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FURTHER DEBATES: PROBIOTICS AND ENZYMES
As I've often said--and try to remind myself--I'd like to gain as much nutritive benefit as I can from wise dietary choices rather than supplements; life's complicated enough without gulping down thirty capsules a day. But although we've gained empowering information about diet from many sources, especially all the posts…
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Osteoporosis and Prunes
I had a bone density scan 3 or 4 months after finishing chemo, July 201,and bingo! I have osteoporosis in my spinal and osteopenia in my hips and neck. Now, I am in the process of rebuilding bone density through exercises and diet. I just read online, as well as in Reader's Digest magazine, that prunes have been proven to…
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Overall Survival Research
I have been doing some reading on Uterine CA and in particular, recurrences. There does not seem to be much research available regarding radiation / chemotherapy vs no treatment. Does anyone have any suggestions where I can find information that would shoe comparisons of patients who did nothing vs patients who proceeded…
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Taxol, the good the bad and the rest.
The Good. If you read the entire article, you will understand that this information is information that will help you not only tolerate Taxol better, but have it be BOTH LESS TOXIC AND MORE EFFECTIVE. I have posted this article before and for some reason, most miss that this article conveys good news for those taking…
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Metastized Uterine Cancer
I had ULMS (leiomyosarcoma) in a fibroid removed via hysterectomy last Feb. 14. A node was found in my lung to be cancerous. Removed two weeks ago. I was put on an estrogen inhibitor called Arimidex, one a day. It is a hormone pill. My doctor said this is the treatment she would take for herself if she were in my position.…
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IP 6 Rice Bran Extract
Hello everyone, Just looking to see if anyone is taking IP 6 Rice Bran extract and would like to share their experience. Also, any info on brands or where you purchase it? As some background, a couple of links...there are many more references to IP 6 on the web, but I selected those without links to the product itself to…
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CT Angiogram showed multiple clots in lungs
My test today showed an increase in clots in the lungs since 3 weeks ago. It is hard to believe there can be multiple clots when I have not had any symptoms ... no pain, no shortness of breath or anything. Diane had mentioned her oxygen saturation was low when she was diagnosed with blood clots. My saturation level today…
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Insurance questions - anyone able to share their knowledge?
I never used to ask questions for fear of someone thinking I wasn't very smart. But now, after my cancer diagnosis... I've decided I'm always going to ask questions from now on and never assume I know the answer.. so here goes: My FMLA will be over at the end of February and my HR person (who is kind of a jerk) has…
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best medicare plan and supplements
With medicare eligibility coming in July, I would like your guidance on which plans are best for cancer patients. It gets expensive when procedure co-pays are $200 like my present BC/BS plan. I'm interested in your feedback. Thank you in advance. Mary Ann
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CAN we color our hair safely? IS there a safe product?
Amidst our panoply of serious concerns, let me lighten it up--our topics, not my hair)--with this question: Have any of you who was coloring your hair before chemo done serious research on whether there IS truly safe color? Before treatment, I wore my dark brown hair, nearly shoulder-length, pulled back most of the timel.…
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CAN CAREGIVERS GET ANY FINANCIAL HELP?
Since I am the only caregiver of my daughter, I was wondering if I can apply some where for financial assistance (if there is such a thing).
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MMMT survivors
Dear June, Jan and the other ladies who have posted about MMMT (uterine carcinosarcoma) I had my third check up today and all was fine. A physical exam - outside and inside - of the pelvis. Asked about Ca125 but it is not thought to be useful (I had it tested during chemo and it was never more than 16). Next check up is…
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Everyone has a suggestion to cure cancer.
Everyone I know has a suggestion to cure my cancer. The newest one is to go to a holistic health place in Austin, TX. Has anyone heard of this place? Optimum Health Institute of Austin. They also have another one in California. Here is the web site. http://www.optimumhealth.org/locations/ohi-austin.htm The classes are for…
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Leukine drug
Has anyone here had to have the daily injections of the drug Leukine, to boost WBC levels, prior to me starting chemo my white cell was 3.1 so to say I differently needed this drug, but the side effects are terrible, fatigue, loss of appetite, low grade fever, just to say a few, but it did bring my levels back to normal,…
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Dilator question
Okay not so much a question about the dilator, but a question about shrinkage. Today was the first day I was suppose to start using my moderately sized dilator. Well there was no way that thing was going in and it isn't even that big. I guess I could blame this on the radiation but I don't think so because I noticed that…
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Need some suggestions
Ok. Back in August, September and October I have had some bouts of back stomach pain (I believe it was 5 times). The first two times, I vomited afterwards and then felt better. The other three times I just had the pains. At first I thought I had food poisoning, but then it happened 4 more times. I thought too that it could…
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Insurance problems - AGAIN!!
