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Worry, Blood & Humor
I have an appointment in 2 days to have my port flushed and blood counts checked. I have had trouble all along with anemia and last month my blood counts were still low. My hemoglobin was 8.7 and an additional test informed that I have minimal reticulocytes (the youngest, newest blood cells). The best case scenario is that…
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Arm vein discoloration after ABVD, did it happen to anyone.
I am taking ABVD and yesterday was my #7 treatment; I notice that my arb vein discoloration to reddish brown along the arm to the elbow. Have any one experience it. is it permanent tattoo, or it will go away after treatments. Please advice.
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Happy Father's Day!
Happy Father's Day to all the wonderful father's! Love, Kyle, Michelle and Diesel Daniels
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Checking in :)
Well it feels like its been about 3942938742634 days since this has all started. Haha. However, time is flying by as Kyle has round 3 next week! Carie, Jim and Becky. You all are such good people. It truly brought the BIGGEST smile to my face just to see that you all simply remembered Kyle's wish to go to a baseball game…
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This will be my last post
Hey members, I want to say this will be my last post. I will not just drop out of sight after I get all the info I need,I want all to know I have posted here since May 2010 when I was diagnosed with Follicular NHL. I went into remission in Sept. of 2010, but continued to post when I saw fit to where I could help someone…
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Just diagnosed with Mantle Cell Lymphoma, freaking out
I was diagnosed Wednesday with MCL after a biopsy of a supraclavicular node. I don't have an initial apointment with an oncologist until Tuesday What I'm seeing online is not overly encouraging, to say the least. My family practitioner, who delivered the bad news, kenw nothing about MCL. Can anyone with experience give me…
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First Round of Chemo...
Was not as expected. Kyle and I had suscepted there would be complications along the way through this battle. We were aware of this. However, I guess, not so soon. Let me just start by, Kyle is okay and better. I am extremely grateful for that. :) However, His first chemo was on Monday (5/6/2013) in which it went well and…
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My New Project
Heartache, Hemmorhoids and Hairloss, You Are Not Alone!! Everyone struggles with something either financially, emotionally or physically; it can be done privately or publically. If you have never struggled , you have never lived. While you are struggling, know that you are not alone, somewhere else in this world someone is…
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Checking in
Hi everyone It's been awhile since I said hello. I try to read through the posts everyday. I've been busy flying acroos the country to deal with our business. Most likely it will be monthly for awhile. I received the results from my latest scan, and overall things seem positive. There are a few issues that I'll deal with…
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update, checking in, reconnecting
Hi Eveyone, I'm sorry I'm not the best at staying connected and responding to everyone. I respect you all so much, I appreciate the shared wisdom, and I really think you are all a wonderful, caring, and brave group of people. I just run out of time for checking posts and responding. So I occasionally read the posts. and…
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Hoarse voice years after treatment
Greetings, I had treatment in 2004 for Hodgkin's lymphoma. The cancer was in my chest and lower neck. 9 years later, I am finding that my voice is hoarse and scratchy. It used to come and go, and now it seems to have stayed. :( Has any else had this issue? My oncologist kicked me out of his office (since i am technically…
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International, no insurance
Hi, I'm new to this site. A close relative was just diagnosed with diffuse large B cell CNS lymphoma. She was visiting from China, has no insurance here, and as you can guess, out-of-pocket costs are very high. They have to pay up front for future chemo treatments, the next one should be in a week, with at least 7 more to…
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Post-Radiation Anxiety
Hi All, I was diagnosed with Stage 2 bulky Hodgkin's Lymphoma last September. Completed 12 chemo treatments 2 weeks apart and then 17 radiation treatments. Had my last radiation on May 22. After each chemo I was really sick - nauseous, depressed, fatigued, etc. - for about four days, and then OK, or at least able to…
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stage 4 HL diagnosis-- how much worse is this going to get?
