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Just Diagnosed Gleason 8
Hello all, I'm new to the forum and here looking for anything that's going to help me down the road. About a month ago I finally went to go see a Primary Physician after feeling only what i can describe as "off". I'm 48 yo and pretty active and usually felt pretty healthy for the most part. Aches and pains and a slight…
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Dark blood in the semen after cyberknife
Hello, I completed my cyberknife treatments about 16 months ago. After the initial biopsy (before CK), there was dark blood in the semen. Now it has returned. Does anyone have a similar experience with this dark coloring of the semen after CK? My PSA continues to drop (now at 2.09) and no other symptoms to speak of. I…
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Just got my MRI Results. Am I Doing the right thing?
I had the follow up from the advanced MRI I had last week I had Gleason 3-3 cancer show up on the pathology results when I had a TURP this summer. They waited for me to heal before doing the MRI The MRI did not find any lesions/spots to biopsy. (This is good news). It is possible that the MRI, as advanced as it is, missed…
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Graduation
I am 51 months out from my prostatectomy and latest testing shows undetectable PSA. Things are looking good so far. Problem is that I am schedueled for a partial nephrectomy of my right kidney because of a 4.6 cm mass discovered as a result of abnormal levels of liver enzymes. Luckily I will have the same surgeon, who I…
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Docetaxel update!
Dad received his 5th infusion of docetaxel yesterday, but the oncologist has added carboplatin for the remaining cycles. PSA has fallen from 172 at the start of chemo, to 56 at yesterday's blood draw. Platelets, white blood cells, red blood cells, hemoglobin, etc. has all been improving throughout chemo, which has been a…
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Exercises...PRE Surgery
My husband has recently been diagnosed with Prostate Cancer and we have opted to have it totally removed. We have an appointment with MD Anderson here in Houston. He has no symptoms and is in good health. Other than Kegel exercises... are there any other exercises that you would recommend?
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Testosterone supplementation after treatment for prostate cancer
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New Kid on the Block
Greetings from Georgia, Had RP on 8/19/19, got picked off by my GP after my annual physical detected a PSA of a 4.2, had a biopsy 7/3/19 and 5/12 positive Gleason 7 (4+3). 3rd week post op and dealing with incontinence, up to about 6 pads per day, just getting use to my new way of life (TEMP). Doing my Kegels, other than…
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Pain After Surgery
Hi guys. I had surgery about 3 months ago and I'm still feeling some pain and tenderness. The pain is in my stomach muscles, which I expected, but I also I have have pain in what seems to be the bladder area (above my penis and below my bellybutton). But the worst is the tenderness in the perineum area. Whenever I sit…
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How to exercise after Prostate removal
Begin by standing at a comfortable surface where you have plenty of room at each side. With a 5lb. potato bag in each hand, extend your arms straight out from your sides and hold them there as long as you can. Try to reach a full minute and then relax. Each day you will find that you can hold this position a little bit…
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bone tumor after removal, radiation, and hormones
I had prostrate removed 10 years ago. I am 71 years old. Two years ago, I had a hormone shot and prostrate bed radiation. Now, my psa is rising about 1 point every six months (currently 2.0). A recent bone and cat scan has discovered a small tumor on my rib at the center of my back. I have an appointment with my cancer…
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Inguinal Hernia Post RARP
Well, I had my hernia repaired last Thursday. In some cases, hernias can be caused by a RARP. My surgeon was going to see if she could do it laparscopically, but gave me the choice of open surgery also. She told me she had just done a person that had had their RARP about 2 years ago and that when she went in to look, she…
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Looking for EXPERT surgeon @ MD Anderson (Houston)
My husband has just been diagnosed with PC...looking to remove total prostate. Want the BEST surgeon to hopefully have a GREAT outcome. Has anyone had this done at MD Anderson?
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I stopped by for a quick visit.
After 17 years of bf being Cancer free after a nephrectomy, a boopsy showed me with a Gleedon 8/My Uro sent me tp his friend in Orlando, Dr.Patel. Eight weeks later I met Devinci. A much, much easier recovery than Kidney Cancer and an undetectanle PSA after 6 weeks, Back to the Kicney Cancer board heloing the newbies.…
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Husband just diagnosed with PC
My husband was just diagnosed with PC. He was having issues with increasing PSA. DRE’s were all good. Prostate size 34 cc. PSA first check 3 years ago in 2016 was 2.6, 2017 3.5, 2018, 4.1 so he was sent to see urologist. The Dr we saw said no reason not to re-check in 6 months. At the 6 month check up his PSA was 4.73,then…
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Colonostopy one year after radiation treatment
Well it’s been about 14 months since I had external beam and high-dose Breaky therapy. Course I have had all the side effects. Tomorrow I go for a colonoscopy and I must admit I am pretty nervous. Not about the procedure about what they might find. I had three hemorrhoids banded. And anal Fisher. I have not had a decent…
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Three cycles of docetaxel...
