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mlshep
mlshep Member Posts: 6 Member
in Uterine/Endometrial Cancer #1

Carcinosarcoma

I was diagnosed with Carcinosarcoma 7/2018, had surgery 2 days later, was Stage 3A, proceeded with 3 treatments of Carboplatin and Taxol, 25 external radiation treatments, followed by 3 more treatments of the Carbo/ Taxol . I tolerated the treatments well, just really zapped my energy and strength toward the end. A CT scan has shown no evidence of disease.

i would like to ask if any of your doctors have suggested genomic testing through Foundation One, and if so, what are your thoughts?

It is so interesting to read others paths with this disease and to see that there are those who are still doing well.

 

Forgot to say I was diagnosed at 63.

Lynn

Comments

  • zsazsa1
    zsazsa1 Member Posts: 568 Member
    #2
    I went ahead with the genomic

    I went ahead with the genomic testing with Foundation at diagnosis.  My insurance won't cover it, and I'm probably going to have to negotiate a deal with them.  So far, the information found has only been a duplicate of information found on covered testing.  So I don't know if it will have been worth it.

    There's a saying in medicine.  If the test isn't going to change the management, don't do the test.  Have a consult with your oncologist and ask if there are any changes that would be made in management AT THIS TIME, with the info from Foundation.  If the answer is no, then don't do the test now.  You can always have it done in the future.

     

  • Forherself
    Forherself Member Posts: 1,018 Member
    #3
    There are others who have

    had it done.  I guess they dididn't look at your post.    Don't give up.  Others will answer.  Zsazsa has very good advice.

  • mlshep
    mlshep Member Posts: 6 Member
    #4
    zsazsa1 said:

    I went ahead with the genomic

    I went ahead with the genomic testing with Foundation at diagnosis.  My insurance won't cover it, and I'm probably going to have to negotiate a deal with them.  So far, the information found has only been a duplicate of information found on covered testing.  So I don't know if it will have been worth it.

    There's a saying in medicine.  If the test isn't going to change the management, don't do the test.  Have a consult with your oncologist and ask if there are any changes that would be made in management AT THIS TIME, with the info from Foundation.  If the answer is no, then don't do the test now.  You can always have it done in the future.

     

    Thanks

    Thanks zsazsa1, I am trying to sort all of this out, your response is very helpful.

  • pinky104
    pinky104 Member Posts: 574 Member
    #5
    To Mlshep

    I had Foundation One testing after my recurrence I had in 2017 (I'd been in remission from 2010 until then).  The testing found four genetic mutations, none of which had any drugs approved for use in my type of cancer (UPSC).  I think Foundation One either paid for my testing or resubmitted it and was paid for it (but I didn't get any notices from my insurance about it being covered, so I think Foundation One probably paid for it).  They had very liberal income limits, and I fit in those limits.  Give it a try.  Even if nothing is found to help you, at least you'll know you didn't miss out on something that might have helped.  

  • Lulu7582
    Lulu7582 Member Posts: 112 Member
    #6
    Genomic testing

    Yes I too had genomic testing thru Foundation One and some one paid for it...not sure if it was the insurance or Foundation One. 

    It gave good information that is helping the docs decide the best treatment plan to attack my mutations. 

    I also did genetic testing and that all came back negative which I was pleased about because I am not passing on any increased risk factors to my kids or future grandkids. xo

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