Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

Surgery Postponed
Surgery had been scheduled for Dec. 1, however, the nurse called today notifying me that surgery had to be rescheduled due to the doctor's assistant not being able to be present. Needless to say I jumped on the PC emotional roller coaster. I was prepared emotionally and physically for the da vinci date. I am now scheduled…
Prostate Cancer Clinical Stage Does Not Predict Recurrence, Study Suggests
http://www.sciencedaily.com/releases/2010/11/101122092525.htm The investigators found that clinical stage was assigned incorrectly in 35.4 percent of 3,875 men in a multi-institutional national disease registry.
Testosterone treatments after radical prostatectomy
Hi everyone My urologist recently performend bloodwork and determined that my testosterone levels were low. I am 50 years old and have had undetectable PSA since my DaVinci surgery in September 2007. My urologist believes that my cancer is cured. That post op pathology report indicated clean margins, no invasion of SV,…
HIFU Side Effects--Nerve Sparing
For those of you who have taken HIFU treatment for prostate cancer, I am interested in knowing about any side effects that might have resulted from your treatments, in particular urinary problems, and ED. Is this a "nerve-sparing" procedure?
Rising PSA after surgery
I am very new to CSN, having just signed up this afternoon. I had a RP followed by radiation therapy IN 1994, 16 years ago. My cancer was discovered during an annual physical and the PSA was 44 at the time - over 50 when I had the operation. My PSA has been steadily increasing over the years to where the last test showed a…
erections after davinci
Had davinci on sept 16th and slowly recovering.I am 47 years old and although I am concentrating on getting the continence in check I wondered what people's experience has been with erections once you control the incontinence. Never had any problems before but nervous about the future although doc said operation was…
Who Let The Dogs Out?
I am not sure what to make of this. From urotoday.com "Department of Urology, Tenon Hospital, Assistance Publique-Hôpitaux de Paris (AP-HP), University Paris VI, Paris, France. Volatiles organic compounds (VOCs) in urine have been proposed as cancer biomarkers. To evaluate the efficacy of prostate cancer (PCa) detection by…
Indiana Pouch
My dad recently had the Indiana Pouch surgery and I was wanting to talk with others who had the same surgery.
Surgery 11-22-10
Surgery was 11-22-10 and I thought that I had researched and was prepared. I was surprised by one thing. The gas used to aid the procedure produced severe pain post surgery. It feels like all my ribs are broken. My shoulders, chest, and neck have severe pain. Just wasn't prepared for this. All else seems as expected. Tried…
Thankful
As we approach Thanksgiving I am reminded of my journey which started last November: I am thankful for my wife pushing me to my annual physical I am thankful for my kids whom I love so much I am thankful for my docs in being aggressive in testing I am thankful for my surgeon I am thankful for all the folks on this site for…
Trelstar Hormone treatment side effects
Finished 7-1/2 weeks of IRMT radiation treatment. PSA went from 0.4 to below 0.0 Also on 6 months hormone treatment With the 2nd 3 month shot i have developed a real problem with sleeping. Either cannot get to sleep or wake up every hour or 2 and cannot go back to sleep. anyone else had this reaction?
Newly diagnosed
Hello to everyone, I'm new to this site. Have monitored PSA for many years every three to six months depending on numbers. DRE revealed "nodule" on prostrate for as long as I can remember. Original biopsy was negative. Currently rising PSA (5.3) resulted in new biopsy that was positive. 13 samples (two in prostrate:…
rising psa after radical prostatectomy
I had RP in June 2003. My post surgery pathology was: Gleason 7 (4+3), margins clear, cancer on both sides of prostate. All of my PSA readings since then have been less than .04. The last blood test with that result was in June 2005. My most recent PSA taken on 11/9/05 was .6. I saw my doctor the day before yesterday and…
Ablatherm HIFU
We are back!! It has been a hectic 3 months but the time is near for the next PSA. The last one was 0.58 and doctor wanted to do 'a little radiation'. But after discussing our plans with the doctor, he agreed to wait and do another PSA in November. The 9th to be exact. In the meantime, we have been researching the HIFU…
XL184
On the horizon? Every day brings a new discovery or learning opportunity to share. XL184 is an experimental drug for metastatic, castration-resistant prostate cancer (mCRPC). More info: http://prostatecancerinfolink.net/2010/11/18/xl184-shows-potential-promise-in-patients-with-mcrpc/ While the article below also has info…
Post PSA after surgery
