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New Kid on the Block
Greetings from Georgia, Had RP on 8/19/19, got picked off by my GP after my annual physical detected a PSA of a 4.2, had a biopsy 7/3/19 and 5/12 positive Gleason 7 (4+3). 3rd week post op and dealing with incontinence, up to about 6 pads per day, just getting use to my new way of life (TEMP). Doing my Kegels, other than…
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Pain After Surgery
Hi guys. I had surgery about 3 months ago and I'm still feeling some pain and tenderness. The pain is in my stomach muscles, which I expected, but I also I have have pain in what seems to be the bladder area (above my penis and below my bellybutton). But the worst is the tenderness in the perineum area. Whenever I sit…
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How to exercise after Prostate removal
Begin by standing at a comfortable surface where you have plenty of room at each side. With a 5lb. potato bag in each hand, extend your arms straight out from your sides and hold them there as long as you can. Try to reach a full minute and then relax. Each day you will find that you can hold this position a little bit…
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bone tumor after removal, radiation, and hormones
I had prostrate removed 10 years ago. I am 71 years old. Two years ago, I had a hormone shot and prostrate bed radiation. Now, my psa is rising about 1 point every six months (currently 2.0). A recent bone and cat scan has discovered a small tumor on my rib at the center of my back. I have an appointment with my cancer…
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Inguinal Hernia Post RARP
Well, I had my hernia repaired last Thursday. In some cases, hernias can be caused by a RARP. My surgeon was going to see if she could do it laparscopically, but gave me the choice of open surgery also. She told me she had just done a person that had had their RARP about 2 years ago and that when she went in to look, she…
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Looking for EXPERT surgeon @ MD Anderson (Houston)
My husband has just been diagnosed with PC...looking to remove total prostate. Want the BEST surgeon to hopefully have a GREAT outcome. Has anyone had this done at MD Anderson?
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I stopped by for a quick visit.
After 17 years of bf being Cancer free after a nephrectomy, a boopsy showed me with a Gleedon 8/My Uro sent me tp his friend in Orlando, Dr.Patel. Eight weeks later I met Devinci. A much, much easier recovery than Kidney Cancer and an undetectanle PSA after 6 weeks, Back to the Kicney Cancer board heloing the newbies.…
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Husband just diagnosed with PC
My husband was just diagnosed with PC. He was having issues with increasing PSA. DRE’s were all good. Prostate size 34 cc. PSA first check 3 years ago in 2016 was 2.6, 2017 3.5, 2018, 4.1 so he was sent to see urologist. The Dr we saw said no reason not to re-check in 6 months. At the 6 month check up his PSA was 4.73,then…
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Colonostopy one year after radiation treatment
Well it’s been about 14 months since I had external beam and high-dose Breaky therapy. Course I have had all the side effects. Tomorrow I go for a colonoscopy and I must admit I am pretty nervous. Not about the procedure about what they might find. I had three hemorrhoids banded. And anal Fisher. I have not had a decent…
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Three cycles of docetaxel...
Quick update: Dad gets the regular expected chemo side effects, of course, and got one unit of packed red blood cells a few days after the third infusion (which helped with fatigue and pain), and the PSA has fallen from 172 (day of first chemo) to 67 at yesterday's check in. Imaging scheduled for next week. Looks like…
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Genetic testing price
Would like to know if anyone has done genetic testing with Myriad Laboratories and how much it cost without insurance? I appreciate your response. MK
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Update after hormones and radiation
Latest update. I hope this helps some of you with the decision making process. Be happy to answer any questions. Age 68 at diagnosis 2/2009 PSA 4.3 Biopsy negative 2009-2016 PSA climbed from 4 to 6 DRE all negative 2/2016 PSA 7.5 Ultrasound and DRE indicate nodule Biopsy with 6 of 12 cores pos Two 4+3 Four 3+3 5/11/16 Gold…
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Active Surveillance continues; this is the way to go
Hi Fernando and others, I updated my CSN space to include, my lastest Free PSA, PSA and this months targeted biopsy results. I was diagnosed March 09 with a 3+3=6 less than 5% in two cores out of 12 random cores taken. Afterward I entered into a research project where a series of directed biopsies were given; making use of…
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Decisional regrets
Here is one of the best reviews on topic of “decisional regret on prostate treatment by prominent doc. https://www.afr.com/life-and-luxury/health-and-wellness/regret-after-surgery-for-prostate-cancer-is-widely-understated-20160502-gojrg3 MK
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Cyberknife Five Year Update
When I reflect upon my journey since coming to the forum in 2013, it's hard to believe it's been 5 years since I completed SBRT (commonly known as Cyberknife) treatment in 2014. Many years ago, my now 95 year old father would remind me how quickly times passes with every year. And yes...he was right...again!! I've been…
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AUS op my turn
My turn tomorrow for the AUS800 Procedure. I have a good idea what to expect day to day. I was in touch with a member who has just gone through the op and he gave me a day to day which is great, thanks Vince. I’m in at 6.00 am for an 8.00 am start. I am hoping I can get out to return home, but the way here in Canada is an…
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Haven't updated in a while...
