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Unofficial CT/PET scan results and official CA125
Well, not the news I wanted but it could have been much worse. My CA125 went up from 24.6 to 53.9, and 2 of the 3 lymph nodes that had disappeared on my last CT/PET lit up again. (sigh) The news on my scan is unofficial, but here's what I learned: The para-aortic lymph node that lit up is really tiny and wasn't even…
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Does anyone have tips to take care and feel better and gain strength during taxol/carboplatin
Hello everyone. I am new to the boards-my first post yesterday. Does anyone have tips that have worked for them to feel good and build strength? Right now I drink two protein drinks (Ensure) a day as I know protein is the building block. What other things does everyone do that have worked for them? Thank you all! :)
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please add postivety by telling i am in NED
Hi, please tell evryone to just write one line i am in remission or NED With stage and grade of cancer. I have noticed, we need postive news. so please add here if you are in NED. iT will encourge other ppl. Thanks Kumar
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meditation and other cds you recommend??
sisters, i know some of you listen to meditation tapes, and other cds. can any one recommend ones that were/are particularly helpful to you in terms of cultivating calm, inspiration, hopefulness, etc.??? thanx, maggie
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Update
well i thought i would add an update i saw a 2nd cancer doctor last week who told me to stick with the old one and said to go a head and do the radition. so i guse this is what i will be doing. i go back on may 26th i believe it is, Things are slowly beter the meds i am on helps with my tummy sickness im slowly geting my…
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first ct scan post treatment with and without contrast --tips on how to best handle this??
hi sisters, i'm going in for my first ct scan with contrast and have to drink some yucky stuff the night before and day of. i hear making it cold, and drinking through a straw helps. any other recommendations from those who have gone through this? as always, thanx so much. maggie
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Taxol/Carboplatin every three weeks vs Taxol every week and Carboplatin third week
Hi everyone. I have seen some postings here that some have Taxol every week and some have the combo of Taxol and Carboplatin every three weeks like myself. My surgeon/oncologist states they have seen very good results with the sandwiched therapy I am receiving. I was one post that another's doctor stated they have seen the…
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question for Shortmardge about the lemon drink
Hi: I tried the lemon drink, but there was nothing to strain. It came out too thick. I used it any way. Please let me know what I am doing wrong. tks June
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Is it better to not work or work during chemo and radiation
Does everyone find it's best to rest and be home thru' chemo and radiation or to work? Or to work at home part time if one's company will allow?
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How much fluid to drink and protein to consume during taxol/carboplatin treatments
Everyone, Is it correct to drink 64 ounces (8 cups a day) of fluids while on taxol/carboplatin? I think I do find that this amount helps me feel better, unless it is just coincidence so far in the timing that I began to try more fluids. Also, is there a certain amount of protein that is good? One of our group recommended…
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Im worried HELP
tonight of course being 4 weeks post my Surgery my husband and i found out selfs making love ( he did not put him self in to me ) but he did Lick me ( not to sound gross i wont go in to info ) it felt fine and ok and right but kinda hurt some but then i read my dischrage papers where it said no sex for 6 weeks i then…
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Hello to all you ladies here
Hello to all you ladies here, have been reading a lot of the discussions here and you are all so brave and supportive of each other, I found this site a couple of months ago by accident searching for answers and became a member a few weeks ago, I tried to post then but it just disappeared, so am trying again now as…
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Oops - CT Scan
Well, the wonderful and miraculous news we got on my mom's CT scan was incorrect. They were comparing the most recent scan to the pre-surgery scan. No wonder the mass appeared to have shrunk significantly. Instead, it is simply "stable". This is good - it was growing rapidly before she started chemo again - we know at…
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Bleeding as a symptom of a recurrence
I started this thread, not because I have a real opinion yet, but because I will soon, and want to get the discussion going. As many of you know, I am currently on a tenuous break from chemo, following a SURPRISE clear CT/PET I had in mid-February that was supposed to let us know what was going on mid-way through what was…
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Has anyone heard from coleen?
I read she posted a little while back. Nothing since.
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immune system
I am new to this board and have a question. I know our immune system is very low around days 10-14. i was just wondering if anyone has been sick because the immune system is low. I just finished round 3 taxol/carbo. i have 3 more. my diagnosis is uterine cancer stage 3 grade 3c. thanks! Laura
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Hormone Therapy good idea?
