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Lymphoma (Hodgkin and Non-Hodgkin)

What to hear success stories bcell NHL .
All, Here is my story I got my DX in February the doc said it is curable thank God I got engaged 9 days earlier and then we wee dealing with treatment. So we will marry in January. The DX was small cell with some medium cells it is the CD 20 cell. I have been through 4 straight Retuxin treatments, then several rounds of…
Cervical Cancer
Hi, I am new here, and In jan 2013 I was diagnosed with cervical cancer, I went threw chemo, radiation, and brac therapy, I was done all my therapy in april, and docs told me looks like tumor was gone and everything was good! I am still unsure tho and waiting to see my doc again for MRI results. Then I got hit with…
Bone marrow biopsy
Hi all, I had my bone marrow biopsy yesterday and I am on the waiting train. I was knocked out and was thankful because he couldn't get it on one side so had to go to the other. I didn't get to talk to him but in my waking up state I asked the nurse why and she said something about it being dry and another said he…
Thank Goodness !!!!
I have had cancer, I am more than half blind, my blood pressure is sky high, had 2 by-pass heart surgerys, 2 knee replacements, hip replacement, diabetes, arthritis so bad it takes me 3 hours to get out of bed, can't hear anything less than a jet engine starting up, takes so many meds I am dizzy all the time, can't feel my…
Looking for some one to talk to
I've recently finish my treatment for Hodgkins and I was on one of my usual check ups when they told me that I might have it again. I don't know if i can handle treatment again and I need inspiration. I've had all the usual talk about it might not be but I'll know tomorrow and I dont think I'm mentally ready to accept and…
False positive PET scans
Well i had my 2nd post chemo PET scan today. My first post chemo PET scan was not so good with an SUV=8.9. I was obviously devastated by my last PET scan. My doctors told me it was probably inflammation and to retest in 2 months. I went to my Oncologist today and he told me my CANCER IS GONE!! SUV=0! I am living proof that…
Sprang from Area 51
Howdy all, I have been sprung from Area 51 (Roswell Park). I feel great (thanks steriods and a unit of red blood). No other side effects. Doctor seems happy. The plan is to get by the next couple weeks. The doctor has scheduled me for a PET and CT scan during the week of 9/2. He will give us the results on 9/9. Those…
SOMEWHAT SCARY BLOODTEST AND VISIT WITH ONCOLGIST
Hello Peeps: Had a PT-Scan today, which to me is a big aggravation. For a long time I have been doing well with my bloodtests. Going along (singing a song??) Saw the oncologist Wednesday, Aug. 21. This time there was a small rise in white cells. I have allergies, one being ragweed, which the doctor thought might be causing…
after receiving rituxan side effects
Hello everyone, I received 4 weeks of infusion with rituxan. I had no side effects during treatment. The last treatment was dec 30. My doctor informed me that the rituxan can still be working for about 4 months. I will be returning to the oncologist the end of april 2010. Then I will have a pet scan. My question, can there…
Neulasta or chemo pain??
Hi all, I think either the neulasta or chemo (EPOCH R) effects have kicked in My mom has been in pretty bad shape for the past two days. she was on Vicodin, but the doc said that could cover a fever. So he prescribed oxycodin 5mg. Even with the Vicodin only once a day the doc made a comment of "don't overload on meds"…
How bad can it get?!
My grandmother was diagnosed in March of 2013 with DLBCL at 71 years old and scheduled for 6 R-CHOP treatments. The first was terrible and she was hospitalized for 21 days. Each new treatment got easier and more tolerable, and she was able to receive outpatient cocktails through her port. Right before her 6th treatment, in…
Hurrah! Remission at last!
Finally, official word from my doctor, I am in remission!! Personally, I've thought myself in remission for the last 9 months, but he was reluctant to say so because after chemo in last October, I showed a posivitive PET scan and a negative biopsy! So he didnt' know what to believe! But with every subsequent check up…
Second R-DHAC starts tomorrow
Howdy all, My second round of R-DHAC should start tomorrow. If the doctor is happy with my progress, I'll receive Rituxin tomorrow as an outpatient then go into Area 51 (Roswell Park) from Tuesday through Thursday for the rest of the fun. My white count has rebounded nicely...almost to 5.0. My platelets have rebounded as…
Neulasta shot advice please
Hi all, my mom will get her first neulasta shot tomorrow. Any advice for what to do before and after? I want her to be comfortable and know what to expect. Thank you For the advice. Sending good thoughts to all.
