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Lynch Syndrome - HNPCC
Have you tested positive for Lynch Syndrome/HNPCC? How long have you had your positive results? How often do you think about cancer? I tested positive a few months ago and can't stop thinking about my increased odds for the syndrome of cancer. I go for my CA-125 every 6 months, colonoscopy once a year, have changed to a…
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Questions for You...
Hi, I'm from the Breast Cancer forum. My husband's uncle was diagnosed last month with Stage 4 Cancer of Unknown Primary. The cancer was detected in the lymph nodes in his neck. His entire lymphatic system is infiltrated with cancer. He is beginning chemo next week, but has been made to understand it is only palliative at…
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Secondary Peritoneum Carcinoma from Gallbladder Cancer - Need Information
HI all: I have recently been diagnosed with peritoneum cancer that resulted after seeding from a gallbladder tumour (removed with surgery April 2010). My latest MRI (March 2011) shows 6 nodules on the upper right quadrant of the peritoneum and on the omentum. One nodule was excised April 2010 and was cancerous. I have had…
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cholangiocarcinoma
Has anyone heard of clinical trials using egf-r therapy for bile duct cancer? I was told there has been some success with this treatment.
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Spots on lungs after treatment for Pancreatic Cancer
Finished Treatment three weeks ago and had a CT Scan last week. This is coming from my general doctor, the results show that the pancreas, liver and stomach are all fine, but they found several small spots on both of my lungs. The previous CT prior to starting treatment showed several small spots of indeterminate size (…
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Pancreatic Cancer - types of adjuvant chemo
My husband had a Whipple for pancreatic cancer in May and has lost alot of weight before and since then. Surgeons think they got all the cancer they could see (but who knows with adrenocarcinoma). He tried one chemo week (Gemzar) and it kicked his butt (fatigue, nausea, no vomiting) so he is not doing that again. What…
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Insulinoma with mets to the liver
Hello to everyone. My father has been diagnosed with malignant insulinoma. It has spread mets to his liver, which is unresectable due to the volume and the location of the lesions. He is not a candidate for SIRT or TACE. If the insulinoma itself can be surgically removed, is there a hope that we will be able to manage the…
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Use of Creon 12 in pancreatic cancer
My husband was diagnosed with cancer of the bile duct in February 2011. His doctors refer to this as pancreatic cancer and apparently every abdominal organ has been affected by the spread of this disease. He is 89 years of age and was not considered a candidate for chemo, radiation treatments or surgery. I was to bring him…
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pancreatic cancer / Creon - 24,000 Units
My husband was diagnosed w/pancreatic cancer on 05/26 and since has had his pancreas removed and is at home recovering. He now has to take Creon - 24,000 Units with every meal. He only has Medicare A & B coverage but not D. We paid the full price ($589) through Rite Aid. In our search for assistance to help us pay for…
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spindle cells
Hi every one!!! I was just reading all the post and concerns on the spindle cells.. i was sent to do a biopsy this past wed and they gave me the results today ... that everything was ok that it was not cancer that it was just what its call spindle cells but that they were not malignant and that if for any reason my pain…
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Pancreatic cancer and liver lesions
My husband has finished his chemo and rads treatment for pancreatic cancer. We waited four weeks to do the PET scan and it showed up that the tumour in the pancreas reacted to the treatment. So, it should be operable. The problem is that there are now lesions on my husbands liver showing nup on the PET scan. I am told by…
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primitive neuroectodermal tumor
hi i've been diagnosted with a primitive neuroectodermal tumor in my ankle ,i'm new on this website and i really want to share my story with you ;i started chemeotherapy last monday and i went out of the hopital friday and i'll be back in 21 days; it's the start, and i want to learn about life with cancer because i'm the…
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need help pls!
hi, i am 21 yrs old. i have been having digestion problems since i joined coll at 18.for the past 6 months my stools have been irregular.so my doc who is experienced,asked me to take abdominal ultrasound sonography,liver function tests ,blood tests etc 2 months back. everything was normal.no blood,mucus in stool.but still…
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Vocal Chord C.
