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Rare and Other Cancers

Last scan showed 2 tumors are half the sz. they were;
But the Adrenal tumor is the same. At least it has not grown. I am going for my 5th Chemo treatment 3/23/01 , after the 6th ,will have another scan. I am having allot of bone pain 2 days after Chemo and it has almost reached the point to where I can hardly walk and also I am out of it for 9 to 10 days. The DR.is having me…
Looking for Pancreatic Cancer Survivors
My family will find out on Friday (2/20) the exact source of my mother's pain. The doctor has suspected pancreatic cancer and reading up on the different information I obtained, her symptoms are aligned with PC. I am scared but I will fight for her also. Howeer, the literature I have read about PC has been discouraging and…
Fallopian tube cancer
My sister, 42, was diagnosed with Fallopian tube cancer about one and a half years ago. She went through a surgery (total hysterectomy) follwed by chemo. But unfortunately the cancer has returned just after a year from her last chemo. The doctors do not have much experience with this type of cancer as it is very rare. She…
sinus/nasal carcinoma
In October 1999, in attempt in treat my "unresponsive sinus infection", my doctor sent me to see a local ENT doc. One look in my nose and he turned to his nurse and said -This patient is an office priority, have an immediate CAT scan and biopsy! Having been in excellent health as long as I can remember, I'm now 68, you can…
Intraabdominal Desmoplastic Small Round Center Tumor IDSRT
I am writing on behalf of my 15 yr old nephew who has this vary rare cancer. I would like to connect my nephew and his family with anyone else who has this cancer. It would help them immensely.Thank you.
What treatments are you having/have had for pancreatic cancer?
My Mom has pancreatic cancer, 2.6 cm tumor, clean margins, one node involvement. We're meeting with the oncologist soon and I'm just wondering what treatments are others on? Any comments on 5FU or Gemzar, radiation or chemoradiation would be greatly appreciated. Also, is anyone taking megadoses of antioxidants during…
want a survivor friend
I am a 57 year old woman who was diagnosed with pancreatic cancer 9 months ago. I am looking for an e-mail buddy to share experiences and feelings with.
Pancreatic Cancer - Please help us!
I really hope someone out there can give me and my family some much needed help and advice. On August 24th, my 56 year old father was diagnosed with pancreatic cancer. It came as a complete shock to my entire family. We thought he was going into surgery to have a cyst in his pancreas drained and that after that all would…
CT scans...How many are too many
Because of my history of leiomyosarcoma, primary in uterus and secondary in left lung, my oncologist is watching a lesion in my right lung which showed up in a CT in March but did not show up on a PET. I was told it probably was cancer, but was just too small to show up on the PET. I had another CT in June that showed no…
Brenner Tumor
Can anyone give me some info on Brenner Tumor? I am looking for someone that has been diagnosed with this type of tumor to talk to.
Hyperthermic intraperitoneal chemo
Has anyone had the heated intraperitoneal chemo after surgery?
Ileostomy Reversal Surgery Ostomy Bag Rectal Cancer
From my husband's surgeries and recovery from the Ileostomy and reversal procedures, led us to make a website during his recovery. It is at www.freewebs.com/ileostomyreversalsurgery. It is to help those who are facing the same thing or close to the same thing. We had so much trouble finding info that we needed answers for,…
Cholnagiocarcinoma & Appendial Adenocarcanoma at the same time.
My 52 year old sister has been diagnosed with: 1) Unresectable primary Cholangiocarcinoma in the left lobe of her liver extending to the Pancreas. 2) Carcinomatosis consistent with Adenocarcinoma with Peritoneal spread. 3) Evidence of Lung Mets. The doctors continually tell us how rare a case she is, and frankly it seems…
pancreatic Cancer
I have a friend just dx with this and they are talking about the whipple procedure. She will be having this done in a chicago hospital. Can someone tell me what kind of recovery she will have, like how long before she would be on her feet. Can someone maybe explain what they will be doing.
PET scan reading???
can anyone tell me if it is common for a PET scan done three months after concluding radiation and chemo treatments still show "significantly DECREASED activity" in the original surgery location? I had nasal cancer surgery in early March and lost half of the roof of my mouth, the right side of my upper jaw, part of my…
