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Extra spot on RAI scan
Last friday I was given 150 mCi. I just went in for a full body scan today and was told that there is a spot somewhere around my bladder that looks suspicious. I talked with my doctors' nurse who said that the description seems so vague and that I am more than welcomed to bring it up at my next appointment in May. I feel…
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scans
Hi all! I had a total thyroidectomy with 7 nodes removed, 3 which were cancerous, pappilary/differentiary ;in 95.Followed by 101 MC of I-131 I had 3 scans in approx 4 yrs, all which were clear. Well, I must say, I have 'slacked off' a bit in going to my Endo. only went about 3 times since then. Anyone know how often you…
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iodine doesn't work
Does anyone know what the treatment is if iodine doens't work. My thyroglobulin is still at 6,5 after three treatments and now they will make PET scan. I have the fealing that my life expectiations dropped from 95% to a much lower percentage. Does anybody experienced the same?
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papillary cancer with extracapsular extensions
I would appreciate any info on this topic that anyone has. My thyroid, which was removed 3 weeks ago had 4 cancerous nodules and 2 of the nodules had extracapsular extensions. I hear this can cause a higher recurrence rate for the cancer to return. Does anyone have any knowledge about this? Is there anyone out there that…
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nausea from radiation
I am also new to this group. My wife has thyroid cancer and has done very well up to this point. Virtualy no side effects. She just recieved her first scan yesterday after recieving 3 mic. (I believe it's called microcuries, is that right?) of the radio active iodine. They treated her with 100 mic. yesterday and now she…
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Nausea
I am new here. I was wondering if anyone else experienced nausea while off of their synthroid while waiting for the radiation treatments to begin. I have been off my synthroid for 5 weeks now and am so nauseated that I can hardly eat, let alone cook for my family.
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thyrogen injections
Did anyone suffer from anxiety and depression after their thyrogen injections? I became extremely depressed and anxious after my injections--for about eight weeks. Although I have a clean bill of health, I had to be treated for depression.
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More than the 150
I am looking at my 2nd round of radiation. What circumstance would a doctor maybe recommed a higher does of I131 than the 150? I understand that if they go higher that 150 you must be admitted to the hospital. I can't get a real straight answer to the risks involved with a higher radiation treatment. My tg was just…
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2nd Thyroid Surgery
Just found out this week from biopsy and ultrasound I get to go for a 2nd surgery. I have been told it is risky because of possible nerve damage. Does anyone have and advice or feedback as to what I might encounter, it sounds like 2nd surgs are not that uncommon.
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Hypoparathyroidism after thyroidectomy
Looking for good information on hypoparathyroidism as a result of thyroidectomy. Anyone else have experience with this?
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Thyca and Armour
I was dx with thyroid cancer--papillary with follicular variant 12/05. I had my thyroid removed and a bilateral neck dissection because of nymph node met. 12/06 I had another lymph node removed and am having my 3rd ablation in March. The doctor thinks the 1st ablation didn't do any good because I was VERY sick and didn't…
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IAT 3mos later 16.4 Tg
I finished my ablation therapy November 14th. I just got an early Tg test and it is at 16.4. Does this seem high to anyone? I'll see my doctot on Feb. 7th. I guess I'll know more then.
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Stay away from soy?
I hear that soy is really hard on the thyroid. After being treated for thyca, do most of you try to avoid soy? or does it not matter since we no longer have thyroids... I'm just curious b/c I've been hearing such bad things about soy lately. Any other foods to avoid?
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The Cure
Now that I have your attention: In this year of electing a president, all cancer survivors need to find the candidate who supports Cancer research-a-ie; stem cells, which could very well bring the cure to all cancer.... The politics of cancer can kill you..of over 10,000 grants from the National Cancer Institute, only 500…
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thyroglobulin levels 1554
My T3 T4 levels are all normal. However my thyroglobulin levels are 1554. I have thyroiditis therefore my doctor is not concerned with those other high levels. Should I be concerned and have her check further? Is it possible I could have thyroid cancer? I am a 32 female and have been on levothyoxine for 2 years. I feel a…
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Is "Radioactive Iodine Treatment" radiation?
