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Newly diagonosed and so very scared
Hello everyone My husband was just diagnosed with esophageal cancer(adenocarcinoma)with metastasis. We go for the Pet scan tomorrow. He is 38 years young and the most wonderful man I have ever known. He doesn't meet any of the risk factors. No gerd, never smoked. Ate a pretty good diet. He has no symptoms. He developed a…
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digestion after esophogectomy
Wanted to share some info... My father had esophogectomy about 18 months ago. He has been doing remarkably well being able to return a normal diet, however he was often suffering from a lot of stomach pain and gas after meals. It was difficult to pinpoint what food or foods where causing problems. I found on another…
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HAPPY I AM NO MORE TUBES-WE ARE EATING OUR FIRST FOODS- I am now a survivor
Well, I would like to share my final story from the hospital, we passed our swallowing test today, we had the NG tube about 3 pm today, and we are now eating our first foods, it is only soup and tea but it is a start. He is thrilled he said it taste like "GOLD" he is doing so good. We will still have the feeding tube and…
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Esophageal Cancer Survivor
Look at my attached webpage! My battle with Esophageal Cancer! Be opimistic and treat life with a little humor! My motto from the start: 'Cancer is not a Death Sentence...It is a Will to Live!' Interested in comments about my webpage! I am 75, now cancer free, had operation on March 16th, 2016! Cancer free before the op…
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Just Diagnosed (UPDATE)
Well, Chemo and Radiation was completed on Dec. 21 and my mother had a 6 week break. On Jan 29 she had the almost 6 hour surgery to reconstruct her esophagus. Almost all of her esophagus was removed and a small part of her stomach (DX: EC of the GE Junction). She was just discharged but since the surgery, she has…
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Just Diagnosed
My mother started her treatment today. She will receive Cisplatin and Radiation 5 days this week. The 5-FU will be given via an infusion pump 24 hours a day for 7 days. Is anyone on this particular treatment? I don't know what next week plan will be, it's not stated in her chart yet. The nurse says that the doc will see…
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Life after cancer
Hello, I would like to talk to any and all cancer survivors, or those going through treatment. I had a two year battle followed by massive depression. I am different now and I want to live life to it's fullest. I want to talk to others who feel the same way.
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Dads gone now what?
So my dad was diagnosed with cancer last year around may 2015 he saddly passed in october. between that time i was his main caregiver i took him to and from the seattle VA about an hour drive each way. i spent many night sleeping in the hospital with him. i made sure he had his medcations and stayed up to makesure he took…
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Facebook group
How can I join your Facebook group? I tried searching for it but couldn't find it. I am a wife of newly diagnosed esophageal cancer patient and I would love to be part of your group and share our journey. thanks, LL
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Dad's early cancer and EMR
Hi! My dad has diagnosed with early stage esophageal cancer when he had he's endoscopy. He had what is called "inlet patch" in hir upper esophagus and it was causing him pain. it was small, about 1,5cm wide but there were SCC found in it. Anyway, then he had EMR and pathology tests were made again and now there weren't…
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Newly Diagnosed here
Just found out last Tuesday, April 12th. Still don't know stage or many other details. Had a stint placed in so I could swallow better but still not able to eat very much. Had CT scan in the hospital and also have some nodules in my lungs. Having PET scan next week which I guess will tell more. Still so many questions to…
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Esophagectomy post-op pain
My Dad is POD2 from his esophagectomy. They did a minimally invasive procedure with laproscopic approach through abdomen and thoarcic cavity. Stage 3, 2 lymph nodes, no spread, they found no mets, and got clear margins, but had to attach stomach to esophagus at last section before entering the neck. He still has NG tube as…
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Chemo treatment?
I have stage IV EC and active limp nodes. I haven't started chemo yet. I'm considering having a biopsy sent to Rational Therapeutics for a laboratory analysis. Does anyone have any info on this tactic? I read the website info and it seems to make perfect since. I think it would be quite the advantage, to know which drugs…
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5 years down the road
I had my 5th year annual CT scan the other day and was immensely relieved that the results were NED! Even though I was diagnosed at Stage I the scanxiety is the same now as it was 5 years ago. We on this board know that some people have their surgery and treatments, as I did, and go on with their lives never to hear that…
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How to help my Grandpa?
