Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

My mother died from ovarian cancer and I'm scared!
My Gyno just called me with the results of my transvaginal ultrasound. Apparently I have an ovarian cyst that is less than half an inch. I'm 42 years old and never had any ovarian cycts. I had fibroids, which were removed in 1996 through a myomectomy. Since then every year I have been having ultrasounds to make sure they…
insurance won't pay for assay
I recently had an assay done from surgical tissue. My insurance has denied coverage. It is a large sum of money. Has anybody else experienced this? I am wondering if this has any worth at all, after reading some of the info on the internet.
How important is it to have an gyn/oncologist for treatments and follow up care?
I had a gyn. oncologist for my surgery last year. However, he is 150 miles away from where I live. I have a medical oncologist now. He administered my chemo last year. I think he is an excellent doctor. However, I fear that he has way too many patients. Waits for appts. are generally anywhere from 1 1/2 to even four hours.…
Dr. Keith I. Block, Life Over Cancer. Has anyone read this.
Hi ladies. I had never heard of the Block Center until last night. Our local library has his book Life Over Cancer. I checked it out this afternoon. It looks very helpful and interesting. Has anyone read it, or even by chance been to the Block Center? Carla
I come from breast cancer forum and wanted to say...
That I check up on you ladies and always pray for all of you. I lost my grandmom/mother to ovarian c 13 years ago. My best friend. My everything. I miss her daily. Unfortunately her cancer wasn't found on time and her treatment options weren't so great. But treatments are better now, and I pray for a cure FAST. I hate it…
Can chemo be done at a different hospital than where my oncologist is?
I live less than 10 mins away from a brand new university medical center that has a state of the art chemo center. My specialist is at a different university hospital that is about an hour and a half drive from me. Do you think it is possible to get my treatments local but still use the original dr? Is that like stepping…
My pathology report results
So Friday as I was being discharged they did say that the origin of my muconious cancer is a low grade apendix cancer called pseudomyxoma peritonei. I have not really researched it much at all yet. I have just been healing and enjoying being home with my family! I would appreciate it if anyone has any insight on this, and…
update on my surgery
So I woke up and was told they only took 1 ovary wit the cyst and the omentum, but left everything else because I have multiple tumors and a muconeous cancer covering much of my abdomen. There is a large tumor on my liver. They had the liver surgeon come in and look at it and he said it would be a huge ordeal to remove it…
Finding the right DR.
I have an appt on Tues with the new oncologist. I am not sure how I feel about him. He is young and only been a Dr. for 10 yrs. He is at UC Irvine, which is a great hospital, but I don't feel as confident as I did with the gyno/onco I had. I looked into Dr. Andrew Lowy at UCSD. Both hospitals are the exact same distance…
GRR! BAD NEWS AND I AM A BASKET CASE!!
Hi ladies. My needle biopsy from near my thyroid area came back suspicious for (whatever that medical term is for cancer). My doctor was shocked. He did say he was concerned about lymphoma, but it is not that. He is very stunned. He did another CA-125 today. The one I think it was last month was 12.8. Early May pet and ct…
Bleeding gums anyone?
I may post this on a few boards to see what response I get as to this scary and troubling symptom... Over the past few days, some new and troubling symptoms have shown their scary face... One, not so new, but making its presence known more is the very large lymph node on my neck, immediately below my left ear (in that…
Got my results...
I emailed my onc and she emailed me back that the results had gone to the NP that ordered the test. I don't know why she didn't call me. I have a 4.6 x 2.6 tumor near my liver. She said she needed to discuss with surgeon but he probably won't want to go in so I most likely will have carbo/taxol like I did initially before…
Have you heard of Anastrozole?
It is also known as Arimidex, an aromatase inhibitor. Hi, ladies. I went to see my med/ono this morning. My latest CA125 has jumped to 65 (it was only 8 in March). The Dr suggested me the following options: (1) Wait and see, until I can feel some obvious symptoms. (2) Have a CT scan. (3) Participate in a clinical trial on…
Age 30 about to have surgery and many many questions needing some advice...
Hello, I've posted previously, but for those that aren't familiar, I shall post a very quick summary. I'm 30 years old, very very strong family history of both Breast and Ovarian Cancer (and Peritoneal we think..), hormonal fed type. Great grandmother, her sister, my grandmother, my mother and now my sister... all…
TO DAVE AND TINA
