Day #1 off 100mg Prednisone

girliefighter
girliefighter Member Posts: 232
in Lymphoma (Hodgkin and Non-Hodgkin) #1

Well folks....Sue warned me....Day #1 off the 100mg of prednisone and I fell asleep in a box at work...lol....Thats right, sat down to rest for a minute and literally fell into the box and fell asleep. Oh well, I didn't feel much like working yesterday anywayWink.  I hope you all can find as much humor in this as I did.

xxxooo

Comments

  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #2
    Pred.

    I know Pred affects us all in different ways. I was doing Lionel Richie's "Dancing on the Ceiling" all night long when I was on Crazy PRED. Yell John

  • allmost60
    allmost60 Member Posts: 3,178 Member
    #3
    Pred crash...

    Hi Carie,

     At least you fell asleep in a box and not in your car while driving! My last day for the pred was on Saturday mornings and on Sunday I was limp as a noodle all day long. We NEVER made plans for Sunday after the pred week. Each day you will feel better, but you still need to remember that the chemo accumulates in your system as you go through each 21 day cycle, so be prepared for many TIRED days...with or without the pred. Hang in there sweetie...it will all be over before you know it. Love you...Sue  (FNHL-2-3A-6/10-age62)

  • girliefighter
    girliefighter Member Posts: 232
    #4
    COBRA666 said:

    Pred.

    I know Pred affects us all in different ways. I was doing Lionel Richie's "Dancing on the Ceiling" all night long when I was on Crazy PRED. Yell John

    I would pay $

    John,

    I would pay $ to see you immitating Lionel Richie...I am always up for some good entertainment, and when it is at someone else's expense it makes it that much better. I am not going to lie, I kinda enjoyed the extra energy, people pay good money to get that "high". I have been so sleepy since september, that it was nice to actually get stuff done.

  • girliefighter
    girliefighter Member Posts: 232
    #5
    allmost60 said:

    Pred crash...

    Hi Carie,

     At least you fell asleep in a box and not in your car while driving! My last day for the pred was on Saturday mornings and on Sunday I was limp as a noodle all day long. We NEVER made plans for Sunday after the pred week. Each day you will feel better, but you still need to remember that the chemo accumulates in your system as you go through each 21 day cycle, so be prepared for many TIRED days...with or without the pred. Hang in there sweetie...it will all be over before you know it. Love you...Sue  (FNHL-2-3A-6/10-age62)

    You warned me

    Sue,

    LOL...you warned me, but apparently I have to learn everything the hard way. I am actually surprised that they didn't take pictures of me, I would've if it was someone else...I think the people I work with can't seem to get the idea that the secret is out and I am aware that I have CANCER...I am hanging in and trying to enjoy every moment that comes my way. I am blessed to have a great support system and a few friends that have been amazing and understand my "sick" sense of humor. I am ready for the tired days, it is an excuse to get the day off from workWink.

    How are you loving that remission?? What an amazing thing huh? I am right on your heels with that, get ready for me!!

    Love

    Carie

  • anliperez915
    anliperez915 Member Posts: 770
    #6
    girliefighter said:

    You warned me

    Sue,

    LOL...you warned me, but apparently I have to learn everything the hard way. I am actually surprised that they didn't take pictures of me, I would've if it was someone else...I think the people I work with can't seem to get the idea that the secret is out and I am aware that I have CANCER...I am hanging in and trying to enjoy every moment that comes my way. I am blessed to have a great support system and a few friends that have been amazing and understand my "sick" sense of humor. I am ready for the tired days, it is an excuse to get the day off from workWink.

    How are you loving that remission?? What an amazing thing huh? I am right on your heels with that, get ready for me!!

    Love

    Carie

    Hi Carie

    Hi Carie,

    I just have to say that I love reading your post! They always make laugh, I guess I have a sick sense of humor too ;)  thanks for making my day a little brighter! (((Hugs)))

    Sincerely,

    Liz

  • jimwins
    jimwins Member Posts: 2,107
    #7
    COBRA666 said:

    Pred.

    I know Pred affects us all in different ways. I was doing Lionel Richie's "Dancing on the Ceiling" all night long when I was on Crazy PRED. Yell John

    Hey John

    I would pay good money for pics of you dancing on the ceiling.  My question is did you mount a"soap box" on your ceiling too? Just picking on you.... Hugs - Jim

  • jimwins
    jimwins Member Posts: 2,107
    #8
    Post prednisone crash

    Boy do I remember the crash after prednisone.  I would pretty much collapse and sleep alot for awhile.  Just think, you could have been shipped off somewhere -"Where in the world is Carrie?" LOL. 

