Mother of a teenager diagnosed with Osteosarcoma

kristina31519
kristina31519 Member Posts: 1
in Sarcoma #1
WOuld like to talk to others with children who have kids with Osteosarcoma

Comments

  • bernieh
    bernieh Member Posts: 1
    #2
    Osteosarcoma mums
    Hello there, my son has osteosarcoma of the spine. I strongly suggest you join the ACOR osteosarcoma list. There are quite a few of us mums there. http://www2.acor.org/listservs/join/103
  • crazy98
    crazy98 Member Posts: 25
    #3
    survivor
    I am a 13 year osteosarcoma survivor! I was dx at the age of 15. It was in my left leg. I have started a blog about my survivorship www.ialwayswantedtoshavemyhead.blogspot.com or you can email me at passingthetest98@aol.com. I would love to answer any question you might have! I know this is a whirlwind and it seems hard to take a moment to stop and come up for air!
  • johnkolivas
    johnkolivas Member Posts: 2
    #4
    Kalei
    My daughter Kalei (12) was diagnosed with osteosarcoma in her upper left arm (humerus). She just started chemotherapy last Monday/Tuesday July 16, 17. This past Wed. she got a fever and we had to rush her to ER. Her white blood cells plummeted in just a couple of days from 5,400 to 300 and she ran a high fever. It was a terrible night, but she is getting better. How old is your daughter and where is her tumor?

    John
    johndabassist@gmail.com
  • chump4040
    chump4040 Member Posts: 4
    #5
    johnkolivas said:

    Kalei
    My daughter Kalei (12) was diagnosed with osteosarcoma in her upper left arm (humerus). She just started chemotherapy last Monday/Tuesday July 16, 17. This past Wed. she got a fever and we had to rush her to ER. Her white blood cells plummeted in just a couple of days from 5,400 to 300 and she ran a high fever. It was a terrible night, but she is getting better. How old is your daughter and where is her tumor?

    John
    johndabassist@gmail.com

    Osteosarcoma
    Hi I'm not a parent but am lookin for other osteosarcoma people( hard to find). I am still goin hard and hav been through every chemo it seems like for this type of cancer. I can also help u with what u should expect If u r new. I am at unc hospital but went to md Anderson in Texas for 2nd opinion. They specialize in osteosarcoma if u want expert help.

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