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Yanni and "Movember"
I, like many other men that are cancer victims / survivors have wondered why there is not more awareness about men's cancer....specifically prostate cancer. Today I received email from the Yanni organization that reminded me that indeed the month of November is men's cancer awareness month and that the great music Icon…
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PCF’s Annual Scientific Retreat Delivers Exciting Discoveries
PCF has just issued a complete State of the Science Report, recapping all presentations from the retreat. In this current issue of Advances, I would like to highlight just some of the pivotal discoveries coming out of this year’s retreat that are driving our progress. This selection of presentations represents what I…
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Hepatic Embolization of the liver
My 35 yr old Fiance was diagnosed with Stage IV Parotid Gland cancer (a salvitory cancer) in August 2010. It has spread to his spine (6 tumors- C5, C6, C7, T1, T3, T10) and to his liver (10.6cm tumor). After a surgery to remove the primary tumor, radiation and two rounds of chemo (taxol and carbo-platin)they have pulled…
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Opinions on Stanford Cancer Center Palo Alto CA
As part of my quest to seek a second opinion outside of Kaiser on my PC diagnosis and possible treatment options (includig Cyberknife) I am considering UCSF or Stanford. I have both friends and CSN member input on UCSF but wonder if anyone has been treated at the Stanford Cancer Center.
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6 Week PSA----YES!!!
Just got my first PSA results back post op and it is undetectable. The nurse called me so I did not ask for the exact number but I know what the answer would have been. I'm very happy and relieved. Now I just need to find the hyperlink to download the application for the Zero Club. I hope it will be ok to pay the…
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a cholesterol question...
Ok I have my annual physical including all of my blood work (first time with my PSA test) and got my test results today and everything is great except my HDL Total cholesterol: 138 LDL: 89 Triglycerides: 107 All is looking great and then my HDL comes in at 28... Shite I eat sockeye salmon or sardines 3-5 times a week, no…
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BREATHING A SIGH OF RELIEF
Well, got my 9 month psa result today and it was still undetectable!! I am very blessed. Now I will have a good couple of months before I have to start worrying about the next one. If all goes well on the next test I get to go on the 6 month plan! I truly wish all posters with PC the very best results possible as they…
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PSA Rise
I had a RP in August of 2005. PSA tests for the first 3 years were 0.0. In the 4th year it was 0.1. I am now out 5 years and 3 months and it has risen to 0.2. I went to my surgeon and he said that any rise in the PSA is questionable. He also said that 0.2 is the limit. He said that I could have pelvic radiaition now. I…
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Pad Diary II
Guards, the Pad Dairy thread is getting too heavy for this server- it takes forever to post on it any more. I am now starting the 2nd volume. I read your last post. You and I have so much in common. I hadn't gotten a stint yet- and that hasn't been discussed with me the Ileal Conduit bag has been discussed with me. I have…
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18 months
PSA is still at non-detect 18 months after Davinci! Wish the anxiety related to waiting for the test results would go away. QOL issues "are" going away. No incontinenece. EDs been slowly improving since one year, with the pills working real well and 5 out of 10 naturally. For the guys just starting this journey, hang in…
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PSA 1524 Guess I'm doomed.. now what? Quality of life, letting my family and friends know
Hi This is my first post and I am dealing with advanced Prostate Cancer. I met with my doctor today and he gave me the news, I have not had a biopsy but my CT Scan showed lots of issues with enlarged Prostate, Lymphs with irregulairies and urine flow.. My PSA has climed from 40 to 70 to 1524 in the last 6 years...…
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post op advice from Catalona
Here is the link for post op advice from Catalona http://www.drcatalona.com/PatientAdvice.asp
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Looking for a surgeon -- any recommendations?
My 54 year old husband was recently diagnosed with prostate cancer: Gleason 6, T2b, PSA 3.1. Radical prostatectomy has been recommended. We live near Minneapolis/St. Paul MN and can travel to Mayo Clinic in Rochester, University of Minnesota Medical Center, or any hospital in the metro area. Any recommendations for…
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Is Aspirin A cure for PC?
