Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Lymphoma (Hodgkin and Non-Hodgkin)

Symptoms
Hello. I'm on here not because i was diagnosed with this form of cancer or any cancer, but because for the past almost two years I have been having symptoms that point in that direction. Around March of 2014 is when I noticed the symptoms. I was getting sharp pains in my stomach daily, pain in my groin and pelvic area, was…
Peripheral T cell Lymphoma shown in Skin first
hello everyone I'm the granddaughter of a newly dignosed NHL patient. My grandfather is still in the process of finding out which type of T cell lymphoma he has. He has had a biopsy done which states simply "Cuteanous Lymphoma". Nothing more and nothing less. He has had a CT scan which showed an enlarged lymph node in his…
DLCBL partial response to RCHOP.
My dad had indolent SMZL that later transformed into an aggressive form. After 6 rounds of RCHOP, we were hopeful for full remission. Unfortunately, his recent pet scan showed what I believe is only a partial response. I'm heart broken. I think it's on to a SCT. Are there any success stories out there anyone can offer?
Newly Diognosed Indolent Non Hodgkins
Hello, I'm 55 and just diagnosed with what my oncologist is calling indolent non hodgkins. I recently had rotator cuff surgery and, because my MRI came back with unusual findings in my bone marrow, my doctor did a bone biopsy during the rotator surgery which came back low grade b class lymphoma. My oncologist examied me…
Newly Diagnosed with Ocular Lymphoma sadly no subtype identified from biopsy
My 70 year old mom was finally diagnosed with Ocular (eye) Lymphoma after vitrectomy procedure. Suffreing from uveitis and inflammation and vision problems for over a year. Her Lymphoma is in Uveitis area or viteous fluid of eye. The report says they were not able to idently sub type. Could not do CD 20 marker. Only told…
How to Read Health News
I have mentioned, here on this forum, more than one time, one of my favorite websites for current information on lymphoma. Lymphomation.org. At the discussion boards, they recently linked an article from Blood, a weekly medical journal published by the American Hematological Society. The article is titled How to Read…
New to the group. Any one has Primary Intraocualr Lymphoma?
Hello, My mom (61 years old) was diagnosed with Primary intraocular lymphoma in early February 2014. Primary intraocular lymphoma is lymphoma in the eyeball, and considered as CNS lymphoma. She has diffused large B-cell type lymphoma in her right eye only. Her brain MRI and chest, abdominal, and pelvis CT scan came out…
Shouldn't the ENT be doing blood tests and other differentials before going right to a lymph node re
After a pet scan showed obvious multi layer swelling of nodes (1.5 to 1.9cm) one one side of my neck and a few in my abdomen, they are saying lymphoma. THE initial biopsy via FNA (fine needle aspiration) came back inclunclusive or at least that said the cells were atypical. So now I'm scheduled to see my ENT oncologist and…
Update on DLBCL treatments
My husband finished six rounds of R-CHOP and four rounds of Methotrexate, administered in the spine, in late November. He started 17 sessions of radiation on December 14th and is faithfully using Aquaphor to prevent burn. It is really greasy, and he has to make sure he gets it all off in the shower before treatment, but it…
biopsy-false negative?
I have a question i have been struggling with and thought i would come here. I noticed a swollen lymphnode at my groin on the right side in March 2014. Saw my doctor in April ( about 6 weeks after i found it) he put me on a round of Keflax antibiotics and said to call if it didnt go down. Well it didnt go down so he…
Last scheduled chemo
Hi All, My last scheduled chemo is Tuesday, two weeks after that is my last methotrexate treatment. One part of me wants to jump with joy, the other part of me is nervously waiting for what is next! I'll have a PET a few weeks after my final treatment which should give some insight on what's going on. I did have 2 CT scans…
hello
Just taking a moment to check in and say Hi to all my friends out there in lymphomaland.. Happy upcoming Holidays to all, hope you are all doing well. I have been staying out of trouble, well sort of.....see this chemistry class is pretty rough I most likely will not pass it. It is unfortunate that chemo has ruined my…
First Chemo Treatment on the 9th
Greetngs all...got my diagnosis two weeks ago and things are moving quickly, will find out Thursday if it has spread ..I guess this will determine the length of the chemo treatments . Feeling overwhelmed a bit nervous about the chemo..Any positive feedback or advice will be appreciated...Thanks I will find out Thursday…
Needing some experienced encouragement
Dear All, Although it's my dad who has cancer, I am writing this mostly for myself. I really need some encouragement and some more experienced voices to talk me through this As many of you know, my dad was diagnosed with low grade Splenal Marginal Zone Lymphoma in November, 2014, at the age of 67. He was treated and sent…
Adoptive T Cell Therapy
I just learned about this today. The way these articles talk, this is going to be all the rage in the world of refractory/relapsed lymphoma. Has anyone ever heard of re-engineered T-cell therapy and, if so, what have you heard about it? http://www.medscape.com/viewarticle/830742
