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Lymphoma (Hodgkin and Non-Hodgkin)

Update on DLBCL treatments
My husband finished six rounds of R-CHOP and four rounds of Methotrexate, administered in the spine, in late November. He started 17 sessions of radiation on December 14th and is faithfully using Aquaphor to prevent burn. It is really greasy, and he has to make sure he gets it all off in the shower before treatment, but it…
biopsy-false negative?
I have a question i have been struggling with and thought i would come here. I noticed a swollen lymphnode at my groin on the right side in March 2014. Saw my doctor in April ( about 6 weeks after i found it) he put me on a round of Keflax antibiotics and said to call if it didnt go down. Well it didnt go down so he…
Last scheduled chemo
Hi All, My last scheduled chemo is Tuesday, two weeks after that is my last methotrexate treatment. One part of me wants to jump with joy, the other part of me is nervously waiting for what is next! I'll have a PET a few weeks after my final treatment which should give some insight on what's going on. I did have 2 CT scans…
hello
Just taking a moment to check in and say Hi to all my friends out there in lymphomaland.. Happy upcoming Holidays to all, hope you are all doing well. I have been staying out of trouble, well sort of.....see this chemistry class is pretty rough I most likely will not pass it. It is unfortunate that chemo has ruined my…
First Chemo Treatment on the 9th
Greetngs all...got my diagnosis two weeks ago and things are moving quickly, will find out Thursday if it has spread ..I guess this will determine the length of the chemo treatments . Feeling overwhelmed a bit nervous about the chemo..Any positive feedback or advice will be appreciated...Thanks I will find out Thursday…
Needing some experienced encouragement
Dear All, Although it's my dad who has cancer, I am writing this mostly for myself. I really need some encouragement and some more experienced voices to talk me through this As many of you know, my dad was diagnosed with low grade Splenal Marginal Zone Lymphoma in November, 2014, at the age of 67. He was treated and sent…
Adoptive T Cell Therapy
I just learned about this today. The way these articles talk, this is going to be all the rage in the world of refractory/relapsed lymphoma. Has anyone ever heard of re-engineered T-cell therapy and, if so, what have you heard about it? http://www.medscape.com/viewarticle/830742
Update on DLBCL
Hey, All! My dad just finished a round of R-CHOP with hopes that he would be in remission. Unfortunately, yesterday's scan revealed that he's not. Once they've verified that the cancer is back/still here, the plan is fro R-ICE + ASCT. Does anyone have any successful experience with this? We are heartbroken.
Some information please
by way of introduction, I normally post on the kidney cancer board since my husband has renal cancer. my question is for my daughter-in-law; her mom was recently diagnosed with stage 4 lymphoma (has spread to her bones). My daughter-in-law said it is slow-growing and treatment will be radiation only at this time. Her mom…
Update on Mantle Cell
I haven't posted in a while although I've been here, just silent. I wanted to give you all an update before I leave in a week on a treatment of Mantle Cell of which I will be taking part. MD Anderson is hosting a clinical trial in Houston for patients that are newly diagnosed and untreated. The first part of the trial…
Third Line DLBCL Treatment
So after two rounds of RICE, I had my Pet Scan last Thursday. For some reason the results were released to me electronically before seeing my doctor later today. Unfortunately it looks like one tumor grew slightly while one remained the same. I also have 2 FDG Avid peripancreatic lymph nodes that are more prominent and 2…
Lower back and side pain during at the end of last 2 chemo treatments. Hoping someone can help me :(
Ok my last 2 chemo treatments I have experienced a weird side effect and or possible allergic reaction. At the end of my treatment I get this muscle spasm/pulsating/gripping pain sensation in my lower back right where my torn disc is in my L5S1 area and the feeling radiates through to my hips. My 3rd treatment I also felt…
Neulasta
I've already gotten 1 Neulasta shot the day after chemo and my doctor has me scheduled for a shot this week and a shot next week and then I'm supposed to start chemo again on the 16th. Everything I've read says that you shouldn't take Neulasta within 14 days of starting chemo (and typically it's only given once per…
Lumps on jaw and behind ear
Hi all. I have a hard painless lump that moves on my jawline, has been there at least 7-8 years. I also have a hard painless lump behind my ear which does not move and has been there maybe 2 years. I thought nothing of them until the last few months when I have been having night sweats. I also get very itchy at night,…
anyone referred to hematologist/oncologist BEFORE your diagnosis
