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Uterine/Endometrial Cancer

Positive News
This board has been a lifeline for me - which doesn't stop me from flipping out every second. My oncologist has the personality of a rock and I haven't gotten as much infomation out of her, but did have a long talk today with her fellow, which some of you may find useful. She told me that (1) they rarely-to-never see lung…
Maybe a recurrence
Hi, Has anyone else in this group had a recurrence to the lungs? My CA 125 has been going up for the last 4 months and has now doubled from 49 to 99 and they found 4 nodules in both lungs on my last cat scan the end of Sept. I see the Dr. on Tues but I want to know if it is my lungs do I still keep my wonderful Dr. or do I…
Re: Second Update on Reoccurrence
Hi Ladies: I saw my oncologist this morning. Rather than trying chemo right now, my oncologist recommended he wants me to take medication called Tamoxifen. It is also used to help with breast cancer as well and is used to treat uterine or endometrial cancer which I have. Anyway, he said the medication works for 1 out of 3…
Chemo Port Questions
Are there any chemo ports that do not have any acivity restrictions after being put in or that I can recover from in a weekend? If I miss any more work or end up on limited duty, I'll lose my job and medical insurance... Thanx!
Bleeding
My ill uterus has not been removed. I have light bleeding a little pink. Who knows that?
Chemo and Blood Clot
Anyone here ever get a blood clot during chemo. I did and I'm not even finished with round 2. I had no idea blood clots could be a side affect. The ironic thing is I went ER for intestinal issues. Kudos to the ER Dr. Anyway, I now need 2 injections of blood thinners a day through chemo.
new and waiting. anxiety off the charts
Last may I began having vaginal itching and had slight bleeding. Went to nurse practitioner. Had abrasions and cervicitis due to vaginal atrophy. I'm 58 btw. Postmenopausal 2 years. Performed tvu but due to a very large fibroid that I've had for 20+ years (measured 14 x 14 x 11 on tvu) it was impossible to see lining…
taking dexamethasone steroid before chemo (carbo/taxol)?
Hello I was wondering if everyone/anyone who has had carbo/taxol was required to take dexamethasone (steroid) before each treatment? I had a reaction to the steroid when they gave it to me with the cisplatin, (they said it was for my chronic nauseau) and my heart almost exploded out of my chest...I refused to take it…
Immunotherapy
I was just put on the megace and tamoxifen regimen. In one week, the intense pain in my pelvis and radiating out to my legs, affecting my walking and sleeping, is all but gone. I am really surprised, and super glad I went to Boston for that second opinion. He saved me from repeating the taxol carboplatin that would have…
too much vitimin D for a long time
I went and saw my family doctor on wed. It was a follow up appointment about my vitiman D defitiency. She showed me my new levels which i had done a few days earlier. The levels had gone up. Not way up but i was glad they went up. I was taking 5000 ui which i though i would take until my levels were up. I asked her how…
Lymph Nodes and Chemo?
Hello good friends, I'm having surgery in 6 days and had my pre-op today. As usual, my oncologist failed to develop different scenarios ("we won't know until we get in there"), so I don't know what to expect. I'm having a total hyster (ovaries et al), pelvic & para-aortic lymphadenopathy and possible omentecomy. I have…
Pain, abdominal ache, bloating etc. etc.
Hi all, I need to pick your brains. I have been having pain like a period coming on- that's the best I can describe it. My abdomen is tender aching and distended, it feels like I have overies that are aching, low back ache and unexplained weight gain. This is all very alarming since I have nothing in there and that is…
Happy Thanksgiving and a little blessing to share...
Hello Ladies! First Happy Thanksgiving!! I am currently surrounded by my three married kids and seven grandchildren and it is chaos central, but truly wonderful. Since I last checked in with the dire prognosis from my gyn/onc, my naturopathic oncologist has weighed in ("He is not a psychic! Those are just statistics!! You…
Consult with ME regarding extreme sensitivity to chemo regimen
hello, to everyone, my best wishes to all for the upcoming holiday season I wanted to update everyone on my consult with mgy medical oncologist today regarding all the many side affects the chemno regimen has given me. I also want to thank everyone for their guidance and opinions which gave me strength and encouragement to…
Happy Thanksgiving-thankful for so many things.
