The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

More CA125 Test News

howdybooth
howdybooth CSN Member Posts: 42
edited March 2014 in Uterine/Endometrial Cancer #1
So my sister's CA125 went from 15 two months in a row to 38.4........the Doctor order a CT scan that didn't show anything, but he was still concerned that something was lurking since she has already had 2 reoccurrences. He really prefers a PET scan, but her insurance considers it unnecessary!!!!

So, he did another CA125 test and it came back 13 – two different labs! So, now we’ve decided in the future to re-test before panicking! Shesh – like there isn’t enough to worry about without test being wrong……

Terri
Like Care

Comments

  • Songflower
    Songflower CSN Member Posts: 608
    #2
    Interesting
    CA 125 is interesting but I just don't think it diagnoses everything the way it should. You have to look for trends and repeating it is necessary. It doesn't work for everyone. I also think we hang on to that number like we're hanging by our fingernails over a cliff. It also creates stress for us! For me it did catch an early relapse. I still dread that number though!

    Diane
    Like Care
  • howdybooth
    howdybooth CSN Member Posts: 42
    #3
    Songflower said:

    Interesting
    CA 125 is interesting but I just don't think it diagnoses everything the way it should. You have to look for trends and repeating it is necessary. It doesn't work for everyone. I also think we hang on to that number like we're hanging by our fingernails over a cliff. It also creates stress for us! For me it did catch an early relapse. I still dread that number though!

    Diane

    Diane - it was the same for my sister. Her CA125 doubled each time before her 2 reoccurrences - that is why it going from 15 to 38 was such a concern for us and her Doctor........so in her case, it increasing is usually a positive indicator of a reoccurrence. Now we know to take a deep breath and wait for a second test!!!
    Like Care

Discussion Boards