Quick update: Dad gets the regular expected chemo side effects, of course, and got one unit of packed red blood cells a few days after the third infusion (which helped with fatigue and pain), and the PSA has fallen from 172 (day of first chemo) to 67 at yesterday's check in. Imaging scheduled for next week. Looks like…
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Genetic testing price
Would like to know if anyone has done genetic testing with Myriad Laboratories and how much it cost without insurance? I appreciate your response. MK
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Update after hormones and radiation
Latest update. I hope this helps some of you with the decision making process. Be happy to answer any questions. Age 68 at diagnosis 2/2009 PSA 4.3 Biopsy negative 2009-2016 PSA climbed from 4 to 6 DRE all negative 2/2016 PSA 7.5 Ultrasound and DRE indicate nodule Biopsy with 6 of 12 cores pos Two 4+3 Four 3+3 5/11/16 Gold…
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Active Surveillance continues; this is the way to go
Hi Fernando and others, I updated my CSN space to include, my lastest Free PSA, PSA and this months targeted biopsy results. I was diagnosed March 09 with a 3+3=6 less than 5% in two cores out of 12 random cores taken. Afterward I entered into a research project where a series of directed biopsies were given; making use of…
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Decisional regrets
Here is one of the best reviews on topic of “decisional regret on prostate treatment by prominent doc. https://www.afr.com/life-and-luxury/health-and-wellness/regret-after-surgery-for-prostate-cancer-is-widely-understated-20160502-gojrg3 MK
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Cyberknife Five Year Update
When I reflect upon my journey since coming to the forum in 2013, it's hard to believe it's been 5 years since I completed SBRT (commonly known as Cyberknife) treatment in 2014. Many years ago, my now 95 year old father would remind me how quickly times passes with every year. And yes...he was right...again!! I've been…
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AUS op my turn
My turn tomorrow for the AUS800 Procedure. I have a good idea what to expect day to day. I was in touch with a member who has just gone through the op and he gave me a day to day which is great, thanks Vince. I’m in at 6.00 am for an 8.00 am start. I am hoping I can get out to return home, but the way here in Canada is an…
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Haven't updated in a while...
Long story short: Dad diagnosed October 2017 with stage 4 PCa with bone metastases. Had a fresh biopsy done in February of this year after "flunking" both Lupron/Casodex, then Zytiga fairly quickly. Immunotherapy trial attempted in April after Foundation Medicine discovered a mutation in the ATM gene. Lots of radiation…
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Darwin's cancer fix
https://www.scientificamerican.com/article/darwins-ideas-on-evolution-drive-a-radical-new-approach-to-cancer-drug-use/ Principles of evolution and natural selection drive a radical new approach to drugs and prevention strategies
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Husband has stage 4 metastatic prostate cancer
My husband has been sick since Oct. 2017. Not dianosised until Feb. 2018, and it had already spread out of the prostate. The cancer is in his bone marrow and lymoh nodes now. He is at the point now , that he may have to quit work and that will leave us with no insurance. Any suggestions on insurance. to put him on my work…
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Dandelion and other remedies
I am a hardened skeptic when it comes to naturopathic and other remedies... having tried many, with only limited success, and most were ineffective except when enriching the producers. The most egregious are the remedies that "kill cancer" ... usually a brief perusal of the claim shows a complete lack of understanding how…
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Whats Up Doc? - Now Confused!
Hi - I'm new here and what a pleasant surprise to find this forum about 2 weeks ago. I truly wish I would have discovered this valuable information much much earlier as it would of perhaps steered me in the right direction. Here are the facts: I'm 60 years old. About 10 years ago I was diagnosed with BHP -Just before…
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Artificial sphincter
Do I need an artificial sphincter? I had robotic prostrate removal surgery 3 years ago and I am still incontinent. My suregeon suggest an artifical sphincter but I am not sure if it would be any improvement. i am currently using the Uriclack clamp and am using one to two pads a day. Mostily only one but if I am more active…
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Advice required about post RP radiotherapy
Hi there, I'm the wife of a 45 year old so was diagnosed with Prostate cancer 16 months ago with a PSA 120 and a Gleason of 9. MIraculously the choline PET, bone scans and 3T MRIs didn't show that it had spread to other organs and he had an RP straight away by da Vinci robot. (And started Zolodex) Unfortunately he had a…