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Update after hormones and radiation
Latest update. I hope this helps some of you with the decision making process. Be happy to answer any questions. Age 68 at diagnosis 2/2009 PSA 4.3 Biopsy negative 2009-2016 PSA climbed from 4 to 6 DRE all negative 2/2016 PSA 7.5 Ultrasound and DRE indicate nodule Biopsy with 6 of 12 cores pos Two 4+3 Four 3+3 5/11/16 Gold…
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Active Surveillance continues; this is the way to go
Hi Fernando and others, I updated my CSN space to include, my lastest Free PSA, PSA and this months targeted biopsy results. I was diagnosed March 09 with a 3+3=6 less than 5% in two cores out of 12 random cores taken. Afterward I entered into a research project where a series of directed biopsies were given; making use of…
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Decisional regrets
Here is one of the best reviews on topic of “decisional regret on prostate treatment by prominent doc. https://www.afr.com/life-and-luxury/health-and-wellness/regret-after-surgery-for-prostate-cancer-is-widely-understated-20160502-gojrg3 MK
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Cyberknife Five Year Update
When I reflect upon my journey since coming to the forum in 2013, it's hard to believe it's been 5 years since I completed SBRT (commonly known as Cyberknife) treatment in 2014. Many years ago, my now 95 year old father would remind me how quickly times passes with every year. And yes...he was right...again!! I've been…
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AUS op my turn
My turn tomorrow for the AUS800 Procedure. I have a good idea what to expect day to day. I was in touch with a member who has just gone through the op and he gave me a day to day which is great, thanks Vince. I’m in at 6.00 am for an 8.00 am start. I am hoping I can get out to return home, but the way here in Canada is an…
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Haven't updated in a while...
Long story short: Dad diagnosed October 2017 with stage 4 PCa with bone metastases. Had a fresh biopsy done in February of this year after "flunking" both Lupron/Casodex, then Zytiga fairly quickly. Immunotherapy trial attempted in April after Foundation Medicine discovered a mutation in the ATM gene. Lots of radiation…
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Darwin's cancer fix
https://www.scientificamerican.com/article/darwins-ideas-on-evolution-drive-a-radical-new-approach-to-cancer-drug-use/ Principles of evolution and natural selection drive a radical new approach to drugs and prevention strategies
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Husband has stage 4 metastatic prostate cancer
My husband has been sick since Oct. 2017. Not dianosised until Feb. 2018, and it had already spread out of the prostate. The cancer is in his bone marrow and lymoh nodes now. He is at the point now , that he may have to quit work and that will leave us with no insurance. Any suggestions on insurance. to put him on my work…
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Dandelion and other remedies
I am a hardened skeptic when it comes to naturopathic and other remedies... having tried many, with only limited success, and most were ineffective except when enriching the producers. The most egregious are the remedies that "kill cancer" ... usually a brief perusal of the claim shows a complete lack of understanding how…
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Whats Up Doc? - Now Confused!
Hi - I'm new here and what a pleasant surprise to find this forum about 2 weeks ago. I truly wish I would have discovered this valuable information much much earlier as it would of perhaps steered me in the right direction. Here are the facts: I'm 60 years old. About 10 years ago I was diagnosed with BHP -Just before…
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Artificial sphincter
Do I need an artificial sphincter? I had robotic prostrate removal surgery 3 years ago and I am still incontinent. My suregeon suggest an artifical sphincter but I am not sure if it would be any improvement. i am currently using the Uriclack clamp and am using one to two pads a day. Mostily only one but if I am more active…
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Advice required about post RP radiotherapy
Hi there, I'm the wife of a 45 year old so was diagnosed with Prostate cancer 16 months ago with a PSA 120 and a Gleason of 9. MIraculously the choline PET, bone scans and 3T MRIs didn't show that it had spread to other organs and he had an RP straight away by da Vinci robot. (And started Zolodex) Unfortunately he had a…
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RP 2007--Proton 2015---now 0.01 from <0.01--is it back ?
Hi, I had Rp in 2007 via davince method. 2015 recurrence after 8 years of PSA = <0.01........Proton therapy 2015 and down to <0.01....PSA monitiored and was ,0.01 for 3 years.....today psa = 0.01 and NOT less than 0.01.........is Ca back ? .....scared and confused........any advise will help.......Thank you, Charlie C
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Lymphadema after Radical Prostatectomy
My RP was three weeks ago. For at least the last two weeks, I have had swelling in the right leg. Now, there continues to be significant swelling, pain and tightness in the right foot and ankle. Also, toes and foot have red and purple coloring. My PCP ordered an ultrasound about ten days ago that was negative for blood…
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6 week checkup wasn't good.
