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Lymphoma (Hodgkin and Non-Hodgkin)

Lumps on jaw and behind ear
Hi all. I have a hard painless lump that moves on my jawline, has been there at least 7-8 years. I also have a hard painless lump behind my ear which does not move and has been there maybe 2 years. I thought nothing of them until the last few months when I have been having night sweats. I also get very itchy at night,…
anyone referred to hematologist/oncologist BEFORE your diagnosis
hello all. I am just writing to ask if anyone of you saw a hematologist/oncologist before anyone gave you a diagnosis? I am being referred due to some lymph nodes in my neck not having a fatty hilum or central vascularity. Just wanted to know what to expect at the appointment next week.
myelodysplastic syndrome (MDS) - why my Stem Cell Transplant is being delayed
So the abnormal cells in the my bone are called myelodysplastic syndrome. These cells can convert into acute myeloid leukemia (AML). This is why they are not using my stem cells for the transplant. I am going to have to go for another bone marrow biopsy but not sure how soon. Reading up on MDS I have found that certain…
Welcome Back Max
Glad you are well. I would have written sooner but I spilled my granola, kale, quinoa, pomegrante, carrot and black cohosh smoothie on my keyboard and had to get a new one. The old keyboard is healthy but won't work. Take care man and bless you.
Just checking in to say hello
havent posted recently so I wanted to write and say things are going well I think. Had my second chemo on the 9th and it leaves me with nausea which is manageable, but I sure can't hang out online or type very long or the nausea starts winning the fight! So I want to wish everyone well and I'll be back on here in a couple…
Life and exercise after RCHOP
After 6 rounds of RCHOP for Large B Cell Mediastinal Lymphoma, my oncologist said I was in remission. It has been three months since, and although my energy is returning I still don't feel 100% It seems like everyone around me expects me to be completely back to normal! One of my issues is that I am in the Air National…
IPad App
there is an IOS application available for Apple IPad and iphone which has a wealth of cancer info in a concise, easy to read form. It is called the CMH or Cancer Management Handbook. I find it very useful Source for basic info and definition of cancer terms.
mcl cancer pain and relief
i have been diagnosed with stage 3 mcl and have been thru every step they have given me....up til now and im about to start chemo, its called nordic something or another, inpatient treatment for 3 weeks at a time for 5 different sessions. my side has started to hurt around the spleen area, any one have any ideas on what im…
Sick since 2008 with no diagnosis
I found this site because I continue to try to find out what is wrong with me. I fell sick in June of 2008 by waking up in the middle of the night itching like crazy. Went to the dr. and liver count was high. Had what looked like chigger bites on my stomach. My son had just returned from Boyscout camp. After 7 seven years…
To hell and back...
One year ago after many doctor visits, scans and biopsies I was diagnosis with Follicular Lymphoma. I had a swollen lymph node in my neck. Upon arriving home from a funeral I learned my Doctor was trying to reach me, he was in South Korea. I knew it wasn't going to be good news. It was 2:00 in the morning his time. When he…
I am so thankful!
that I am not a turkey ...... Have a wonderful Thanksgiving!
Need help please
Hi am new here and II would love for you to hear my story. I do not know what it is for sure. A mass was found between liver and pancreas found out today its coming from pancreas doctor did not elaborate. They want to a endoscopy. I mentioned this to someone and they mentioned lymphoma not pancreatic cancer.I had a swollen…
I need opinions. Not sure where to get second opinion.
I have had a very large, hard non moveable occipital lymphnode since the beginning of Dec. I had a neck CT which showed multiple swollen nodes but my CBC is fine. Doc wants to wait for 3 months and repeat tests. I don't like this plan. I am exhausted, itchy but all over and not extreme and have had trouble with tolerating…
pain in neck
My husband has follicular iymphoma and is having pain in the neck where most of the cancer is--is this normal--he had it once before and the doctor had him do a round of antibiotics and then said that it was not needed--still not sure --any help would be appreciated--should i take him to the hospital
Chemo almost finished -Next Step Radiation
My husband has his fourth out of four Intrathecal chemo tomorrow and his sixth out of six R-CHOP treatments on Monday. The mass near the abdominal aorta showed excellent response to the R-CHOP according to the PET scan done after R-CHOP round four. We met with the radiation oncologist today and he will begin radiation on…