Unusual?
I saw my oncologist today and he said I was a very unusual case. He said having FNHL in the small bowel last year which is extranodal and now having it come back in my groin area is very unusual. Boy I hope I got that right! Has anyone had this and if so what was the outcome?
EPOCH R swelling?
Hi all. My mom did her first round of EPOCH R. She got two units of transfusion just now too. She feels a lot of swelling All over her body. Her feet are poofy so is her abdomin and back area. She also swallows and feels tightness. Anyone experience this??? They will discharge her in an hour and say it's just water…
Could it be....?
I am going in on the 28th for a biopsy. Here are my symptoms. Swollen lymph nodes on the left side of my neck (have been swollen since Dec 2012), they didn't hurt until about 2 months ago. Now it's an aching hurt all the time. Headaches, night sweats, extreme fatigue, get winded very easily, coughing, unexplained itching…
EPOCH-R advice?
Hi all, my mom decided she will give EPOCH-R a try. The treatment starts tomorrow. Please give advice and tips if you've been through it. She's 70 years old and this is a relapse to diffuse large B cell from a follicular lymphoma. So it's going to be tough.
Fingernails
Has anyone on here had problems with fingernails after diagosis with FNHL and Rituxan therapy? I have two which ceem to be coming off.
Double hit update
Rick was scanned today (6 weeks after radiation) and after DA-REPOCH and a stem cell transplant. Was in remission!!! Any other double hitters out there over 3 months out in remission? He goes back in 3 months for another scan but they seem hopeful it will stay this way!!!! Yeah!!!!!!
Relay For Life
A Miracle and an Answered Prayer
Recently, I started a discussion thread on the subject of applying for Social Security Disablilty. I received many excellent replies and a (mostly) good discussion ensued. I am especially appreciative to our Les, who is a former Social Security Administration employee, for his contributions. Thank you again, Les. A few…
4 time cancer survivor with questions
I was diagnosed with nhl in nov. 2003......specifically diffuse large b cell lymphoma. I went through a 10 month regimen of chemo and immunotherapy (rituxan). I was told that it was not curable but that remission was possible. The cancer has been in remission since late 2004. In 2006 i lost my left kidney to renal cell…
PET scan and sinus
Hi, i'm new to this site. I am trying to wait til my onc appt to ask this question but I just can't do it! Last year I had FNHL in the small bowel and had a resection with no other treatment other than CT's every 3-4 months to watch. I just had my 1 year PET scan and it showed 2 spots, one in my sinus and one in the lower…
Bendamustine rash/itching
I hope someone has some advice. A family member is having a terrible time with the itching from his rash. He's been taking Benadryl, but gets so sleepy. I'm wondering if anyone has found some other way of managing the rash/itching. Thanks for any help.
Clear Sailing...
Had my six-month visit with my oncologist yesterday (Thursday), All a-ok. The anemia that gave us a scare six months ago has totally resolved, and is right in the middle of normal values. LDH, Sedementation, all low-normal, which is were they are best at. The doctor recommends that I continue on my dialy Geritol Multi. I…
Shouldn't ABVD given in order ?
I have new nurse and noticed that she gave me the ABVD treatment in this order BVAD compare to past 11 treatment where I took them in the order of ABVD, and when I asked her she said it does not make different, but within my self I did not feel good about it. For of you who have ABVD does the order ABVD given makes a…
In remission and scared
I was diagnosed with NHL stage II B cell follicular when I was 45. I did 6 rounds of R-CHOP and I believe I went into remission almost immediately. The very fist treatment of Rituxan I had no pain and the chemo was not as bad as I thought but I don't want to do it again ! My doctor did not give me maintanence Rituxan.…
Upcoming Scan and the nerves are starting to get to me
Hey Everybody Friday I will be having my one year scan since the Auto Stem Cell transplant for Diffuse Large B Cell Lyphoma. I am getting the normal jitters and fears that seem to overtake you both mentally and physically at times. To make things worse, I woke up Sat with a pretty bad sinus infection and a fever from it.…
New to the site
My navigator suggested that I check out this site and possibly sign up. I have Stage III Hodgkins mutiple sclerosis and have had one ABVD treatment so far with the next one in a week. I am still having ups and downs dealing with the knowledge that I have cancer, but most days, other than not being able to do anything,…

Lymphoma (Hodgkin and Non-Hodgkin)

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