My dad was diagnosed with Vocal chord C. and I was just wondering if there is anyone else out there who has this type of C? If so I'd like to chat with U to see what you are doing for it, and questions about the tracheostomy.. thank U! Blessings Faith
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My Mum has Primary Peritoneal Cancer and I'm lost
On April 13th, I was called around to my parents house to sit down with my Mum and Dad over something they needed to speak to me face to face. Two things in life scare me and also mean there's something wrong: 1. phone calls in the middle of the night (my family is from england so the time difference means emeregencies…
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Primary peritoneal cancer
Hi I'm just starting out on this board but have been amazed at the support, advice, prayers and love that flows from these threads. I got my dx for ovarian cancer on December 23 2010. My husband, Bob had gone into the ER with numbness on the side of his face. He was diagnosed eith a brain tumor on dec 20 and underwent…
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New Discussion Board for Primary and Secondary Peritoneal Carcinoma
Hi all: I received an email from Greta (the site webmaster) which I'm sure you did too. Here is what she said. She is willing to set up a Discussion Board for Primary and Secondary Peritoneal Carcinoma (peritoneum cancer? which is right?) for a trial period of 3-6 months which will be monitored for use, postings, etc. by…
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The EGFRx Assay
A class of anti-cancer drugs, called tyrosine kinase inhibitors (TKIs) or anti-EGFR drugs, selectively targets cells within the body that have a specific molecular defect that is believed to cause dangerous cell behaviors such as uncontrolled proliferative growth and high metastatic potential – behaviors that typically are…
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Functional Biomarker For Cancer Treatment
Using a cell culture assay (in vitro apoptosis) for choosing cancer drugs is no different than a marker like estrogen receptor or CD20 or a gene expression pattern. They are all markers. One is a structural marker, the other is a functional marker. A cell culture assay is a "functional" biomarker. A functional biomarker…
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Fallopian Tube Cancer Recurrence
I have a friend who has FTC. She had a hysterectomy and chemo two years ago. Now her markers have doubled. Can anyone tell me what this means? Has it returned even though she had a total hyst and does it mean the cancer cells have now invaded elsewhere in her abdomen? She is refusing a new round of chemo, so what are her…
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Smplefill.com GOOD ?
Is Simplefill.com Good?? $65.00 per month for help on RX... 'm looking for help on RX' s "Creon 24000 units" it cost $589.00 per month HELP Thanks
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UpDate
Hi all: It's been a long battle for me so far, but I am slowly coming through this. I have three chemos left and god willing I will be finished on July 15, 2011 ( 16 more days to go). Had a little set back yesterday as my hemoglobin is down and I have to have a transfusion on July 5th( Tuesday) but they are still going…
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Cholangiocarcinoma - Advanced Stage
My wife was diagnosed with Cholangiocarcinoma in Sept 2010 She had her left lobe of the liver disected with a clear margin. She proceeded with Chemotherapy but her condition worsened! She has had several different Chemo protocols but with no sgnificant results. Seems like the tumors are everywhere!! Anyone have any advise…
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doudenal cancer after whipple
I am 32 with 3 beautiful childeren (2,5, 11) and a wonderful husband. I have been recovering from whipple surgery for 5 weeks. I had a 4.5 cm stage 3 tumor that is poorly differenciated and 1 out of 8 lymph nodeds showed positive for cancer. I am wondering if anybody has decided to not do chemo and radiation and use…
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Neuroendocrine Carcinoma in the Common Bile Duct
I was curious if there was anyone out there diagnosed with a Neuroendocrine Carcinoma of the Common Bile Duct. I was diagnosed last year and underwent a Whipple procedure. I've looked all sorts of places and so far I haven't been able to find anyone else that has had this. One thing I heard from every doctor I encountered…
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Does anyone here currently have angiosarcoma or have had it?
I am looking for people who currently currently have or have had angiosarcoma. I was diagnosed with stage 4 angiosarcoma on November 5th and am currently undergoing treatment but had to switch chemotherapy drugs since Taxol was not working since the tumors are all over my body. Nathan
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cancer of unknown primary
someone please help i an the caregiver for my mother who is 77 we were told 2 years ago that she only had months to live an we should call hospis so we did an a year later they took her off. we go to doctor every 3 months an they do CT scan an every time he says it is spreading she has about 20 tummers in liver, lungs,an…
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Dr. Cantrell and Pancreatic Cancer, Anyone had any success with this?? or tried and no success?? ple
Hello, Just looking for more info on Dr. Cantrell. I see where several have tried it but do not see to many results as to if it worked or not. Please post any and all comments of your experience with him. Thank you.
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my grandma has pancreatic cancer and dont know how to deal please help
My Grandma has pancreatic cancer again it came back and I don't know how to deal with it and I know she is in awesome hands at the cancer center of America in Arizona. But how do I stay strong for her I am not dealing with this good at all. My boyfriend and mom both saying have acting a little Moody lately but I don't see…
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Islet cell tumor / neuroendricine tumor
Hi! I am a 33 year old female who was diagnosed with an islet cell tumor of the pancreas a few months after I had my baby last year. In september i underwent a whipple operation and i an feeling great again. The other day i went in for a CT scan as a part of my 6 month check up and they found that some of the lymph nodes…