The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Smoldering multiple myeloma

positivewife
positivewife CSN Member Posts: 21
in Multiple Myeloma #1
My sister was told today she has a form of cancer called Smoldering multiple myeloma. I was wondering if anyone has it or knows any information about it.Her doctor said there is not a cure for it but it is treatable.She is looking the best place to go for treatment.
My sister is 68 years old and I love her with all my heart. My husband also has lung cancer and I love him with all of my heart. All I can say is my heart is breaking for both of them.
Like Care

Comments

  • rorkesdrift
    rorkesdrift CSN Member Posts: 2
    #2
    Smoldering MDS
    I am thought to have this condition,although two bone biopsies have yielded 'dry taps'-ie.
    a situation where the specialist got bone samples but no liquid bone marrow that is essential for a conclusive diagnosis.I am 75 years and have had up and down readings on the key blood components rendered through CBC tests every 3 months.I have no overt symptoms and in fact am incredibly strong and outwardly healthy.The condition was noticed 3 years ago as a result of bone anomalies discovered as a follow up to a mild form of prostate cancer.I went through bone imaging,MRIs, Catscans and finally the bone biopsies.The likelihood with this condition ,according to my excellent GP,is a long life terminated by some thing other than this condition.Best regards.keep the chin up!
    Like Care

Discussion Boards