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Is it OVCA recurrence or not? The more I hear the more confused I am becoming.
Hi Ladies, I met the ENT oncologist today in consulation to surgically remove the lymph node in my neck. (The needle biopsy came back suspicious for cancer). My medical oncologist says this is atypical of ovca since my ca-125 is 14.1 (two weeks ago), and two scans showed clean abdominal area. This dr. today said that it's…
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message from Clamryn ( Linda )
I recieved an email from Linda this morning saying that she has decided to stop chemo and start hospice. She is having a lot of trouble with mouth thrush here's hoping that it will clear up more easily without chemo treatments. She asked me to tell you that she loves you all. (((HUGS))) Maria
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today is my sons funeral
God give me the strength I need to get through this day, he was only 44 far to young and so much to live for. Help me understand why he was taken from me. Kathy
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ohhh to find sweet sleep
So I have been up since 1pm Monday afternoon and it what...... 4:34am Wednesday. I am currently on two medication for sleep looks like they are working grrrrreat! My pain doctor said if I do not start sleeping better she is going to have to address it. Well address away please........ she is not the first to try I have…
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Has anyone experienced swelling in legs and feet?
Maybe it's because I stopped chemo, I don't know, but my legs and ankles & feet get swollen. Dr. doesn't seem to want to put me on water pill, said I'd get too dehyrated, so I do wear compression stockings which don't help all that much. Any one else experienced this? Any suggestions? Thanks. I couldn't take chemo anymore…
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Yet another update. My mind and emotions are all over the place.. (M.D. Anderson)
Hi Ladies, I just learned that my insurance will pay for my visiting M.D. Anderson. A friend (retired chemo nurse) has offered to make the 10 hr. drive with me. Has anyone been there? What advice? What dr. did you see? The earliest appt. is the week of August 13. Thanks, Carla
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Round five on Thusday
I am mentally preparing my self this week.....in my dreams I went to Hawaii and rested on a beach..noe I am ready. I wish akk my sista's happy Independace Day and remember why we celebrate. I 'll return when I can...Peace out..Val
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Itching fit
I recently developed the lovely itching related to taxol. I am right at my last treatment. How long does these fits last? I am taking steroids and atarax, and thinking of adding Benadryl just to control it?
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Annual July 4th "Teal there's a Cure" run... awesome
Just got home from the annual walk/run that's held each year at a beautiful park in my hometown outside of Syracuse, NY. I'm glad to say it gets bigger each year. This time we had 150 more racers than last year and the villagers along the route have hoses out and cheered on the groups as they passed by. No, I didn't run,…
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Good news?
Just got off the phone a bit ago with the NP I saw two weeks ago for my 6-month checkup. She's the one who ordered the pet scan and for whatever reason did not phone me. I have already posted all this. She asked if I received my onc's email and I asked rather coldly, which one? She said she had forwarded the results and…
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My mother died from ovarian cancer and I'm scared!
My Gyno just called me with the results of my transvaginal ultrasound. Apparently I have an ovarian cyst that is less than half an inch. I'm 42 years old and never had any ovarian cycts. I had fibroids, which were removed in 1996 through a myomectomy. Since then every year I have been having ultrasounds to make sure they…
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insurance won't pay for assay
I recently had an assay done from surgical tissue. My insurance has denied coverage. It is a large sum of money. Has anybody else experienced this? I am wondering if this has any worth at all, after reading some of the info on the internet.
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How important is it to have an gyn/oncologist for treatments and follow up care?
I had a gyn. oncologist for my surgery last year. However, he is 150 miles away from where I live. I have a medical oncologist now. He administered my chemo last year. I think he is an excellent doctor. However, I fear that he has way too many patients. Waits for appts. are generally anywhere from 1 1/2 to even four hours.…
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Dr. Keith I. Block, Life Over Cancer. Has anyone read this.
Hi ladies. I had never heard of the Block Center until last night. Our local library has his book Life Over Cancer. I checked it out this afternoon. It looks very helpful and interesting. Has anyone read it, or even by chance been to the Block Center? Carla
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I come from breast cancer forum and wanted to say...
That I check up on you ladies and always pray for all of you. I lost my grandmom/mother to ovarian c 13 years ago. My best friend. My everything. I miss her daily. Unfortunately her cancer wasn't found on time and her treatment options weren't so great. But treatments are better now, and I pray for a cure FAST. I hate it…
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Can chemo be done at a different hospital than where my oncologist is?
