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New Met in his bones
They did another PET scan and the results were "more bad than good", a few of the lymph nodes and cleared but new ones are now lit up and they discovered tumors in his bones. His Dr, who had been very "pro treatment" is definately talking different. He has talked about pallative care, and keeping dad comfortable. Dad has…
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Been down this road before
Started radiation today. It has been decided that 7 high dose treatments are than 30 low dose and as such chemo will not acompany. But it is a fall back if rad is unable to do the deal. I guess we'll see in a few weeks. God Bless and good luck to all!
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Stage IIb
I was diagnosed on 7/17/2012. Had surgery 8/23/2012 followed by chemo and radiation. Was in and out of the hospital this spring with pneumonia 5 different times. Lost over 100lbs from my pre-surgery weight but now have quit losing and maintaining. I've been back to work 3 months now and feeling good. My last scan came up…
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Question for Eternalife
How is he doing? Can you tell me what chemo he is on for the mets? I'm also waiting to get results if dad is HER2+, so that he can also get herceptin. I read that he has been NED, that's awesome. Praying for you always :)
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Mike's Update
Hi Everyone, Since it has been awhile since I have been on here but as those of you who have followed me I am sure you can understand why. Mike is sleeping at the moment so I thought it would be a great time to catch you all up. This past weekend we had all the kids over for a visit and when Mike took his normal nap, we…
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Post Ivor-Lewis
So, post-chemo/radiation PET showed no sign of cancer. Dad had the Ivor-Lewis Procedure yesterday. 9 hour surgery. Today he has had fevers (up to 104.7) And muscle spasms above the level of his epideral. We are taking things one step at a time.
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new discussion board
A new discussion board is available to report and discuss technical problems. Please give it a try. It is the last discussion board listed on the page with all the boards, please bookmark it for future use. The URL is http://csn.cancer.org/forum/200. Best, Greta aka Your CSN staff
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Decided to stop chemo
The last few days have been hectic to say the least both physically and mentally. Mike's breathing has not improved since going on the Prednisone so we started morphine. The side effects of the Prednisone were horrible to the point Mike's entire peronality changed, he was having horrible dreams, kept repeating himself and…
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Gluten Free Diet
Has anyone tried a gluten-free diet? We met with our GI doc today after an endoscopy earlier this week and he said that the small intestine looked like the beginning of celiac disease (allergy to wheat/rye/barley) and would like him to try a gluten free diet for a while along with putting the feeding tube back in for a…
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Dilation's Again and Again and Again and Again...
Esophagectomy was December 10, 2010. Recovery and all was pretty good until October 2012 when swallowing difficulties resulted in my first dilation. Scar tissue had decreased opening to about 10mm so I went thru 4 dilation's in 5 weeks eventually improving swallowing. Then in January 2013 symptoms began to return and I…
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New Scan
Had a good scan (I think). Lymph nodes decreasing And the metastactic bone disease has not changed significantly. The doctor feels the current chemo is working. He took him off one drug because it was causing myelosuppression: delaying his treatments to three weeks or more. We got the report as we were leaving the doctors…
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Hospice no longer means end of life
First a BIG BIG thank you for everyone who has been so kind and responding to my posts about Mike and his battle against EC and now emphysema. He was determined to be that miracle but his body is not cooperating so July 3rd, we officially terminated all medical treatments and went on hospice Juky 4th..While it was a hard…
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Important treatment advise I have learned!
