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lupron
I've been on lupron for 2 years. I've been experiencing severe memory loss, so much so that I wake up confused, not knowing where I am or what I did yesterday or last week. I'll be driving in the car and forget the directions of places I've been thousands of times. My doctor tells me this is a result of depression in…
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Radioactive seed implants
I underwent radioactive seed implants (93-Iodine 125 seeds) in mid-May 2003. PSA had gone down and urologist is satisified. My problem is related to unination and the urge to urinate. The urge comes on very quickly and I have difficulty holding it. Sometime the urge is so strong that I become incontinent. What can be done…
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caverject injections
My prostate cancer operation was a year ago. I have tried all the pills and finally the injections. The caverject injections work pretty good. The problem is that my insurance will not cover this prescription and it is very expensive. I don't want to limit my activity because of money but it is getting to that point.…
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PSAs and HMOs
In Feb 99,after becoming eligible for Medicare, I signed on with a certain HMO and was provided a copy of their "Healthwise" handbook. In regards to prostate cancer, the book states: "There is a great deal of controversy about the value of using digital rectal exams and the PSA blood test to screen men who do not have any…
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What's Next (radiation and recurrence)?
My brother was diagnosed with prostate cancer about 3 years ago - psa around 13 and Gleason 7 at the time. There was no evidence of cancer beyond the prostate. He was in early 60s. He could have had radiation or surgery and got mixed advice, but went for the radiation thinking it would have fewer side effects. He Had 3d…
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Cancer Centers
Has anyone had experience with H. Lee Moffitt Cancer Center, Tampa, FL. or University of Alabama at Birmingham? I am from a small town and will travel for treatment.
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What is happening at this stage of healing after RP?
My husband is just 2 weeks out of radical prostatectomy and experiencing incontinence, finding it frustrating but not letting it limit him too much (he doesn't feel up to much yet, anyway.) I read in some responses on this site that part of what is happening now is healing to muscles and tissues that effect urinary…
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Post Radical Prostectomy Problems
Hi, About a year and a half ago, I had a RP. The doctor indicated that the nerve bundles were spared. After the surgery, I had problems urinating and the Dr. stretched the bladder neck. I still have problems with leakage--esp when lifting or physical stress. The Dr. suggested a collagen procedure to tighten the bladder…
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New diagnosis,11.5psa, gleas 6
New diagnosis psa 11.5, gleas 6 Message: Iv'e consulted surgeons doing open surgery, robotics/lapro, Novalis beam rad. Everyone says do the best thing for YOU but knowing what that is is difficult. My biopsy shows ppsitive 2 samples of 12 and only a very small part of each. Nobody has said you might have a very small tumor…
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Performance Anxiety
I'm almost 2.5 years out of RP, and still have erectile problems - have used Viagra,Muse and Caverject with low to medium success.However, I have also had spontaneous stong erections while sleeping,so that tells me that the nerves and blood vessels must be intact.It's when I'm with a woman that I have problems.So-is it…
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seed side effects
I had 50 seeds implanted Oct. 03, PSA down to 0.2 in May. Ever since surgery I've been getting these sudden urges to go that are overwhelming. It seemed to ease very slightly towards the middle of June, but starting the end of June it suddenly got worse(difficulty starting & maintaining flow) bowel urgency has increased…
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Changing Identity of Medical Oncology
Under previous law, Medicare covered chemotherapy as well as radiation treatment for cancer patients, but did not pay for oral-dose anti-cancer drugs, unless they were available in both oral and injectable form. Medicare Part B covered a total of seven oral-dose anti-cancer drugs under this provision. Older Americans were…
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Inoperable Prostate Cancer
My husband is 56 and has been dx with pc right after I finished treatments for bc. He had a psa of 49 and gleason score of 8 or 9. We were told it had already spread outside the capsule so an operation was not an option. He had a month of radiation but his psa gradually started to climb back up. He is getting zoledex shots…
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Anybody can inform me?
Hello, My father in-law has been diagnosed with PC 7.5 years ago, went throught Brachytherapy, went on vacation last October and according to him got an infection while away and his left leg swollen, started chemo and in July was hospitalized with severe kidney failure, we found out that the cancer was no longer curative,…
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NIGHTLY PISS RUNS
i have found a side effect of drugs that reduce my piss trips at night from several to one or two. instead of going to bed at 7:00pm i now go to bed at 10-11 pm and get up at the same time, 5-6am. it is a bit of heaven being able to sleep again.
