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I lost my husband in 3months
My husband was diagonsed with Esphogas Cancer on May 09, 2013, the dr had told him a month ago it was just acid reflux and dont worry they would fix it with the scope procedure. But before May 09, 2013 he started vomiting and not able to swallow. He had troubles digesting food before, for about a 2 months but thought it…
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Response to FOLFOX/HERCEPTIN
Went to Mayo clinic for f/u yesterday. Dad had MRI of brain (thought possible cancer) and 3mo PET to re-stage after FOLFOX/HERCEPTIN. We were given great news. Dad's tumors (2) in hip area went from 8 uptake to 2.5 uptake. Significant shrink considering he has only had 2 sessions out of 12. The doctor seemed very pleased…
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New Blog Site esophagealcancerfighters.com
All, Since the facebook site has limited ability to store historical stuff I am starting a new blog site to upload historical information and reference materials deleted from this site. I hope that people will provide critical information and participate in this site. It is esophagealcancerfighters.com and the email…
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photodynamic therapy
my husband was diognosed back in january 2013 and the first two chemo's they tried did not work so we just started plan C. The doctors told us this is our last option and if this chemo does not work then there is nothing more they can do and if he wants to try a clinical they would help us try and find one in Boston or…
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Pet scans what to believe.
Hi everyone, I haven't been on in awhile and hesitate to write now. But here goes. I've been feeling crappy all summer and was getting worse so went to my Onc last week. Lots of abdominal pain. He orders PET scan on Friday morning. Friday evening the office calls to say I have a partial bowel obstruction..go to ER if I get…
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Treatment Options
Hello, I wanted to ask for your kind help. My mother is 88 years old and has had esophageal cancer for almost 3 years. The initial diagnosis showed that the cancer had spread to multiple lymph nodes and areas outside of the esophagus. She received chemotherapy over most of the 3 year period as well as 3 weeks of radiation.…
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New Developements
Hello everyone, i saw my surgeon last week and he said the surgery had nothing to do with my neck problem.I did buy an obus form pillow and that seems to be helping. I have developed some new symptoms and i'm being sent for an MRI of the brain. When i was diagnosed with esophageal cancer in 2010, it was because of a series…
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Anyone else?
Hello everyone, I had surgery April 10th 2010, stage 2...was in hospital 3 weeks and did have a leak. Had problems eating and did lose a lot of weight. I gained the weight back and have been doing great. Lately i have been having problems with my neck and my Doctor sent me for an x-ray. It showed i have air lodged between…
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Ned remission cured
Can someone please explain the difference between Ned remission and cured. It can all be so confusing sometimes.
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adenocarcinoma ( 4 CM) esophageal cancer stage IV
My husband was diagnosed with adenocarcinoma ( 4 CM) esophageal cancer stage IV which has spread to a lymph node in his neck also. Though so far it has not spread to any other organs. He is currently finishing his first round of chemo (surgery is not an option) They have him on Oxaliplatin and Capecitabine. Any one else…
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Radiation long term side effect...what have you experienced?
My last high dose treatment was Aug 5th. For 5 weeks I had absolutely no symptoms or problems. Then out of the blue I began experiencing pain and discomfort in a radial line around my body at the shoulder blades and breast level. Having thought I had simply over done it or something I did not think much about it. But the…
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TDM-1 for HER2 positive esophageal and gastric cancer KADCYLA
hello, i just called Genentech , makers of TDM-1 , also called KADCYLA . for people in the US,they have a phone number you can call 888 249 4918 for their GEnentech Access Solutions department. quote from their site :" KADCYLA Access Solutions helps resolve access and reimbursement issues for individual patients every day"…
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Robot assisted esophagectomy
How many people have had robot assisted esophagectomies? What was your experience?
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C-Diff?