hello all. I am just writing to ask if anyone of you saw a hematologist/oncologist before anyone gave you a diagnosis? I am being referred due to some lymph nodes in my neck not having a fatty hilum or central vascularity. Just wanted to know what to expect at the appointment next week.
myelodysplastic syndrome (MDS) - why my Stem Cell Transplant is being delayed
So the abnormal cells in the my bone are called myelodysplastic syndrome. These cells can convert into acute myeloid leukemia (AML). This is why they are not using my stem cells for the transplant. I am going to have to go for another bone marrow biopsy but not sure how soon. Reading up on MDS I have found that certain…
Welcome Back Max
Glad you are well. I would have written sooner but I spilled my granola, kale, quinoa, pomegrante, carrot and black cohosh smoothie on my keyboard and had to get a new one. The old keyboard is healthy but won't work. Take care man and bless you.
Just checking in to say hello
havent posted recently so I wanted to write and say things are going well I think. Had my second chemo on the 9th and it leaves me with nausea which is manageable, but I sure can't hang out online or type very long or the nausea starts winning the fight! So I want to wish everyone well and I'll be back on here in a couple…
Life and exercise after RCHOP
After 6 rounds of RCHOP for Large B Cell Mediastinal Lymphoma, my oncologist said I was in remission. It has been three months since, and although my energy is returning I still don't feel 100% It seems like everyone around me expects me to be completely back to normal! One of my issues is that I am in the Air National…
IPad App
there is an IOS application available for Apple IPad and iphone which has a wealth of cancer info in a concise, easy to read form. It is called the CMH or Cancer Management Handbook. I find it very useful Source for basic info and definition of cancer terms.
mcl cancer pain and relief
i have been diagnosed with stage 3 mcl and have been thru every step they have given me....up til now and im about to start chemo, its called nordic something or another, inpatient treatment for 3 weeks at a time for 5 different sessions. my side has started to hurt around the spleen area, any one have any ideas on what im…
Sick since 2008 with no diagnosis
I found this site because I continue to try to find out what is wrong with me. I fell sick in June of 2008 by waking up in the middle of the night itching like crazy. Went to the dr. and liver count was high. Had what looked like chigger bites on my stomach. My son had just returned from Boyscout camp. After 7 seven years…
To hell and back...
One year ago after many doctor visits, scans and biopsies I was diagnosis with Follicular Lymphoma. I had a swollen lymph node in my neck. Upon arriving home from a funeral I learned my Doctor was trying to reach me, he was in South Korea. I knew it wasn't going to be good news. It was 2:00 in the morning his time. When he…
I am so thankful!
that I am not a turkey ...... Have a wonderful Thanksgiving!
Need help please
Hi am new here and II would love for you to hear my story. I do not know what it is for sure. A mass was found between liver and pancreas found out today its coming from pancreas doctor did not elaborate. They want to a endoscopy. I mentioned this to someone and they mentioned lymphoma not pancreatic cancer.I had a swollen…
I need opinions. Not sure where to get second opinion.
I have had a very large, hard non moveable occipital lymphnode since the beginning of Dec. I had a neck CT which showed multiple swollen nodes but my CBC is fine. Doc wants to wait for 3 months and repeat tests. I don't like this plan. I am exhausted, itchy but all over and not extreme and have had trouble with tolerating…
pain in neck
My husband has follicular iymphoma and is having pain in the neck where most of the cancer is--is this normal--he had it once before and the doctor had him do a round of antibiotics and then said that it was not needed--still not sure --any help would be appreciated--should i take him to the hospital
Chemo almost finished -Next Step Radiation
My husband has his fourth out of four Intrathecal chemo tomorrow and his sixth out of six R-CHOP treatments on Monday. The mass near the abdominal aorta showed excellent response to the R-CHOP according to the PET scan done after R-CHOP round four. We met with the radiation oncologist today and he will begin radiation on…
Chemo done - CT scan done - large nodes found - next?
I have follicular lymphoma, diagnosed last Dec and R-Chop started in June. I had my last chemo mid-May and the last Rituxan 3 weeks later in June. About 2 weeks ago I had my After Chemo CT scan. Results sent to Dr at Rush to be evaluated. He called me this last Monday to say that some lymph nodes are larger than they…
Lymph nodes getting smaller
When I was diagnosed with Hodgkin's lymphoma it was because I had swollen lymph nodes on my clavicle bone. They found about 8 of them 2 to 3 cm in diameter and I had a big bump that you could see without looking too hard. It got bigger at some point during pregnancy and then something weird happened! After I gave birth the…

Lymphoma (Hodgkin and Non-Hodgkin)

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