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Sertoli-Lydig Stromol cord Ovarian Cancer

Felicia_205
Felicia_205 CSN Member Posts: 79 Member
in Rare and Other Cancers #1
Its supposedly the most rare type of ovarian cancer. It affects the connective tissue in your ovaries and makes your hormones go out of control. The tumors grow huge and rupture causing you to bleed internally. Most of the doctors Ive seen have never treated a case. Has anybody else had it or know somebody who does and if so what kind of experience did you have and what kind of treatment were you given.
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Comments

  • skyisblue
    skyisblue CSN Member Posts: 1 Member
    #2

    felicia I know it has been many years since you posted your comment.I am a parent of a 19yr female who also has this rare tumor. Ther eis still no real data on it due to ir being so rare.Id love to compare notes .

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