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Lymphoma (Hodgkin and Non-Hodgkin)

Bottled water and floride
Dear Jim and all, Jim, I was lucky to find this information right away. I am pasting 2 paragraphs I found online. It seems Poland Spring has the smallest amount of floride, and yes i was correct. If the bottle is labeled "reverse osmosis filtered" or "steam distilled" that very little if any of the original source water's…
Swollen Lymph Node in Groin and other pains
I do apologize for posting here. I read your stories and am amazed by the courage and bravery here. I apologize because i have not been dianosed with HL or NHL, but have issues and concerns and a doctor who is very dismissive. Here is my story. June 2013 I get terrible pain in behind right testicle. Diagnosed with…
LRF (Leukemia Research Foundation) for All Blood Cancers
Today I was at a Town Hall meeting held locally by the LRF. They had 5 doctors from major hospitals in the Chgo area, who specialize in the blood cancers. (One of them is the Dr I am seeing at Rush.) The Town Hall was people asking questions and the doctors answering them. There were some vendors there to povide…
lizz888--Stem Cell Transplant Update
Hi, All! This post is just to add to the posts here from those anticipating stem cell transplants or who already received their transplants. After 6 rounds of RCHOP failed to put my dad's lymphoma into remission (although it certainly looked like it was going to) he went right on to RICE and prep for a stem cell…
Regaining Energy and Strength after Bendamustine and Rituxan
My friend has completed Benamustine and Rituxan treatments. He wondered how long it would take for him to regain his previous energy level and strength Thanks!
Bone Marrow Transplant
In November last year I had my bone marrow transplant. I was my own donor. It's been 5 months since my last treatment and I'm doing great. I'm glad it's all over and I'll never do that again.
Can results vary with different scan methods?
Hi! It has been 1 year since I received the news that my Follicular Lymphoma was in complete resolution. I had received 2 PET Scans- one with the iinitial diagnosis and one after 4 treatments with Bendamustine and Ritauximab. One year later, my doctor did a CAT scan (my first). In the findings they said that one of the…
Stem Cell
Well it looks like stem cell will be in my near future, not going to lie, i am very nervous about it all, Oncologist said this is my only option at this time, i have heard good results and a few bad, i hope this will be it for me as far as treatment goes for a very long time, will post more as i learn more, please pray i…
Windows Study for Mantle Cell
Hey folks. Just a note to let you all know I'm still here and doing well. I've been in the Windows Study at MD Anderson for the past 4 months. I just finished a trip to Houston and had a PET scan and BMB done. They were NED. Praise God!!! I still have to have a colonoscopy done and if that is clear then on to a heavy dose…
Symptoms
Hello. I'm on here not because i was diagnosed with this form of cancer or any cancer, but because for the past almost two years I have been having symptoms that point in that direction. Around March of 2014 is when I noticed the symptoms. I was getting sharp pains in my stomach daily, pain in my groin and pelvic area, was…
Peripheral T cell Lymphoma shown in Skin first
hello everyone I'm the granddaughter of a newly dignosed NHL patient. My grandfather is still in the process of finding out which type of T cell lymphoma he has. He has had a biopsy done which states simply "Cuteanous Lymphoma". Nothing more and nothing less. He has had a CT scan which showed an enlarged lymph node in his…
DLCBL partial response to RCHOP.
My dad had indolent SMZL that later transformed into an aggressive form. After 6 rounds of RCHOP, we were hopeful for full remission. Unfortunately, his recent pet scan showed what I believe is only a partial response. I'm heart broken. I think it's on to a SCT. Are there any success stories out there anyone can offer?
Newly Diognosed Indolent Non Hodgkins
Hello, I'm 55 and just diagnosed with what my oncologist is calling indolent non hodgkins. I recently had rotator cuff surgery and, because my MRI came back with unusual findings in my bone marrow, my doctor did a bone biopsy during the rotator surgery which came back low grade b class lymphoma. My oncologist examied me…
Newly Diagnosed with Ocular Lymphoma sadly no subtype identified from biopsy
My 70 year old mom was finally diagnosed with Ocular (eye) Lymphoma after vitrectomy procedure. Suffreing from uveitis and inflammation and vision problems for over a year. Her Lymphoma is in Uveitis area or viteous fluid of eye. The report says they were not able to idently sub type. Could not do CD 20 marker. Only told…
How to Read Health News
I have mentioned, here on this forum, more than one time, one of my favorite websites for current information on lymphoma. Lymphomation.org. At the discussion boards, they recently linked an article from Blood, a weekly medical journal published by the American Hematological Society. The article is titled How to Read…
New to the group. Any one has Primary Intraocualr Lymphoma?
