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Surgery tomorrow
Hi all Well, I just received a call from the nurse who told me that I was wait listed in for my surgery tomorrow! I will receive another call later to tell me the time. Okay, Now I am truly terrified. I feel like I have a million things to get done and no time to do them. I am so scared. Please keep me in your thoughts…
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I am so sorry
I have not been post like I should but I am fighting depression and find myself just not wanting to be online much. I am on medication we just upped it again so I hope it kicks in soon. I want you all to know even though I am not online all of you ladies are always on my mind and in my prayers. Please be patient with me…
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Round two
Got home a couple of hours ago from my appointment with my onc. I made a few calls and then came to the board. I will start Tamoxifen tomorrow once I have bloodwork done as onc wants a CA 125 to see what my starting point is. My son was with me and after asking a lot of questions we agreed I should try this option. As I…
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New to this board
Hi All I thought I would stop by and say hello. I am not new to CSN or to cancer. I had/have two different cancers. Thyroid and Lymphoma. Now I most likely have ovarian. I have a large tumor and some smaller (as in 10cm smaller) tumors. This week has been very busy and fast. Started with visit to reg Doc and then ct…
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Allergic reaction
On Thursday I had an allergic reaction to my Carboplatin. It began with itchiness on my hands and feet which spread to my trunk. Then I had this strange tighness in my chest and my breathing began to feel strange. I pressed the alarm button and the nurses gave me an oxygen mask. I think I panicked a bit and my breathing…
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Recurrent Ovarian Cancer and Treatment Explained: Johns Hopkins
Interesing information about treatment of recurrent ovarian cancer http://ovariancancer.jhmi.edu/recurrentqa.cfm#definition
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Update, Met Dr. Lowy for second opinion
So we fell in love with Dr. Lowy!! His game plan was way different than the gastro/onco at UCI, and we liked it better! Dr. Lowy said he does not believe I need to start chemo, but rather he wants to give me about two and a half months to just heal, then he wants to go in to do the HIPEC. We explained that Dr. Bristow said…
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nancy and the teal warriors
can not find the gorup teal warriors anyone heard from nancy
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Im sooo Nervous
I am meeting with the doc tomorrow and I am hoping to findout what my treatment plan is going to be and when I will be starting it. I had my surgery in feb so I feel like I should've started treatment a while ago. Im really nervous, all I know so far is that they are planning to give me high dose chemo with stem cell…
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Different perspectives
I was watching a program that followed four families dealing with the economy and unemployement. One woman explained that she felt people in an economic crisis do not receive the same kind of support given to someone who, for example, has cancer. She said, It is harder to be unemployed than to have cancer." I am in no way…
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Rreally?Well, thanks for the reminder....DUH!
Ladies, Today I was chatting with a friend on F.B. We were talking about a job I have applied for which would allow me to live near my daughter while she is still in college. Anyway, she was encouraging about the position and said "well you don't know how much time you left!" My reply NOBODY DOES!! a I just wish people…
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Remove central port??
After my ovary, fallopian tube, and omentum were removed, I had a central port put in because the onco (not a PMP specialist) was assuming I would do chemo. BUT, now that I am seeing Dr. Lowy, he does not want me to do chemo but just have the HIPEC in a few months. I want to have the central port removed. Dr. Lowy's nurse…
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Garden gal
Has anyone heard from Garden Gal as to how her son is doing? Debrajo
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Clamryn - You Are My Inspiration
Hello Everyone, I am not a cancer survivor, I am a caretaker. I'm sorry if I offend anyone by being on here. I just wanted to let someone very important to me know how much I care. Well Mom, after a few years of hearing you talk about this board I finally got on here tonight and checked it out. I must say there are several…
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Back to chemo tomorrow
after my 5 week break. I've been chemoing for 2 1/2 years! so the time off was so very wonderful. Good news is that my counts stayed stable and I found out how strong I could get in such a small amount of time. I'm not sure what others would choose to do with time off ( for good behavior? ), but I got to spend lots of…
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Fifth session
I just had my fifth session of chemo and it seems to be tougher than the others. My legs from the knees down are really aching not the muscles but it seems like the bones themselves. Also the taste in my mouth is twice as bad as it waS. Not sleeping well either.Any similar experiences...Do not know what to expect from the…
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Has anyone heard from Carolenk lately?
