Severe Aortic Stenosis Due to Radiation for Childhood Cancer

RebekahA

I am a 35 year cancer survivor looking for other long term childhood cancer survivors who had radiation (to the chest or mantle) and have been diagnosed with severe aortic stenosis (as a long term side affect from the radiation) and need a valave replacement but are considered high risk (due to lung capacity because of radiation as well).

I was 3 when originally diagnosed with undifferentiated sarcoma and underwent surgery, intense radiation and two years of chemo. i have severe arotic stenosis that is considerably getting worse and am going for more investigative testing to determine if surgery will be possible.

Anyone out there?