I would like to thank everyone for their time and all the information that they give here first of all. I have obtained a lot of information from reading this forum and it is greatly appreciated, This is my first time asking a question about my own prostate cancer adventure. In summary. Diagnosed with PC early summer, 12…
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Regaining Continence after Radical Prostatectomy
My robotic assisted RP happened two weeks ago. I am following instructions regarding steps to regain full continence but I have a few questions about the details. My understanding is that when the prostate is removed, one valve is loss that controls urine flow. So, does this mean that another valve (connected to the…
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Also looking into Proton Therapy
Has anynody had this? icemanroo
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Lycoene & Eligard
Hi, I am using Eligard HT What I would like to know would taking Lycopene help with my cancer Does anyone have experience combining these. Any thoughts out there. Regards Peter
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Erectile dysfunction
Hi everybody, I was chatting to Tigger about the future and I mentioned that I suffered from erectile dysfunction. He started off about waiting for the Firmagon to wear off and my testosterone to return and to see if anything happened naturally, I then pointed out that he had sliced out both of my nerve bundles during the…
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PSA level 8 post prostate surgery and radiation
Had prostate removed 10 years ago and have had radiation. PSA levels have risen over the last few years and have doubled from 4 to 8 in a years span. What say you?
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6 month Follow-up
Well, I went to my 6 month follow-up yesterday. Basically the same questions, how is your flow; continence; how is the sex-life; already knew my PSA was undetectable. I told them I was fine. They said when I come back in March of 2020, if all is good, I will go from a 6 month check-up to an annual. They knew about my left…
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Oligomicrometastatic cancer
Micrometastases I wonder if we ever manage to identify and locate the tiny little buggers we call micrometastases. I would appreciate receiving opinions or any information you, ladies and gentlemen of this board, know or have found in your researches. Unfortunately, I was again told that I have them and that, in my case,…
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ORIOLE study and the Oligometastatic therapy
Some of you that have followed my entries in this forum know that I have been procuring an oligometastatic treatment as my last chance in killing the hidden bandit. Unfortunately I was informed by my doctors (urologist and radiotherapist) that I cannot pursue such a therapy due to several reasons explained in this link;…
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WENT TO VA YESTERDAY
Ladies and Gents, went to VA today in order to obtain a referral for Orthotics. After my appointment with my VA GP she send me to the lab to get some blood work. They must have used 4 vials to draw blood, one of these for PSA. I’m only 6 weeks post op. My Urologist wanted this done on November 12, (by his staff) which…
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Drive home after surgery.
Most of my posts are under Kidney Cancer where as a 17 year veteran I help the newbies. I am having Prostate Surgery in about 6 weeks with Dr. Patel in Orlando. How many days should I wait before someone drives me home. About 3 hours. icemantoo
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MY NEW PATH REPORT FROM DR. EPSTEIN
Ladies and Gents just received the Dr. Epstein Pathology report: The New as of 9/30/2019 HISTOLOGIC TYPE: Adenocarcinoma (conventional, NOS) GLEASON SCORE DOMINANT NODULE: 3+4=7 Grade Group: 2: 30% Pattern 4 GLEASON SCORE SECONDARY NODULE: 3+3=6 Grade Group: 1 TUMOR EXTENT: Moderate location, Dominant Nodule: left,…
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how does Prostate removal compare with Kidney reMoval
17 years ago I had Surgery to remive my Kudney. Monday I am having mu Prostate removed. How do the 2 operations compare? 59 then, 76 now. icemantoo
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Recurrence of PSA post prostectomy & IMRT
I HAD A PROSTECTOMY ON 18 JAN 20118 AFTER I WAS DIAGNOSED PROSTATE CANCER AT 8.2. POST PROSTECTOMY PSA ROSE TO .09 AFTER 6 MONTHS. IMRT FOR 40 DAYS WAS CONDUCTED AROUND THE PROSTATE BED AREA BUT AFTER 6 MONTHS PAS HAS RISEN FRO <0.O5 TO <0.1. HOW SERIOUS IS MY CANCER. IS IT RECURRING? MANZOOR
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Too many drs tooo many
What a mess doing radiation as primary treatment has caused me ...I need to get a hold of myself quick ...dr 1 was the radiologist who did primary treatment ...dr2 the gasrologist who immediately wanted to band my bloody hemmeroids rather than wait to see if they got better on their own si I did that which I think caused…
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Wondering what steps to take next
Hello all, My name is Jessie. My dad was diagnosed in the beginning of the year with prostate cancer. He had been going to the Dr and they never ran a PSA in 5 years on him. It came back over 9. He was 3+4 and 4+3. They took out his prostate back in June. He was told that they didn't get it all. Today he went back to the…