A Good News post

upsofloating
upsofloating Member Posts: 466 Member
edited March 2014 in Uterine/Endometrial Cancer #1
Latest CA125 now down to 15 from high of 658 in April! Doxil may have sent previous 250-ish number up, but this number is downright normal :-)

CT scans show only thing of note that the para-aortic and aortocaval lymph nodes that were 2.6 cm and 2.0 cm respectively are now just 0.8 cm!

See gyn-onc next week to see about break from chemo. Liver enzymes were going up and down with Gemzar but ultrasound and CT were completely normal. Wheww! I've done 2 cycles of Doxil and 4 cycles of Gemzar this year and I'd like to give the body a break.
--Annie

Comments

  • Cecile Louise
    Cecile Louise Member Posts: 133
    #2
    Yay!
    That is such good news, Annie! Your CA125 down to 15 from 658?!?! Woohoo! It's wonderful that your treatment is going so swimmingly - thanks for sharing the good news!

    Love,
    Cecile
  • jazzy1
    jazzy1 Member Posts: 1,379
    #3
    Cecile Louise said:

    Yay!
    That is such good news, Annie! Your CA125 down to 15 from 658?!?! Woohoo! It's wonderful that your treatment is going so swimmingly - thanks for sharing the good news!

    Love,
    Cecile

    Wonderful News Annie~
    You go girl....this is great news!!! I know you're ready to get off the roller coaster with chemo and sounds like it could happen. That's a fast downhill slide with the CA125....can't say mine went down that fast. Started 450 and ended with 4 and staying in that range...yippe!!

    Enjoy singing the happy dance~
    Jan
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #4
    Annie Great News
    Glad your CA 125 has dropped so much. Hope you can get that break from chemo for a while.
    Great news on you CAT scan too. Celebrate. In peace and caring.
  • norma2
    norma2 Member Posts: 479
    #5
    Way to go, Annie!!!
    Super news!!!
  • maggie_wilson
    maggie_wilson Member Posts: 596
    #6
    mazel tov, annie!
    great news, great ca 125 trending down. were your para aortic and aortocaval lymph nodes considered enlarged? they sound pretty small to me to start out with, but then really got tiny, which has to be good. would be so great to have a break from chemo, am sending you all my hopes that that will happen.

    sisterhood,
    maggie
  • lindaprocopio
    lindaprocopio Member Posts: 1,980 Member
    #7
    maggie_wilson said:

    mazel tov, annie!
    great news, great ca 125 trending down. were your para aortic and aortocaval lymph nodes considered enlarged? they sound pretty small to me to start out with, but then really got tiny, which has to be good. would be so great to have a break from chemo, am sending you all my hopes that that will happen.

    sisterhood,
    maggie

    I hope they give you a chemo break.
    My gyne-onc is a BIG believer in taking a break from chemo whenever you safely can. He says, in the long haul, giving your bone marrow a chance to recover with a chemo break allows you to return to the battle stronger if the cancer recurs again. You don't want to be FORCED to take a break from chemo when your cancer is active and growing just because your blood counts can't pass muster. A chemo break when your CA125 is low and tumors driven back just makes sense. Plus it gives you your LIFE back for a little while and THAT is worth soooo much! What a fabulous CA-125! Mine has never gotten that low. I'm hoping for a break from chemo after the summer, but my CA125 is still at 72, a long way from 'safe'.
  • kkstef
    kkstef Member Posts: 688 Member
    #8
    maggie_wilson said:

    mazel tov, annie!
    great news, great ca 125 trending down. were your para aortic and aortocaval lymph nodes considered enlarged? they sound pretty small to me to start out with, but then really got tiny, which has to be good. would be so great to have a break from chemo, am sending you all my hopes that that will happen.

    sisterhood,
    maggie

    Maggie
    Maggie....LOVE you new pic! You are very clever to get the pic posted along with cards! How FUN!

    Love your attitude.....and I am confident you will hit the Jackpot!!

    Karen
  • kkstef
    kkstef Member Posts: 688 Member
    #9
    GREAT NEWS, ANNIE!
    Annie, that drop in your CA 125 is TERRIFIC....and the CT scan results are superb!! Am hoping you are having a HUGE celebration!! Let us know what your gyn/onc has to say next week.

    We are all saying....HURRAH!!

    Hugs, Karen
  • Cecile Louise
    Cecile Louise Member Posts: 133
    #10
    kkstef said:

    Maggie
    Maggie....LOVE you new pic! You are very clever to get the pic posted along with cards! How FUN!

    Love your attitude.....and I am confident you will hit the Jackpot!!

    Karen

    Maggie
    I love that picture, too! You look amazing and strong! I don't think I'd want to be betting against you at the poker table, though...you've got "winner" written all over your face!

    Love,
    Cecile
  • shortmarge
    shortmarge Member Posts: 291
    #11
    kkstef said:

    GREAT NEWS, ANNIE!
    Annie, that drop in your CA 125 is TERRIFIC....and the CT scan results are superb!! Am hoping you are having a HUGE celebration!! Let us know what your gyn/onc has to say next week.

    We are all saying....HURRAH!!