I see many post where patients had surgery Before radiation. Issue may arise if a recurrence occurs in the same general location as previous treatment area that additional radiation may not be possible due to where, amount, type and bunch of other stuff concerning the first exposure. That leaves chemo which is not…
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When to start hospice
I logged on to discuss this and saw Christine's post and realized so many of us are going through such pain. I wish you and Mike peace Christine and will keep you in my thoughts. We are in a similar situation I believe. My husband (stage IV, 2 yrs in treatment) had emergency surgery 11 days ago due to a perforated bowel.…
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Skin care
Four days ago, my husband accidentally pulled out the needle going from his chemo pump to his IV port. When the needle goes into the port, the nurses put a film bandage over it. The chemo dripped out and condensed under the film. We did not realize what happened for a few hours. By that time, his skin was significantly…
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Update on Dad (dudley22)
I have not been posting in a while but I have been reading everyone's updates. I am so grateful I have found this site where everyone is so supportive. I wanted to update on Dad's treatment plan. He completed 5 rounds of chemo (paxil and cisplatin) and 27 radiation treatments. He handled it like a champ! He has some nausea…
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Clint's plan
We finally have a firm plan of treatment. Clint is feeling well right now and we are walking daily for 2 - 3 miles. In addition, he is using an "inspiration spirometer" to help maximize his lung capacity in preparation for surgery. We have decided (after many doctor visits to Beaumont, Jackson, Munson and Ann Arbor) to…
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5 Years
I just had my 5 year appoingments at MD Anderson and all is good. T3N1Mo 5 years ago. Chemo/Rad then IL with no problems. Back to job as firefighter in 9 months and hiking Appalachian Trail. I am doing well and hope all others do the same.
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TOLD
Told today that they believe Dad has bone cancer. We went to ortho today for what I thought was tear in ham or quad. Actually dad broke his hip and xray showed lesion and leasipn probably cancer. Stat pet tommorrow and results with oncolgist tommorrow. I guess this answers my question about post op chemo. Chances dont seem…
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Muscle loss
I am so confused. Hubby is 11 weeks post ivor Lewis suppose to go back to work in 2 weeks. He has lost 50 pounds and a lot of muscle tone. He cannot walk across the room without tearing is Achilles. He is constantly icing something, ankle, shoulder, knee. Doctors only say it will get better with time. I am trying to figure…
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Diagnosed with recurrence
I was just diagnosed with a recurrent esophageal cancer. The tumor is a bit lower than the original site. I am not a candidate for surgery because of poor lung function. Will be starting chemo again next week. Last time was 9/2011 with 5 weeks of chemo and 27 successive radiation treatments. The radiation was the worst and…
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Facebook
How and where is the Facebook site? How to I get on there? I know this has been asked alot...sorry!
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Mother with EC - Newly Diagnosed
I just came across this chatroom and am very grateful that I found this. My mother was recently diagnosed with EC and is in the process of having tests done. They are not sure at this point what stage it is in, they think stage 3 or 4. The tests in the next few weeks will confirm this. I have done so much research on the…
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Question about Lymphnodes
Dad only had 12 lymphnodes removed during surgery, all came back clean. Then I've been reading where some have had up to 20 removed and 1 was positive. I guess I'm second questioning if anyone had had chemo after surgery with no postive nodes detected. I'm thinking if more were removed maybe 1 would have been positive. All…
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bone cancer,advice hope?
Stage 4. Bone cancer in hip ans sm. Spot in spine. Is thete anyone that has lived long time with this. Can chemo and radiation work?
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One kick after another
So today we saw the new Pulmonologist who spent over an hour with us going over Mike's CT scans from Wednesday as well as his results from his spirometry test which shows his lung air level is 41%. It appears Mike has a few factors that are contributing to his breathing issues. On top of having Stage 4 reoccuring EC is he…
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Any long time survivors of Mets to bones?
Desperate to find survivors of bone mets.
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Gatoraid's Final Update
Hello everyone, it's been a while since I posted though I have been in and out reading. It's been quite a journey since 8-17-2010 when my brother Jim aka Gatoraid, was diagnosed. We thought he might be one of the lucky ones that would beat this monster, but sadly, he did not. He passed away June 7th @ 10 pm, just 8 days…
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Update on Larry
Almost 3 months post surgery, more problems. The guy can't get a break. Yes he is cooperating a little more. Yes he is feeling crappier everyday. He was sent for a chest xray today and cried. His voice and swallowing issues are lasting for longer and longer periods of time. INR for blood thinner is finally stable. So now…
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Class of 2011 - ROLLCALL!
I'll start :-) Nick, age 48, diagnosed T3N1M0 on May 19, 2011. 28 rads & 2 weeks inpatient Cisplatin/5FU. THE 09/08/2011, Clean Path 09/13/2011. Since then? CT on 12/13/2011 Met with surgeon in January - surgeon says "new node in upper right lung noted in CT. Not to worry, you're doing great. You are my poster boy." Met…