I was diagnosed with stage 4 HL in April and I had my second round of the ABVD just over a week ago. I felt horrible after my first round. I had a fairly traumatic mass exodus of hair today, but aside from that, the second round wasn't nearly as bad as the first. Was the first one the worst, or am I in the eye of the storm…
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severe back pain post-Chemo, need help
I had Hodgkin's Lymphoma appx. 3 years ago, It's in remission but I know before the cancer I had no trouble with my back at all, but during the chemo my back became extremely weak and in alot of constant pain. I had other symtoms also, I ended up having pulmonary fibrosis and gastroparisis, I had the ABVD chemo treatment.…
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Cutaneous Tcell Lymphoma - 2013
hi Looking for patient or caregiver to discuss diagnosis. My husband has CTCL and LGL Leukemia. Having both is making treatment for either very difficult. anyone else in the same small boat? I'd love to chat. thanks! amy
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Insurance
After receiving treatment for over a year, my dad's job let him go. He is on Cobra, but that will only last a year and a half. He attempted to get insurance and was refused. This makes me sick. My dad thinks that after 2014 insurance companies will not be able to refuse coverage based on pre-existing conditions. Does…
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Neighbor with no Diagnosis
I have a new next door neighbor, male, about my age or a bit younger (50 or so). I was speaking with him yesterday, and somehow got on the subject of health. I mentioned my stage 3 HL, and he then stated that he had been told he had stage 3 lymphoma, but was later told he is benign. He has been going through a diagnostic…
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CT Scan Results
So I'm still in limbo, kind of. The CT scan was compared with my PET scan from Feb and all of the nodes that were "hypermetabolic & likely malignant in nature" are still enlarged. They haven't grown, so that's a good thing right? But they haven't gone away, so whatever's going on is less likely some random unknown virus…
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Last treatment done
I received my last treatment Tuesday and now I have to wait for my PET scan schduled for June 21st and results on the 25th lets hope for the best.
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Swollen Joints
Does anyone here have any history of swollen joints due to Lymphoma? If so, how was that determined? My right knee swells up. As soon as I get a Rituxan infusion it goes down, but not away. Dr. says it looks like arthritis to him. I am considering getting some fluid drained by an orthopedic surgeon and have it tested for…
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Coming back
Hello everyone, I used to post in here when newly diagnosed with FNHL as a way to express my feelings and find out about this disease. I was first diagnosed in Oct of 2009 and went thru RCHOP in 2010 following a two year Ritux treatments in January of 2011. All the test concluded that I was back in remission and no signs…
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CCG-550 Protocol
I was diagnoised with NHL at the age of 17 in 1982. I was told at the time this protocol was the only chance I had of survivoral. The long term effects have been one thing after another. It started with lung problems such as fibrosis and 7 pneumothoraxes. The tumor was growing around my heart and covered my entire chest. I…
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CT Scan tomorrow!
Hey everyone, sorry I haven't been posting a lot but I have been checking in often to see how you're all doing & I've been praying for everyone here! Just wanted to let you guys know that the doctor moved my CT from June 10th to tomorrow morning. I have 4 more enlarged nodes that popped up in the past 10 days that I can…
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thinking about everyone
hi all i just wanted to check in and say the last 2 rounds have kicked my butt with low white blood counts and having to give myself shots. most of the last week i was very tired but i took my dads camper to the lake that is near my house. two nights of camp fires and fishing when i could or just i great view out the…
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Primary Mediastinal Large B Cell Lymphoma
I was diagnosed in July of 2012 with Primary mediastinal large b cell lymphoma. I am 46yrs old and female otherwise very healthy. I am being treated with DA R-Epoch and I'm wondering who else might be out there dealing with the same diagnosis and or is a survivor of this sub-type of large b-cell. I would love to connect…
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1st Rituxan Maint. Done
My first Rituxan maintenance that I was fretting about so much is behind me. I got many smiles and warm hugs at the clinic and that was really nice. I had some errands today and that was tough--but I did it and that makes me happy. I was away from home for about 4 hours, went 5 different places, and now I am tired!…
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Hiatal Hernia Repair
Hi, I am a long term survivor of Hodgkins with full mantle radiation in the 1990s. I have severe acid reflux caused by a hiatal hernia and surgery is recommended for repair. This problem started before I got sick but the radiation made it worse. I am wondering if any long term survivors have undergone this surgery. The…
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NHL types and sub-types
I have been on this site for 3 years now. When I first started posting there were no ways as many types and sub-types of NHL as there are today. It seems they are constantly adding to the list. Does anyone out there know about how many types and sub-types are being treated today? Thanks
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NHL types and sub-ytpes
I have been on this site for 3 years now. When I first started posting there were no ways as many types and sub-types of NHL as there are today. It seems they are constantly adding to the list. Does anyone out there know about how many types and sub-types are being treated today? Thanks