    Hugs, Karen

    Yipee!
    What wonderful news!!!

    MIND, BODY AND SOUL!

    Hugs,
    Marge
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #12
    shortmarge said:

    Yipee!
    What wonderful news!!!

    MIND, BODY AND SOUL!

    Hugs,
    Marge

    Wonderful news, Maggie
    you are responding well to treatment!!! Enjoy. Mary Ann
  • maggie_wilson
    maggie_wilson Member Posts: 596
    #13
    kkstef said:

    Maggie
    Maggie....LOVE you new pic! You are very clever to get the pic posted along with cards! How FUN!

    Love your attitude.....and I am confident you will hit the Jackpot!!

    Karen

    karen and cecile

    thank you so much for your sweet comments re: my photo. afraid i can't take credit for any of it. a photographer came around during play and took everyone's photo, and the cards came with it. i'm a little embarrassed to say i also ordered some coffee mugs with my mug on them as well. it was a once-in-a-lifetime event.......

    may all of us here hit the jackpot!!!

    hugs and sisterhood,
    maggie
  • Songflower
    Songflower Member Posts: 608
    #14
    daisy366 said:

    Wonderful news, Maggie
    you are responding well to treatment!!! Enjoy. Mary Ann

    good News!
    good News Maggie! I think you need a break and a wonderful vacation. It looks like you found the drug that works for you.

    Love ya,
    Diane
  • upsofloating
    upsofloating Member Posts: 466 Member
    #15
    maggie_wilson said:

    mazel tov, annie!
    great news, great ca 125 trending down. were your para aortic and aortocaval lymph nodes considered enlarged? they sound pretty small to me to start out with, but then really got tiny, which has to be good. would be so great to have a break from chemo, am sending you all my hopes that that will happen.

    sisterhood,
    maggie

    Maggie, The nodes were
    Maggie, The nodes were considered enlarged and one biopsied positive for same type of cancer cells (UPSC). Curious myself, best info I could glean is average lymph node is 1 cm, with a range of 6 mm to 20 mm (.6 cm to 2 cm) considered normal range. Mine were 2.3 and 2.6 cm so were noted as enlarged, and now at .8cm sure seems normal to me ;-). I'll finally see gyn-onc later this week. --Annie
  • maggie_wilson
    maggie_wilson Member Posts: 596
    #16
    upsofloating said:

    Maggie, The nodes were
    Maggie, The nodes were considered enlarged and one biopsied positive for same type of cancer cells (UPSC). Curious myself, best info I could glean is average lymph node is 1 cm, with a range of 6 mm to 20 mm (.6 cm to 2 cm) considered normal range. Mine were 2.3 and 2.6 cm so were noted as enlarged, and now at .8cm sure seems normal to me ;-). I'll finally see gyn-onc later this week. --Annie

    annie

    thanx for the info re: enlarged nodes; that was very helpful. hope all goes well at the gyn-onc's, let us know. while i'm away, i'll try to find an internet cafe to check in with everyone.

    again, thank you, annie, for doing the research.

    sisterhood,
    maggie
  • maggie_wilson
    maggie_wilson Member Posts: 596
    #17
    Songflower said:

    good News!
    good News Maggie! I think you need a break and a wonderful vacation. It looks like you found the drug that works for you.

    Love ya,
    Diane

    diane and mary ann, too

    i think you may have mixed up annie and me, since i haven't been in treatment since last november. i am going on vacation, however,
    and diane, if you were referring to the drug that works for me (poker), you're right, but i don't think that's what you meant. or is it? in any case, i'll be off line from about the 7th august through 17th, but will try to find an internet cafe to touch base. can't be away from this site too long......

    sisterhood,
    maggie
  • Ro10
    Ro10 Member Posts: 1,561 Member
    #18
    maggie_wilson said:

    diane and mary ann, too

    i think you may have mixed up annie and me, since i haven't been in treatment since last november. i am going on vacation, however,
    and diane, if you were referring to the drug that works for me (poker), you're right, but i don't think that's what you meant. or is it? in any case, i'll be off line from about the 7th august through 17th, but will try to find an internet cafe to touch base. can't be away from this site too long......

    sisterhood,
    maggie

    Maggie enjoy your vacation
    Going to Alaska should be terrific. Have you set up your shore excursions yet. Hope you have a fabulous time, and are lucky in poker. In peace and caring.
  • maggie_wilson
    maggie_wilson Member Posts: 596
    #19
    Ro10 said:

    Maggie enjoy your vacation
    Going to Alaska should be terrific. Have you set up your shore excursions yet. Hope you have a fabulous time, and are lucky in poker. In peace and caring.

    hi ro

    thanx for your wishes re: my alaska trip; should be great. poker people say my partner and i are not worth our weight in salt if we don't win enough at poker to pay for our cruise!!!! i don't think so...still, i appreciate you wishing me luck. no, haven't made any shore excursion reservations yet; i hear it's better to see what's offered at the time--more choices and better prices, so we'll wait til we get to each port. getting close to time to leave; always so much to do to get out of dodge....hope you're doing well.
    sisterhood,
    maggie

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