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Back Ache
Tomorrow will be 5 weeks since surgery and just started back to driving. I pulled a muscle on my right side lower back which sometimes makes my right leg ache after my first driving trip. I have been taking Tylenol which seems to help. It doesn't keep me up at night but just seems to ache during the day. Any one have this…
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Cancer without health insurance?
I am self-employed, and all day I have been so upset about the possibility of losing my health insurance next year (due to repeal of the ACA) that I can't think straight about my treatment. I'm supposed to be preparing myself to restart chemo tomorrow, but can't focus on that. Has anyone on this board dealt with having…
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In shock for now...
Ladies, I met with my oncologist this afternoon to review the results of my CT Scan. Not good news. The Topotecan isn't working, and the lesion on my liver has gone from 1.8 to 2.3 cm. My CA125 is 63 which is the highest it has ever been. He has suggested going on Taxol (his first choice) or Gemzar (2nd choice) but the…
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Reoccurrence after initial diagnosis and hysterectomy
My mom (not internet savvy) last year at age 75 was diagnosed with uterine cancer. It had penetrated the muscle wall but had not spread outside the uterus. The ovaries were cancer free, as were over 30 lymph nodes. She underwent the recommended radiation due to having 3 of 5 risk factors for a reoccurrence. She finished…
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Love Your Lady Parts Walk in Wash DC
Ellen, How was the walk/run this weekend in Washington DC? Any new news to report on? trish
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Update
So this is what is happening with me. Looks like my work is going to find a place for me. Its not going to be in the same school because they are fully staffed, but i talked to the lady that does the benifits and she told me that the highering manager, who i have taked to previosly, will be calling me to let me know what…
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Radiation Off the Table For Now
So yesterday I had my consultation with radiologist number, let's see, over the course of a year I'm up to #5. We went over the areas that lit up on the PET scan. He explained the stereotactic procedure, said that he could certainly radiate those two areas. But he was recommending that I do chemo again, his concern being…
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Back to ER...
Darn darn darn . Today is my nadir and you guessed it, fever and chills. Hubby is at his ill parents. Fever up to 102.5 so as soon as he get here we are back to Dante's Inferno (ER). Crap but knew my white cells suck. Will let you know when (if) I ever make it through the ER! I know it will be fine just don't like going…
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CA125 increase
I was diagnosed with USPC grade 3 stage 3c in April 2014. I had the pretty typical treatment, Da Vinci surgery followed by 6 chemos with carbo/taxol and then 26 radiation treatments and 2 brachytherapy. My CA 125 was 49 after surgery, dropped after the first chemo and has been in the teens since July/2014. My lowest number…
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Phase Two Done
I had my last brachy treatment today, so I'm done with the radiation portion of the "sandwich." On the whole I'd say my symptoms from external and internal radiation have been mild--or else I just don't remember them after they pass, which is also possible. Some mild urinary irritation and some diarrhea. I go back for a…
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Dilator with internal radiation
i begin internal radiation tomorrow. I've been using the cool water cones I intermitently. The nurse told me that they don't advise use of the dilators until 6-8 weeks after therapy although sex is okay (not really interested right now!). That seems different from from all of you have done. Did you use the dilator when in…
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Brachytherapy question
I had my last external radiation treatment today (yay!) and start brachy on Monday. I have a question about side effects of brachy. Does it make you urinate more, especially right afterward? I have a two-hour trip home and would like to plan for any immediate effects. Thanks.
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Sister diagnosed with Endometrial Cancer
My younger sister was diagnosed with endometrial cancer yesterday after getting results of a biopsy. At least that is what she think they called it. She is meeting with a gynocolgy oncolgist this afternoon and the plan is for me to join her meeting via telephone (she didn't want me to fly to Baltimore last night to be…
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Weight Loss
It's been 1 week since 1st chemo treatment. Eating all day long instead of 3 big meals a day and feeling pretty good. The scale seems to be going down instead of up or holding. This is what I ate yesterday: Premier Protein shake 30g protein; 1/2 peanut butter w/sugar free jelly and sugar free whole grain bread; popcorn;…
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Chemo Update & Constipation
Received carboplatin on Tues and doing ok so far. Today, day 2, feeling a little more tired today and the constipation seems to be a problem. I took Colace and 2 Senokots this morning and will get Miralax later today but drinking tons of water so hopefully things will get moving soon. Anti-nausea meds work great so I am…
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Bracytherapy preperations
I start brachytherapy in a week from tomarrow. Wondering what i might need around the house to be ready for any after effects. I am hoping i dont have any but i guess just in case. All suggestions wil be helpful. Thank you very much
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Women on Metformin who are not diabetic or pre-diabetic
Is there anyone here who is on metformin who is NOT diabetic or pre-diabetic? It seems that everyone I've read about who is on it has one of those conditions. I know, thanks to TakingControl's research, that it works against cancer in a number of ways that don't seem to be connected with diabetes, and so was curious if…
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Hey y'all...
