what you…
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planned CSN outage
SN will be down for a couple of hours this morning beginning at 3:00 AM Eastern Time for planned maintenance. We apologize for any inconvenience. Best to all, greta aka Your CSN staff
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Finally a good day!!
Dad finally seems to be turning the corner for better days. I got to take him to bingo on Sunday for a 4 hour adventure and he was able to hang in there. I was overwhelmed with joy because I never thought I would see him get out and do something so soon. He's learning what he can and can't tolerate as far as food but he's…
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Salvestrol
I just cannot not let the people here know about the success story so far on salvestol ....I have been following the post on Salvestrol in cancercompass.com for a longtime (bought a bottle last year but didnt give it to my dad untill 4 days ago, luckly hasnt expired yet lol), and I wanted prove that is really helps in EC…
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Update on Larry
Up and down. I wrote a long rant, then deleted it. I am beyond frustrated with my husband. Mixed emotions. I love him so very dearly. Have so much admiration for him and his battle, yet am so discouraged that he just will not follow orders from the medical staff. Which affects me everyday. I am exhausted. Drs are concerned…
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New but not really
Hi everyone, I have been reading this site for almost 2 years now (Sept 2011) when my husband was diagnosed with esophageal cancer at age 48. Over the years I have turned to this site whenever I feel the need. After slogging through this for what seems like an eternity, we are battered and rough around the edges and maybe…
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New
My GI doc has been watching atipical cells in my Barret's escphagus for awhile. My last endoscopy showed high displaisia and I was referred to a Dr Alfonso Ribeiro with the U of Miami Medical Center. I need to know if this is the best doctor/hospital in my area, south Florida, for treatment of possible GI malignancies.…
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no answer on voice??
This is the second site I have been on where no one can answer about the voice coming back.It must be a rare thing ? or it means your things are not good.We are having a good week so im not going to get upset.It is frustrating though that no one with this cancer has had this problem?? except for my friend who's husband…
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Thank You and Larry updates
Well first I would like to say thank you to all of you that responded in my moment of frustration. Larry's CT came back as... Looks like blood clots are nearly gone. However the is fluid in the lungs and surrounding the lungs. The oncologist said to watch for a little bit, then they may need to biopsy fluid. Larry walked…
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What a Beast
I have had many experiences with cancer in my family. My mother suffered with breast cancer as a test subject for 28 years with 12 recurrences before cancer won. My father died from cancer of the throat. My sister survived kidney cancer. My other sister breast cancer. My uncle colon. I thought I had seen the worst. Cancer…
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Nausea
My 1st post here.... I had I/L surgery Dec. 22nd last year. I've struggled with nausea and no appetite off and on since. I was eating better and thought It was finally inproving but then I found out I had to have my gallbladder removed. I had the surgry about 3 weeks ago and a bile leak sent me to emergency the next…
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A couple of questions
Hi. My Dad has begun chemo and radiation together to treat his esophageal cancer. Although the cancer was relatively small and had no spread together with the medical team Dad has decided not to go for surgery at this point. He is 78 and it is believed the risks (including quite a high chance of reoccurence) are too great…
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will voice come back?
Hi My hubby was diagnosed on march 27 and he has had radiation and chemo.He still has his hair but has lost most of his voice,He struggles to talk.It doesnt help that im 40% deaf in my left ear.Its been a hard raod so far but we r enjoying our little break here.dont go back to hospital till june 17th for a ct scan then the…
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No surgery for my dad
Hi, We have just learned my dad has an Esophageal cancer( T3 NI, m0) and the doctor said due to his age(85years old) he can not do surgery on him, so my questions is is chemo or radiation can get rid of the cancer cells and the person be cancer free? Thank for helping me on this difficult time.