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Experience with Casodex
Stuart asked about my experience with Casodex. His post: "Four years ago I was diagnosed with PC...After radiation my PSA recently began to rise...I just started 150 MG Casodex...I would like to know how you are doing and what are the side efects...Thank you" Rather than piggy-back a reply to an existing thread on a…
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Personal Experience of Robotic Prostatectomy
I had robotic prostatectomy on March 10, 2005. Because at that time I could find no description of experience of those who had undergone this new procedure, I have a written my own short summary. I'll be glad to provide it by email attachment to anyone sending requst to gearly@talbotarts.org. Gerry E
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Educated conusmer
My name is Joel and I am 60 years old. My story is similar to yours other than it is mine. I was diagnosed April 2004 and I am considered to be in a good position. Only 2 of the 12 biopsy pricks were positive and it was confined to the right side of the gland. With DRE,you do feel a little bump on that right side. My PSA…
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Laparoscopic Prostate surgery
I am 63, 25# overweight, and was diagnosed with Prostate Cancer- Stage 2A- Gleason 8- I was most fortunate for the following 3 reasons: #1- I advocated getting a biopsy when I saw my PSA jumped from 1.7 to 2.6 in a year...below the recommended levels,but still a big increase in a year #2- had the biopsy under sedation in…
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Alternatives and options
First of all, thanks to all the good people in this discussion group who are sharing their experiences. Ive read postings on this group, but havent seen much relative to what is on my mind, beyond the obvious, of course, such as: what the heck should I do? Also, I regret this lengthy posting, but, hey, this stuff is…
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The operation is over !!!
Hellloooooo Brotherhood, I'm back. As an update, I'm 56yr I was operated on by Dr. Walsh @ JHH for PC on August 9th. I took all of your comments with me, they were inspiring and useful. I am now sitting here with catheter in place and looking forward to each passing day, as it gets closer to getting rid of this…
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Father in Law PC
Hi All. I am a 35 year old Thyroid cancer survivor trying to help my 63 year old father-in-law who was diagnosed with PC in June 2003. His PSH was 11 at the time. He was told after a PET Ct scan that the cancer was not enclosed in the prostate and that it was in his hip bone> Therefore, he was not a candidate for surgery.…
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Please Help
I just learned that in the last 3 weeks my father's PSA went from approximately 5.05 to 8.2. Evidently he's considered hormone refractory. His doctor is getting ready to put him on Zometa for his bones. From what I know this helps strengthen his bones since he has spinal metastases. However it apparently does not affect…
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What to expect in end stage Prostate CA
To anyone with a moment to spare and some comfort to give I write this as a crisis continues to unfold in my life. My father, my hero, aka "superman" just turned 52 and has been battling with protrate CA for over 4 years. The PSA now runs erraticly in the 600-800 range, he is experienceing extreme pelvic girdle pain. I am…
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Can anyone help
Hi, My husband has had prostate cancer for some years and has exhausted all the traditional medical treatments. I have been doing some research on alternative treatments and find quite often reference to an Australian aboriginal bush remedy which is reported to have some very positive results. The plant is a Australian…
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RP in 2 DAYS, 8/9/05
As in the book, I too have been drafted into the "reluctent brotherhood" of men with prostate cancer. I have today and tomorrow left before I have my turn on the table. I'm here now because I'm not anxiouse, I'm not pacing the floors and in a way that worries me. I've read the book. Any last day words of advice? I'll be…
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Question please Help
Hi guys, my name is Kath and I am a BC survivor but Prostate cancer is in the family and i have kids..I have some questions I wanted to ask you. Please cut and paste this email into a new one and answer my questions it would help me so much. Thanks 1. When you were diagnosed with cancer were you: A. Meat Eater B.…
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bony metastasis - pl. share your experiences
Hi, My father was diagnosed with metastatic [to bones] prostate cancer 4 months ago. Shortly after, he underwent orchitectomy. He is now taking a monthly inj of Zometa [Zoledronic Acid], along with biclutamide. His experience with Zometa/hormone therapy is as follows: During first 3 months of therapy, he would feel aches…
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Total Incontinence Six Weeks After PC Surgery
I had robotic prostatectomy on March 10, with pathology report of "organ confined" and amazingly quick recovery. However, six weeks later I have total incontinence. Doctor says bladder sphincter should still kick in, and in any case we must wait at least 6-12 months before considering any corrective action. I wonder if…
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casodex
Does anyone have experience taking high does casodex(150 mg) after radiation treatment...My PSA has gone from .01 to .03 to .08 to 1.4 in the last six months.
