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Anyone hear from Libby lately??
I'm missing Libby. Has anyone heard from her? Helloooo Libby. Saundra
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BRAC NEGATIVE?
I'm confused. I read Sharon's post which said, "On top of finding out I was Brac negative (which I understand that my body has a less chance of fighting the cancer)." I was found to be BRAC negative and I thought that was a good thing? If anyone can explain this to me, I'd appreciate it. Thanks, and luv, prayers and HUGS…
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antibiotics and surgery
Hello~ I am hoping you can help me with a question. I am getting ready for surgery on APril 6th to remove a tumor in my lower abdomen and also to close a wound that developed from surgery last year and became necrotizing faciitis. pretty scary but eventually was controlled with antibiotics. When you have had abdominal…
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new tests to undergo
My Dallas gyn/onc called the colon surgeon and said I couldn't wait until 4/9 for the tests so I am headed for them on Tues. the 30th. Just goes to show when doctors make a request things move much faster just like it did for Bonnie. Saundra
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Mohawk for a Minute
Well, Ladies, Here it is in it's purple, pink and green glory. The magnificent "Mohawk for a Minute!" Oddly enough, for about two days before, my hair began shedding much more than usual, which really helped me carry through with my decision to shave my head in advance. I also have to say that I HIGHLY recommend doing it…
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Etopocide Didn't Help
Well, On top of finding out I was Brac negative (which I understand that my body has a less chance of fighting the cancer)., I also found out my etopocide did not help lower my ca-125 count. My last reading 2-months ago was 49, as of Thursday it was 62. I will go in this Tuesday for an exam with my doctor. So now after…
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I met someone yesterday with 9 years and NO RECURRANCE
I was picking up my dog from the vet yesterday and a tech asked me my favorite color. I replied, "teal because of Ovarian cancer". Her eyes lit up and she said, "i had ovarian cancer 9 years ago", as if it was no big deal. I was astonished. She told me her story matter of factly. She said she didn't read anything on it…
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Fighter's Daughter - Introduction
Hello everyone, I've been following this board for a while - your stories are so inspirational and your strength amazes me. My mother (age 57) was diagnosed with Stage III uterine papillary serous carcinoma in July 2008. As you may know this cancer acts similarly to OVCA and shares many of its treatment protocols. She had…
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so agrivated
called my physocologist to make appointment I told her i had cancer and asked if she had a cold or anything that my white count was down and couldnot be around people sick well i went yesterday and guess what here she was all sniffing please pray that I will not catch anything from her, my white count is down, plus…
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Amount of time needed for first doxil infusion? and "thoughts" about my insurance company
Hi all, Had an allergic reaction to carbo, so am going on to a new chemo. I had already planned an out-of-town trip with my daughter, but need to fit this 1st chemo in somehow. I'm sure that one of you experts knows how long this will take. I also just found how awful of an insurance company I have! I was wanting to start…
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this is for Starfish
Haven't seen you around lately Star and I want to thank you so much for the beautiful wigs. Thank you thank you thank you. Meghan loves them so much on me, with a little tweeking here and there and viola! I will wear them knowing that there is love wrapped up in them. I will wear them feeling wonderful! Thank you Star. I…
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Today I choose to live without fear.
Today I choose to live without fear. I am a strong and willful person. No matter the situations that arise around me I will stay centered in knowing that my body can fight ANYTHING. Amen.
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BRCA testing
When I was diagnosed with my cancer and I realised it was closely linked to breast cancer I requested screening for the BRCA 1 & 2 gene change. My mum had developed breast cancer at an early age of 51 (she was cured) and my Dad's mum had breast cancer at a similar age and died from it. Armed with this information I wanted…
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Teal nail polish
I just picked up a bottle of Sally Hansen Xtreme wear in 'The Real Teal'--it's a lovely teal color; not too green or blue. Just wanted to share. Hope everyone is having a good day! Natalie
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Interesting Link.....
Below is a link to a Power Point presentation my doctor did at a National OVC Coalition. It's all about treatment options. www.dfwovarian.org/TreatmentOptions.pdf
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Pain Med/Anti-Depression Med
Just wondering if anyone is taking pain medicine or anti-depression medicine after they are done with there chemo. I completed my chemo is December of 2009 and have hip and leg pain. And somedays feel very jumpy of depressed. My doctor has told me that he can give me anti-depression medicine as well as something to take…
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3a
Just heard from my Mom, she is at MD Anderson right now fixing to start her chemo. Her Dr told her that her ovarian cancer is a Stage 3a. The Dr's are very optimistic that she's gonna be ok and that they got it in time. Her surgical incision isn't healing very well, but that's a whole other game there that we will have to…
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Pain in right side ..scar tissue pain???
