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myelofibrosis
I was diagnosed with polycythemia vera 4/12 years ago..my white blood count kept going up (its now at 65,000) I had a bone marrow bioposy and was Dx with myelofibrosis 1 month ago..I just turned 61..my spleen is slightly enlarged..for the most part I feel good..will be starting hydroxyurea in a couple weeks..
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metastatic melanoma stage IV
I was diagnosed in November 2010 and now have had my second round of chemo. I am waiting for approval for use of "ipi" the new drug not yet approved. I have to fail the recommended chemo treatment before they will give it to me. So last (3rd) round will be given on 1/17, wait 3 weeks, have PETscan and then find out if…
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metastatic melanoma
I am new to the discussion board. I have stage 4 melanoma. Are there any survivors out there? Western medicine has offered me nothing. I am managing my disease with nutrition, exercise, and healing imaging. Any info out there?
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PNET Cander
Hi This is a very very rare cancer, anyone, do you or a loved one suffer from the same? One of my friends resently found out that she has PNet. she is starting her 5day Chemotherapy in RSA. Please help and give us some hope! regards lizzy
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Primary Central Nervous System Lymphoma
Is she all alone? My sister is looking for some information from a person who is going through this same kind of cancer and knows what she's gone thru already with the high dose chemo/side affects and what she is looking at with whole brain radiation as her "only" other option. Supposed to start WBRT next week. She has two…
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Rare Cancer Diagnosis
I just signed up and it is really great that I finally have a place where I can talk about my diagnoses without having to go into a ten minute explanation. Cancer is a very alienating experience as it is, having a rare diagnoses is even more so, I feel. I have not only never met another person with my diagnoses (Mixed-Cell…
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my mom
my mom just recently passed away from pancreatic cancer. she lived 45 days after she was diagnosed. she was 84 and a wonderful mother. i took care of her during her illness and watched her each day slip more and more into sickness. she died early in the morning and i was with her when she passed. this is a very aggressive…
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Adrenal Cancer
My husband has been diagnosed with stage IV adrenal cancer. He has a tumor that is 14.5 x 10.1 x 10.1 cm on the left adrenal gland. They may have to remove the left kidney and the spleen. Has anyone else had adrenal cancer? Any information you can provide me will be so much appreciated. debbie
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neck cancer of unknown origian
My husband was just diagnosed with squamous cell carcinoma of the neck origin unknown. we have not been able to find anyone who has gone through this and would like to hear from a survivor.
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Adrenal carcinoma
Hi, Im new here. My husband has been diagnosed with stage IV adrenal carcinoma. He has a 14.5 x 10.1 x 10.1 cm tumor on the left adrenal gland, the drs say this is a very large mass. The biopsy showed metastatic to the lung. He will be having surgery next week to remove the tumor, and probably the left kidney and the…
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Myelofibrosis study
Anybody out there on a study for MF? My stepdad maybe going on a study for MF. It is not approved by FDA. Looking for some info and how it helps people with myelofibrosis I think the study is a fairly new drug that they have been trying. It is suppose to help the patients with anemia and make them feel better, stronger.…
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rare adenocarcenoma
My grandmother was diagnosed about three weeks ago with a rare form of adenocarcenoma that has metathsicized and spread all over her body. She has a tumor in her neck. We were told it is way too far advanced and there is nothing that can be done. We were told that she is going to die soon. She is going to do radiation only…
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Gallbladder Cancer- please help!!
Hi i was directed to this site as a place i could find inspiration- and i have seen some great stories already. My mom got the pain of gallstones in Jan 10 and Feb 10- she was given medication(dont know which one) but she never got the pain again (it must have masked them)- she had tests to confirm she had in fact…
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Verrucous Carcinoma
I am looking for others who have survived Verrucous Carcinoma, a rare form of Oral Cancer. I have never smoked, do not drink, do not have HPV and yet, I have had VC for 2 1/2 years and four surgeries. I just need to speak with other people who have been through this type of ordeal. The survival rate is 50% and so far, I am…
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Gallbladder Cancer Treatments
Hello everyone. My mother was diagnosed with stage 4 gallbladder cancer October 11th. After an ERCP they learned it had spread to pelvic cavity, and did not operate on her. After weeks of fighting with the insurance company she finally got her first treatment of Gemzar and Cisplatin 10/26/2010. We were told, that the…
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Vipoma survivors?
