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Esophageal Cancer

Change in Treatment
My husband was recently diagnosed with gastro-esphageal cancer. He was to begin a combination of chemo-radiation next week. After his radiation simulation and Pet Scan the radiologist determined that the lymph nodes were too large to begin radiation at this time. He will start with chemotherapy only at this time. This is…
Annie76~In my opinion-pre-op chemo/radiation is like "2 for the price of 1"~tri-modal treatment most
My dear Annie: First let me say that I am putting my answer on a completely new topic forum for one reason. It is so lengthy and detailed that if someone else wants to comment on your original post, they will have difficulty “finding the bottom of all this information.” And further, it will serve as a primer for other…
Esophagectomy - what now?
Hello. My dad was diagnosed with Esophageal Cancer last April. He experienced 6 weeks of radiation (and 6 rounds of chemo), which did shrink the tumor, but did not leave him without cancer completely. In early Sept, he had surgery to remove most of his esophagus and part of his stomach. The surgery went really well and he…
Initial treatment decisions: Stage II/III
Hello all, My 47 year old husband, and dad of our 11 year old twins was diagnosed with EC from an endoscopy with biopsy about a week ago. Since then our world has turned upside down, but I have learned a whole lot, thanks in part to this board. We are in the DC area and have moved the ball a fair bit in the last week. We…
CarrieN~Here's my "personal" reply 2 your 8-19-17 ltr re EC recurrence now U R Stage IV!
Oh my dear Carrie ~ Your letter brings sighs of sorrow to my heart. We’ve talked in the past. However, I missed reading your post on June 2, this year, but I see that Ed and Paul both wrote to you. Although quite a few read that post but I had to go back and find when you had the esophagectomy. I knew that you wrote in…
CarrieN~Specific links re chemo drugs in possible clinical trial treatments MDA mentioned
Hello again Carrie ~ In response to your last post - https://csn.cancer.org/comment/1593203#comment-1593203 You wrote: “Thank you - Thank you both for your support. I will stay positive and push my way through this. I don't have a choice!! MDA has recommended a clinical study that will have me in 1 of 3 groups. One group…
High grade neuroendocrine carcinoma
hi my mom has just been dignosed with high grade neuroendocrine carcinoma...every thing i have read is very scary... Can some one pls advise what to expect.
What Should We Expect?
Hello, everyone! My father was diagnosed with stage 3b esophageal adenocarcinoma of the GE junction in May of this year. He has had 28 radiation treatments and 5 rounds of carboplatin/paclitaxol, and just had an Ivor Lewis esophagectomy with gastric pull-up yesterday. He did so well with his neoadjuvant treatments, but he…
Update - It was something
I had an open thoracotomy last Thursday where they removed a portion of my lung for biopsy. Unfortunately, the results show metastatic disease. I am now stage 4. The frustrating thing is that the nodules they tested are the ones that were there last November, so I have techinally been stage 4 all along. After my chemo and…
Julie~Basic things 2 expect AFTER an Esophagectomy-Initially DIET will B changed along w/permanent s
Well good evening Julie – First of all, this post is so lengthy, I’m going to put it on a separate post for 3 reasons. First because others will be answering you on your original post, https://csn.cancer.org/node/311322 -"What Should We Expect? " This letter is extremely lengthy. However, I think the information is…
Throat Cancer
Hello! My husband was diagnosed on March 24, 2016 with Stage 4 throat cancer. He received 7 chemo treatments and 35 radiation treatments. The cancer was gone but returned this year in February. We traveled to UAB to attempt laser surgery but the cancer was too close to the carotid artery. In April we traveled again to UAB…
Just diagnosed w Stage 4 Esophageal Cancer-
Hi all, My partner has been diagnosed with Stage 4 Esophageal Cancer with small spots on the liver (2), some spread into to lymphnodes + some cardia. He is lucky in that he has Hers2 and can do herceptin. He has some difficulty swallowing but not much. He is not thrilled with the idea of chemo and is looking into a health…
Hello! I'm new. Here's our story...
Hello everyone! I am happy to have found this site. It’s hard to find anyone who understand what we are going through. I’ve realized I need support from others who going through what we are going through. Looking forward to get to know all of you! Here’s our story… My husband is 38 and was diagnosis with esophageal cancer…
Huband's Advanced Esophagael Cancer
My husband's surgeon gave him just weeks to survive his advanced sqaumous cell esohageal cancer. One doctor is considering a stent and radiation. He has lost a tremendous amount of weight - over six feet tall and only 111 lbs. No pain, and sticking to his usual schedule. He is drinking Essiac tea at present. To see the…
A break from chemo???
My Dad was diagnosed with stage 4 EC last year in Feb. When first diagnosed his health was really bad, the doctors all told us that he had weeks maybe months... He's superman! He said he wasn't ready to die and told the doctors he wanted to try chemo.. SO WE DID and I know that my daddy would be gone by now if it had not…