Hi I am new to this site. I have never been to a chat site for cancer although I was diagnosed with stage III Ovarian cancer 5 and 1/2 years ago. I went through 7 rounds of Cysplatin and Taxol and nearly died. I was in bed for almost the entire year. BUT the best news I am here today alive and well as can be expected. I am…
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IP Port Out
Cancer dx: check Surgery: check Chemo: check NED: CHECK! IP Port Removed: CHECK!! Hair growing back: CHECK!!! I am a little sore but I happily tore up the medical alert card in my wallet. I love winning a few battles in this OVCA war. MK
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4 TIME SURVIVOR AND WAITING FOR CT SCAN
4TH RECURRENCE CAME LAST MAY. 6 ROUNDS OF GEMZAR AND CISPLATIN. CT SCAN FOLLOWED BY 2 TREATMENTS OF GEMZAR AND CARBOPLATIN. ANOTHER SCAN, STILL A FEW LESIONS. 2 MORE TREATMENTS OF GEMZAR AND CARBO. HAD AN ALLERGIC REACTION ON THE FIRST ONE AND HAD THE SECOND ONE IN THE HOSPITAL. ANOTHER REACTION AND A 24 HR STAY TURNED…
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TEAL..... the new PINK !
Hello all - This is my first day on the ACS site. Have read many stories and think I've found a wonderful place for support, idea's and hugs :-)I just wanted to say HELLO to all of you wonderful women and let you know that I am praying for you and sending good thoughts your way as you fight this battle. I just finished the…
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Have to go get 2 uits of blood in morning
Really afraid i have to go get 2 units of blood in morning and have never done this before, please pray for me that I will mak it through ok. my platelets are not coming up like they shuld and i am anemic also please pray
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Bummed Out And Pissed Off
Good Morning, My friend Tracy, who refuses to read this board, had surgery in April of 2009. She was a 3C and had 6 treatments of Carbo/Taxol. She had the same surgeon as LeesaG and me, at the same hospital. Her CA-125 never went below 25. She had a CT Scan last week and now has a tumor on her bladder. It makes me so mad.…
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Mammogram results
Just got the call.....everything is fine. They said they would see me "next year". Carlene
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2nd round done and a little bummed
Went through second round of Doxil and had my CA125 done. It went up 115 pts how depressing. I know this can happen but 500 more and I will be back to where I was a year ago when I started this. I really thought I was prepared to hear they went up but sure didn't like the news. I will be positive I will be positive I will…
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Hey Dorian!
Hey Linda, Just wanted to let you know that I'm thinking about you and Meghan every day! Your spirit and humor really helped keep me going when I first came to these boards in the early days of my journey, so I hope to return the favor in a small way with this post! As we say here in Bawl'mer: Luv ya hon! HUGS! Leesa
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Howdy everyone - Betty update
Hi everyone, We have been over on the uterine cancer page. I found this web site after coming home from the hospital following getting the news that my wife Betty has ovarian and uterine cancer. That was February 1, 2010. Since then we have been on a roller coaster up and down. I have met some nice ladies over on the…
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Chemo at MD Anderson
This ? might seem a little crazy, but has anyone on here had chemo at MD Anderson in Houston? My Mom starts her 6 rounds at 3 weeks apart on the 22nd. She was wondering are you in a room with others, should she bring anything with her, and can my Dad stay there with her? Any info on this would help her I guess prepare for…
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4 TIME SURVIVOR AND WAITING FOR CT SCAN
4TH RECURRENCE CAME LAST MAY. 6 ROUNDS OF GEMZAR AND CISPLATIN. CT SCAN FOLLOWED BY 2 TREATMENTS OF GEMZAR AND CARBOPLATIN. ANOTHER SCAN, STILL A FEW LESIONS. 2 MORE TREATMENTS OF GEMZAR AND CARBO. HAD AN ALLERGIC REACTION ON THE FIRST ONE AND HAD THE SECOND ONE IN THE HOSPITAL. ANOTHER REACTION AND A 24 HR STAY TURNED…
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My mother asked me a very tough question tonight and I don't know how to answer her
Hi Everyone, Hope you are all well. I am down in Fl. with Mom and she is doing pretty damn well. She hasn't had chemo for 6 weeks and is enjoying every second. Her doc wanted her to get a CA-125 down here and if it has elevated at all, come back to NY. My mother said, "no", I want 2 months completely off. She has an…