Thinking of you both - please give us an update when you're able. Prayers and Hugs, Monika
need a good nausea med.
been nauseated for 2 days now with some throwing. Already tried compazine, zofram and reglan (not sure of the spelling) is there anything else that will work. Feeling terrible,want to go to the hospital to see my son but can't right now with this nausea. Kathy
low platelets
Hi Teal Ladies... I haven't posted in awhile..I was dxed april 11'with 3c ovarian cancer. It took 9 txs to get my ca125 down to 22..started a maintenance chemo in March 12' after a short 2 month chemo break.I started on taxotere and avastin. My ca125 has risen to 342. Anyway onc started me on gemzar and avastin the first…
Herceptin for ovarian cancer
I was reading about the treatment of recurrent OVCA in The Oncologist. The article discussed the possibility of using Herceptin if the patient tested positive for the HER2 neu receptor. Apparently, 12-25% of women with ovarian cancer test positive for HER2neu receptor. I'm wondering if anyone has had a conversation with…
Who has had a recurrence outside the abdominal area, while at the same time having a normal CA-125?
My CA-125 on May 21 was 14.1. However, needle biopsy of the node in my neck indicates suspicion of recurrence. My dr. (medical oncologist) is puzzled since my CA-125 remains normal. It has been normal for close to a year now. He also says it's unusual for the recurrence to be outside of the abdominal area. Just how…
I am doing well
I am so sorry I have not checked in as much as I should but I have such a problem with this site when it comes to loading. I will make a better effert to come and let you all know how I am doing I am now on facebook on the teal warrior page you can also talk with me there. I am going through the second cycle of the new…
please pray hard
for my son who had a heart attact yesterday. He's 42 yrs old. He's on a resperator and induced coma. Won't know fo 72 hours if there is any brain damage. He went 40 min. before ambulance arrived. I can handle a lot but please dear god not my children. Please say an extra pray for him. Garden gal Kathy
Calling all prayer warriors Leukemia after chemo
I am being sent to a blood specialist to rule out leukemia. still having problems with my blood read and white counts. if you ann can pray no leukemia it will be greatly appreciated
AnneBehymer, how are you doing?
We haven't heard from you for a while, and I was wondering how you are doing these days? Sending you good thoughts and prayers that you aren't in too much discomfort. Take care, Kelly
Hormones after hysterectomy
So what are you all doing regarding needing hormones after a hysterectomy, but going through chemo and just having cancer in general. How do hormones and the cancer work. I had read up a lot about using bio-identical hormones post-hysterectomy, but now I am wondering how this will effect all the other stuff the body is…
Has anyone every heard of Abraxene?
Hello, I haven't been on here too much lately. Dealing with lots of pain. Had pet/scan and found out that it wasn't good. I had my children go in with me this time so they could ask any questions they wanted. The scan showed more progression on the liver. They also seen somethin on my lungs and on my breast bone, but the…
Update...
Well this week will be my 9th week of chemo. It has been 10 weeks since starting, but had to skip one week due to blood counts. So far doing ok....no mouth sores, no neuropathy!!! Yea! I am terrible fatigued and sometimes and more so short of breath. I know when my red blood counts are low because any activity causes…
Getting tested
Hello All, Usually I cone to the site for info for my mom. But now I need my own advice! My mother passed from ovarian cancer on 5-14-12 after being diagnosed on 2-21-12 after her surgery. Well I already have my own diagnosis of poly cystic ovarian syndrome (meaning multiple cysts on my ovaries). Now I'm having problems. A…
I am still waiting for pet scan results.
I had the scan Wednesday evening at 6PM and the tech told me I would hear from my doctor on Thursday or Friday. Now it is Monday and I am getting nervous. I have been strong but am starting to crumble a little. I am too chicken to call myself. Has anyone had a similar experience? I want to think that no news is good news…
How do you cope with the outlook for Ovarian Cancer?
I hate to make anyone fearful, but the outlook for this cancer is not too promising. For those of you that are diagnosed with it, how do you cope? I am just freaked out, of course. I was looking forward to feeling a bit better after surgery, but now I feel like, so what's next to deteriorate and need to be removed?! I know…
teresa 92
I saw your post ona link that had been started along time ago and wanted to start a new link for you I understand you are 20 years old and taking care of your dear mother who is in her 50's and she was just diagnosed with stage 3 PPC. I am glad you found our site as you will find out lots of info and tips and loving…

Ovarian Cancer

Discussion List

Discussion Boards