Testicular Cancer

jesterwoo
jesterwoo Member Posts: 1
edited January 1 in Testicular Cancer #1
Help!!! I was just diagnosed with testicular cancer and am having surgery on August 22 to have the testicle removed. If anyone has any info or has been thru this please contact me. I really need advice from someone that has been thru this..

Comments

  • atnaes
    atnaes Member Posts: 2
    #2
    i went throught it in 98. after the surgury u will need some to help u out for a few days,cause you wont be able to move very much. they actually cut u in then hair area so tey half to go thru several muscels they so u cant move around alot after but once it heals all is fin. i say watch out for the radiation therapy after if they say u need it.im still trying to fix my intestinal tract to this day from that. and they advise to bank some sperm......if you have the money i say do it for i was rendered steril after the radiation. but i am still alive and kicking so its not that bad really..........
  • mydana
    mydana Member Posts: 1
    #3
    hi,my husband had one of his testies removed 2 year ago then we found out the cancer had moved into his lymph nodes. the his doctor then wanted to cut him open from the chest down to his groin to remove these,i opted for a second opion, i looked up lance armstrong's website(wonderful resource site!!) then took him to univesity of indiana(they specialize in testicular cancer ) and that doc said they would have done that 10 years ago but it can now be treated with aggessive chemotherapy. im happy to report he just got his 18month free and clear checkup. please get as much info as you can because now we are dealing w/impotence problems beacause of low testoserine levels (he has no sexual desire and its bad on your mental health,low testosterine levels and low to no sex causes mood swings weight gain ,growing of breast tissue,high stress levels.
  • hiett88
    hiett88 Member Posts: 1
    #4
    mydana said:

    hi,my husband had one of his testies removed 2 year ago then we found out the cancer had moved into his lymph nodes. the his doctor then wanted to cut him open from the chest down to his groin to remove these,i opted for a second opion, i looked up lance armstrong's website(wonderful resource site!!) then took him to univesity of indiana(they specialize in testicular cancer ) and that doc said they would have done that 10 years ago but it can now be treated with aggessive chemotherapy. im happy to report he just got his 18month free and clear checkup. please get as much info as you can because now we are dealing w/impotence problems beacause of low testoserine levels (he has no sexual desire and its bad on your mental health,low testosterine levels and low to no sex causes mood swings weight gain ,growing of breast tissue,high stress levels.

    08/01/2002
    Hi. I had both my testies removed 09/17/2001, at 36 years old. I had it easy. I caught it early and have not needed any radiation or chemo (so far). I am single, but tried to save some sperm just in case. It turned out I was sterile anyway. Nevertheless, I was happy to have it so easy, and did not think I needed any support. I also felt like I had it too easy to deserve any support. Well, I am a completely changed person now. My personality is so different I do not even recognise myself, and I do not like the man I have become. My family is supportive, but they too, do not like the new me. I get hot flashes and am extremely irritable. I used to be light-hearted and fun. Now I am grumpy and dull. I am still attracted to women, but it is different now. It is only a mental attraction. There is no physical or internal urge. It is an academic, sterile attraction, because my mind remembers that I should be physically attracted. It is hard to deal with the fact that I know the difference between the two types of attraction but only have one. Not only have I lost sexual desire, but I have also lost all motivation (desire) in general. I am just going through the motions now. The only motivation I have is to keep going to work so that I can pay my mortgage and not lose my house. I had a complete breakdown today that came out of nowhere. So, I realise that I need some help. I got on the internet and this is the first site I found. I don't want to go to a psychiatrist yet. I would rather join a discussion/support group first. Is there anyone out there who lost both testies and is having problems like me? If you just discovered your cancer, I am sorry if I have scared you. This kind of cancer is the most curable. I am just having trouble with the changes that the loss of testosterone are doing to me.
    Todd
  • anamul4
    anamul4 Member Posts: 1 Member
    #5
    hiett88 said:

