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Path Report
Path report today, endometrial adenocarcinoma IIIC2 grade 3, the uterus and 2 lymph nodes but everything else including omentum and pelvic wash clean....starting chemo tomorrow but only one chemo drug will be used this first time then on Nov 15 adding Taxol....my dr was very pleased how I am healing after 2 weeks...so no…
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Newbee
Hi Everyone, First of all I would like to thank all of you for sharing such personal experiences, supporting, caring and being sincerely concerned. I have been following the posts about uterine cancer and have found comfort knowing that we don't need to feel alone in our journeys. Thank you! My name is Shari and here is…
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Update on Hip Pain.
Went to PT this morning and the therapist told me she wasn't sure she should tell me what the MRI of my left hip that I had done last Wed. shows but she did anyway. She says the MRI shows a tear in the gleteus medius muscle (muscle on the outside of the hip) where it attaches to the greater thochanter (lateral hip bone)…
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need some motivation
Need some motivation. I was really excited the other day about being done with chemo and really i still am. Today is the day i would have been sick and i am so glad i am not doing that. I am going with a friend today that i havent hung out with much because i wasnt feeling good. I did do one thing with her during chemo…
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OK, now i'm freaking out
Dr office just called to confirm my follow up surgery appt on Monday 10/24 and my chemo starts 10/25. I don't even have my path report yet, starting chemo so soon is giving me the idea that my report is extremely bad!!! Maryanne
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Did not qualify for immunotherapy
I cannot sleep tonight. Today we went to see an oncologist for the upcoming immunotherapy trial for endometrial cancer. Mum did not qualify for it as she is not "fit enough" for a trial. This was my last hope! The chemo does not seem to be working as mum's breathing is getting worse. She cannot even walk now. And to make…
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Dragonfly Parable
Someone posted this on the Inspire Ovarian Board. It kind of captures how I feel about getting this diagnosis, changing because of it and then not having the others in my daily life understand that I am not the same person I was before. Others have said that it represents passing-on from this life for them. I thought some…
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pelvic and Hip Pain
I saw an old thread and wasn't sure if I should make a new one or respond to the old one, so forgive me if I chose wrongly. My cancer reccurrence was discovered in June, but the doc at Mass General in Boston told me that because I was feeling good and doing well, and my scan showed very small cells in 4 lymph nodes it…
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2nd Pathology Report Para-Aortic Lymph Nodes
I am so depressed right now. My mom's pathology report for her second surgery came today. Five para-aortic lymph nodes taken out on the right side, 6 on the left side, for a total fo 11 lymph nodes in all. All 5 lymph nodes on the right show adenocarcinoma metastasis. The 6 on the left came out negative. Her omentum shows…
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good news for me
My kids and i celebreted the end of chemo by going to lunch today. I know i was done three weeks ago but tomarrow would hae been the day i would be going to do chemo if i was still on my cycle and i am totally excited that i dont have to go. As much as i dont want to feel the pain of bracytherapy tommarrow i would much…
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Change in Eyesight
I finally went into the eye doctor last Thursday. During chemo my eyesight was all over the place. I remember the day I had my port removed - I could not even see good enough to sign the consent form. With or without my glasses, everything was a big blur. Then some mornings I would wake up and I could see every leaf on the…
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Has anyone had carboplatin and taxol treatment for uterine carcinosarcoma? Please share with me!