How to balance food and liquids
HI, I have completed 3 round of intense chemo 6 weeks of radiation with chemo. I am about 7 weeks out from esophagectomy surgery.I'm struggeling with getting enough calories and drinking enough fluids to stay hydrated. I get nausea, dumping sometimes and have no appitie and get full fast. I am eating about 5 times a day…
RevaB~U R Welcome 2 talk 2 EC patients&survivors here as well~EC needs as much attn. as Breast Cance
Good afternoon Reva - Glad to know you’re EC free! In response to your request, I see that Paul has already sent you a private message. Here is what you wrote this morning. "https://csn.cancer.org/node/307597 - Facebook Page - Hi. I'm Reva and have been EC free for just over one year! May I be added to the page please?? I…
Facebook page
Can anyone tell me how to get on the Facebook page for esophageal cancer?
Severe complications to chemo, swollen foot, may have to amputate 3 toes. Has anyone heard of simi
My Dad was diagnosed with stage IV EC in May. He is diabetic and has survived Prostae Cancer. He has always been active and was working at 83 when he was diagnosed. He has had to cease chemo for now because of a suspected embolism in foot. Here is what he just wrote to me - " Yes, chemo toxicity induced inflammation –…
Colleeni2~Have chosen to answer you on a separate topic re husband's EC diagnosis & treatment
Dear Colleeni ~ Since you may not hear from LoveLife1 any time soon, I've decided to answer you on a separate topic line here. In the future we will be able to "find you" more easily with a topic all your own. Sometimes several people write on the same topic line, and it's hard to decide who is talking to whom. So this is…
HAM6789 and my post-op status
Hi everyone! I know it's been a while but I've been recovering. I was released to leave Pittsburgh today. Figured we'd just wait and get an early start tomorrow so we're spending one last night here. They took my JP drain this afternoon. Said the drainage was good and clear. Since I will be having chemo when I get home,…
just diagnosed with esophageal cancer
Hello, I am still in shock about this recent dx of Esophageal cancer. I was diagnosed with GERD about a year ago and just thought it was getting worse, went for my annual physical in mid May and ever since it has been one test after another. Barrum Swallow test afterwhich my primary care Dr. calls and tells me I have a…
How quickly does esophageal cancer develop?
Hi all, I am new to this forum, unfortunately not new to having cancer. I had a stage III melanoma in 2005, then stage III NSLC in 2008, and beat both. After chemo and radiation for the lung cancer I had a PET every 6 months for 3 years, then another after 4, then this past June I had a final followup scan, a regular CT.…
Reminiscing with MARDIGRAS~a special hello & a follow-up on William's now N2 15-yr survival w/NED+in
Dear Marcia ~ Just felt I had to say hello after I read your encouraging letter to “Chicko”. (https://csn.cancer.org/comment/1587095#comment-1587095) Your name brings back so many memories of our times together on this discussion link years ago. First let me congratulate you and Rob on making it past the “magic 5-year”…
Father 83 one year in severe secretions
friends my poor father in law has had a feeding tube a year now: he was diagnosed a year ago. My husbands family refuses to discuss stage of cancer (?) so I am flying blind. He's suffering so bad mainly from secretions just tons of mucus (they stopped chemo and radiation nearly a year ago) he can't speak due to mucus so…
"Small hiatal hernia present" (September 2005) And what might have been..
During the initial phase of testing in 2010, the doctor who performed the endoscope tried to prepare us for what he suspected. "I don't like the looks of this", he said; "You probably had this for years and never knew it". Later testing confirmed Stage IVb esophageal adenocarcinoma. Really? Not know having Barrett's and a…
Leaked Chemo
I recently finished my 2nd and last 6 day cycle of pre surgery 5FU and it appears the chemo leaked to my hand! I've been referred to the burns and plastics of a neighbouring hospital. They've prescribed 500mg Flucloxacillin to be taken 4x daily. Has anyone else had this happen?
Stage 4 spread to lymph nodes & Brain
Hello my name is Shannon I have some questions regarding my Mom. She is 74 and wa diagnosed about 5-6 months ago. Stage 4 esophageal cancer (GE junction) spread to a few lymph nodes and caused a small lesion in her brain. We did radiation on her brain and it shrunk a little bit. On July 5th after her 6th round of chemo…
Five Years Since Stage IV Diagnosis
I had an appointment with my oncologist yesterday, which is five years since I was diagnosed with a Stage IV recurrence in my left lung of the original EC. Five years ago I was told to get my affairs in order (sooner, not later) and told that most folks live 7-8 months from where I was. Fortunately for me, that prognosis…
Esophageal Cancer discussion re stages & treatments & informative videos for Ellie1229
Dearest Ellie, First, let me say that I am putting this answer to your entry https://csn.cancer.org/node/310205 on a separate post for this reason. My answer is extremely detailed, and others who come here for info will benefit by being able to read its contents more quickly if it is on a separate line by itself, rather…

Esophageal Cancer

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