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Working on Funding for Research for Serous Uterine Cancer (and the other rare uterine cancers)
I wrote my congressmen, senators about funding for our cancer. I also wrote Warren Buffet and then found Bill and Melinda Gates web site; they have funding for rare diseases so I wrote them too. I am going to try Michelle Obama and the NIH too. As I look at the research studies there just are not enough out there for us. I…
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Treatment or no?
Hi, everyone, I have been lurking & listening to what you all have been going through. I had my histerectomy on the 11th of May, & am recovering nicely from that. On my release day, my Dr showed up & told me I was 3C-I was shocked & devastated as we were led to believe that the surgery was all I would need. Now I have seen…
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Question about nadir
Everyone, I am alittle confused about nadir. I head the materials for taxol and carboplatin and one has nadir 10-14 and the other 15-21. Does that mean that between the two drugs our nadir period (weakened cell counts) are from the 10th day to the day before the next chemo (when chemos are every three weeks?) Is this the…
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Mom post total hysterectomy and node dissection/questions
My Mom had her hysterectomy (cesarean type incision) and lymph node dissection last Wednesday. Came home from hospital Friday. Has had lots of issues since. Seems her sciatica nerve is messed up somehow. She has not been able to sleep in bed since coming home, sleeps in a chair at night sitting up and with one of us on the…
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Vision Floaters and/or Flashes??????
Hi all, Has anyone experienced vision floaters and/or flashes while on carbo/taxol? I remember having flashes about 10 years ago. If my memory serves me correctly, my opthamologist explained that they were the result of the vitreous gel-like substance in the eye breaking away, something that happens as we age OR a symptom…
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second post treatment Dr. Visit Confused???
Had my 2nd post treatment Dr. Visit. After reading on this forum about Dr. doing scans at 6 mos etc. I am wondering if that is the norm or not. He does a pap and goes by the C-125. I asked him if the C-125 was a good marker for me since it was never taken before surgery. The first I ever had was after the first Chemo and…
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Nempark
Hi. Can you tell me what kind of juicing you did with what fruits and veggies? How many a day? What else did you do to help? Do you use the Jack LaLane juicer-I do have one of those but haven't used since surgery-was afraid sugars in juice would be too condensed.
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my visit with my gny-onc this morning after first post treatment ct scan
sisters, my doctor checked out my scan and seemed quite unconcerned about my one slightly enlarged periaortic node, and said there were definitely a number of benign reasons why a node might become enlarged. (of course, i didn't think to ask, like what? at the time.) he also noted that several other nodes had decreased in…
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Symptoms after second chemo-would appreciate feedback from others
Hi everyone. After first chemo I had diareah for 3-4 days and then was ok-had the aches and pains, various symtoms-felt pretty good by second chemo which was one week ago today. After second chemo was very tired for a few days, but this time constipated. I am going now but still not normal. I started getting discomfort…
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Day after chemo shot
I got my first shot to build bone marrow yesterday and today my bones ache really bad. They told me to take alleve but it isn't helping me much. How long does this aching last after the shot? I was feeling pretty good until I got that shot. Mind you I am fatigued today so maybe its a combination of both things getting me…
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Radiation diet
I had my radiation "dress rehearsal" today & start the real deal tomorrow. I know that a low-fat, low-residue diet is recommended if diarrhea is a problem. Has anyone started the diet before the diarrhea starts? Do I eat this diet to prevent diarrhea or just to treat it? I asked my rad/onc RN today and she was a little…
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First chemo today went well
Over all it was not a bad experience. The nurse did have some trouble putting the IV in and had to change arms that hurt quite a bit. Then the benadryl made me free anxious and a little high even 2 hours after she gave me it. They might lower the dosage next time I go at the end of June. Was a very long day from 9:00 a.m.…
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Houston - Survivor's Day Celebration
Anyone in the Houston area attending this today? Cecile
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Second chemo was Friday
Too all my friends, Had my second chemo on Friday-my doc tells me the 2nd and 3rd should be easier than the first. (First I had bad joint pains). So far I feel ok, tired. And this time no diareah so far, but I am afraid I might go the other way-constiptated.I seem to be having some trouble there now. I hope not. I had such…
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Is anyone one on board a Jehovah Witness?