Hello everyone I had prostate surgery Sept. 20th and my first six week check up PSA test was last Tuesday on Nov. 2nd it came out to be .29 he said my surgery went fine and my Pathology Report said that it was completely confined I had a gleason score of 3+4 =7 and he said that I would make a complete recovery.He scheduled…
Decision made
I've only been a member here for a few weeks, however, I feel like a site family member. After researching, reading, talking to people, getting test results and getting excellent insight from this site; I've decided to go "da vinci" scheduled for Dec. 1. I have a lot of confidence in the surgeon. Thanks to everyone for…
Surgeon better be worth it; his office staff is killing us
Scheduled for Da Vinci surgery in two weeks with one of the top surgeons in my area. He better be worth it because his office staff is making me sick. It's been one thing after another; botched appt times; inaccurate info; delayed responses. They seem to have forgotten how to be professional or compassionate. I know I'm…
support groups
I belong to a man to man group in the Albany, NY area. The area I am most interested in is dealing with the fact that after treatment the mental effects of this disease are more distressing than the disease itself. My concern is primarily for the answers I seek on how to deal with this and furthermore how can I use this…
Could it be symptom of prostate cancer?
Hi, I am Pradeep from Bangalore, India. My father is 65 and he was a very healthy person till he was 63. Never had any major health related problem. But 2 years (Oct 2008) back he had to undergone surgery at a Urology hospital at Shimoga to remove the stone formation over the prostate gland. He was quite ok after the…
Need Kongo help----Diet
Kongo, we have communicated before. You, and other sources, have made me a believer in the Mediterranean diet approach to reduce recurrence---NO red meats, NO dairy, and as little sugar as humanly possible. I have been doing it for 2 months with great success. But my query is an interesting one. My wife, a great cook, has…
EBRT versus IMRT
The November PSA was 0.62 - down from 0.64 back in August. There are two cancer treatment centers in Fort Smith. I found info online telling that one of these treatment centers has the ability to do IMRT. The one we are going to does not do this (unless they have recently started it). I know if we ask her she will probably…
Very upset, Father's prostate cancer, can anyone help?
In 2001, my father was diagnosed with prostate cancer and was treated with hormone therapy and radiation -- this brought his PSA to zero. Considered in remission with never a mention of watching for a reoccurrence. In 2008, his PSA spiked to .2. He was treated with hormone therapy again for 6 months which brought his PSA…
More on Soy
ScienceDaily (Nov. 9, 2010) — Northwestern Medicine researchers at the Robert H. Lurie Comprehensive Cancer Center of Northwestern University have found that a new, nontoxic drug made from a chemical in soy could prevent the movement of cancer cells from the prostate to the rest of the body. A link to the study follows:…
Exercise May Prevent Incontinence from Prostate Surgery
I like articles like this and exersise too...give often to PCF http://www.pcf.org/site/c.leJRIROrEpH/b.6008043/k.66D8/Exercise_May_Prevent_Incontinence_from_Prostate_Surgery.htm
Fish-Filled Diet May Cut Prostate Cancer Mortality
I like articles like this...Give offten to PCF http://www.pcf.org/site/c.leJRIROrEpH/b.6327223/k.CAF5/FishFilled_Diet_May_Cut_Prostate_Cancer_Mortality.htm
Corporate caregivers do exist!
Corporate caregivers do exist! I contacted the Ferring Pharmaceutical Company that manufactures Firmagon(degarelix) last month regarding if they had a compassionate drug program. My Cobra Insurance was ending 10/31/10 and affording Firmagon as an out of pocket expense would be a severe financial burden. I was informed…
Yanni and "Movember"
I, like many other men that are cancer victims / survivors have wondered why there is not more awareness about men's cancer....specifically prostate cancer. Today I received email from the Yanni organization that reminded me that indeed the month of November is men's cancer awareness month and that the great music Icon…
PCF’s Annual Scientific Retreat Delivers Exciting Discoveries
PCF has just issued a complete State of the Science Report, recapping all presentations from the retreat. In this current issue of Advances, I would like to highlight just some of the pivotal discoveries coming out of this year’s retreat that are driving our progress. This selection of presentations represents what I…
Hepatic Embolization of the liver
My 35 yr old Fiance was diagnosed with Stage IV Parotid Gland cancer (a salvitory cancer) in August 2010. It has spread to his spine (6 tumors- C5, C6, C7, T1, T3, T10) and to his liver (10.6cm tumor). After a surgery to remove the primary tumor, radiation and two rounds of chemo (taxol and carbo-platin)they have pulled…

Prostate Cancer

Discussion List

Discussion Boards