The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

myxopapillary ependymoma

Peanutsoccer
Peanutsoccer CSN Member Posts: 1
in Rare and Other Cancers #1

I am 18 years old and have myxopapillary ependymoma its a mouth full trust me I know.  I was origanally diagnosed when I was 12 years old and had surgery to remove the majority of tumor after I had surgery then I had Proton beam radiation.  The tumors in my lower spine where I had the majority of the radiation have not grown.  At 15 I started my fight in my brain.  The first 2 years we tried chemo after chemo and some of them slowed the growth for me and some of them didn't every tumor is different.  finally this past summer they decided to send me up to have Proton Beam radiation again and so far not growth in the tumors keeping my fingers crossed.

Like Care

Discussion Boards