Chemo done - CT scan done - large nodes found - next?
I have follicular lymphoma, diagnosed last Dec and R-Chop started in June. I had my last chemo mid-May and the last Rituxan 3 weeks later in June. About 2 weeks ago I had my After Chemo CT scan. Results sent to Dr at Rush to be evaluated. He called me this last Monday to say that some lymph nodes are larger than they…
Lymph nodes getting smaller
When I was diagnosed with Hodgkin's lymphoma it was because I had swollen lymph nodes on my clavicle bone. They found about 8 of them 2 to 3 cm in diameter and I had a big bump that you could see without looking too hard. It got bigger at some point during pregnancy and then something weird happened! After I gave birth the…
Scared....
Hi all, im sure you regulars are tired of the tired of the scared newbies, I apologize but im about to make yet another post about being scared $#!tless. August 2014 I was diagnosed ultrasound and CT scan with a borderline enlarged spleen (approx. 13.4 cm) and fatty liver after complaining of pain under my ribs. My doctor…
My Dad has just been diagnosed with HSTCL
Hi everyone I found your page when trying to come to grips with my Dad's diagnosis and understand a bit about this type of lymphoma. My Dad is 68, and in October 2014 went to hospital after having had some really bad unexplained bruises. One simply appeared before his eyes after shaking a shaving can. He was diagnosed with…
Swollen lymph node in neck
For about two months now I have had a enlarged lymph node on the right side of my neck and one to the left side of my thyroid. My family Dr. said my thyroid was enlarged. Not true a PA at a local free clinic said it is lymph nodes and put me on two weeks of antibiotics, needless to say hasn't helped. I have lupus, since…
Hodgkins survivor 32 years later
32 years ago at age 20 I was diagnosed with Hodgkins Disease, I went through a radiation program which lasted approx. 6 months, lost a ton of weight, hair and looked like I had 3rd degree burns on my torso. I'm now 52 years old and still here. A few years back i had heart issues and fortunately I received two stents before…
Stage 1 Per T cell Lymphoma
I am a 67 year old male rrecently diagnosed with Stage 1 Perif T Cell Lymphoma. I have had 3 different "specialists" advise 3 different treatment plans. I can't find anyone with stage 1 to see what they've done. Anyone out there with advice?
Scary Symptoms
Hey Everyone! I not sure what is going on with my body. I was hoping i could see if anyone with Lymphoma had similar symtoms or if i am way off. 1. For the last two months I've had urtacaria and angioedema everyday. At times I itch like nothing I've experienced. It never seems to be satisfied. It moves and it isnt always…
Has anyone taken a break in between R-Chop treatments bc of weakness and fatigue
My mother was diagnosed with stage 4 DLBCL in late July 2015 and just finished her third R-CHOP treatment. She was otherwise healthy and very mobile before the diagnosis, 76 years old. She has lost 40 pounds and is extremely weak and fatigued. she can barely walk on her own now and can't be alone. I honestly don't see how…
mcl diagnosis
Please help, I am a nervous wreck as my dad just got diagnosed with mantle cell lymphoma . He is 67 and in great shape and akways takes care of himself. We are all just in shock:( the stuff I am reading doesn't sound great but also from years ago on the web. Can anyone offer any advice or questions or anything we should…
Brand new diagnosis
i am 65, male, and was diagnosed with diffused large B cell lymphoma. My appointment with the oncologist for a bone marrow biopsy is Wed the 7th. I want to thank everyone for being here and when I get more information I'll be back. Thank you all.
Levaquin
Greetings, Anyone have odd effects from being treated by Levaquin? Had a severe respiratory infection last spring and was given a course of this antibiotic. Experienced some of the more common side-effects but at a CT scan 2-3 months later in June, they found enlarged nodes. They confirmed with a PET that some were hot,…
RICE treatment onto Stem Cell Transplant
Met with my oncologist today and the final word on my FNHL is that although the tumor had shrunk a lot after the first 4 R-CHOP treatments, there wasn't much shrinkage after the last two. So my options are to do Rituxan to try and keep the cancer held back. Radioimmunotherapy which I had not read up on at all. RICE…
A true class act
RIP Flip Saunders.
Radiation, Blood Counts, and R-CHOP
I am curious about radiation after R-CHOP. My husband has finished four out of six rounds of R-CHOP and has received two out of four preventative Intrathecal treatments. His WBC is very low (0.5) and will be having his PET scan in a few days to see if the chemo has been effective. The fatigue is much greater after round…

Lymphoma (Hodgkin and Non-Hodgkin)

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