I have recently been diagnosed and I would like some inspiration and reassurance.
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Bile Duct Cancer
My mother is 54 and has in the last month been diagnosed with Stage IV Bile Duct cancer. It has spread to her liver and lymph nodes. She is in the second week of her first round of chemo. The doctors have told her that with the chemo she has a year, with out it 3 months. They said she would be on chemo for the rest of her…
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Gall Bladder Cancer, Stage 4
Hi My name is Viola I am a vibrant and energetic 47 year old I work in Healthcare and am the mother of two beautiful teenagers. I have recently been diagnosed with Stage 4 Cancer of the Gallbladder and Ducts, also known as "Unresectable Gallbladder Cancer." I don't want Cancer to be an end for me.....I want it to be the…
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Appendix
goblet cell caricinoid looking for anyone with information on this type of cancer of the appendix.
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Small Cell Cervical Cancer
I am looking for information on small cell cervical cancer. Can hardly find a thing on the net as this is such a rare type of cervical cancer. I am really interested in diagnostic and treatment protocols, as well as survival statistics (5 year preferred, can only find 2 year, being 28 percent). I would also very, very much…
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small cell cervical cancer
I am searching for anyone who has had small cell cervical cancer and has had it come back agian.Perhaps we can share experiences,info, and support
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GIST cancer
My mother was diagnosed in 2005 with GIST cancer. Surgery was performed right away and most of the tumors were removed. It was all over her abdomen, small intestine, liver and other areas. She was given 400mg of Gleevec to help stop the growth of the other tumors that were unable to be removed. The tumor remained the same…
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17 year old nephew adrenal cancer
Is there anyone here who can help in the unfortunate situation. This cancer is rare and we are so desperate for any help. We are traveling back and forth to Nationwide Children's Hosp. in Columbus, Ohio for treatment.
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Whipple Surgery/Pancreatic Duodectomy
We would like to talk to anyone who has Underwent a Whipple proceedure. My Wife had one 3 years ago and it has wrecked her. Today we learned that the proceedure was "Premature" given the type and stage of Cancer she had. Please call 706-367-2803. Ask for Eric or Shannon
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How long until taste returns after radiation???
I just received neutron radiation and my taste buds are shot!!! How long until the taste returns? Thanks!
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Peritoneal Cancer
Does any one have or knows anyone with Peritoneal type of cancer? Have not found anyone in my State (MA). My doctor says it is similar to OVCA. I have been getting most of my 411 on OVCA Cancer. I would like it if any one has more info on the Peritoneal Cancer. I am at stage 3 and have Lymphadema in my rt leg. Have…
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sacrum removal physical therapy after...
I had a castleman disease tumor. The disease gives tumors in the area cordoma tumors grow...sacrum area. I'm trying to find out what kind of Physical Therapy to do. What I'm doing doesn't help. I found a post on a chordoma site that said they had a contact for Johns Hopkins, where I had my surgery, where your PT person can…
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new... PLEASE help
I have posted several days ago on this site and also on the skin cancer site with no replys. I have vulvar cancer/melanoma... I understand there may not be anyone else out here with this but if you can help me with support or info on either vulvar cancer or melanoma this would be so greatly appreaciated. I have my second…
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Mom just diagnosed with Stage IV Gallbladder Cancer
Hello All - My mother was just diagnosed with Stage IV Gallbladder cancer. She had a galbladder attack and they removed it not knowing it was cancerous. When she had her 2-week post-op appointment she was feeling great and then found out about the cancer. During pre-op testing they had seen a spot on her liver but…
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Mesothelioma
My spouse has mesothelioma, a rare form of cancer that is found in the pleural space. The affected area is the pleura of the left lung. He is on chemo and receives treatment every 3 weeks: A mix of cysplatin and Alimta. Just thought I would check in from time to time to hear other stories and what it is like to live with…