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PET not so good
Almost 1year in remission. Had cat scans and PET. The cat scans were good but the PET showed a hot spot at the base of my tongue . Sent me next door to have bloodwork done (which came out fine) and set up an appt. wit an ENT on the 31st of this month. Scared, depressed and mad. Want to think everything is fine, but once…
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Refractory DLBCL - Anyone?
I had my second PET scan today. I've only had two R-CHOP treatments. Doctor is concerned that I'm not reacting to treatment like he first thought. Third R-CHOP is suppose to be on Friday, July 19th. I know I shouldn't self-diagnose but I've noticed the nodes along my jaw and in my pelvis the last 3-4 days. These areas were…
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News from Vinny :)
Hi everyone. I received a message/response from Vinny today. He's been taking a mental health break from the site and I certainly understand that - especially with the news of Beth and Nathan recently. Vinny is doing okay having some dizziness and vertigo again and will see the doctor on the 31st. He asked me to say "Hi"…
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new discussion board
A new discussion board is available to report and discuss technical problems. Please give it a try. It is the last discussion board listed on the page with all the boards, please bookmark it for future use. The URL is http://csn.cancer.org/forum/200. Best, Greta aka Your CSN staff
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Today's scan results (Happy Dance Time!)
Got my results and I'm still in remission - Happy Dance Time ! Hugs everybody!
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cns nonhodgkins lymphoma-poojarastogi..need help
my wife is a patient of non hodgkins lymphoma,she is a case of relaplse in her cns ( optic nerve comressed ) cant see now from her both eyes...her body is going down day by day...and my doctors are confused now....can anybody guide what treatment we should plan now...she is 33 years old.and about 90 kgs by wt.
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Hello Everyone,
How is everyone doing, I have not been here a while and thought I would say hello. I have not done my cat scan as of yet. I am to do another cat scan in April. So will see then. Was in the Hospital again for Diverticulitis attack for 3 days. I am also wondering how Donald 51 is, I have not heard and am wondering. I can not…
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GETTING ON THE SITE
THIS IS REALLY GETTING REDICULOUS TRYING TO GET ON THIS SITE. SOMETIMES I GET ON AND THEN CAN NOT POST. SOMETIMES I POST AND IT DOES NOT SHOW UP. THIS HAS BEEN GOING ON FOR A LONG TIME AND THERE IS NO REASON IT CAN NOT BE FIXED BY NOW. SOME MEMBERS HAVE EVEN BEEN BLOCKED FROM POSTING. GRETA HAS NOT EVEN POSTED ANYTHING…
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Bump in the Road
I was diagnosed with DLBCL Stage 4 toward the end of May 2013. It was not in my marrow. The reason for the Stage 4 was a dime size spot on my right lung. Treatment plan is R-CHOP every 3 weeks for 6-8 treatments. First treatment was 6/5 and by 6/7 the lymph nodes above the diaphragm were 'gone'. Had a transfusion on the…
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First cycle of R-CHOP on July 25 (DLBCL)
Hello all. Sending out an update and looking for any wisdom to prep me. June 22nd my case went to Cancer Care. Since then things are moving fast! I have been scanned, poked and drained so many times in past couple weeks. Had tons of bloodwork, MUGA, PET and another CT scan done. Oh how could I forget .... That lovely Bone…
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Life (and death) go on
I've been absent from the forum for a bit. Things haven't been easy for me lately. I got a call from my husband to tell me that his Mother, my beloved mother-in-law had just died. I dropped everything and went to him. While she was still there, dead, on the bed, my brother called to tell me my father had just been admitted…
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I have diffuse large B cell in the brain. Anyone else out there?
Jan. 2010 it was discovered when I felt weak and seemed to black out and was rushed to emergancey that I had two brain tumors. They did many tests, most of which I don't remember and it ended up with a bioposy and it was non-hodgkins lynphoma large diffuse B Cell. I eventually ended up with a consult with Stanford and they…
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Scanxiety today
Well, I'm sitting in the radiology area drinking my two CT "cocktails". Of course a little later I'll get my "tequila shot" that makes me feel all warm and fuzzy before I hear the machine say "hold your breath"......"breathe" :) . I wanted to post last night but been having problems getting on the site lately. Anyway, hope…
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just got diagnosed with diffuse large b-cell lymphoma
I am still in shock don't know what to expect. I haven't been staged yet but don't really know what's infront of me and I am really scared. I'm 28.years old and there is so much on the internet who knows what to believe. Any advice would be great.