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psa going up after seeds
my psa has gone up from 1.34 to 4.52 in 10 months. my doctor gave me the options of hormones or freezing the prostate. have any of you ever had the freezing done. how about the hormones? i know it is only a bandaid but it is supposed to hold the cancer in check. did any of you try hormones? has it been effective? thanks
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Recovery Period expectations.
I was diagnosed with PC in Agust 04. My PSA initially was 4.2. Immediately after my biopsy it droped to 3.3 with a Gleason score of 6. I opted for the radical nerve sparing surgery considering my age, 41, and the stage of the cancer. I had that God awful catheter removed today, 10 days after surgery, and feel pretty good.…
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Update on my Dad.....
My Dad has hormone-refractory prostate cancer. In the last 2 weeks his PSA went from 26 to 35. He's not in a lot of pain now, but has slowed way down, sitting in his chair most the day. He also has begun getting hand tremors, and we don't know what is causing that. He was going to wait until he was in extreme pain to do…
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Drugs
Science Friday will be discussing the Drug Companies and whether they are interested in Cures or Profits tomorrow. The program usually airs at 10 AM in my area;check your local PBS station. bud
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Husband home from RP
Hello everyone. I have been reading your posts for several weeks now and finally decided to join in. My husband is 46 years old and was diagnosed with PC about a month ago. He originally was sent to a specialist because he had large amounts of blood in his urine. After checking out kidneys, liver, and bladder they decided…
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Anemia
I was diagnosed in 2/03 psa of 14 and Gleason score of 9. Had rp in 4/03, but psa never went to 0 and started doubling every 3 weeks. Had radiation starting in 8/03 and started Zoladex, too. PSA went to .006 and has stayed there for now. Had sling surgery in 3/04 to try to correct major stress/urge incontinence. Had sling…
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PSA of 20+ with Gleason of 9+
Anyone who has personally dealt with these numbers please let me know how you are doing and let me know the details of your treatment and your opion of its effect, Thank you!
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Total basket case after RP-Help
Had RP 4 wks. ago, catherder removed (more painful than surgery) after 3 wks. Im incontinent and the dr. said my sex life is over. I had psa of 26 before surgery and .1 after. Now the dr. wants radiation every day for 6 wks. and lupron shot. I have heard the side effects of the rad. and the lupron shot are rather hard to…
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Urinary problems
My husband had postate surgery for cancer 3 weeks ago. He is so depressed due to urinary incontinence. I don't know how to help him through it. I am an RN but have never worked with prostate cancer patients. I know that everyone is different but is there anything we can do outside of keeping active and doing the kegal…
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Support Group in Alabama
Fellow survivers here who live in or near Alabama, who would like to start a support group in North Alabama Please email me at krp@hiwaay.net My name is Kevin.
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artificial sphincter
In July of 2003 I had the prostate removed and had subsequent radiation. I could not beat the incontinence. In June of this year I had the artificial sphincter procedure. That did the job, and I very much like being back in control. The problem is, I'm still having a lot of discomfort and pain. This is mostly in the…
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psa .14 then .04 after surgery
I had radical prostatectomy on 7/25/03, gleason 7 and a little cancer got into the capsule and on the edges of the inked margin. My first 3 month follow up psa was 0.14 and then the second 3 month follow up was 0.04(just this week). The direction is great and I am happy the psa went down but I am curious why it was at 0.14…
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Selenium and Vitamin E
As many of you know, about a year or so ago, the government started a clinical study called SELECT to determine if Selenium and Vitamin E can be effective in preventing PC. The study involves 32,000 men residing at 400 different sites and have never been diagnoses with PC. The study will run from 7 to 12 years. I think…
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Your wives love you!
My husband is 42 years old and 7 mos post RP. He has not regained his erections and, like many of you on here, it has been very difficult. I am a breast cancer survivor, so I do understand some of the emotions that come with facing and conquering cancer. All I wanted to say is how much I admire all of you -- especially my…
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Climax
I had surgery about 4 years ago. Everything went very smooth, however I did have to follow up with radiation. After all is said and done, I have only one issue. My sex life is good except that my climax includes whatever urine is in my bladder. Not a huge problem, but very wet. Has anyone else experienced this and had it…