I miss her posts and comments. She was on cargo/gemzar (the same as me), and i was wondering how she did on this chemo combo. Hope you're OK and are off somewhere having fun, Carolen! Cheers, Jo
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Sad news
I just found out that the tumors my cousin has on his spine are inoperable and untreatable. He is 67 and has suffered with Parkinson's for many years. He was like an older brother to me when I was a child and we remained close through the years. I am his son's godmother. There were ten of us cousins and so far four of us…
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Cramping after surgery
I am 16 days post-op. My ovary, fallopian tube, and omentum were removed. They stopped there because the gyno/onco found it was a muconious cancer, and not ovarian. Anyhow, my question is, is it normal to have very bad cramping still. It does appear to be gas. It does seem relieved from passing it, but it can build up for…
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City of Hope
I am currently being treated at UC Irvine for apendix cancer (PMP) and I have Medi-Cal with a MONTHLY share -of -cost of $4,750!! We don't make a whole lot more than that, but that is the only thing we qualified for without having prior ins and now having a pre-exisiting conditon. My mom is all over me to ask my specialist…
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Words from gyn/surgeon
This is the message I got from my gyn/surgeon in response to questions I asked about my current situation. I had been in remission since my initial cancer treatment and now have a 1x2 inch tumor near my liver. I asked if I am now considered to have recurrent ovarian cancer, why no surgery, why Tamoxifen? "Yes you have a…
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Has anyone been to the Cancer Treatment Centers of America?
I just learned that my insurance will pay for me to seek treatment at the center in Tulsa, OK. Anyone been there or know someone who has? Thanks, Carla
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sons funeral is over, thank you everyone
Thank you everyone for all the hugs, prays and well wishes, it meant a lot to me. Now comes the days of dealing with life without him. All the quest and family are gone and its quiet. Hoping each day gets easier, need to start to focus back on my health with I have neglected. It's not going to be easy. Thank you once…
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Worried
Hi, Some of you may or may not remember me. I lost my Mom August 17, 2011 after a 14 month battle with OVCA. In the fall I developed a rash on the right side of my face that I intially thought was adult acne. Over the last few months it has gotten worse so assuming it was rosecia I went to see my doctor. While I was there…
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Scalp Cooling Protects Against Chemotherapy-Induced Alopecia
Scalp Cooling Protects Against Chemotherapy-Induced Alopecia IMNG Medical Media. 2012 Jul 5, JS MacNeil CHICAGO (IMNG) - Wearing a scalp-cooling cap can reduce hair loss in women receiving chemotherapy for breast cancer, the results of a small prospective cohort study suggest. Among women who used the cooling headgear…
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Back pain and very tight muscles 2nd week after open surgery
I had an open surgery last Mon, the 25th. It was suppossed to be a HIPEC for ovarian cysts, but when they opened me up there was a lot more going on so they took an ovary, fallopian tube, and omentum. . They "think" it is PMP, but pathology is not 100% conclusive. I am going for a second opinion with a PMP specialist in CA…
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JP drain increase in fluid output today, 12 days post-op
I am 12 days post-op. All healing has been just great, really no problems at all. I only had a small debulking open surgery. Today my JP drain needed to be emptied almost every hour to hour and a half to to a major increase in fluid output. The color has been an amber color for over a week. Some slight tissues have been…
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Is it OVCA recurrence or not? The more I hear the more confused I am becoming.
Hi Ladies, I met the ENT oncologist today in consulation to surgically remove the lymph node in my neck. (The needle biopsy came back suspicious for cancer). My medical oncologist says this is atypical of ovca since my ca-125 is 14.1 (two weeks ago), and two scans showed clean abdominal area. This dr. today said that it's…
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message from Clamryn ( Linda )
I recieved an email from Linda this morning saying that she has decided to stop chemo and start hospice. She is having a lot of trouble with mouth thrush here's hoping that it will clear up more easily without chemo treatments. She asked me to tell you that she loves you all. (((HUGS))) Maria
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today is my sons funeral
God give me the strength I need to get through this day, he was only 44 far to young and so much to live for. Help me understand why he was taken from me. Kathy