Hello everyone! Seems like almost everyone has to go follow-up with the doctor every 3 months. Last January, my CA-125 shows 15 which is a good news but I'm not going to jump up and down that I'm in NED cuz it hasn't been one year since my surgery. I rather wait for 5 years then I'll know that I'm in NED. Guess what...two…
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Galactorrhea
Hey ladies! Just curious if any of you experienced something called galactorrhea. It's when the breasts release fluid from both breasts. I'm still going through the testing phases to figure out what is going on inside. I had an MRI in December because I was having frequent headaches in addition to the fluid. Mammogram…
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Preparing for the end
I have not posted on this board for some time. My Mom's battle with uterine cancer is coming to an end. She was started on a Morphine drip for pain control this afternoon. It is sad and depressing. I will miss her so much!
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Shopper's Guide to Pesticides~
Knowing we're all gaining insight on the best ways to keep our cancer at bay. One of the best options for our being in control, is what we place in our mouths and how often we get our feet moving thru exercise. I've been reading and hearing more and more on pesticides in our foods. If I had all the money in the world I'd…
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to Jazzy1: my CA125 history
(I thought it would be easier to answer you in a new post rather than make you look for the answer to your question within that thread.) Prior to my big de-bulking surgery/hysterectomy they took my CA125 and it was 50, which they determined was 'non-diagnostic'. 3 weeks later they took my CA125 at my post-op and it was…
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Placental Site Trophoblastic Tumor & Chemo questions
This was my diagnosis. At 28 I have had to go through a hysterectomy. My dreams of more children are gone (luckilly I have a beautiful 18 month daughter who is my world). This tumor is very rare, but I was wondering if anyone here had been diagnosed with it? THe tumor develops from an abnormal pregnancy, the egg is missing…
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kkstef please
Sorry to 'new thread' you but I have trouble navigating back to [ie finding] the subject!! Am interested to know if you found any difference in your neuropathy when you gave the alpha lipoic a break?
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awareness
I have been thinking about the lack of awareness in uterine cancer. Women think hey my pap smear is good, all is good. There is a lot of sufferring with this surprise diagnosis even though it is the most common female cancer. Women need to be mobilized for earlier detection. Anybody have the same feelings. Need to be…
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Sick after CT scan
My mom had a CT scan yesterday to see what effect the Ixempra is having on her recurrence (UPSC Stage III). She has had two infusions and is scheduled for a third tomorrow. We are so nervous about the CT scan results. She has been having some more bladder/UT issues. Yesterday she became violently ill after drinking the CT…
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z natural--has anyone tried this, and can you tell us about it?
i've been reading various posts and others re: z natural, but haven't been able to find what it is/does yet on line. has anyone had experience with it, and what do you think about it? thanx, maggie
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Interesting perspective: How Will Cancer Care Fare Under Health Care Reform?
How Will Cancer Care Fare Under Health Care Reform? Community Oncology Alliance. 2010 May 7, Patrick Cobb, MD; Ted Okon Dr. Patrick Cobb is President and Ted Okon is Executive Director, Community Oncology Alliance. View profiles of Dr. Cobb and Mr. Okon. The dust is just settling on the great health care reform debate as…
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Weight gain: Menopause or chemo/radiation?
I'm wondering if anyone else has experienced excessive weight gain post hysterectomy and chemo and radiation? I had a total hysterectomy in December of 2009. I finished my chemo in May of 2009, then I finished radiation in September of 2009. Beginning about the middle of October, I started noticing excess belly weight. I…
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uterine cancer after a bout of severe pancreatitis
Well, it looks like I am shifting my focus from pancreatitis to uterine cancer. About a year ago I had a terrible bout with severe gallstone necrotizing pancreatitis. This included 5 months in the hospital, sepsis, kidney and lung failure (both are ok now), 6 surgeries, etc. I survived this (docs say the mortality rate for…
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Book Ideas?
Now that my treatments are behind me (crossing fingers for a long time) I'm ready to re-think my nutritional side of building up my system/body. Last year I purchased a few good books on cancer and nutrition but thought I'd pick up a few more. Noticed the following ones are popular....any other recommendations? 1. Foods to…