From Science Daily News a very interesting article on the use of aspirin for lowering recurrance of PC: http://www.sciencedaily.com/releases/2010/10/101025133750.htm There is also a good article on the benefits of proton therapy: http://procure.com/protontherapy/tumorstreated?gclid=CO_u99ql76QCFUIUKgodM0Mo1Q
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Zolodex Injections and Casodex
My RP was done in May, 2010 and my first PSA in August came in at 1.0. My doctor recommend that I start hormone therapy right away and I have started Casodex and will receive my first injection on 9/15. Has anyone had experience with these hormone drugs? Side affects of the injection? How was the injection? Thanks. PS:…
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Five years after IMRT
In 2005 I had a PSA level of 4.0. In 2006 I had the same and a biopsy was recommended. I had this done, 1 out of 12 samples showed cancer. I choose 8 weeks of IMRT theropy, nothing else. About 6 to 8 months after the original treatment, my PSA decreased to about .90 or maybe less. A year ago my PSA was 1.9 and on this past…
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So we have someone here that complained about my posting regarding my ED study with Northwestern was
Offensive or spam that I posted yesterday....this is too funny....I really fell sorry for you.....
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Has Anyone Heard from erisian?
Wondering if anyone has heard from erisian. He regularly posted to this discussion board up until earlier this year, maybe about the April or May time frame. Since then, I have not seen anything from him. I really miss reading his posts as they were quite informative and enlightening. I just hope he is doing okay. Best…
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I am blessed with another <.01 post surgery PSA test result!
Being at high risk (I was not high risk prior to surgery based on my clinical results and this is something everyone must weigh when making their decision on the type of treatment they will have to fight this beast...). I am truly blessed and believe that the experienced hand of my surgeon and the grace of God have given…
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DaVinci on Oct 6 - what to expect
After searching for a solution and qualified surgeon, I will have the operation on Oct 6 in Seattle at Swedish Medical. I've read a fair amount including Dr Walsh's book but I would like input from those that have had the procedure on what to expect immediately post surgery - like Day 1, Day 2... to the point of catheter…
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Flag All Spam and Ban The Posters
Who the F*CK are SunOnoble and dorisEknight? I just spent 10-15 mins flagging all the identical spam ads that they (actually probably the same person) posted for something called "difulcan" (and other drugs) in 21 different threads (sometimes posting multiple identical ads in the same thread). WTF!!!???? Administrator:…
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Surgery and Blood Thinners
In all of the reading I have done prior to my surgery, I found little to nothing on having surgery if you are on blood thinners. As it turned it, that became a problem in my surgery and resulted in a 12 day hospital stay, another opertation at night to address a problem, and 2 blood tranfusions. My surgeon was well aware…
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1 year anniversary
Tomorrow, Oct 19, is my one year anniversary of DaVinci surgery. All four of my PSA tests this past year (including the most recent one a couple weeks ago) have come back zero. Incontinence was a non-issue almost from day one. ED has been a problem, but has improved (slowly) over time (still not there yet though). I'll be…
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metastatic prostate cancer pain..HELP
Hello, I'm new and I need help. My father's been diagnosed with metastatic prostate cancer with a PSA of 215, and went up to 256 in 3 days, and now all of a sudden it went down to 134. No treatments have been done yet by the doctor, we are given hormone therapy option, the doctor will start the injection on tuesday (day…
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Lupron problems
My husband was diagnosed with prostate cancer in August. He is a laryngeal and renal cancer survivor. Our doctors had set up a regime for external beam radiation and then implanted pellets. He has a Gleason 4+3 and is 72 years old with osteoporosis and a history of heart attack. We were comfortable with the planned…
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Dad starting chemo-advice on taxotere?
My dad is 65 and has prostate cancer that has spread to his bones. Lupron and radiation didn't help. He is now going to start taxotere. I know everyone responds differently to treatment, but I would like to get some feedback about how effective this is and what to expect. Would love to hear something positive maybe about…
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12 month PSA = 0
Just to let everyone know. Good luck all, Mike
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newly diagnosed gleason 10 stage iv low psa
Hi I'm 68, have been tested every year for the last 15 and have just been diagnosed, I had no symptoms and no pain. psa of 5.3. I've been told its very aggresive (gleason 10) and that it has spead to my bones and lymh nodes. They are only giving me hormone treatments, has anyone any ideas of what else I could try or any…
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NEED HELP CHOOSING A SURGEON
My local uro seems like a nice guy with over 2000 prostate surgeries in his life. I have an appointment with Dr. Partin at Johns Hopkins. I'm trying to deceide which doc to choose. Anyone have anything to say about Dr. Partin from Hopkins?
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treatment decision
I have made my treatment decision after a lot of prayer and sole searching. I will have the Da Vinci robot surgry the week after Thanksgiving here in northern Virginia. I read many of the posts here and it seemed to me that going wtih what my doctor reccommended is best and he has done over 100 of these operations. My…