Syringoid Eccrine Carcinoma (need any possible information)
Hi, My mother was just diagnosed with syringoid eccrine carcinoma, which as I understand is a dermatalogic cancer. There is very little information available on this cancer. Has anyone had any experience with: - Surgery (Mohs versus regular surgery) - Therapies - Physicians (do you go to a general oncologist or a…
Pancreatic Cancer...advice?
I am 20 years old and my mother may have pancreatic cancer. Her skin turned very yellow, and we didn't think anything of it as she was not in pain, but after a test the doctors found a mass on her pancreas and it is pushing against the liver which is why she is jaundice. We will not know for a day or two if it is cancer,…
Melanoma - Diagnosed after lung mass found
My 85 yr old friend was diagnosed on Aug. 14, 2009 with a rare Melanoma -- it has already created a 5mm mass on her lung and lymph nodes down the center of her chest. NO surface mass was found. She also suffered a mild heart attack on Aug. 13th, and has had Arrthymia for many years. She is NOT eligible for surgery. She is…
gall bladder cancer
My sister ahs stage iv gallbladder cancer she has a scan on tuesday. Please say prayers for Diane
Paraganglioma
I wanted to know if anyone here has paraganglioma cancer. I do. It is around and in the liver. I would love to talk.
paraganglioma
hi. i am very new here. i was recently diagnosed w/ paraganglioma.i underwent surgery on 7/31/09 to remove what we all thought was a very bad canerous thyroid. the cancer attacked my vocal cords,trachea,esophagus and knocked out 2 of my parathyroid glands,along with of course my thyroid. it was over 4 inches long.it was…
pancreatic cancer- how to reduce T.Bili ? urgent!
Dear all, My father was diagnosed with pancreatic cancer in mid-July. The doctor said my father is in Stage IV. Now his T.Bili has rising up to 34, Dr. said it will cause patient in coma....it's really urgent situation. Does anyone know how to reduce T.Bili? Thanks a lot!
external radiation
i am set to start this treatment very soon after being diagnoised with paraganglioma in the neck area. it was malignant and my thyroid was removed. the cancer doesn't seem to have spread but it did do alot of damage to my parathyroid glands(only have 2 left),traceha and esophagus.i don't have much of a voice left since it…
pain patch
sister has gallbladder cancer has anyone had a pain patch?
Multiple Endocrine Neoplasia (MEN)
This is my cancer. Dont know many people with it. All i know about MEN is that it is genetic, my father had it. I also know that it affects more men than women. It's rare, like 1 in 100,000 people are diagnosed with it. My specific type is said to affect the parathyroid glands, the pancreas and the pituitary gland. I have…
Neuroendocrine carconoid tumor on the pancreas spread to the liver
Hi. My mother was recently diagnosed with neuroendocrine carconoid tumor on the pancreas that has spread to the liver. We have had our second opinion at a medical center in Chicago that is encouraging embolization to the liver, but no concrete answers about how to stop/shrink the tumor on the pancreas other than…
Gallbladder Cancer
We just got the news that my grandmother has gallbladder cancer. She went to the hospital for surgery last week to have her gallbladder removed and was supposed to be out that night. They held her and today have told us that she had cancer of the gallbladder and that it has spread to her liver. My family is devastated and…
squamous cell maxilary sinus cancer
Just curious if there is anyone currently dealing with squamous cell maxilary sinus cancer? My diagnosis came in February...surgery, radiation and chemo completed for now, but keep hearing how 'rare' the cancer is from my Dr's and caregivers. Sharing info and support could be a good thing. John
Looking for information
My mother has been fighting Primary Peritoneal Cancer since April 2008. She was diagnosed and when they did the first surgery they couldn't even find her uterus or ovaries. They were covered with what the doctor said a plaque like cancer. That meant they couldn't do the debulking like they wanted to. She went through chemo…
Just diagnosed with Neuroendocrine carcinoma
My Dad turns 90 years old next month. He still works 6 days a week at the retirement center. He has never been sick with anything. Not even a cold. As far as my brother and I can remember, he never stayed home from work because of any "sickness" reason. Much to our surprise, he has just been diagnosed with nueroendocrine…

Rare and Other Cancers

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