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Prostate Cancer

My Story Consolidated
I have started several threads but thought I'd do a new one as a summation and then just keep this one to update going forward. A brief review: I'm 52 and diagnosed with prostate cancer last month. Family history is bad: father and maternal grandfather died of prostate cancer; mother and her sister died of breast cancer;…
Pain around penis, testicles, anus, like prostatitis pain after prostate surgery Is this normal?
I had prostate surgery around 2 years ago. So far my PSA is still undetectable. However I now have pain that comes and goes, like a burning sensation / spasms sometimes around my penis, testicles, anus. ……Like pain from prostatitis (but no prostate now so that's not possible) They did a test for an urinary tract infection…
On_A_Journey's journey
PART ONE Hello all, I joined this forum recently, asked some questions and made some comments, but until now I’ve only given a brief description of what brought me here. I will treat this thread as my own personal blog by telling my story and providing any updates as they happen. I am 59 and from Australia. I have a strong…
I have m1a in the lung nodes.want to do a RP
Just diagnosed. I want to remove the prostrate!! 12 samples. 3 cancerous 3+ 4 =7. One a 9 very aggressive. Seems better than all 12 cancerous. No bone met or organ met. I am in great health, was. Feel good. Will they let me remove it? if not why not!! They already decide my fate? I do not understand this. I understand if…
Diagnosed this year but having problems with
I have been diagnosed with Metastatic Prostate Cancer Stage 4 B. I was having no issues and one day hurt my back. They scanned my back and noticed something in my pelvis. Three months later after testing everything finally got a diagnosis. I am currently getting darolutamide and relugolix. The had started me on Chemo,…
What to expect with no treatment
Hi all. I have a biopsy coming up but, unlike most, I'm not interested in finding out what kind of treatment I may qualify for (frankly, they all sound absolutely terrible) but, rather, how much time I have left. All my friends have already passed on so it's pretty much just me alone at this point so no real desire to put…
why not ldr brachytherapy?
It seems ldr internal brachytherapy are not very popular nowadays. But on paper, it makes great sense: the radiation seeds inserted directly into prostate, therefore, it should not affect organs and tissues next to the prostate. The treatment is convenient comparing to others, for it only require one time, painless…
Advice for Pt3b N1
Hello all, I am so grateful to have found a community during this time. This is all very new and scary for us. My dad had a radical prostatectomy, and we are scheduled to have a radiation appointment in a week. He has pt3b (cancer in one seminal vesicle) and in one of the ten lymph nodes. His PSA levels are good as of now,…
Question About Scans and Low PSA
My question is are results from the use of C11 Pet scans with low PSA values determined simply by a matter of probability with high GL being the greater probability? I noticed Dr Eugene Kwon reporting C11 Choline Pet scan results on patients having a PSA of 0. How do you determine when to use these types of scans -…
New here
I’m new here and I need little bit help with my questions, I’m finished the second therapy 2 months ago and now I recovery from hormone therapy after radiation, I have a lot questions but my poor English is no let me to say everything but I think I need psychiatric help
Does the Severity of My Cancer Affect the Worth of My Story?
I am a prostate cancer survivor. Although I didn't have symptoms, I caught it early and have been sharing my story to encourage others to get tested. Recently, I've been asked by hospitals and cancer support organizations to share my experience more frequently. However, someone close to me mentioned that my cancer wasn't…
Weight gain
Is it normal to gain weight after Prostate surgery RALP? I haven't gained a ton but Have gained like 15 lbs. The bad part I watch what I eat and drink. I am limited in my exercise due to 4 back surgeries and both shoulders having had surgery.
New here with some questions
I’m posting with regard to my husband’s situation. His PSA level came in at 5.5. He doesn’t remember if he ever had a test before, so not sure how long it’s been high. Our PCP referred him to a urologist who recommended an MRI. The results showed PI-RADS level four. Doctor said he could wait six months and have PSA levels…
Help! Proton Beam Therapy vs Surgery?
Hello! I am new to this group and new to the family of brothers with a prostate cancer diagnosis. I have read through many of your questions and answers and appreciate the support you have given each other. I can really use some help with deciding on surgery or radiation treatment for my prostate cancer. I am 55 years old…
Brachytherapy tomorrow
I have the HDR Brachytherapy tomorrow. I am a little nervous for at least the surgery part of this. I am not sure what side effects I should be expecting with the radiation. They prescribed me a couple a bunch of urinary type meds. I am expecting to come home tomorrow evening. Thus definitely doesn't sound like fun