I'am to start carboplatin taxol treatment in three days. Doctor changed plans. I would really appreciate hearing from anyone who has had this treatment. Thanks, Glenda
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Metformin
Metformin has been studied for use along side chemo for endometrial cancer. Anyone have experience with this drug? Maryanne
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Back to a Second Surgery to Complete Staging
So, after much thought and getting opinions from various doctors, we've decided to go with the gyn/onc's (and the tumor board's) recommendation to complete my mom's staging by going for a second surgical procedure to remove para-aortic lymph nodes, the omentum, and the hypermetabolic fluid she's collected from the last…
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Celebrating 5 years
I just wanted to share my good news with my teal sisters. I just had my last 6 month checkup with my wonderful gynocological/oncologist, as it's been 5 years since I finished treatment for uterine papillary serous carcinoma. I've got no lasting side effects and no sign of cancer at all. When I started treatment in 2011, I…
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Good news
It has been 1 year since my surgery and after radiation and chemo I just had my second appointment with the oncologist since my scan and I remain clear. I won't have another scan for six months. (I guess I've been radiated enough and he doesn't want me glowing.) Anyway I'll just be closely followed every 3 months. What a…
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Diet & Supplement help
I am looking into the raw diet that I have read about. Meaning going back to my Southbeach Diet I started years ago that has low carbs and no to low sugar. Can anyone recommend any cancer diet books and any supplements that would help in fighting and a better recovery from this disease? Maryanne
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update MRI
Heres my up date. I got my MRI results back. It looks like it wasnt as bad as they doctor thought or what i thought. There was some wedging on my T-12 on my vertabra. I dont know all the technical terms but i do understand what it means to some extent which to me is what is important. The nurse i talked to said the doctor…
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Newbie at this cancer thing and I hate it
Had my surgery at Memorial Sloan Kettering Sept 15, 2016. All went well, in fact, if it wasn't "clear cell" I might have gone home and never had to be a part of the cancer community, but here I am posting after just reading Editgirl's posting from Oct 1, very bad day. This Tuesday, Oct 18th will be my first chemo and I am…
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One year and still NED!
I just got done with my one year checkup at my oncologist and everything still looks good!!! I am so happy. These checkups are so dang stressful but I know they need to schedule them. Love, Eldri
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question about Vit. D
Can a person take too much vituman D? Is it bad for any reason. When i went to my GP she told me to take 2000 mg of Vituman D and now that my results of my levels have come back(i cant remeber what they are right now and misplaced the paper i wrote it on ) she had uped my milagrams to 5000. that sounds like alot. Any input…
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Shingles
Just curious about whether anyone has developed shingles while in treatment. I had shingles two years ago. In fact, I think it may have been a triggering factor in developing cancer; or at least the two things happened at around the same time because of some immune system issue. When I had my hysterectomy I started getting…
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No insurance soon. I hope not
I feel like the world is crashing down under me. It of course is not but i came home from picking my daughter up and just started crying. I still havent heard about my MRI for my back. she was suppossed to tell me on wed. So much for that. On top of that there is a possiblity that i might loose my health insurance in…
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Chemo update
I have not logged in a couple of weeks. Just read through the new messages. Thought i'd give you an update on my mum's chemo also. She has had 2 chemo so far. Just carboplatin. It has been quite difficult 6 weeks so far. First chemo resulted in a clot near her heart so she was hospitalised. Her normal heart rate is very…
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Thank you
I just wrote a post and tried to send it and it didnt work so i am going to try to do it again. There is a lot going on with the women and friends on this forum. There are friends doing chemo and family members doing chemo. There are others having reacurances while others who are NED and moving on. Some of us have had to…
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Anxiety
Anxiety is starting to build and getting scared over path report. I know everyone says to take it one day at a time but today seems to be getting away from me. The path report will be in soon and I am trying not to overthink it all but for some reason today just isn't a very good day for me. I seem to be getting around…
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Still Terrified
I go Wednesday for my post-op and 2nd pelvic wash results on Wednesday. Time is running out for me to accept or reject 28 days of EBRT. Part of my concern is that being diabetic now doubles my risk of developing pelvic radiation disease up to 5 years afterwards. I have a lot of trust in my gyn-onc, but let's face it: his…
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port discomfort
I had my port surgically inserted this morning, right side. I've rested and done the ice pack on and off as instructed. I'm having some tightness/discomfort around my neck. I am assuming this is normal?? It's tolerable and there is no swelling or redness on the incision. Maybe I'm just too impatient in getting used to…
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So Far, So Good
I saw my gyn/onc today, who poked and prodded everywhere he could poke and prod. He laughed when he said I am so slender that he can easily feel every lymph node in my groin area. He spent a little more time during the rectal but didn't feel anything unusual, and said my vagina looked good. Since we are close to 6 months…
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Update, back home after surgery.
Made it home after total abdominal hysterectomy on Friday. According to my fiance, my dr told him after the 5 1\2 hrs of surgery she got all the bad stuff out. Took uterus, cervix, fallopian tubes, ovaries, omentum, and lymph nodes. One lymph was pretty bad but the other wasn't. No problem getting lymph nodes out, which…