sister's last hope
r/sicksis
Comments
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You might want to look into the Society of Gynecologic Oncologist's site (http://www.sgo.org/) for information about doctors. Have you contacted other hospitals (The Roswell Park Cancer Institute in Buffalo, NY, Johns Hopkins, Cleveland Clinic, Mayo, etc.)?
I hope someone else will step up if they've had experience with clear cell. I know it's a tough one, and I hope you have luck finding a specialist.
Do you know if her cancer was tested for chemo sensitivity? It should have determined if it would have responded to the carbo/taxol combination.
If she's having a really tough time, perhaps you could help her by calling the American Cancer Society and asking if they have someone who could talk to her.
I know women who have tried a number of chemo treatments, some rough and some good, and I'm always struck by how willing they are to try another. Some of the sites I mentioned have links for trials, but I think you're right on the money looking for a specialist first.0 -
thank you for response..she is going to dana farber in boston for second opinion...as far as chemo sensitivity..is that normal practice? b/c it was never done when she had her hysterectomy - they just said that protocal was to do 6 rounds of carbo/taxol...should we have questioned that based on it being clear cell???groundeffect said:You might want to look into the Society of Gynecologic Oncologist's site (http://www.sgo.org/) for information about doctors. Have you contacted other hospitals (The Roswell Park Cancer Institute in Buffalo, NY, Johns Hopkins, Cleveland Clinic, Mayo, etc.)?
I hope someone else will step up if they've had experience with clear cell. I know it's a tough one, and I hope you have luck finding a specialist.
Do you know if her cancer was tested for chemo sensitivity? It should have determined if it would have responded to the carbo/taxol combination.
If she's having a really tough time, perhaps you could help her by calling the American Cancer Society and asking if they have someone who could talk to her.
I know women who have tried a number of chemo treatments, some rough and some good, and I'm always struck by how willing they are to try another. Some of the sites I mentioned have links for trials, but I think you're right on the money looking for a specialist first.0
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