It's deja vu time for me. I switched from Aetna to BC/BS a year ago. I had already battled Aetna and we had a "truce". I anticipated problems when next PET/CT was ordered - and that time is today!! I'm scheduled for scan tomorrow but insurance is balking at approving. This type of thing infuriates me. I have a huge copay…
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Port troubles
Well, I am currently on my seventh day in the hospital. My port became infected and caused a blood clot in my neck. The infection also went to my blood. I am hoping to go home today after heparin and antibiotics. I also had the port removed. Now I will be on fragmin shots, which I give myself. I also have to get a pick…
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Cramps - Had Everything Removed - Is this Normal?
NED for USPS, but waiting on Biopsy results of mass in my neck. I seem to have the feeling of 'menstral cramps' & pain in my lower back area. There's absolutely nothing in there so what could be causing this? They really hurt enough where I need to take something sometimes. They only seem to occur when I am in bed or…
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No appetite
How can I regain my appetite, i am 6 days post taxol. Irene
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Cure for Cancer?
High School Student who devised cure for cancer using mice....on world news Sunday. Great reading! Every step that works is a step in the right direction!! Jan http://www.dailymail.co.uk/news/article-2086763/Cancer-cure-High-school-student-Angela-Zhang-devised-cure-cancer.html
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Missing Miss Linda
Linda and her family have been on my mind all day... My heart aches for them and I pray that the Lord is comforting them as only he can. I remember how much she loved Christmas with her children and especially her grandchildren. In the early days... the first Christmas after dx, it was so important to her to make memories…
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first uterine now having biopsy for thyroid cancer
Hello, I have not been on the boards for a while, long story, but my college daughter was in a serious accident and I have been living out of state so I could be close to her, I have been gone for over a month and a half. She was riding her bike in Cambridge, Mass in the bike lane, and was "doored." This means that someone…
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International Rare Cancer Initiative
My genetics doctor told me about this the other day.....This initiative is a global collaboration —"an initiative to boost the development of new treatments for patients with rare cancers. This International Rare Cancers Initiative (IRCI) will design and fund clinical trials of treatments for rare cancers – defined as…
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sweetners
Just what artificial sweeteners are ok and what brand and how much tummeric is good? I was just told to stay away from processed meats. Thanks, Debrajo
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what has people's experience with avastin been with uterine ca?
i recall linda saying it was a lot easier than regular chemo, so i'm hoping she was correct. sisterhood, maggie
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Tissue Assay/ Functional Profile: thoughts and questions.
We have chatted about this off and on for a few years. That issue of the tissue assay is so baffling to me – so basic. Docs order scans and bloodwork, but assume that the standard drugs will always work. How many lives can be saved by being more exact in the selection of treatment. Have lives been shortened because vital…
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USPC - Mass Found in Supraclavlcular Area - CT Scan Reads Like Death Sentence
Hello Every. As most of you know, I'm rarely on here unless I need something. I wish I had the time to read and respond to every post, because I get so much information, encouragement and comfort from reading all the posts. I have been NED from USPC since Jan, 2011 and have felt really good, except some cramps like I used…
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I have a question,
What would you ladies say(or do) to doctors who DID NOT bother to stage my USPC because I had "too many" other morbities issues? I later found through digging through my medical records on line that I had 1a USPC. I had the radical hysterectomy with the five rounds of radiation and six rounds of Carbo/taxol. I was…
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Uterine Cancer
Hi, My mother, who just turned 71, was recently diagnosed with uterine cancer and awaiting to see a gynecologic oncologist next week to find out the stage and grade. Does anyone have the name of a good gynecologic oncologist in the Dallas, TX area? We were give a name by her GYN but of course, I would love to seek a second…