Long story short: Dad diagnosed October 2017 with stage 4 PCa with bone metastases. Had a fresh biopsy done in February of this year after "flunking" both Lupron/Casodex, then Zytiga fairly quickly. Immunotherapy trial attempted in April after Foundation Medicine discovered a mutation in the ATM gene. Lots of radiation…
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Darwin's cancer fix
https://www.scientificamerican.com/article/darwins-ideas-on-evolution-drive-a-radical-new-approach-to-cancer-drug-use/ Principles of evolution and natural selection drive a radical new approach to drugs and prevention strategies
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Husband has stage 4 metastatic prostate cancer
My husband has been sick since Oct. 2017. Not dianosised until Feb. 2018, and it had already spread out of the prostate. The cancer is in his bone marrow and lymoh nodes now. He is at the point now , that he may have to quit work and that will leave us with no insurance. Any suggestions on insurance. to put him on my work…
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Dandelion and other remedies
I am a hardened skeptic when it comes to naturopathic and other remedies... having tried many, with only limited success, and most were ineffective except when enriching the producers. The most egregious are the remedies that "kill cancer" ... usually a brief perusal of the claim shows a complete lack of understanding how…
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Whats Up Doc? - Now Confused!
Hi - I'm new here and what a pleasant surprise to find this forum about 2 weeks ago. I truly wish I would have discovered this valuable information much much earlier as it would of perhaps steered me in the right direction. Here are the facts: I'm 60 years old. About 10 years ago I was diagnosed with BHP -Just before…
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Artificial sphincter
Do I need an artificial sphincter? I had robotic prostrate removal surgery 3 years ago and I am still incontinent. My suregeon suggest an artifical sphincter but I am not sure if it would be any improvement. i am currently using the Uriclack clamp and am using one to two pads a day. Mostily only one but if I am more active…
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Advice required about post RP radiotherapy
Hi there, I'm the wife of a 45 year old so was diagnosed with Prostate cancer 16 months ago with a PSA 120 and a Gleason of 9. MIraculously the choline PET, bone scans and 3T MRIs didn't show that it had spread to other organs and he had an RP straight away by da Vinci robot. (And started Zolodex) Unfortunately he had a…
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RP 2007--Proton 2015---now 0.01 from <0.01--is it back ?
Hi, I had Rp in 2007 via davince method. 2015 recurrence after 8 years of PSA = <0.01........Proton therapy 2015 and down to <0.01....PSA monitiored and was ,0.01 for 3 years.....today psa = 0.01 and NOT less than 0.01.........is Ca back ? .....scared and confused........any advise will help.......Thank you, Charlie C
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Lymphadema after Radical Prostatectomy
My RP was three weeks ago. For at least the last two weeks, I have had swelling in the right leg. Now, there continues to be significant swelling, pain and tightness in the right foot and ankle. Also, toes and foot have red and purple coloring. My PCP ordered an ultrasound about ten days ago that was negative for blood…
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6 week checkup wasn't good.
I would like to thank everyone for their time and all the information that they give here first of all. I have obtained a lot of information from reading this forum and it is greatly appreciated, This is my first time asking a question about my own prostate cancer adventure. In summary. Diagnosed with PC early summer, 12…
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Regaining Continence after Radical Prostatectomy
My robotic assisted RP happened two weeks ago. I am following instructions regarding steps to regain full continence but I have a few questions about the details. My understanding is that when the prostate is removed, one valve is loss that controls urine flow. So, does this mean that another valve (connected to the…
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Also looking into Proton Therapy
Has anynody had this? icemanroo
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Lycoene & Eligard
Hi, I am using Eligard HT What I would like to know would taking Lycopene help with my cancer Does anyone have experience combining these. Any thoughts out there. Regards Peter
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Erectile dysfunction
Hi everybody, I was chatting to Tigger about the future and I mentioned that I suffered from erectile dysfunction. He started off about waiting for the Firmagon to wear off and my testosterone to return and to see if anything happened naturally, I then pointed out that he had sliced out both of my nerve bundles during the…