Update on DLBCL
Hey, All! My dad just finished a round of R-CHOP with hopes that he would be in remission. Unfortunately, yesterday's scan revealed that he's not. Once they've verified that the cancer is back/still here, the plan is fro R-ICE + ASCT. Does anyone have any successful experience with this? We are heartbroken.
Some information please
by way of introduction, I normally post on the kidney cancer board since my husband has renal cancer. my question is for my daughter-in-law; her mom was recently diagnosed with stage 4 lymphoma (has spread to her bones). My daughter-in-law said it is slow-growing and treatment will be radiation only at this time. Her mom…
Update on Mantle Cell
I haven't posted in a while although I've been here, just silent. I wanted to give you all an update before I leave in a week on a treatment of Mantle Cell of which I will be taking part. MD Anderson is hosting a clinical trial in Houston for patients that are newly diagnosed and untreated. The first part of the trial…
Third Line DLBCL Treatment
So after two rounds of RICE, I had my Pet Scan last Thursday. For some reason the results were released to me electronically before seeing my doctor later today. Unfortunately it looks like one tumor grew slightly while one remained the same. I also have 2 FDG Avid peripancreatic lymph nodes that are more prominent and 2…
Lower back and side pain during at the end of last 2 chemo treatments. Hoping someone can help me :(
Ok my last 2 chemo treatments I have experienced a weird side effect and or possible allergic reaction. At the end of my treatment I get this muscle spasm/pulsating/gripping pain sensation in my lower back right where my torn disc is in my L5S1 area and the feeling radiates through to my hips. My 3rd treatment I also felt…
Neulasta
I've already gotten 1 Neulasta shot the day after chemo and my doctor has me scheduled for a shot this week and a shot next week and then I'm supposed to start chemo again on the 16th. Everything I've read says that you shouldn't take Neulasta within 14 days of starting chemo (and typically it's only given once per…
Lumps on jaw and behind ear
Hi all. I have a hard painless lump that moves on my jawline, has been there at least 7-8 years. I also have a hard painless lump behind my ear which does not move and has been there maybe 2 years. I thought nothing of them until the last few months when I have been having night sweats. I also get very itchy at night,…
anyone referred to hematologist/oncologist BEFORE your diagnosis
hello all. I am just writing to ask if anyone of you saw a hematologist/oncologist before anyone gave you a diagnosis? I am being referred due to some lymph nodes in my neck not having a fatty hilum or central vascularity. Just wanted to know what to expect at the appointment next week.
myelodysplastic syndrome (MDS) - why my Stem Cell Transplant is being delayed
So the abnormal cells in the my bone are called myelodysplastic syndrome. These cells can convert into acute myeloid leukemia (AML). This is why they are not using my stem cells for the transplant. I am going to have to go for another bone marrow biopsy but not sure how soon. Reading up on MDS I have found that certain…
Welcome Back Max
Glad you are well. I would have written sooner but I spilled my granola, kale, quinoa, pomegrante, carrot and black cohosh smoothie on my keyboard and had to get a new one. The old keyboard is healthy but won't work. Take care man and bless you.
Just checking in to say hello
havent posted recently so I wanted to write and say things are going well I think. Had my second chemo on the 9th and it leaves me with nausea which is manageable, but I sure can't hang out online or type very long or the nausea starts winning the fight! So I want to wish everyone well and I'll be back on here in a couple…
Life and exercise after RCHOP
After 6 rounds of RCHOP for Large B Cell Mediastinal Lymphoma, my oncologist said I was in remission. It has been three months since, and although my energy is returning I still don't feel 100% It seems like everyone around me expects me to be completely back to normal! One of my issues is that I am in the Air National…
IPad App
there is an IOS application available for Apple IPad and iphone which has a wealth of cancer info in a concise, easy to read form. It is called the CMH or Cancer Management Handbook. I find it very useful Source for basic info and definition of cancer terms.
mcl cancer pain and relief
i have been diagnosed with stage 3 mcl and have been thru every step they have given me....up til now and im about to start chemo, its called nordic something or another, inpatient treatment for 3 weeks at a time for 5 different sessions. my side has started to hurt around the spleen area, any one have any ideas on what im…
Sick since 2008 with no diagnosis
I found this site because I continue to try to find out what is wrong with me. I fell sick in June of 2008 by waking up in the middle of the night itching like crazy. Went to the dr. and liver count was high. Had what looked like chigger bites on my stomach. My son had just returned from Boyscout camp. After 7 seven years…

Lymphoma (Hodgkin and Non-Hodgkin)

Discussion List

Discussion Boards