I live less than 10 mins away from a brand new university medical center that has a state of the art chemo center. My specialist is at a different university hospital that is about an hour and a half drive from me. Do you think it is possible to get my treatments local but still use the original dr? Is that like stepping…
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My pathology report results
So Friday as I was being discharged they did say that the origin of my muconious cancer is a low grade apendix cancer called pseudomyxoma peritonei. I have not really researched it much at all yet. I have just been healing and enjoying being home with my family! I would appreciate it if anyone has any insight on this, and…
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update on my surgery
So I woke up and was told they only took 1 ovary wit the cyst and the omentum, but left everything else because I have multiple tumors and a muconeous cancer covering much of my abdomen. There is a large tumor on my liver. They had the liver surgeon come in and look at it and he said it would be a huge ordeal to remove it…
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Finding the right DR.
I have an appt on Tues with the new oncologist. I am not sure how I feel about him. He is young and only been a Dr. for 10 yrs. He is at UC Irvine, which is a great hospital, but I don't feel as confident as I did with the gyno/onco I had. I looked into Dr. Andrew Lowy at UCSD. Both hospitals are the exact same distance…
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GRR! BAD NEWS AND I AM A BASKET CASE!!
Hi ladies. My needle biopsy from near my thyroid area came back suspicious for (whatever that medical term is for cancer). My doctor was shocked. He did say he was concerned about lymphoma, but it is not that. He is very stunned. He did another CA-125 today. The one I think it was last month was 12.8. Early May pet and ct…
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Bleeding gums anyone?
I may post this on a few boards to see what response I get as to this scary and troubling symptom... Over the past few days, some new and troubling symptoms have shown their scary face... One, not so new, but making its presence known more is the very large lymph node on my neck, immediately below my left ear (in that…
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Got my results...
I emailed my onc and she emailed me back that the results had gone to the NP that ordered the test. I don't know why she didn't call me. I have a 4.6 x 2.6 tumor near my liver. She said she needed to discuss with surgeon but he probably won't want to go in so I most likely will have carbo/taxol like I did initially before…
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Have you heard of Anastrozole?
It is also known as Arimidex, an aromatase inhibitor. Hi, ladies. I went to see my med/ono this morning. My latest CA125 has jumped to 65 (it was only 8 in March). The Dr suggested me the following options: (1) Wait and see, until I can feel some obvious symptoms. (2) Have a CT scan. (3) Participate in a clinical trial on…
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Age 30 about to have surgery and many many questions needing some advice...
Hello, I've posted previously, but for those that aren't familiar, I shall post a very quick summary. I'm 30 years old, very very strong family history of both Breast and Ovarian Cancer (and Peritoneal we think..), hormonal fed type. Great grandmother, her sister, my grandmother, my mother and now my sister... all…
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TO DAVE AND TINA
Thinking of you both - please give us an update when you're able. Prayers and Hugs, Monika
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need a good nausea med.
been nauseated for 2 days now with some throwing. Already tried compazine, zofram and reglan (not sure of the spelling) is there anything else that will work. Feeling terrible,want to go to the hospital to see my son but can't right now with this nausea. Kathy
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low platelets
Hi Teal Ladies... I haven't posted in awhile..I was dxed april 11'with 3c ovarian cancer. It took 9 txs to get my ca125 down to 22..started a maintenance chemo in March 12' after a short 2 month chemo break.I started on taxotere and avastin. My ca125 has risen to 342. Anyway onc started me on gemzar and avastin the first…
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Herceptin for ovarian cancer
I was reading about the treatment of recurrent OVCA in The Oncologist. The article discussed the possibility of using Herceptin if the patient tested positive for the HER2 neu receptor. Apparently, 12-25% of women with ovarian cancer test positive for HER2neu receptor. I'm wondering if anyone has had a conversation with…
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Who has had a recurrence outside the abdominal area, while at the same time having a normal CA-125?
My CA-125 on May 21 was 14.1. However, needle biopsy of the node in my neck indicates suspicion of recurrence. My dr. (medical oncologist) is puzzled since my CA-125 remains normal. It has been normal for close to a year now. He also says it's unusual for the recurrence to be outside of the abdominal area. Just how…
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I am doing well
I am so sorry I have not checked in as much as I should but I have such a problem with this site when it comes to loading. I will make a better effert to come and let you all know how I am doing I am now on facebook on the teal warrior page you can also talk with me there. I am going through the second cycle of the new…