I am about to have the RAI done, and I'm a little confused. I understand what is involved, but I am having a hard time explaining it to family and friends. They keep asking me if it is radiation? Is it, technically? Am I having radiation done? Or is this RAI not considered radiation? The only terms people seem to be…
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Thyrogen vs. going hypo
I was recently dignosed with papillary thyroid cancer and have had a total thyroidectomy. I am getting ready to schedule my RAI treatment and I am debating using thyrogen to prepare for this versus stopping cytomel and going hypothyroid. I know this is an approved use for thyrogen in Europe, but not yet FDA approved for…
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hurthle cell follicular
Hello out there, hope someone can help me. I had a thryoidectomy November 27 for Hurthle cells. Found out 1 week later it was cancer, follicular, 2cm. Now I have to go w/o any synthroid til meeting with Radiologist Jan 8. How bad is it to go hypo? How bad is RAI treatment? I feel really confused and alone. I have heard…
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2nd surgery or radiation again
I had thyroid removed in May 05, have done the radation I131 and had 2 or 3 scans. Last scan was a month ago, this scan was good, but by Tg levels went from a 2 to a 20. This was the first time I had ever heard about your this blood test. I had been trying to figure out the TSH tests. Now my oncologist says it may or may…
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Hurthle Cell Variant of Papillary Cancer
I am not sure what this is, but that is what i have. The day at the surgeons office was a bit of a blur, and i have already had a hemi thyroidectomy, am going back on the 6th of december for the rest of it to be taken out. I know papillary cancer is easily treated and is said not to be to bad, i do not that hurthle cell is…
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Confused
I was diagnosed with Papillary Thyroid Cancer in Jan 2006. Since I have had 2 surgeries and a very high dosage of I-131 to rid the cancer. I had this treatment in March 2006. In Sept. I had a body scan that had uptake in the neck area. My doctor says it is too soon to committ to cancer recurrance, that this uptake me just…
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Thyrogen and fertility
Does anyone know if there is any problem with Thyrogen effecting ones future ability to have kids. I was reading the pamplet in my Thyrogen kit and it said, under pregnancy, that the effects on fertility have not been tested. I don't mind going Hypo this time around if there is any risk. does anyone know? Thanks
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second surgery option?
I had my thyroid removed to Papillary thryoid cancer and they did the operation as a precaution against Medullary Carcinoma of the Thyroid, because that is what my mother had. I assumed the more extensive thryoidectomy, which included removal of some lymph nodes and the anterior fat pad (I think that's what they called it)…
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possible reoccurance
I was diagnosed with Papillary Thyroid Cancer in January 2006. My cancer was found by accident on an MRI of the Cervical Spine. I went thru the ultrasound, small needle biopsy which came out negative. I just had a feeling I had cancer so I opted for surgery to remove the left thyroid. The pathology report showed cancer.…
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Low Iodine Diet -- Soda and Red Food Dye # 3
I am currently on the low iodine diet in preparation for RAI treatment. I had been told that soda and diet soda are OK so long as they dont have red food dye #3. I have been drinking diet coke and canada dry diet ginger ale but just noticed that they have artificial caramel coloring. Does anyone know if this is OK? Thanks.
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False Positive Pregnancy Test?
Last Tues went and took the tracer dose of 1 131. thurs was admitted for radation. Sent me home due to possiable pregnacy! The blood read 6 but the urine came back negitave. They would not give the dose to me! I have to wait to start my period! Has this happened to anyone?
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synthroid and low iodine
I am on the diet for two weeks before my scan . It seems as though everything has iodine ? If I were to make a mistake and get iodine in my system what is the worse thing to happen ? Also , I ran out of my synthroid and the pharmacy took three days to get it filled . I was scared , being told you have to take it for the…
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Radiation treatment
My wife has just been diagnosed with papillary cancer, and they want to remove the entire thyroid and then do the radiation/chemo treatment, do the scan etc. They say it will kill the rogue cells, if any. Why is radiation used to kill the thyroid cancer cells, when radition is what is thought to cause the cancer in the…
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Concern over fertility
I'm a 21 year old papillary thyroid cancer patient. I had a total thyroidectomy at 18, and this week I underwent a neck dissection on the right side due to metastases in the lymph nodes. I've also had three rounds of radioactive iodine treatment prior to this surgery. I have some concerns about what all the radiation might…
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Energy Level
I am newly diagnosed with Pappilary thyroid cancer and have one nodule on my thyroid and a larger one in the left lymph node. I'm very worried I won't have the energy to play with my children once I go hypo- for the radiation treatment. My surgery is scheduled for August 11th. Anyone with experience in this could you…