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Good News!!
My daughter had her check up this morning. It's been two years since she finished her treatment, and everything is good. Her doctor told her that since two years have passed since her treatment and she hasn't had any issues this is very positive!!! Her bloodwork results are all fine. He does want to keep seeing her every 6…
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Testing to see if I'm still blocked...
I'm just testing to see if this message will post. Sue
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ABVD and Nail Discoloring
I just finished my 10th ABVD fusion and start noticing since last week that under the edge of my nail a discoloration line starting from the nail top expanding down the nail plat. Does anyone experience it?
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Happy July 4th
Happy July 4th everyone! Have a good and safe one! - Jim
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Pathology report said B Cell Lymphoma, nothing more...
Hello all, I had found a lump in my armpit in 2012, after sometime I went to my GP who in turn referred me to a general surgeon. Mid May I had my left axiliary lymph node removed for biopsy. The final pathology reports have now come back from the biopsy and indentify that it was B Cell Lymphoma. Nothing more, no specifics…
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Possible thyroid cancer or lymphoma :(
Well, for over a year now I've had a rounded lump on the left side of my neck. I'd always assumed it was a swollen lymph node and didn't really pay any attention to it. About 2 months ago it occured to me just how long I'd had it and went to the Dr and wound up having an ultrasound done, they also looked at my thyroid.…
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3am and 200mg of Prednisone 4th one down
Fellow Lymphomaniacs, I have just survived my 4th of 6 rounds of cvp-r treatments and glad to report that I am still feelin funky. I have been soooooo blessed, but anyone that has taken prednisone at sky high levels knows this cancer crap will kick your butt one way or another. I have gained over 20lbs and am praying for…
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Moving...
Hi guys, I haven't been posting often because we are in the process of moving and it is very overwhelming. We have lived in Yakima for 34 years, so relocating to the river is a huge move for us. We found our cabin/cottage in the woods and will be moved in by July 15th. We've had a big yard sale and now we are going through…
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Tough News - dixiegirl (Beth)
I received a CSN message (as dixiegirl) from Beth's husband yesterday informing me she lost her battle with cancer on 5/14/2013. According to him, she picked up a parasite during chemo (cryptosporidium) and fought hard for two weeks but didn't have the strength to beat it. Her husband said he would appreciate it if I…
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Interesting Article
Warning: Nudity http://www.bbc.co.uk/news/health-22961694 Did you look? Hugs - Jim
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Nathan - How are you doing?
Hi Nathan! Just wanted you to know we're thinking of you. Would love to hear from you even if it's only a "Hiccup";). Hugs - Jim
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So Proud of My Son
I am so proud of my son I wanted to share. He just turned 23 and is a HL survivor. He was diagnosed in 2009 at age 19 and was stage IIIb. He had missed his sophomore year at college in treatment and finishied in March of 2010. In July he volunterred at Camp Horizon as a camp counselor for children with cancer or cancer…
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Symptoms
Hi I just wanted to hear if anyone can share their story or symptoms before diagnosis. 3 years ago my ent removed a lymph node from my neck, only one of the few that were swollen. everything came back negative which was a relief but I still have swollen lymph nodes all on the right side of my neck and back of neck. I've…
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One year later and life will forever be seen with more loving and admiring eyes
It was one year ago today I walked into the Bone Marrow Transplant Unit at MCV hospital in Richmond VA. I was walking into the ring where the prize was to live the life I was given. I was scared, unsure, and vulnerable to everything surrounding me. Yet through the pain came a joy and happiness I will always remember and…
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Dixiegirl/beth's obituary...
Elisabeth Ann “Beth” Hime, age 49, of Paola passed away at Olathe Medical Center, Tuesday, May 14th, 2013. Beth was born on April 11th, 1964 in Denver, Colorado to Richard Griswold and Delores Harrison. She was married to James “Jim” Hime on September 3rd, 1994 in Lawrence, Kansas. Beth has spent most of her married life…
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Also Checking In
Wanted to share that I'm leaving tomorrow for Jacksonville, have an appointment Thursday at the MAYO Clinic there & plan on staying through next Monday at least for further testing, etc. I'm taking all of my blood work, scans, etc., and praying they either give me a diagnosis or a clean bill of health. Been praying for all…