Would be happy to hear from you. June
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Hair re-growth after Taxol/Carboplatin
I just finished 3 rounds of Taxol/Carboplatin, then have 6 weeks of radiation and then another 3 rounds of chemo. My question is, should I expect some hair re-growth during the next 6 weeks? I know it will all fall out again with the upcoming chemo, but was kind of hoping to have some peach fuzz soon.
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z natural--has anyone tried this, and can you tell us about it?
sisters, apparently this product used by some of us, is no longer available. i wonder who has used z natural, and what you think about it? does anyone know of any source for it other than on line? thanx, maggie
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Question about first chemo treatment
I am having my first chemo treatment tomorrow morning. Carbo/Taxol (sp) I am wondering if this will be like a normal IV treatment in that you won't feel anything while its going in? I know some people have side effects right when the treatment begins and of course the side effects after the treatment. But is there anything…
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I will be operated on in 2 weeks and have no idea how I will get to the hospital!
I am new to the area, I have been here for only 4 months and have no friends and my two family members don't drive. Is there anywhere I can call? I am on state insurance, andmy finances aren't too good either. I would appreciate any suggestions.
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Mary Ann concerned about you
Mary Ann been watching for your post as to what you found out when you went to the doctor last Monday. Hope you are doing okay. You remain in my thoughts and prayers. Hope you will share you information with us. In peace and caring.
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first ct scan six months post treatment
dear sisters: just got my first ct scan with contrast post treatment, and given what horrors i had imagined and how i had been preparing for the worst, it could have been, in fact, a lot worse! i have one slightly enlarged node, which we are keeping an eye on. all else was "perfect." my chemo doctor and i agreed to watch…
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Good News to Share
Since my mom's recurrence of Stage III UPSC in December, we have not had a break from bad news and complications. Wednesday she had a CT scan to monitor the effect of the new chemo and... THE SCAN SHOWS IMPROVEMENT!!! This is the most wonderful day. I was so scared to find out the results. I think it is important to note…
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Suggestions are welcomed...
Hello, I hope everyone is doing well in health. I have a question and hoping someone will be able to assist. I was working full time with a contracting company. The position was eliminated so I am now without insurance or a job. I was told that I would need to have surgery but now I cannot have that. I am stressed and…
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enlarged lymph node seen in left obturator region on ct scan
I need information on this subject. The results I got on my ct scan on Friday showed I had some left sided obturator lymph nodes in the 10-13 mm size range. I am diagnosed with upsc uterine cancer,since June 2009.Still receiving my consolidation chemotherapy-Taxol. Last week my CA 125 was 11. Do enlarged lymph nodes in the…
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Just had my second chemo yesterday and some tentative good news from doc
Hi friends! I am uterine cancer stage III. I had surgery end of March and all tumor was removed-including uterus, fallopian tubes, ovaries, and aorta lymph nodes. Doc noted all cancer was removed. We are treating for microscopics. He said if I were to do no treatments cancer would definitely come back. I just had my second…
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I saw the doctor :)
Well im now 6 weeks post my surgery i saw my cancer doctor a few days back and he said all things was looking very grate the scare is healing fine he did a Pelvic exam and said it looked fine he set me up with a visit to the radition Doctor who i see next week we will talk over all that will be done it wont be my 1st…
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Survivor's Daughter - Introduction
Hello everyone, I've been reading this board for a few days and it is one of the more helpful things I have found in my quest for information. My mother (age 57) was diagnosed with Stage III uterine cancer in July 2008. She had a hysterectomy/oopherectomy, internal/external radiation and a course of chemotherapy, which she…
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first ct scan six months post treatment
dear sisters: just got my first ct scan with contrast post treatment, and given what horrors i had imagined and how i had been preparing for the worst, it could have been, in fact, a lot worse! i have one slightly enlarged node, which we are keeping an eye on. all else was "perfect." my chemo doctor and i agreed to watch…
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My hair is coming out now-2 weeks after first chemo
Well, just wanted to share my hair is coming out in clumps, just as I was told would happen. In the shower yesterday after combing tons came out. I can't even look. I just tured my back to mirror put on the wig I got free from American Cancer (which doesn't really look good on me and is wrong shade for me-I will have to…
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biopsy of uterus
I am scheduled for one tomorrow and curious about what to expect? I have had two children so my cervix has been opened before but that was 13 years ago. I am a cancer survivor already from head and neck. Not lookong forward to any of this but trying to stay optomistic. Duck