I am trying to get back to normal, whatever that is. I did have my 6th year clear in Oct. Heart steel beating but they found another birth defect. Leaving that alone for now. The fall did more damage than they thought. I did a CT scan that was ok, but I did have a bad concussion. My speach is somewhat effected. I can see…
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Exercises to help through treatments??
I just wondered if anyone has an exercise routine that helps get strength back while doing chemo and radiation? I walk almost everyday but feel I need to do a little more to get my core strength back. Since my hysterectomy there's been one "blow" after another with port insertion then the start of chemo causing low energy.…
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Advocating for cancer research
If this isn't acceptable - please let me know and I will remove it.... As someone who has both Invasive Ductual Carcinoma (breast cancer Stage II) and USPC (Stage IIIC1) that were diagnosed with 4 months of each other I have been feeling the need to advocate for cancer research in some way. I went to Washington DC last…
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wondering if Hearing loss has been an issue with Carbo
After Chemo #1, experienced long, long list of issues. One was numb (like novacaine wearing off) teeth, achy left ear and throat. I still have a slightly achy ear so I decided to visit an audiologist before next chemo to get a baseline hearing test so I can monitor any problem or progression problem with my hearing. i am…
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Lou Ann, how are you doing?
Lou Ann, I've been thinking about you and wonder how your treatment is going? Love, Eldri
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song about being bald
https://www.youtube.com/watch?v=sNaW6FyiJRI&feature=player_embedded# In found this fun uplifting song about being bald. though someone might be interested.
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beccabtown, how are you?
Haven't seen a post from you since you asked about fluid in your abdomen. Hoping you're ok.
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1st Chemo
Yesterday was my first chemo infusion. Port worked great still a little sore from it being put in Monday but it was only painful for a short second when the nurse put the needle in then taking it out. My nurse was amazing. I only received Carboplatin because my dr wanted to get a head start (I call them my little soldiers)…
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Questions about caring for a patient with radiation enteritis
Hey everyone! I'm curious to see if someone out there had any advice for me as a caregiver to my mother who is almost 1 year cancer-free (thank you God) after having stage 3C Endometrial Adenocarcinoma. She had chemo followed by pelvic radiation (28 external, 3 internal, 1 external from side/behind) which wrapped up on New…
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A little something
Well, two little somethings actually. My gyn/onc went over the PET scan with me. There are two "suspicious" areas in two lymph nodes, one para-aortic, the other just above my kidney. Neither of the nodes is enlarged, and the sizes of the suspicious areas are tiny..one is 7mm, the other 5mm. So the question is, what to do…
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Kidneys?
I completed treatment in May (surgery, chemo, brachytherapy) for stage 1A uterine carcinosarcoma (MMMT) and papillary serous (they found both types). Was told I'm in remission (yay!). On both the pre-treatment and post-treatment CAT scans there were what was described as "low-density renal lesions" that couldn't be…
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My Job
So i went and talked to the director of my work today. Good thing i did becauce she was going to be out of the office the next couple of days and she had told me to contact her before the end of the month. The bad news was that the gentleman just under her is the one that works with all the highering and he was not there…
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adenocarcinoma arising from endometriosis (ovary)
hey folks... so I was originally diagnosed with Stage 1A, grade 1, endometrioid adenocaricinoma in 2014. i had a total hysterectomy with right salpingo oopherectomy. in other words, i left my left ovary behind. two years later, there's a large mass on my left ovary. the mass was stuck on my sigmoid colon so they had to…