So very much to be thankful for this year. Thankful that I am alive, wonderful fiance, family, friends and all of you ladies who are truly an inspiration. Especially for God who is with me every second of the day and has blessed me more than I ever thought I could be. I wish every one of you a safe and very Happy…
Thankful
Happy Thanksgiving to all of you on this special board. I am so very thankful that I have found you. You are all so caring and thoughful and very helpful. Hugs and prayers to all of you. Stay strong. Sue
Somewhat off topic
I will be on Medicare as of the 1st of Dec. I have A&B and have a perscription Plan D in place. What I need is a "gap"plan. I have looked so much my head spins! Any suggestions? I'm looking at AARP just because they are familier to me and the plan "F" will cover all of the 20% A & B except 2,800.00. It is supposed to cost…
Another recurrence
I was diagnosed with serous uterine carcinoma in 2012 when I had a complete hysterectomy and because the pathology report came back with no involvement anywhere but within my uterus, my oncologist and I opted for a plan where I would get CT scans every 3 months And no chemo. 2 years later it was back as a 1.2 cm. Spot on…
Has anybody heard from brissance (Patty)?
I haven't seen anything from Patty since November 9th here and on Facebook since November 10th. She had been hospitalized but then seemed to be doing better. Patty, if you can see this, just give a thumbs up!! I'm worried about you!! Love, Eldri
Another Chemo Treatment Done
Monday I had my 2nd chemo treatment. Actually since I had both carbo/taxol this time my dr considers it my first treatment. The one in October was actually just carbo to get a head start on treating anything floating around. It went very well. I am seeing a radiation oncologist on Dec 5 because she wants to do radiation on…
Introduction from a newbie
Newbie
Hello, I wanted to introduce myself. I just got back from my post op appt with my obgyn onc from my complete hysterectomy. What started as endometrial cancer spread to one of my ovaries, so chemo is the route we are taking to make sure that none of the bad cells escaped to other places. I will do the six sessions of chemo…
PAP identifying uterine cancer-Your opinions please
So ladies, I want your opinions. I started spotting in January of 2016. The previous November, I had been to my GYN for my annual visit and got the all clear. When I began testing in January for the spotting ( which ultimately led to my Stage IIIc, Grade 3 adenocarcinoma dx) I found out that my GYN ( who had since retired)…
Red dots appearing under skin, what next
ten days after 1st chemo have itchy under the skin, flat, blood red small spots, hurtful if I scratch otherwise would not know they are there - several on my thigh, one on my chest, now one on my cheek - what next, everyday something new, yesterday bloody nose. Barely a day since first chemo that I haven't had something…
Diagnosed with Uterine Clear Cell (UCC) with Serous (USPC)
Hi All, unfortunately I am diagnosed with UCC and USPC. It took five months to get my doctors to tell me the exact medical term so research was weak. I found out on March 30 2016 that I had cancer. I started bleeding that led to a check up. Then the horrible news that no one is ever prepared for. The only thing I don't…
Interesting article - targeting tumors
https://www.mdlinx.com/oncology/article/670?utm_source=in-house&utm_medium=message&utm_campaign=lf-onc-nov16
first day back to work
So i made it through my first day of work. Thank goodness my boss let me sit down a couple of times. I was a little nervous of that. It sounds like the gentleman that highered me told my new boss and she must have told her lead cook about my cancer. Im not sure how i feel about that but I was glad to some extent so they…
Saw my GP yesterday!
I saw my GP yesterday morning and asked her to run a full blood panel on me. I told her about having to sleep 9-10 hours a night and sometimes still taking a nap. Her nurse called me yesterday afternoon and my TSH (thyroid test) was 8.705 (normal is 0.358 - 3.740 uIU/ML). She said the doctor recommended I skip going up one…
Naturopath weighs in...
Hi Ladies, ..an update. Had an hour long conference with my naturopathic oncologist today and as a result am feeling somewhat better. She said I am not a milk carton and there is no date stamp on me. My doctor was using statistics, can't possibly know when I am going to die, and proceeded to tell me about her friend Dr.…
Risk factors uterine cancer
It is with great sadness that Gwen Ifill, noted political correspondent and PBS news anchor has lost her fight against uterine cancer today. Of note she never had been pregnant which is a risk factor for uterine cancer. I loved and admired her as such an amazing woman in her work and courage.

Uterine/Endometrial Cancer

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