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Waited too long
I had my surgery in early feb and I am supposed to start chemo on monday, but now I am having those dreaded abdominal pains again. It usually takes about 6 months for my tumors to grow back so I am already scheduled for a catscan on monday. Ugh if I had started chemo 4 months ago I would be almost done by now instead of…
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Update on Tina
She is still having many problems as of late. Still throwing up very very tired and winded and very low blood counts. She got a bag platelets had a reaction and still needed blood. Took 8 days to find it and the Dr rejected one because it was pre 95 saying that they did not scan for many things in blood back then. I have…
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Met with the doctor yesterday
Sorry I am just posting now but when I got home I feel asleep do to the release of emotion after talking with the doctor this is what we talked aboout. I had my appointment and the tumor has grown so after 8 weeks they took me off the new trial. I am going on Gemcltahine and Carboplatin to get it under control and then we…
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Chemo brain strikes again
I decided to make some chicken and rice for dinner like my grandma use to make. She would boil the chicken but I took a shortcut and browned it, then baked it while I worked on the rice. Since I did't boil the chicken I needed to use bouillion for the broth. I measured out 3 teaspoons of what I thought was chicken and one…
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Has anyone received the free ovarian cancer braclet?
While doing research during my chemo treatments I stumbled upon this website called ovations for a cure. While on there I saw that they give a braclet to anyone who has fought, currently fighting the battle or in remission from ovarian cancer. I signed up and got one. They are absolutely beautiful . It is a silver bangel…
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Coloring Hair
I have heard different things about coloring your "new" hair. I have been coloring my hair for years because of gray so I just know it is going to come back gray. I was just talking to my hair dresser today about when I can get it colored and she said anytime. Now I have read you have to wait 6 months and I have read you…
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Cancer survivor still having side effects from Taxol?
Hello I was diagnosed with stage 1C Ovarian cancer, Stage 1a Uterine Cancer and a 1cm carcinoma on my appendix in October 2009 (I was the only triple primary cancer that year in my area, so the registrar told me ) I had a hysterectomy and had taxol/Carboplatin from February-June 2010. I felt a lump that december in my…
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Going back to work??
Hello ladies, Just wanntedsome thoughts on this. Im 44, dx stage 3c in november2011. Had last chemo May 22. Starting to feel normal again. I received first Ss check in June. I've worked since I was 16 at something. Now I'm not sure what to do with myself. I'm considered in remission at the moment. Not sure if I should put…
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URGENT PRAYER REQUEST
I went to the blood specialist today and a test came back positive for t cell gene rearangement. i will be getting a ct scan nwxt week to rule out lymphoma. if you can all pray for me i will appreciate it so much hugs Lynda
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Supplement advice
Hi. Can anyone tell me what I can take for hormone balance. I am taking niacin, vitamin b12, biotin,collagen. I would like to take something called folapro and evening primrose oil. Can anyone tell me anything about these? Also, any other ideas to promote hormone balance and hair, skin, and nail growth?
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When does the hair start coming back????
Hi everyone. Im new here. I just finishe up chemo June 25th. Yay.... My scan is Monday and I won't get the results for 2 weeks because my doctor is on vacation next week and then my appt. is the following friday. She keeps telling me not to worry about it and that she is not concerned. She is no anticipating finding…
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results of the catscan
I had my catscan yesterday and my ONC called today and said I need to be there at 9:30am. The tumor has grown and I am being removed from the study that I just started a little over a month ago. Right now I am scared out of my mind and just want to crul up and cry. Please be praying for me tomorrow as I find out what is…
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Surgery update
Hi Ladies Thank you so much for warm words of support. They help so much. I am back in the o.r. slot for tuesday. Feels like a long time from now till then. My pain and nausea has really increased and this is what has made it so difficult. It's hard to eat much since my tummy is squished by the biggest tumor, and with…
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Questions about surgery
Hi All, I keep coming up with questions, that I did not think to ask the onc about. Maybe you have some answers. I am having major debulking surgery and wondered if I will have any type of drains after the surgery. I guess I mught have a catheter, but any thing else that might be a possibility. I know that everyone is…
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Surgery CANCELLED!!
