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Ovarian Cancer

starfish4 where are you
Fogive me Ladies for posting private message on board but Connie, I can't reply to your message. You have to set it up so that one can send you pm. Connie offered me some wigs and needs my mailing address so I hope you ladies don't mind if I post it via discussion board. Connie not sure if it matters for your mailing but…
Getting discouraged
in the last 2 weeks have had trouble with platelets, had to get 2 units of blood, now my white count is down having to get shots of neupagen everyday for 3 days will i ever get to finish my chemo
Avastin
I've been on several different chemo's and I seem to get various side effects from each. l I've had Doxil, Gemsar and Taxol. I am now on Avastin. Which is not Chemo. It seems to be helping. My markets have gone down. Has anyone else used Avastin?
Bonnie up and walking around today!
Just a quick update from Caring Bridge: Bonnie is up and walking today and posted her update on Caring Bridge HERSELF! That was such a good sign that I know you are all smiling reading my post! I hope it's okay that I passed this on. The news was just such a great way to start the day!
Bonnie- Friday
I am starting a new thread, thinking this might get lost in the others. The Caring Bridge post this morning was not good. It said Bonnie's temp has risen to 102.9 They are concerned they might have to go back in to figure it out. Her BP is very low 102/68 and "her bloodwork is low." 'Keep her in your thoughts and prayers…
Prayers for Saundra Easter Thread
As most of you know, Saundra goes into surgery Monday and I thought it might be nice for all of us to send her wishes and prayers today and tomorrow that she can bring with her. It is interesting to me that both Saundra and Bonnie need surgery at this time. I have faith that since it's Easter both of them will rise to the…
A Big Thank You
I just wanted to say thank you to all of you who post to this board. I have had the mouth sores the past week from the Doxil and if it wasn't for this board I wouldn't have known about the miracle mouthwash. They are getting better since my nurse called the prescription in Wednesday. You are all so helful and I thank you…
HELLO
HEY TO ALL OF YOU JUST WANTED TO SAY HELLO AND TO WISH YOU ALL A HAPPY EASTER!HOPE YOU ALL ARE HAVING A GOOD DAY.TAKE CARE.TALK WITH YOU ALL LATER. LOVE YOU ALL MORE GOD BLESS YOU ALL LYNN
CA-125
My Mom went to the ER at MD Anderson on February 5th of this year. They did a ca-125 and it was 3250. She had surgery on Feb 23rd and had the tumor removed and a total hysterectomy and omentum removed. Yesterday she went for her first chemo treatment and her ca-125 was 24. I think this is great just to go to that number…
Blessed Easter
Dear Teal Warriors, It has been great getting caught up these past few days after being gone 2 1/2 weeks. I tend to stay on a little too long whether it is this network or FB and then get behind on what I really planned on doing for the day! Hee Hee I did start cleaning (slowly) the upstairs! Thank you, Lord, for the…
UPDATE ON BONNIE
I hope Bonnie and her family don't mind, but for those of you who don't view her Caring Bridge journal, here's what her daugther or daughter-in-law posted yesterday: "Talked to Randy a bit this afternoon. Mom's pain is a bit better and she has sat up a couple times. They are watching her temp, last check it was around…
How do you go bak to normal ??
Hi my name is Mitzi ..Im a 45 yr old single mother of 2 teenagers ..i was diagnosed with Ovarian Cancer Sept 09 ..Dysgerminoma was my cancer ..i went thru 3 rounds ..a week at a time then 2 weeks off. For reasons only known to them my parents and friends abandoned me . I guess maybe they were afraid i would ask for…
Recurrence treated with Gemzar as single agent?
My gyn-onc has decided Doxil not best agent for my recurrence of UPSC stage IV so is changing me to Gemzar as single agent. In researching this (I'm to start next week) Gemzar website indicates Gemzar in combo with Cisplatin for first course treatment for OVCA (UPSC treated essentially the same) and in combo with…
new here
Hi, my mom has been diagnosed with Stage 3 ovarian cancer.. She had a total hysterocotomy plus masses removed from her intenstines and ureathea. We start Chemo next week, I guess I am just asking what to expect and how to help her. She got a little depressed when the ocologist said it was an agressive form of cancer. I am…
Attitude