    Hang in there - you're doing fine.  Hugs - Jim

     

  • girliefighter
    girliefighter Member Posts: 232
    #9
    jimwins said:

    Post prednisone crash

    Boy do I remember the crash after prednisone.  I would pretty much collapse and sleep alot for awhile.  Just think, you could have been shipped off somewhere -"Where in the world is Carrie?" LOL. 

    Hang in there - you're doing fine.  Hugs - Jim

     

    lost in space

    Jim,

    I found this really cool (and when I say that it is with the utmost sarcasm ever)  $249 marc jacobs space suit looking thing at TJ Maxx this past weekend and I was thinking perhaps i could be the first cancer patient in space...What ya think o the idea?? I really wish I would've taken a picture of this contraption they were trying to sell to an unknowing victim, I am not the fashion police but I tell ya ...you woulda got a kick out of it

    XXXOOO

    Carie

  • jimwins
    jimwins Member Posts: 2,107
    #10
    girliefighter said:

    lost in space

    Jim,

    I found this really cool (and when I say that it is with the utmost sarcasm ever)  $249 marc jacobs space suit looking thing at TJ Maxx this past weekend and I was thinking perhaps i could be the first cancer patient in space...What ya think o the idea?? I really wish I would've taken a picture of this contraption they were trying to sell to an unknowing victim, I am not the fashion police but I tell ya ...you woulda got a kick out of it

    XXXOOO

    Carie

    LOL

    I loved "Lost in Space" (the original TV series) when I was a kid.  It seems kind of silly when I see it now and funny.  "Warning Will Robinson, Carie is in space" :). 

  • tall floridian
    tall floridian Member Posts: 95
    #11
    Prednisone

    On prednisone - instead of counting sheep at night I would count pork chops on the walls-lol-I was so hungry all the time-use to have 3AM dinners-my wife thought it was prowlers but just hungry pred me. lol

     

  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #12
    jimwins said:

    Hey John

    I would pay good money for pics of you dancing on the ceiling.  My question is did you mount a"soap box" on your ceiling too? Just picking on you.... Hugs - Jim

    LOL

    Jim,

      You know Darn well I was on the Soapbox. There's just no other way is there? Sealed LOL

  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #13
    girliefighter said:

    I would pay $

    John,

    I would pay $ to see you immitating Lionel Richie...I am always up for some good entertainment, and when it is at someone else's expense it makes it that much better. I am not going to lie, I kinda enjoyed the extra energy, people pay good money to get that "high". I have been so sleepy since september, that it was nice to actually get stuff done.

    LOL

    Carrie,

      It seems while I was dancing on the ceiling my objective was to come down next to the refridgerator and I mean "ALL NIGHT LONG"

  • girliefighter
    girliefighter Member Posts: 232
    #14
    3am meals

    lol....I myself am no stranfer to those late night meals and I gotta tell you mine are MEALS, not snacks....I am scared to weigh in next week.. I feel like I am at weight watchers, but they tell me to keep eating.. I am the only one eating while getting my cchemo, I feel bd because I think my food might nauseate some others in there with me. Glad I am not the only one.

    xxxooo

    carie

  • Folks24
    Folks24 Member Posts: 106
    #15
    girliefighter said:

    3am meals

    lol....I myself am no stranfer to those late night meals and I gotta tell you mine are MEALS, not snacks....I am scared to weigh in next week.. I feel like I am at weight watchers, but they tell me to keep eating.. I am the only one eating while getting my cchemo, I feel bd because I think my food might nauseate some others in there with me. Glad I am not the only one.

    xxxooo

    carie

    Predisone

    The pred didn't put an ounce of weight on me. I had to really push it during chemo to not let my weight go down too much. I was on the pred for 5 days after chemo treatments. On about day 7 is when I would crash. After the 1st time, I planned ahead so my groceries would be stocked up and I could just heat & eat food, no prep involved. Course I had some days I just wanted to sleep too but was usually awake enough for a few hours to eat something.

    Amazed that you can work during treatment.  I have Sjogrens which made/makes me double susceptible to get "stuff". That and the dr not being able to tell me how I'd feel, I opted for the  6 month disability and glad I did. I learned to make meals ahead, get groceries & meds delivered and how to do things in the home when parts didn't want to work. Wrenched both thumbs badly for 1 month and 2 espisdes of using a walker for awhile. I am solo too, no family, but I did have a cousin come visit from Wisc.

    Just keep patting yourself on the back on getting through each daily obstacle. It sure ain't easy but you can get through it.

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