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Dramatic PSA jump
I don't know what to do anymore. My father had his prostrate removed in 2006. Starting in early 2016, his PSA began to spike again. He now sits at an alarming 13 yet has had CT/Bone and other scans and they can't find anything. Has anyone else experienced something like this?
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Canadian with Gleason 6 needs advice
I was recently diagnosed with a Gleason six (3+3 ) from six core samples. Because of the Canadian health care system, I am not sure what all of the options are. I am able to travel to the US if the treatment would be better. Would a second opinion on my biopsy be a good idea? Please chime in with any advice or…
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Sorry to be here...but hello!
Hello Everyone. I was just diagnosed this week and am busy immersing myself in all there is to know about Prostate Cancer. This appears to be a good place. I'm 49 years old so a little surprised I'm dealing with this, but my father was diagnosed in early 60's. Here are my stats: Diagnosed 2/13/17 as T1C PSA 6.6 (actual…
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Penile clamp
I would like to know whether anybody has experience with penile clamp for incontinence after RLRP for prostate cancer.
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neuropathy
Hi, I'm new to CSN discussion. Seeking info on any medicines or other methods to alleviate pain, discomfort from neuropathy from chemo or radiation? I have been on 3600 mg of neurontin/day; also have duragesic patch changed every 72 hrs. Both have given moderate relief over past 2-1/2 yrs. Condition has not worsened, seems…
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antifungals and prostate cancer
I think eating antifungal foods and less foods that feed yeast and fungas are the most important. I have 3 cancers and have been doing that and all my numbers are going down. My psa was 5.5 a year and a half ago now 1.9. If you look at the studies they are doing and how they treating cancer antifungals are being used for…
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Recent PSAs & Test Results
It appears my PCa is really taking off as in one year my PSAs have really sky-rocketed. Here's my history from January 2016 to my most recent test on Feb 3 2017: Jan 22 2016: 0.08, April 7 2016: 0.18, Aug 15 2016: 1.82, Oct 18 2016: 2.40, Dec 29 2016: 3.24, Feb 03 2017: 6.6 Starting in August, I began to get really worried…
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Water retention in Cancer
My grandfather is having Prostate cancer with Mets, detected 3 years back. Currently, he is taking Aberatarone with Wysolone. He's having water retention in his left thigh and foot. Is stopping Wysolone advisable to check water retention? If not, how to cure water retentin? - Glanpaul
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Ups n downs
Was diagnosed in late December, feeling great physically but having trouble mentally. I have gleason 9 and was told last Monday that it's stage 4. I just turned 40 and I'm in prime of my life, finally got to the place in life I've worked so hard for. Now I'm depressed and just plain scared today, but tmrw will be better, I…
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PSA now 0.82!!!! WTF????
I am the 85 YO guy who in 2011 had a PSA of 300 with multiple widespread matastases (bone) over 75% of my body. Needless to say, the outlook was pretty hopeless. I took bicalutimide for a year, which I would not do again, and got an orchiectomy. The first year was very, very difficult. About 18 months ago, I got my Psa…
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PSA 0.54 after RP
My husband had a PSA rading of 58 before RP and a Gleason 4+4 after RP Doctor had said he would need radiotherapy because lymphnode biposy came out positive. today, i month after radical prostatectomy he got a PSA of 0.54? I dont know if this PSA result is good outcome or not. Would radiptherapy help?
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Metastatic Prostrate Cancer - 82 yrs - Xtandi vs Arbiterone?
MY dad's 82 years old and we live in India. He has been on Caluran tablets since 2011 and we introduced Firmagon to his treatment fince Oct 2016. The PSA is still on the rise and is at a 199. The cancer is metastatic. My dad is quite asymptomatic and leads an active life style with immense amount of traveling. The doctors…
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New video: How Mal and Alison cope with advanced prostate cancer
I have just made this video (with my 12 year old grandson) about how Mal and Alison have found a lovely way to deal with 11 years of prostate cancer (5 years with metastases) and other problems of life. It is 5 minutes long and has Closed Captions (Cc) for the hard of hearing. Click the picture or click here. If you find…
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Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
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Prostate Biopsy Pathology results
Hey all. Here is the Pathology report from the Surgery (open) done 12/20/16 Radical Retropubic Prostatectomy Procedures and Findings. Left Pelvic Lymph Node, excision : No evidence of Malignancy Right Pelvic Lymph Node, Excision : No evidence of Malignancy Prostate, Prostatectomy : Adenocarcinoma, NOS Histologic Grade…
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Father has had a possible PSA recurrence.