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PSA Following RP and RT
In April 2004 I had a PSA of 6.4 and Gleeson of 7s&8s in all 10 cores and a protusion through the capsule. Decided to have a RP in that month to which the follow up PSA was 0.3. After 6 months at that level the Urologists decided it was time to have Radiotherapy delivered in 2 gy batches for 7 weeks. My PSA moved to 0.27;…
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Impotence/ Is implant the answer?
Had rp 15 mos. ago, post surgery effects, blithering idiot. Have incontinence, and the bad impotent....Have tried viagra, cialis, cactus root, tree bark, boiled possum inards.....you name it, no success...Yes egos are bigger than forever..I would never imagine men's brain power is not only in the cranium. My girlfriend is…
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Two weeks to surgey (ARP) and the catheter
I have read many of the messages on the board and I appreciate learning what everyone has shared with the group. I haven't read any comments about having the catheter in for two weeks. What can I expect to go thru with respect to the two weeks with the cath. I'm concerned about that (the cath) because one doctor said "your…
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ED 50% Nerve Sparing RP
I had my RP March 17, 2004. I'm 52 years old. Presently I'm taking injections for my erection. I just tried 50 mgs. of Viagra with very little result. Has any one recovered their erection from a 50% nerve sparing RP. Any information would be helpful.
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I'm New
My sweetheart underwent a radical prostectomony 1 year ago (he's 55, & my 1st love, we reunited 3 years ago); he now has to undergo radiation because it's outside the capsule; in the meantime he doesn't take any of the ED enhancements that the dr. gives him to help. I asked that we go for counseling, but he refuses. I'm…
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erectile dysfunction
following prostate surgery in March of this year I suffer from erectile dysfunction. Medications such as Viagra and MUSE have not helped. Has anyone had any success with vaccuum therapy systems. This is very frustrating and would appreciate your input.
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PSA Rising
Hi...I'm 56 and had an RP 10 months ago and just regained potency...never had any ncontinence...and starting to feel really good again...but the fly in the ointment...I've been getting PSA every 3 months after the first one...they've run 0.19, 0.19, 0.17, and the last one was 0.24...it has risin...the thought of having to…
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What's next!
I am 4 months post RP. My latest PSA was non-detectable. Hopefully that will continue! I have had full bladder control for over a month. I've had no erections yet. I've tried viagra twice with nothing but a headache for my troubles. My wife of 35 years has been wonderful. I'm not sure I could have survived this without…
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Intermittent Hormone (Androgen) Deprivation Therapy
I was diagnosed with PC in Mar 03 and am undergoing ADT having so far received four (4) quarterly inplants of Eligard as there was evidence of spread to the lymph nodes. PSA went from over 30 to 0.2 as of Apr 05. I understand that eventually the cancer cells will become androgen independent or refractory. My question: Has…
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Soldier On
Thank you so much for those who replied to my posting. It is a comforting feeling to know there are others out there, willing to care for each other as people. Being the oldest son I am very much like my father and I have been raised to be much like him. He has recently started a chemo trail in Boston (we are in NH) with…
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pathology report
I had a radical prostatectomy in 6/03. I just recently obtained a copy of the pathology report and it mentions something that I have never heard of. It shows that my my prostate had "prostatic intraepithelial hyperplasia, high grade, multiple and extensive". Does anyone know what that means? Is it something that may have…
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Lung Involvement
Twelve years since a radical pros, eleven years since radiation, PSA 3 to 6 in three months, diagnosis lung involvement. Any thoughts?
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Recovery Questions
Hi, I had RP surgery Oct.2004, I had a PSA 10.1. my first psa after surgery was -0.2. Recovery has been going well, up to a point. I have been getting my strenth back, but now it feels like it has level off, I just cant get over the hump. I feel tired. Is this normal? Should I just force myself back to running and being…
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new diagnosis
Hi. My name is Lisa and my dad, who is 82, just found out today he has prostate cancer. (The reason for my user name-billysaunt-is because I have used this site for information for my 25 year old nephew who has colon cancer.) All we know so far is that his PSA is a 4, having been a 2.5 six months ago. The plan is for a…
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Pain in rectal area
I am 6 weeks from a RP and I still have soreness when sitting. In addition, I have a small amount of leakage when I get up after sitting a while. My doc says the pain is normal and will go away. Anyone else having similiar symptoms?