Hi All, I have been cancelled. After a major meltdown and a long nap, I am able to focus a little better. This is what I was told. Our hospital is connected to the cancer center. Both have operating rooms. The cancer center o.r.'s are used by cancer patients and kids from the children's hospital next door. There was a…
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Out-patient lymph node surgery tomorrow. Why am I so scared?
Hi Ladies, The lymph node which came positive from recent needle biopsy will be removed surgically tomorrow afternoon. Since my medical oncologist is not convinced that this is OVCA, he's also having the scope put down my throat to "look around" to make certain I haven't developed a second cancer. My CA-125 from a little…
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Letting people know cancer is back
How have you ladies dealt with telling people when cancer recurs? I only let a few people know when my CA 125 rose in April. They have been there for me the last three months. Now that I know my remission is over, I find I am not sure how to let the rest of my family and friends know. When I was first diagnosed in 2010 I…
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Surgery tomorrow
Hi all Well, I just received a call from the nurse who told me that I was wait listed in for my surgery tomorrow! I will receive another call later to tell me the time. Okay, Now I am truly terrified. I feel like I have a million things to get done and no time to do them. I am so scared. Please keep me in your thoughts…
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I am so sorry
I have not been post like I should but I am fighting depression and find myself just not wanting to be online much. I am on medication we just upped it again so I hope it kicks in soon. I want you all to know even though I am not online all of you ladies are always on my mind and in my prayers. Please be patient with me…
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Round two
Got home a couple of hours ago from my appointment with my onc. I made a few calls and then came to the board. I will start Tamoxifen tomorrow once I have bloodwork done as onc wants a CA 125 to see what my starting point is. My son was with me and after asking a lot of questions we agreed I should try this option. As I…
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New to this board
Hi All I thought I would stop by and say hello. I am not new to CSN or to cancer. I had/have two different cancers. Thyroid and Lymphoma. Now I most likely have ovarian. I have a large tumor and some smaller (as in 10cm smaller) tumors. This week has been very busy and fast. Started with visit to reg Doc and then ct…
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Allergic reaction
On Thursday I had an allergic reaction to my Carboplatin. It began with itchiness on my hands and feet which spread to my trunk. Then I had this strange tighness in my chest and my breathing began to feel strange. I pressed the alarm button and the nurses gave me an oxygen mask. I think I panicked a bit and my breathing…
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Recurrent Ovarian Cancer and Treatment Explained: Johns Hopkins
Interesing information about treatment of recurrent ovarian cancer http://ovariancancer.jhmi.edu/recurrentqa.cfm#definition
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Update, Met Dr. Lowy for second opinion
So we fell in love with Dr. Lowy!! His game plan was way different than the gastro/onco at UCI, and we liked it better! Dr. Lowy said he does not believe I need to start chemo, but rather he wants to give me about two and a half months to just heal, then he wants to go in to do the HIPEC. We explained that Dr. Bristow said…
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nancy and the teal warriors
can not find the gorup teal warriors anyone heard from nancy
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Im sooo Nervous
I am meeting with the doc tomorrow and I am hoping to findout what my treatment plan is going to be and when I will be starting it. I had my surgery in feb so I feel like I should've started treatment a while ago. Im really nervous, all I know so far is that they are planning to give me high dose chemo with stem cell…
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Different perspectives
I was watching a program that followed four families dealing with the economy and unemployement. One woman explained that she felt people in an economic crisis do not receive the same kind of support given to someone who, for example, has cancer. She said, It is harder to be unemployed than to have cancer." I am in no way…
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Rreally?Well, thanks for the reminder....DUH!
Ladies, Today I was chatting with a friend on F.B. We were talking about a job I have applied for which would allow me to live near my daughter while she is still in college. Anyway, she was encouraging about the position and said "well you don't know how much time you left!" My reply NOBODY DOES!! a I just wish people…
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Remove central port??
After my ovary, fallopian tube, and omentum were removed, I had a central port put in because the onco (not a PMP specialist) was assuming I would do chemo. BUT, now that I am seeing Dr. Lowy, he does not want me to do chemo but just have the HIPEC in a few months. I want to have the central port removed. Dr. Lowy's nurse…
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Garden gal
Has anyone heard from Garden Gal as to how her son is doing? Debrajo