Eligard (How Long)
Hello this is my first time using this forum. I was diagnosed with agressive prostate cancer two years ago. Gleason 9-10. PSA was 9.0 . After surgery to remove prostate, my PSA was down to 0.65 (scans showed a bit of cancer spread to surgical area lymph nodes) I started on Eligard, did radiation therapy and my hospital…
BPH symptoms while on ADT
Hey guys, Im 73 YO, diagnosed with PC 11/23, prostate measures a whopping 88cc, PIRAD5, Gleason 4+3, T3N1M0. 3 of 12 cores positive grades1-3 with grade 3 being 4+3 with pattern 4 @65% of tissue. Currently on ADT/ FIRMAGON for 1 month then another late January then 3 month ELIGARD injection. My question is I am expecting…
How long should eligard shots continue
Finished radiation 10/1/2023. Radiologist on April 2024 said I was cancer free and PSA was .014. Urologist las been continuing shots every 3 months since October. Received one today and found out he's scheduled me for 4 more. Is this necessary? Side effects awful.
Salvage radiation after surgery, when to start?
The standard salvation treatments started when PSA reached 0.2 after surgery but I have read that some cancer centers started treatments when PSA reached 0.1. There is a fear of early treatments as they may caused more harm than good as the prostate is no longer there to shielded other organs. I have recently read the…
Constipation months after prostate surgery
Out of the blue and six months after Radical Prostatectomy, I'm having an uncomfortable/painful episode of constipation that I've not experienced before. Cannot trace it to anything. My surgeon's nurse has recommended over-the-counter laxative. I'm doing that, but a bit concerned. If anyone's had a similar experience,…
Age 76, PSA level 86
Hi All, recently I tested PSA level 86 after I did my CECT abdomen and Pelvis done due to swelling near waist area. "Moderate right hydronephrosis is seen caused by extraluminal compression of enlarged lymph nodes at iliae vessels crossing". Any one has had similar findings before they got diagnosed with Prostate cancer?…
Prostrate cancer PSA
I am a 60 year old man that has had his prostrate removed Sept 2021. I had a PSA of 36 with a Gleason score of 6. Stage 2 because of the high PSA but also BPH I had been on active surv since 2013 PSA of 2 . In 2013 I had my first biopsy were one needle out of 12 cores showed Gleason score 6 on 5 % on the needle but spend 3…
Possible bounce back?
hey everyone, I had permanent seed brachytherapy July 2023 for 3+4 Gleason. Pre treatment PSA numbers 9.5 to 9.7. Feb and March 2024 they were 0.8 both times, last week/August 2024: 2.1. I’ll get another test in a couple weeks prior to my 1year checkup. My understanding is that 2.0 increase or three successive increases…
Unnerved by my recent prostate diagnosis
Recently, I had a general physical that included a PSA test. At 81, I thought it was not recommended to include it in the blood test. The results came back with a PSA level of 10.1 I made an appointment with my urologist, who recommended a sonogram, MRI, and CT scan. The results showed two lesions (PI-RADS Assessment…
New to this group
I have been under observation for years and now after my 3rd biopsy, I have been given the choice of surgery or radiation. I chose surgery as if I have returned cancer I can turn to radiation. There is no shame in saying that I am scared for the surgery, but more about after the surgery and how to deal with what needs to…
MRI results
just saw results on my husbands patient portal. Not really sure what they mean. Also didn’t know if I should’ve put this on my original topic , so I just started a new topic, hope that’s ok. FINDINGS: There is mild hypertrophy of the central gland with a total gland volume of 21 cc. The prostate gland measures 4.0 x 2.9 x…
Just diagnosed looking for advice and your experience
Offically diagnosed with prostate cancer 6/21/24. PSA is 15.25 (up from 2.8 six months ago). PI-RADS 5 score from MRI. Biopsy score was Gleason 8 (4+4), Grade 4. 12 of 16 cores involved. Cribiform pattern present. Yes to Extraprostatic extension and Perineural Invasion. PMSA PET scan is being scheduled. Have met with…
High Gleason/low PSA
hi, I just had a biopsy. All 12 samples have an “aggressive” cancer cell sampling. My Gleason score is 9, but my PSA is only 4.4. When I search for information on low PSA and high Gleason I’m reading that this combination has a much higher mortality rate. Does anyone on here have a similar profile? I’m sorta lost…thanks Jim
Rising PSA
My psa has been rising since 2012. Had several biopsies! The last one on 1/4/19 with 20 cores taken with no cancer! DRE was good but do have enlarged prostrate! No infection. The urologist had me come in once a year for psa check! On 2/17/23 my psa was 11.6. On 2/8/24 my psa was 13.56. Was checked again on 7/10/24 and it…
Advice
Advice: 63-year-old asymptomatic patient. I was given the following three options for localized prostate cancer. 1.Laparoscopic prostatectomy preserving left side nerves 2. Radiation 3. Active Surveillance HISTORY: 11-09-2018 PSA 3.9 05-15-2024 PSA 7.8 05-19-2024 Biopsy: 6 cores, 3 from the left side (chronic prostatitis),…

Prostate Cancer

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