Hello, My mom (61 years old) was diagnosed with Primary intraocular lymphoma in early February 2014. Primary intraocular lymphoma is lymphoma in the eyeball, and considered as CNS lymphoma. She has diffused large B-cell type lymphoma in her right eye only. Her brain MRI and chest, abdominal, and pelvis CT scan came out…
Shouldn't the ENT be doing blood tests and other differentials before going right to a lymph node re
After a pet scan showed obvious multi layer swelling of nodes (1.5 to 1.9cm) one one side of my neck and a few in my abdomen, they are saying lymphoma. THE initial biopsy via FNA (fine needle aspiration) came back inclunclusive or at least that said the cells were atypical. So now I'm scheduled to see my ENT oncologist and…
Update on DLBCL treatments
My husband finished six rounds of R-CHOP and four rounds of Methotrexate, administered in the spine, in late November. He started 17 sessions of radiation on December 14th and is faithfully using Aquaphor to prevent burn. It is really greasy, and he has to make sure he gets it all off in the shower before treatment, but it…
biopsy-false negative?
I have a question i have been struggling with and thought i would come here. I noticed a swollen lymphnode at my groin on the right side in March 2014. Saw my doctor in April ( about 6 weeks after i found it) he put me on a round of Keflax antibiotics and said to call if it didnt go down. Well it didnt go down so he…
Last scheduled chemo
Hi All, My last scheduled chemo is Tuesday, two weeks after that is my last methotrexate treatment. One part of me wants to jump with joy, the other part of me is nervously waiting for what is next! I'll have a PET a few weeks after my final treatment which should give some insight on what's going on. I did have 2 CT scans…
hello
Just taking a moment to check in and say Hi to all my friends out there in lymphomaland.. Happy upcoming Holidays to all, hope you are all doing well. I have been staying out of trouble, well sort of.....see this chemistry class is pretty rough I most likely will not pass it. It is unfortunate that chemo has ruined my…
First Chemo Treatment on the 9th
Greetngs all...got my diagnosis two weeks ago and things are moving quickly, will find out Thursday if it has spread ..I guess this will determine the length of the chemo treatments . Feeling overwhelmed a bit nervous about the chemo..Any positive feedback or advice will be appreciated...Thanks I will find out Thursday…
Needing some experienced encouragement
Dear All, Although it's my dad who has cancer, I am writing this mostly for myself. I really need some encouragement and some more experienced voices to talk me through this As many of you know, my dad was diagnosed with low grade Splenal Marginal Zone Lymphoma in November, 2014, at the age of 67. He was treated and sent…
Adoptive T Cell Therapy
I just learned about this today. The way these articles talk, this is going to be all the rage in the world of refractory/relapsed lymphoma. Has anyone ever heard of re-engineered T-cell therapy and, if so, what have you heard about it? http://www.medscape.com/viewarticle/830742
Update on DLBCL
Hey, All! My dad just finished a round of R-CHOP with hopes that he would be in remission. Unfortunately, yesterday's scan revealed that he's not. Once they've verified that the cancer is back/still here, the plan is fro R-ICE + ASCT. Does anyone have any successful experience with this? We are heartbroken.
Some information please
by way of introduction, I normally post on the kidney cancer board since my husband has renal cancer. my question is for my daughter-in-law; her mom was recently diagnosed with stage 4 lymphoma (has spread to her bones). My daughter-in-law said it is slow-growing and treatment will be radiation only at this time. Her mom…
Update on Mantle Cell
I haven't posted in a while although I've been here, just silent. I wanted to give you all an update before I leave in a week on a treatment of Mantle Cell of which I will be taking part. MD Anderson is hosting a clinical trial in Houston for patients that are newly diagnosed and untreated. The first part of the trial…
Third Line DLBCL Treatment
So after two rounds of RICE, I had my Pet Scan last Thursday. For some reason the results were released to me electronically before seeing my doctor later today. Unfortunately it looks like one tumor grew slightly while one remained the same. I also have 2 FDG Avid peripancreatic lymph nodes that are more prominent and 2…
Lower back and side pain during at the end of last 2 chemo treatments. Hoping someone can help me :(
Ok my last 2 chemo treatments I have experienced a weird side effect and or possible allergic reaction. At the end of my treatment I get this muscle spasm/pulsating/gripping pain sensation in my lower back right where my torn disc is in my L5S1 area and the feeling radiates through to my hips. My 3rd treatment I also felt…
Neulasta
I've already gotten 1 Neulasta shot the day after chemo and my doctor has me scheduled for a shot this week and a shot next week and then I'm supposed to start chemo again on the 16th. Everything I've read says that you shouldn't take Neulasta within 14 days of starting chemo (and typically it's only given once per…

Lymphoma (Hodgkin and Non-Hodgkin)

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