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Checking In
It's been a while since I've checked in, but I am finally pad free (surgery was done back in April). Erections are still a problem, but getting some results with viagra. I tried using a pump with little success. My insurance does not cover any ED treatments, so I'm paying for the pills out of pocket (about $19 per pill).…
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Update on 11-22-10 surgery
Just a quick update on my progress from da vinci surgery on 11-22-10. Catheter came out on 11-29-10. So far, no "accidents" and only a rare drop in the underwear. Have not worn any pad or protection from the day catheter was removed. Went back to work two days after catheter came out, or in other words nine days post…
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How long can surgery be safely delayed in men with low risk PCa?
Another interesting article in the new Quest magazine published by the Urological Research Foundation..."It should be online soon however, in 2 important areas, the delay did show statistical effect. A surgical delay of six months or more 1. was associated with a significantly greater proportion of Gleason score 7-10…
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follow up radiation?
can some one tell me about ,salvage radiation , ive had robtic surgury at loma linda and i might need to have radiation? gleeson score 7 - psa 13 these numbers are from the pathlogy report. after surgury. god wiling i wont need it . thanks.
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The Penis Poem- not ment to offend
I hope you take this lightly as I did THE PENIS POEM My nookie days are over, My pilot light is out. What used to be my sex appeal Is now my water spout. Time was when of it's own accord From my trousers it would spring, But now I've got a full-time job To find the flippin' thing. It used to be embarrasing The way it would…
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REALLY blunt question. How can sex be satisfying without ejaculation?
It justt seems to me that so much of sex and specifically orgasm is tied to ejaculation. I just wonder what it would be like without that pulsing and contracting. Somebody please answer this question.
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Does anyone feel that age is THE determining factor for watchful waiting?
I am 54 diagnosed in sept. Gleason 7 and 6 two cores out of twelve. forty percent in one ten in the other. biopsied because of rise in psa from 2.75 to 3.72. lastest psa 1.99 The treatment center says it doesnt matter and its not unusual even though I havent had any treatment yet. I was on testosterone therapy of 3 years,…
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Six Week PSA Test
Hi community I reported that I had RP about a couple months ago and my first six weeks PSA test was reported as .29 on the test. Well my Oncologist wanted to do another test in 30 days and I just got the results yesterday and I am happy to report that it came back as .017 so i think that this is a good sign for things to…
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father has advanced prostate cancer
Hello ,I dont normally go on to these websites but my father is quite ill and taken a turn for the worst in the last 4 months. My fathery78 yrs started to fight his cancer in the year 2000. last year they gave him a total hip replacement after being on chemo and radiation for 7 months. That surgery was last january. He is…
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Use of IMRT for Financial Incentive Purposes
I am myself an IMRT beneficiary and have been recommending the treatment to friends because of its good results and minor side effects. This article in the Wall Street Journal is shock-ing in regards of its use in USA for the benefit of someone’s pocket, independently of patient need. Is that true? Here in Europe it may be…
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Older Patients with Prostate Cancer
Very interesting article about treatment for older patients. There is still a lot of life to live at 75! http://www.reuters.com/article/idUSTRE6B670E20101207
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PSA , Biopsy & Avodart
Dear follow forum members. I am trying to make sense of my PSA numbers before biopsy, and PSA numbers after. I have been attending the free screening at the UK Markey Medical Center here in Lexington, Kentucky. My numbers were as follows:- May 2007 – 3.53 June 2008 - 2.97 Sept 2009 – 4.68 After I received the numbers in…
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possible remission?
7 years ago i had a radical protatectomy. my psa at the time of surgery was 7.8. every six months since then i have had a psa check. it started out at .01 and has been steadily going up but very very slowly. my gleason score was 3+3=6 btw. however the last time i had it checked, my psa, the number went down. it was at 4.8…
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what about proton therapy?
Just wondering what is the opinion of the members when it comes to proton therapy. That is my treatment of choice at this point.
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Time magazine article: "The robot will see you now"
FYI... you can find this piece in the Dec 13, 2010 of Time. It is a non-biased writing on the development, pros & cons & increasing medical uses of robotic surgery. It focuses on Dr Menon ( the first surgeon to use the robot for prostate removal in 2000)), director of urology at Henry Ford Hospital in Detroit. Anyone out…
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A new test out there is 300 times more sentitive than commerically available PSA Test
Northwestern is at the lead again with an extremely sensitive nanotechology-based tool known as the biobarcode system...This give doctors the ability to easily and quickly detect very low levels of PSA and may enable doctors to diagnose men with PCa recurrence years earlier than is currently possilbe...Becuase the "nano…
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Aspirine with Milk avoids Cancer
I was recommended by the Walsh team to have a low dose daily aspirine in 2001. I thought it as anecdotal but would never contest a recommendation from such highly considered medical experts. And so that makes part of my breakfast ever since. Now, the Mail tabloid on prostate cancer, writes excellent news in regards to the…
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new guy wants to ride bike
hello, and thanks for all the info, im just a simple guy that doesnt have a lot of computer skills. but can riding bicycles and motorcycles affect my dreaded PSA scores?
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how can i help my brother know that it is ok to reach out for help?
my brother, who will be 59 tomorrow 12-9, was diagnosed with prostate cancer last year - on his birthday. his initial experience, with a local urologist, was not positive. being a breast cancer survivor i encouraged him to seek an appointment with an oncologist/radiologist - a facility with resources to aggressively get on…
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Michael Korda-Man To Man
Does anybody know how I can get in contact with Michael, author of the book, Man To Man. I assume that he is still living. He should be about 76 years old by now. I would like to see if he would like to wright a book about a RP nightmare. Contact me.
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of interest on Larry King tonight-Cancer Roundtable on Larry King Live
Tonight: Cancer Roundtable on Larry King Live December 9, 2010 on CNN Pacific: 6:00 PM, 9:00 PM & midnight Eastern: 9:00 PM & midnight Mike Milken, Founder and Chairman of the Prostate Cancer Foundation, will be on Larry King Live tonight speaking about cancer. Also on the show: Dr. Sanjay Gupta, CNN medical correspondent…
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one year check up.....
Dec 8th......... been waiting for the results for two weeks now, tomorrow is it guys! Isnt there a song that goes something like........ "and the waiting is the hardest part" ? I can appreciate that ! :-) -marc
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The pump
Wondering about everyone's experience with the pump. Just got mine in the mail a few days ago ($500, covered by insurance). Although it takes a little work to set up, it seems like the best way to get back in the game the earliest since it doesn't rely on the nerves (like cialis and injections do). I'll be trying it out in…
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Bimix injection for erectile rehad after RP
I am in a study that is using bi-mix along with cialis for rehab after RP but rehad is going fine and what this study has found is that no one has issue with bi mix like some do with tri mix (for me burned like hell)...So if you choice thi path I would suggest you skip even trying tri-mix...best to all
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Cargiver needs advice
Please help me know what to do. I'm apparently too bossy and/or a control freak My husband was recently diagnosed with both Prostate and Hodgkins. Keeping track of these tests, meds and treatments is overwhelming. Since begining early therapy he seems to be 'foggy'. Do I just let him do (or forget to do) what's required? I…
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Has anyone been injured besides me
I'm still around. I have not posted anything for about a year now. I just finished reading Man to Man, even though I've had th book for several years. Mr. Korda had a walk in the park compared to the night mare I've been living. I'll give just a short history of what I've been through. Had RP on 06-15-09. While in…
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Reducing Blood Loss in Open Radical Retropubic Prostatectomy (RRP)
Interesting article for guys considering surgery and recovery...Catalona was my surgeon https://secure.drcatalona.com/quest/Fall2010/article9.html
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Diet and supplements
Hi, my name is Mike and I recently was diagnosed with prostate cancer.You can read some of my story at the bottom of the Firmagon thread on this site. I am looking for a good book on diets and supplements to make my body as unfriendly to this cancer as possible.I am basically looking for a good common sense approach to…
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Beef - Its Whats for Dinner
Here's a link to a report on Beef and Prostate Cancer that I thoght may be of interest. The article was being discussed on another site. http://www.nutritionj.com/content/9/1/50#IDADJJRH The report concludes: "In conclusion, the results of this meta-analysis are not supportive of an independent positive association between…
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Donations to charities
If you like a good site to find quality charities (for cancer research or other such favorites), you should check out Charity Navigator. You might be surprised by some of the findings. http://www.charitynavigator.org/