Hello everyone. My father had his prostate removed April 23 2013 as a result of prostate cancer. His biopsy results stated he had 5 cores positive for cancer, with greatest involvement in any core 40%, both left and right lobes, Gleason score was 6, stage T1c. Following surgery, pathology report stated the following:…
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5 years since surgery, 4 yrs since radiation all is well!
It has now been 5 years since my prostate removal surgery and about 4 since radiation - and 6 since I lost my business in the recession. I crossed the barrier that I had been fearing. Five years is a really good milestone. I just started a new job last month- a job of my choosing! I have been so blessed with the past 5…
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6 week post op PSA results
Just got my PSA results todday as it is the 6 week result as my Dr. says to give us a PSA marker post sergery. it is >0.01 he said that is considered as undetectable and that we will start to do the PSA test every 3 months for a year then go to every 4 months for a year then every 6 mos for two years. but if it starts to…
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Told I needed a biopsy yesterday
I had a 5.6 PSA and doc gave me a UTI treatment for a month. Now PSA at 4.9. Im 51 years old. Doc tells me I need a Biopsy. I have to admit I am freaking out a bit. Biopsy is scheduled for next Monday. I have no idea how to tell if I am at the right urologist or not. The biopsy seems prudent and he assures me that he…
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I'm a newbie here
I received my diagnosis last month (on my birthday of all days). PSA = 12, Gleason = 6 in 1 of 12 biopsy samples. The urologist said that there is an 8mm tumor completely contained within the prostate. He recommended three alternative treatments: 1. Robot Assisted Laproscopic Prostatectomy (total removal of the prostate).…
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Axumin scans and expertise
PET/CT scans using Axumin tracer, approved by fda last year and newly approved by medicare in some areas, are starting to be done at different locations. Its supposed to be more sensitive/specific than NaF and other older scans, and comparable I think to Choline or Acetate (lots of studies and info on the web) and can…
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researchers found new pathway that regulates spread of prostate Cancer
Just read this article and found it very interesting and promising. http://www.news-medical.net/news/20170126/Adelaide-researchers-uncover-new-pathway-that-regulates-spread-of-prostate-cancer.aspx Hope others find this just as interesting.
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Fluctuating PSA
Fiive years ago a PSA test revealed elevated PSA of 11. Within a month or two it went up t0 18 and then 23. I underwent two biopsies and one MRI. The biopsies were negative for cancer but did shos acute prostatitis. The MRI showed possible areas of concern but nothing definite. In 2013 my PSA started declining and got as…
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Coming to grips
Had radiography images done today, waiting on those results. I've heard they're are 3 things to consider. Psa level, gleason score, positive cores out of all cores taken. Well my prognosis doesn't look good. Psa in 40s, probably 50s now. 12 positive cores out of 12 at a 100%. All is gleason 9 score. For those who have…
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TESTOSTERONE HELP
Hello, a brief summary on my husband's situation: Age 66. August 2016: PSA 7.5 Two weeks later: 8.2 Saw urologist: after exam (enlarged prostate), ultrasound (suspicious areas), biopsy: 5 of 12 spots tested: Gleason score of 3+3. Stopped testosterone shots in August (was taking them for hypogonadism). Agreed on the 'active…
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Hopefully
Been doing alternative treatment for 3 weeks, got psa test back and it's dropped 8 points, that's good news! Oncologist said it wouldn't go down,but it definitely has. I have holistic dr that makes me pills and drinks,strick diet,cbd oil,ect. I'm a gleason 9, 12 of 12 cores positive at 100%. Gonna get psa checked again in…
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husband with advanced prostate cancer refuses treatment after doctors told him his sentence
My husband has been diagnosed with cancer of the prostate spreading through his bones, groin, legs, swollen testicle ,swollen leg and foot on right side, on hydrocodene and metadone. He recently was on morphine because doctors tod him he had 3 to 6 months to live. He was alergic to the morphine, and it made him itch, he…
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Mistaken Diagnosis
I had the RP in September 2004 after it was confirme I had prostate cancer. I chose this route due to fact I was only 41 years old and all indications were the cancer should not have spread. Post surgery pathology verified the cancer had not spread to the surrounding reagions and the tumor was confined to one lobe.(gleason…
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Myelodysplasia syndome and prostate cancer together
My husband has both prostate cancer and myelodysplasia syndrome. MDP for 5 years, prostate cancer , into his second year. Is anyone experiencing problems with treatment of these 2 cancers?
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Quantifying severe urinary complications after radical prostatectomy
Quantifying severe urinary complications after radical prostatectomy: the development and validation of a surgical performance indicator using hospital administrative data. To develop and validate a surgical performance indicator based on severe urinary complications that require an intervention within two years after…