    08/01/2002
    Hi. I had both my testies removed 09/17/2001, at 36 years old. I had it easy. I caught it early and have not needed any radiation or chemo (so far). I am single, but tried to save some sperm just in case. It turned out I was sterile anyway. Nevertheless, I was happy to have it so easy, and did not think I needed any support. I also felt like I had it too easy to deserve any support. Well, I am a completely changed person now. My personality is so different I do not even recognise myself, and I do not like the man I have become. My family is supportive, but they too, do not like the new me. I get hot flashes and am extremely irritable. I used to be light-hearted and fun. Now I am grumpy and dull. I am still attracted to women, but it is different now. It is only a mental attraction. There is no physical or internal urge. It is an academic, sterile attraction, because my mind remembers that I should be physically attracted. It is hard to deal with the fact that I know the difference between the two types of attraction but only have one. Not only have I lost sexual desire, but I have also lost all motivation (desire) in general. I am just going through the motions now. The only motivation I have is to keep going to work so that I can pay my mortgage and not lose my house. I had a complete breakdown today that came out of nowhere. So, I realise that I need some help. I got on the internet and this is the first site I found. I don't want to go to a psychiatrist yet. I would rather join a discussion/support group first. Is there anyone out there who lost both testies and is having problems like me? If you just discovered your cancer, I am sorry if I have scared you. This kind of cancer is the most curable. I am just having trouble with the changes that the loss of testosterone are doing to me.
    Todd

    Todd,

    Your story speaks to me more so because my boyfriend most similarly went through what you are going through. I hope you realize that not having chemotherapy doesn't make your situation any less serious. You're a cancer surivor and that is amazing. I hope you can once again see the beauty in life and recognize that you're still a man with or without your testicles and a better man at that because you were strong enough to defeat cancer. Remember that things always get better even though you see no hope of that now. Just hold on =)

  • Shortykoza
    Shortykoza Member Posts: 4 Member
    #6
    https://csn.cancer.org/discussion/comment/496129#Comment_496129

    Hello how are you doing ….

    my name is todd richard koza im 39 years old an im a survivor of cancer 2 x, an im cancer free 4 years now......                                                                                                                                                                  

                                         


    Do u know how Rare u here about testicular cancer on tv never, u here about breast cancer,brain cancer,lung cancer,pancreatic cancer,lukeima,hodgekins,bone cancer an more..... Men at 15-35 get testicular cancer an live an fight but some don't..... I'm making a stand for men around the world an every human being dealing with cancer it's a bad disease to have u could die from it I lost my mom an uncle from cancer an ima survivor of testicular cancer 2 X........ Please gentlemen go to the doctor an get ur self checked cause if u don't ur going to go through lots of hell to get rid of cancer an let me tell u it's not easy your going to have to go through treatments lots of them an blood work an chemotherapy an radiation therapy an it's going to take a toll on ur body, Loss of hair, throwing up, hot an cold flashes etc.. But u will be sore after all this is done u won't be able to rest but when you do rest it's starts all over again treatments everything... So I'm standing up 2 cancer an ready to stop it I its tracks.... Have anybody ever see somebody go through cancer it's not fun, they're always sick an in bed fighting this **** disease that's going to kill them etc. men don't be afraid to step up an get urself checked out ok it's worth it in the long run...... I was in high school the first time I had cancer an the 2nd time at work an my co-workers were scared for me but they were there for me anything that i need they were there helping me out and more... Now I'm cancer free over 4 years now an getting busy living... So guys who's with me on the fight to stop testicular cancer in its tracks, I made a group on Facebook if u gentlemen want to join ok an my team name is "SHORTY KOZA N' THE SURVIVORS",,,,please talk to me I'm here to help an I'm behind u all 100%.... I'm spreading the word an I would love to have more help getting more viewers etc... What would u do if u didn't get checked out an u feel sick an in pain an more......

  • Shortykoza
    Shortykoza Member Posts: 4 Member
    #7
    https://csn.cancer.org/discussion/136603/testicular-cancer

    Hey

  • sanaz
    sanaz Member Posts: 1 Member
    #8
    https://csn.cancer.org/discussion/comment/1359125#Comment_1359125

    My brother just through orchidectomy. He is going through a lot and i feel like i cant do anything for him.

    He did two chemotherapy session with carboplatin to make sure there is no sign of cancer. It has been a month since his last treatment.

    My brother only had one right testies but he feels pain on the left groin and feeling itchy

    My brother is worried and doctors dont find anything on ultrasound

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