Hello. My grandpa is an esophagus cancer survivor. He is a rare case because he has survived it and it's been more than 2 years. He is at the point now where he has trouble eating and keeping it down. The doctor's say there is nothing they can do because the medicine makes him sick. I'm worried about his quality of life. I…
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lump in neck
My husband had cancer diagnosed in march 2016 .He went through radiation and chemo and had surgery in July. All went well no spread of the cancer to borders. He is having a hard time eating. He had a dialation last month and is having another next week. He clams he feels a lump or something in his upper throat that is…
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Folks disregard this topic forum
Cannot get this letter to "Operahing" to post properly. She is addressing a lady named Katanna who hasn't posted here in 8 years, however, my post will not post correctly, so I'm eliminating it at the present time. I will try to send her a private message. Loretta Note: Go Figure - I just sent her an e-mail privately and…
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Operahing~A special welcome 2 U as A Stage IV EC who addressed Katana~she no longer posts here!
Note: This post did not post properly, so I have eliminated it. - Loretta
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Operahing~A special welcome 2 U as A Stage IV EC who addressed Katanna~she no longer posts here!
Note: Neither did this post properly. So I've eliminated it. Loretta
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Nick~Glad U checked N ~ Have the docs mentioned RADIOEMBOLIZATION as a possibility for your Liver me
(Note: This letter intended to be an answer to Nick98338 - http://csn.cancer.org/comment/1552160#comment-1552160 "Going On Nine Months - - "EGD found the esophagus tumor last November. Already stage IV. No surgery possible. Radiation and Taxol Carboplatin eliminated the esophagus tumor. Now just dealing with the mets in…
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Squamous Cell Recurrence
Hello - I am new to this board. My husband, 38, was diagnosed with Stage III EC (squamaous cell) in January 2013. No family history, no risk factors, non-smoker and physially fit. He had a large tumor in his upper esophagus and a smaller tumor at his GI junction. He went through 6 weeks of chemo and radiation and had his…
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Recommendations for Kaiser Permanente Oncologist in Northern CA?
My father was recently diagnosed with stage 4 esophageal cancer. His oncologist told him he has 2 options which are radiation oncology and infusion therapy. His oncologist did not even give him a patient information sheet or anything. He did not seem very caring and it was very difficult to understand what he was saying.…
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Dx and operation
I am scheduled for lapro esophagectomy on July 13. Looking for info on what to expect. Male age 66. Not overweight. Taking all esophagus out, using part of stomach for new esophagus, taking out 20 lymph nodes and inserting J-tube. Have talked to Dr three times with questions and am comfortable. Just wondering what I face…
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CRAIG~Your Tragedy can have a happy ending~Hope, resilience & determination will serve U well~Keep l
(Note: This letter is in reply to "CSacerdote" - http://csn.cancer.org/node/298089 - Problems following Surgery") My Dear Craig, Let me start by saying I’m glad you’ve come here to visit. I’ll take the privilege of saying, “we” when speaking of my husband William, because the day he was diagnosed, it was as though I was…
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Throat Cancer
My husband has had seven weeks of radiation and seven chemo treatments for throat cancer. His last treatment was one month ago. Does anyone know how long it takes for the throat and mouth to heal? He had terrible mouth sores and has two areas that are just not healing. Any help would be appreciated. Thank you.
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Sleeping upright and waking up flat
Stage 3 esophageal cancer survivor. I have an adjustable bed that i use to sleep at a 30 degree angle, when i wake up in the morning, im flat, bed is still at 30 degrees, Has anyone found a way to prevent this.
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SSD denied
Hi, I am am looking for advice on this from anyone who might have gone thru this problem. I was diagnosed April 2012 esophageal cancer stage 3 just before I turned 49. I worked a very physical job as a tool and die maker from 18 until diagnosis. I underwent the pre op chemo and radiation and had a Transhiatial…
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Pamelaann5543-Info 4 your Son-in-Law's Stage IV Esophageal Cancer DX
Dear Pamela Ann, For the sake of keeping up with your future posts and questions, I’m taking the liberty of putting my answer on a separate topic line, so we can keep up with you should you have more questions. It helps when “newbies” post on a new topic forum here, so we can follow your story under your original post. So…
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Choking and Food getting stuck
My husbands tumor is at the GE junction where the esophagus meets the stomach. Increasingly the food getting stuck more and more often and harder to dislodge. Last night was a rather frightening episode to say the least, and I was wondering if anyone who had something similar could offer any advice on the best course of…
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Choosing a doc/hospital
Hello - My dad has just been diagnosed with esophageal adnocarcinoma with at least one node involved. He's pet scanning today. I am trying to figure out who are the rock star docs for EC. I see anecdotal stories of good experiences at Mayo and MD Anderson and Sloane... But how do you choose where? We live closest to Wash…