Neuroendocrine carcinoma: liver, maybe pancreas, one of my lower vertebrae
I was diagnosed with neuroendocrine carcinoma last August (2012) when a scan revealed a large mass in one side of my liver. The first recommended treatment was to insert radioactive isotopes into this mass to try and shrink it, which we did, in preparation for a later surgery to remove it. Surgery was scheduled, but three days before it was schedule a pre-op scan showed some "suspicious" spots in the ohter side of my liver -- and additional spots on my pancreas and one of my lower vertebra. Have been through three cycles of oral chemo -- Xeloda and Tamodar -- and a scan after the third cycle showed the mass in my liver had shrunk to half its former size, and no change to any of the other spots. I'm continuing the same chemo treatment -- after the 6th cycle, we'll do another scan and see where we stand. I'm trying to stay positive and grateful that my condition isn't getting worse, but of course, I'd love to talk with someone who has, or has had this type of cancer -- it's a scary thing to live with this not knowing what the future holds. If you'd like to contact me, please use this board or my email: tolje127@aol.com.
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.3K Cancer specific
- 2.8K Anal Cancer
- 441 Bladder Cancer
- 306 Bone Cancers
- 1.6K Brain Cancer
- 28.4K Breast Cancer
- 391 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 12.9K Head and Neck Cancer
- 6.3K Kidney Cancer
- 666 Leukemia
- 789 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 235 Multiple Myeloma
- 7.1K Ovarian Cancer
- 53 Pancreatic Cancer
- 486 Peritoneal Cancer
- 5.3K Prostate Cancer
- 1.2K Rare and Other Cancers
- 532 Sarcoma
- 718 Skin Cancer
- 647 Stomach Cancer
- 190 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards