Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Prostate Cancer

4 More Months
I was in to see Dr Latini at U of MI today. My 4rd visit with her. I was hoping to hear her say she could install the AUS next week. Nope. Never happened. I got to watch the trip up to into my bladder. Talk about exciting photography!!! Wow! Still lots of healing needs to be done. I see Dr. Latini again in 4 months- on May…
SBRT Stereotactic Body Radiotherapy
Hi my friends, I dropped in from the Uterine board. Can anyone recommend an outstanding medical center for SBRT? Or better yet an outstanding Rad. for SBRT. Thanks, Starfish
Hormone Therapy aka ADT
HORMONE THERAPY aka ADT (Androgen Deprivation Therapy) or TIP (Testosterone Inactivating Pharmaceuticals) Below is a link to an excellent article from PCRI Insights Newsletter (Nov. 2010) on ADT aka TIP written by Dr. Mark Scholz, a nationally known and well-respected oncologist specializing in PCa. Dr. Scholz is…
prostate cancer
I DON'T KNOW IF ANYONE IS INTERESTED BUT I AM 76 YRS AND WAS DIAGNOSED IN 2000 UNDERWENT EXTERNAL RADIATION 28 TREATMENTS (A ****) PSA LOW ALL GENERALLY TILL 2007 RISING PSA ONCOLOGIST SUGGESTED SOME TYPE OF RADIATION THERAPY REQUIRING HOSPITALIZATION AND SEEDS TO RESCUE..CONSULT DONE IN BOSTON @ DANA FARBER ADVISED TO…
help for a friend from a survivor of anal cancer
I am in need of some inofrmation to help a friend who has prostate cancer. He is 46 and was diagnosed as stage four aggresive prostate cancer. He had surgery 6 weeks ago and just got his results for his psa levels. It was a 2.3. Not what he was expecting. He is in a tough spot. The dr. who did the surgery at Fox Chase said…
Has anyone used Calypso Medicals GPS for the Body Machine?
I have looked at thread topics back about 2 years and have seen no mention of this machine. I assume is it is similar to the Cyber Knife. Instead of the gold seeds, it uses what they claim are improved Beacon Transponders that are implanted in the prostate. They allow the machine to detect slight movement in the prostate…
Sollen feet
My dad was diagnosed with prostate cancer about 5 years ago and it has spread to his bones and some Lymphnodes(I think). He won't go into detail about it with me but I know it's terminal. He recently went on a road trip from Ontario to Florida with my sister and her husband and since he left, his feet and ankles have…
Nutrition Consultation -- PCa and Cholesterol
I just had a consultation w/a nutrition specialist at UCSF to see if there's anything I could do to decrease my PSA and cholesterol levels through diet. I've read and seen all of the common advice about both problems but didn't think it would hurt to get specific advice. There are other threads here about PCa & diet but I…
pathology report
I recieved my pathology report ,it showed gleason score 3+4 7 tumor involved right and left posterior , right and left anterior, vascular invasion not identified perineural invasion identified tumor multicentricity: multicentric foci of invasive carcinoma are present high grade prostatic intraepithelial neoplasia :…
Modified Citrus Pectin
I stumbled across this the other day, from the ACS website: http://www.cancer.org/docroot/ETO/content/ETO_5_3X_Modified_Citrus_Pectin.asp?sitearea=ETO It says that MCP "...studies appear to show that MCP makes it difficult for cancer cells that break off from the main tumor to join together and grow in other organs." In…
Latest published results for CyberKnife Treatment option
Here are the latest published results for CyberKnife treatments which will help guys with localized new PCa cases (low-risk prostate cancer patients) when deciding on a treatment option. The biochemical progression-free survival at 5 years was 93%. The short term side effects were resolved within 1-3 months from treatment…
radical prosectomey jan4 2011
I will be going in tomorrow radical prosectomey lymph nodes seminal vessels , and havent spoke to anyone who has had this surgery
It's a start....
BOSTON — A blood test so sensitive that it can spot a single cancer cell lurking among a billion healthy ones is moving one step closer to being available at your doctor's office. Boston scientists who invented the test and health care giant Johnson & Johnson will announce Monday that they are joining forces to bring it to…
Diet to bring down PSA
I had IMRT treatment in 2006 and my PSA went down to it's lowest poit to about 1.2 from 4.2 in about six months. I recently joined this discussion board as my PSA last year was 1.9, and two weeks agao it was 2.2. I exchanged thoughts with several people, "KONGO" is one and a member on this site, and a few others are…
One treatment being scratched from my list--HIFU
Trying to do my homework on various treatment choice options after initially being rushed towards davinci by my doctor. now I am looking at everything but saw this today and don't think Ill be signing up for HIFU soon. Friday, 10 December 2010 BERKELEY, CA (UroToday.com) - In Austria, costly hospital medical services that…
Which to treat first --stress incontinence vs. over-active bladder?
I've posted on another topic -- Interstim vs. Botox -- but want to inquire now about the order in which treatment should proceed for stress incontinence AND over-active bladder (I've been told that I have both, and that they should be treated separately (because the treatments are different). It hasn't become clear (at…
FREE PSA TESTING TODAY IN SO CAL
The Cruisin' for a (PCa) Cure car show in Orange County, Ca, is offering free PSA testing (by the City of Hope) with admission to the car show which is $12 (so guess you could say the testing isn't really free--but $12 is a bargain for a car show AND testing!) and ALL admission proceeds go to PCa research at the City of…
Ice Cream may help to combat Side-effects in Cancer Patients
Today the Euronews on TV commented as I quote “ Normally, eating ice cream is simply a pleasurable pastime. Now, it’s believed it could help combat the side-effects of chemotherapy in cancer patients. Scientists in New Zealand have been working on a special kind of dessert called Recharge, which uses active ingredients…
pre-existing rectal problems and appropriateness of radiation
Am considering external radiation of some kind, with gleason 7, 4+3 in several areas there is an external rectal prolapse - gastroenterologist is concerned about: - that even though radiation not targeted at external prolapse per se, it might make any rectal side effects worse due to it being still part of the rectum,…
Kaiser Insurance- I need help with this
Ex husband was diagnose with prostrate cancer in 2007. He had the seeds. Oct of 2010, He started having to walk with crutches. He went to Kaiser several times they told him it was his sciatic nerve. I decided to take him to the emergency room only to find out that it was prostrate cancer that metastases to the bones with…
I am a case study at U of MI
I never mentioned it before, but at my last visit to the U of MI this month a reseacher was waiting for me at the check in window. I had been selected as a research project. I know bladder neck invasion is not that common and statistically the outcomes aren't that good, either, but there just isn't that many numbers in any…
Peyronie’s disease - plaque on penis / maybe from injections...
Hello all. I am 1 year and 2 months out from having my prostate removed from Cancer. I am doing well. PSA is not detectable - bladder doing really well - little or no dribbling. I have just been diagnosed with Peyronie's Disease! This is plaque that builds up on the penis. PA said it could be caused by the injections for…
IMRT for salvage after RP
Assuming a rising PSA first detected many years after a RP, would IMRT be used if no locatable tumor is found, or is one stuck with the old unfocused external beam treatment? This also assumes that the recurrence is local, and not a distant metastasis.
suprapubic catheter for PC incontinemce
This is my first post but have read disscusion board for quite awhile. I am 5 yr. post radiation (IMRT) and Cryo surgery and intermittent hormone deprivation with rising PSA after radiation and cryo surgery treatments. Initial 12 of 14 biopsies positive and Gleason 8. Incontinence and voiding issues becoming more severe…
REMEEX adjustable Male Sling
Is anyone familar with this product. It has been used in Europe for years. Don't know if it is available in the US. Thamks Ted
Marijuana and Terminal Cancer
I entered hospice back in May of 10. Tumors in spine, hips, arms, legs, etc. Controlling pain is the hardest part of it all. The morphine alone was not enough at first but with a high dose of the steriod dexmetazone I was able to keep the pain down. By August it was taking about 1800 mg. morphine, a morphine patch, the…
Two Recent Studies
During a 6-month post CyberKnife visit yesterday, my radiologist took pains to commend two recent studies to me with strong encouragement to give them serious attention. Although both of these studies have been mentioned in previous posts by various members, I thought it would be worthwhile to mention them again here. The…
PSA comming down
My final CK treatment was last August and had my first check-up with RO yesterday. Great news...PSA is down to 2.1. It was 7.5 at time of diagnosis...They want me to have another PSA test in 3 months and then again in another 6 months if the numbers continue to fall... After that, he said that once a year should be…
My oncologist called me today (yea on A Sunday)
My oncologist called me today (yea on A Sunday) and hearing his voice my stomach dropped to the floor…..Needless to say he scared the $%$@*&$^ out of me just hearing his voice! He told me he was in his office doing some catch up and wanted to tell me I had another ZERO and to keep eating my “Sardines” but to make sure I…
6-Month PSA Results Following CyberKnife Treatment
My six month PSA test result came back today at 0.87 ng/ml. I had CyberKnife treatment for PCa staged at T1c, Gleason 3+3=6, 1 of 12 positive cores at 15% involvement. Dx PSA was 4.3. My 3 month PSA reading was 1.35. Have had zero side effects following this treatment in July.

Prostate Cancer

Discussion List

Discussion Boards