Hi All, My sister had her esophagectomy a few weeks ago. Her barium swallow looked good, but within 10 hours of being home, she wound up back in the hospital with a tear, more surgery adn all of that trouble. She now has an infection called 'C-Diff' and I am wondering if anyone has been through this experience and if they…
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My sad goodbye
Last Monday my dear husband Lou passed away after battling this EC beast for 3years 8months. I haven't posted in a while, and though the people that helped me through this back in the beginning of our fight are no longer on the board, I felt the need to come back and say goodbye. Too often people stop writing and you…
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Liver Surgery on Wednesday Feb 22nd
As you know I found out that my esophageal cancer had spread to my liver a few weeks ago on my 4th Cat scan a year after the surgery on my esophagus. The malignant tumor is in segment 7 at the top left of my liver. The surgeon at Mass General told me that without the surgery, there was a 100 percent chance of death so here…
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Mom started hospice at home last week-refused feeding tube
We received results of a cat scan a week 1/2 ago and it showed that tumor at surgical site got bigger and has spread to kidney and liver. Oncologyst wanted to switch to a different chemo drug and get a G-tube immediately but mom refused the G-tube. She was adament that no more doctors will poke, prod, slice, or put her to…
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It's over.. cancer won
Hello all, I have not been on the site for some time, my husband first diagnosed with EC, Dec. 2011, died six weeks ago. It was quite the roller coaster ride, while he was always hopeful, even though he had stage iv, I always had my doubts... I know he is at peace, no more appointments, no more chemo and no long stares by…
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Has anyone used IP 6
Hi I was wondering if anyone has used IP6 herbal supplement.
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My dad lost his battle
Wanted to tell everyone thanks for the advice and support you gave me while my Dad was fighting this horrible cancer. My dad sadly passed away on August 14th while I held his hand. Since I last posted here he did end up doing more chemo which was very aggressive he ended up having to have 3 blood transfusions and I don't…
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Roche to share important oncology data at European Cancer Congress (ECC) including information on he
from http://www.biosciencetechnology.com/news/2013/09/roche-share-important-oncology-data-european-cancer-congress-ecc#.UkKMfijWFyM Kadcyla: Abstract #15: LATE BREAKING ABSTRACT T-DM1 for HER2-positive metastatic breast cancer (MBC): Primary results from TH3RESA, a phase 3 study of T-DM1 vs treatment of physician's choice.…
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Rickyr1219
Has anyone heard how he's doing? It seems like a long time since he has posted
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Jawbone problem
Hi all...hoping good days are happening for all. It's been a while since I posted. I'm 6 1/2 years since chemo/radiat/hyperbar treatmenttime also have high level fibromyalgia, hypothyroid, HBP...but other than that have had the best year of my past 10!!! Until about 6 wks ago, started with ear ache, sore throat and fever…
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My Husband:( Adenocarcinoma of the Esophagus Stage IIb
Greetings all, I've been reading for several days and have finally gotten throught the techy difficulties (Have no clue what I was doing wrong!) We have our surgeon chosen at the University of Chicago and now after seeing their oncologist we are attempting to plan the chemo/radiation therapy. We have been asked to do this…
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TDM-1 for HER2 positive esophageal and gastric cancer if herceptin stops working
I asked about this for someone on the SMART PATIENTS site which also has a forum for EC. Robin M, the community coordinator at Smart Patients gave me the following answer( I would encourage people to join Smart Patients as well ) best, danièle: "TDM-1, trastuzumab emtansine or Kadcyla, was approved by the FDA in February…
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Stricture treatment
Its been a while. It is now 3 weeks after my last of 6 high dose radiation treatments for recurrent EC. I find it becoming increasingly difficult to swallow. Even liquids are slow to drain and sometimes quite painful. The thought of a g-tube is really depressing, I love food too much. Surgery is not an option. Stents are…
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Husband to start clinical trial
Hi everyone, I am sort of new to this site although I read everything I could find in 2009 when my husband was first diagnosed. I have been using the site for a little research as well, but this is my first post. My husband was diagnosed with stage 3 in 2009, had radiation and chemo and then the THE surgery by Dr. Orringer…
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Is there anything that can help with Appetite
Hello, I wanted to ask for your kind help. My mother has cancer and she has lost almost 20 pounds. Does anyone know of anything she can take that may help stimulate her appetite? I’ve heard marijuana may be helpful but my mother has some heart problems, and I’m afraid that could adversely affect her heart rate. Any…
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1 year so far.....whats next?
its been one year since my surgery i had stage three did the two rounds of chemo and the surgery which wascextremely hard because after it they found a leak and had to go back in all with in a 24hr period i spent 21 days in icu got discharged did follow up chemo and last month all my scans came back negative im fully…
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Tumor found post-surgery
Hi all, I want to say thanks to everyone participating on this board. I read a lot of posts last year when my father was first diagnosed as a Stage III. There was so much good information, and I passed much of it on to my parents. I think he's at the 6 month mark past surgery, and they found a malignant tumor that was on…