It is a proven scientific fact that attitude and belief are more important than statistics. What do you think? Do you think it has anything to do with the reactive side of the brain or the thinking side of the brain? Just wondering what all of you think?
Just saying hi
I just wanted to stop in and say I am doing ok after treatment just feeling run down and having an irritated mouth(doing the nystatin and magic mouthwash). My nurse told me I should see a dentist for dental care so now I have to pay to go to the dentist cause they dont take my insurance! I hope everyone is doing well and…
NED
What is NED
NED And Remission
Good Morning, Just wanted to remind you about us. Kathryn1 and I have been NED and in remisssion since June of 2009. We are almost a year out. We still read the board everyday. We still have panic attacks everytime we get our blood draws and everytime we have a CT scan and everytime we see the OB/GYN oncologist. I also…
One down...11 to go
I had my first infusion of Taxol maintenance today. It was completely uneventful. We shall see what the next few days bring, but I tolerated it well in my initial chemo, so I'm not expecting any surprises. The doctor and I talked a little about stats and odds......though he really doesn't like to and it's like pulling…
Need some uplifting
I see lots of posts about the Ca-125, but mine are so high that I really need someone to say something to give me some positive thinking about them! My CA-125 was 9824 before surgery and three weeks after surgery it was only down to 7000 ;( I'm getting a little worried that I will never see the single digits, I need some…
Platelets still not come up yet
no cheo this week either platelets are slow coming up pleasw pray
Genetic counselor weighs in...........
I met with perky Lisa, one of the genetic counselors at my Gyn/Oncologist's group, this AM. She ran down all the FAQs of BRCA testing. In a nutshell: OVCA is not a common cancer, so if you have it, you should consider genetic testing if there is ANY type of female cancer in your family's medical history. If you have a…
THOUGHTS & PRAYERS TO BONNIE!
Thinking of you today, Bonnie, and praying for a successful surgery and a complete and full recovery. I'm trusting that you will be back home in plenty of time for Easter, and able to enjoy your family, and to celebrate our Risen Savior and NEW LIFE! May He keep you in peace, and continue to give you joy and strength. I'll…
Teal ribbons
Hiya, I live in the UK and have been searching online for somewhere to buy teal ribbons for OVCA. It is impossible, I don't think anyone knows about it over here and the only colour ribbon that is available is pink for breast cancer. So is there is web site in the US that I can visit? Thanks Tina xxxx
Surgery Date Set
God's morning to All! I recieved a call from scheduling yesterday and surgery date is set for Monday, March 29, Friday is the appointment with stoma nurse. Whew, I was starting to feel like I was falling through tthe cracks. But, like a wonderful safety net, my gyn/onc and his staff were right under me ~ making sure I…
What do you eat?
I have really looked into how food plays a key role in our healing. I wondered what all of you are into... food or supplement?
Bowel Fix
I saw my oncologist yesterday and agreed to stop chemo until I get to the operating room to cut this bad part of the colon out. Don't know when that will be... had a call in to the colon surgeon for two days with no call back yet. Still battling the diverticulitis with hopes of getting better by the weekend. It is much…
A word of wisdom
“If I were asked to give what I consider the single most useful bit of advice for all humanity it would be this: Expect trouble as an inevitable part of life and when it comes, hold you head high, look it squarely in eye and say, 'I will be bigger than you. You cannot defeat me.'” Ann Landers...defeat is bigger than death…
CT some better but CA up-new treatment to follow
I made it through my 6 cycles of carbo/gemzar, with the extra premeds for reactions. CA came down to 65, not great but dr said would do CT as doesn't go with just CA. Then would see, if disease till there, then maybe do more, or maybe stop for a spell to build my blood counts up. If down, then could get for awhile. Gave me…
some advice please
My Mom just had her first treatment of carbo/taxol on Monday. She is over the nausea but now the muscles in her legs are spasming, that's the way she descibes it. Her Dr gave her vicodin for the pain, but does anybody know of anything else that can be done to help, and is this a normal side effect.

Ovarian Cancer

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